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Date: Tue, 11 Dec 2001 00:12:08 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 10th. 2001
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Good Morning All,
Here's the overnight "News & Views".... from the media
Cloned rat embryos... Parthenotes... The Beat Goes On...
Many tiny research steps to aid further research...
Cheers ........ murray
ARTICLE: Liberal Pundit Michael Kinsley Has Parkinson's Disease
http://www.nypost.com/news/nationalnews/36253.htm
NEWS: French Firm Clones the World's First Rat Embryo
http://www.abcnews.go.com/wire/SciTech/reuters20011210_256.html
ARTICLE: 'Parthenotes' Expand the Debate on Stem Cells
http://www.washingtonpost.com/wp-dyn/articles/A18046-2001Dec9.html
ARTICLE: Will Cloning Debate Draw Funding?
http://www.austin360.com/statesman/editions/today/business_5.html
ARTICLE: Be Thoughtful About Cloning
http://kz.mlive.com/news/index.ssf?/news/stories/20011210kopnedit12102.frm
* * *
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Date: Tue, 11 Dec 2001 16:35:11 +0800
Reply-To: Parkinson's Information Exchange Network
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From: Bob & Joy Graham <[log in to unmask]>
Subject: Re: Barb Blake-Krebs
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We will certainly be thinking of Barb.
I am sure she will be alright soon
Thanks for letting us know
Joy Graham
>Dear list friends,
>Barb Blake-Krebs' husband Fred asked me to let the list know that she
>was admitted to Kansas University Medical Center on Friday due to
>confusion and disorientation. Fred said this all came on suddenly Friday
>afternoon, and her condition has been worsening. She's now receiving
>food and meds through a nasal tube. He thinks they will be trying to add
>an anti-psychotic drug tomorrow and hopes that she will respond. Barb
>is 61 and was diagnosed 16 years ago.
>Please add Barb to your thoughts and prayers tonight.
>Linda
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
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Bob & Joy Graham
37 D Fremantle Village
Lot 1, Cockburn Rd
South Fremantle WA 6162
Australia
Ph & Fax (08) 9430 4730
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Date: Tue, 11 Dec 2001 07:19:42 EST
Reply-To: Parkinson's Information Exchange Network
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From: Kathleen Cochran <[log in to unmask]>
Subject: Re: Love You Can Bank On
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Sorry about the blank message - my cat stepped on the keyboard and fired off
a reply!
I guess he liked Clay's piece, as I did, and wanted to express his
appreciation.
Kathleen
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Date: Tue, 11 Dec 2001 04:31:19 -0800
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Murray Charters <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Dec. 9th. 2001
In-Reply-To: <[log in to unmask]>
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On 10 Dec 2001, at 17:26, Jeanette Fuhr wrote:
> Thanks for continuing to send us encouraging news
> that PD research is continuing. I cannot think of a
> better wish for 2002 than a cure for PD.
>
> Jeanette Fuhr 51/47/44?
>
Hi Jeanette and Good Morning All,
I always look for the "encouraging news" but don't
always find it. It would be my dream come true to
"announce" a cure! I firmly believe we will see that day!
Until then, I will continue to welcome each sunrise
with positive expectations.
cheers ....... murray
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Date: Tue, 11 Dec 2001 07:22:23 EST
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From: MyFirstname Mylastname - Francine Hailman <[log in to unmask]>
Subject: Re: Love You Can Bank On
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didn't get this message yet! thanks.
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Date: Tue, 11 Dec 2001 05:38:53 -0800
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From: Murray Charters <[log in to unmask]>
Subject: CANADA: Reaction To The Federal Budget
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Another Good News Budget for Health Research
http://www.newswire.ca/releases/December2001/11/c5697.html
Strategic Investment in Health Research to Benefit
Canada's Contribution to World Health
http://www.newswire.ca/releases/December2001/10/c5587.html
Critical Support for Canadian Health Research Provided in New Budget
http://www.newswire.ca/releases/December2001/10/c5650.html
Sick Kids welcomes research funding in budget
http://www.newswire.ca/releases/December2001/10/c5543.html
Budget 2001 - Full Text
http://www.newswire.ca/budget01/
Budget 2001 - Investing in Health Initiatives
http://www.newswire.ca/budget01/bp/bpch6e.htm#si2
Budget offers little new money for health, environment or child poverty
http://www.recorder.ca/cp/national/011210/n1210196A.html
Nurses: What is "security" without health security?
http://www.newswire.ca/releases/December2001/10/c5561.html
"There's nothing for health, there's nothing extra for education,"
http://www.recorder.ca/cp/national/011210/n1210185A.html
http://www.canoe.ca/NationalTicker/CANOE-wire.Fedbudget-Reaction.html
Security spending trumps social agenda in new federal budget
http://www.recorder.ca/cp/national/011210/n1210162A.html
The Globe & Mail - Budget 2001
http://www.globeandmail.com/budget2001
Health care dealt double blow on federal budget day
as BC health committee calls for user fees and higher premiums
http://www.newswire.ca/releases/December2001/10/c5644.html
* * *
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Date: Tue, 11 Dec 2001 06:20:44 -0800
Reply-To: supermario <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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Subject: Re: Journalist reveals his Parkinson's
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Here is part of it, Mary:
WIRE: 12/09/2001 4:04 pm ET
Slate editor Michael Kinsley discloses that he has Parkinson's disease
The Associated Press
NEW YORK (AP) Journalist Michael Kinsley says he has had Parkinson's disease
for eight years but didn't go public with the revelation because he was in
denial.
"Denial means letting the disease affect your life as little as possible,"
Kinsley, the editor of the online magazine Slate, writes in Time magazine's
Dec. 10 edition. "In fact, it means pretending as best you can that you
don't even have it."
Kinsley, 50, says that only a few people knew his secret "but in the past
couple of years, it seems to me, the symptoms have become more evident."
Kinsley says he was offered the editorship of The New Yorker three years ago
but the offer was withdrawn after he told "the owner" that he had
Parkinson's.
"I chose to believe him that the Parkinson's didn't matter," Kinsley says.
"To withdraw the offer for that reason would be, among other things,
probably illegal. But I also doubt that he would have made the offer in the
first place had he known all along."
Conde Nast spokeswoman Maurie Perl said the publisher had no comment.
Kinsley, 50, is a former editor of The New Republic and has co-anchored
CNN's "Crossfire."
Parkinson's, which results from nerve-cell damage in the brain, causes
muscle tremors and stiffness and affects more than 1 million Americans. It
is incurable but not usually fatal.
----- Original Message -----
From: <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 10, 2001 9:09 PM
Subject: Journalist reveals his Parkinson's
> Hi, Folks !
> A bit o' news!
>
> On P.14 in The New York Daily News, December 10, 2001, GReg Wilson,
> a Daily News staff writer, reports that journalist, Editor Michael
Kinsley,
> age 50, former host of CNN program "Crossfire" reveals that he has had
> Parkinson's disease for eight years. .
> Kingsley has written a first-person essay appearing in this week's issue
of
> TIME magazine.
>
> I'll try to get the Time essay to our List, somehow.
>
> Mehmoirs@ aol.com (Mary Manfredi)
>
> ----------------------------------------------------------------------
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Date: Tue, 11 Dec 2001 13:18:26 -0600
Reply-To: Parkinson's Information Exchange Network
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From: Leo Fuhr <[log in to unmask]>
Subject: Re: Love You Can Bank On
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Love You Can Bank OnLove you can bank on is daily displayed by my 87 yr =
old father and soon to be 83 yr old mother. Dad visits mom daily at the =
nursing home where she has been since July 2000 due to Alzheimer's. He =
tucks her in at night and calls her my sweetheart as he kisses her =
goodnight. =20
Thanks, Clay for writing such a lovely, strong piece about lasting =
love.
Jeanette Fuhr 51/47/44?
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Date: Tue, 11 Dec 2001 16:58:21 EST
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Subject: Fwd: Michael Kinsley article
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Linda found it !
mm
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From: Linda J Herman <[log in to unmask]>
Mary,
Here it is - found on Lexis/Nexis this morning. Super article - Pleas
post to list if you'd like.
L
Time
December 17, 2001
SECTION: First Person; Pg. 72
HEADLINE: In Defense Of Denial;
A noted journalist, given a diagnosis of Parkinson's, makes the case for
kidding
yourself about bad news
BYLINE: Michael Kinsley
" If you're going to get a serious disease--and, unless you'd prefer to
die
violently and young, you're probably going to--Parkinson's is not your
worst
choice. It is progressive and, at the moment, incurable. But, like its
victims,
it tends to move slowly. It is not generally fatal--meaning that there's
enough
time for something else to get you first. There is also enough time for a
cure
to come along, which might well happen if politics don't get in the way.
And
Parkinson's is fashionable these days. It's a hot disease, thanks to
celebrity
sufferers like the Pope, Billy Graham, Janet Reno, Muhammad Ali and
Michael J.
Fox. Even, they say, Yasser Arafat.
I might not have chosen to contract this old people's malady at age
42,
although you must admit it's a pretty good joke on someone who used to
like
being precocious. If life is a race to the finish line, I'm years ahead
now.
There are three ways to deal with news like this: acceptance,
confrontation
or denial. Acceptance is an aspiration, not a strategy. Confrontation
means
putting the disease at the center of your life: learning as much as you
can
about it, vigorously exploring alternative therapies, campaigning for
more
research funding and so on. Denial means letting the disease affect your
life as
little as possible. In fact, it means pretending as best you can that you
don't
even have it.
To me, confrontation and denial seem like equally valid strategies,
and the
choice between them is one of personal taste. Most people mix 'n' match.
But
there is no question as to which approach has society's approval. Our
culture
celebrates aggressive victimhood. The victim--victim of almost
anything--who
fights back is one of the master narratives of our time, in plays and
movies, on
TV talk shows, in books, in politics, in lawsuits. Meanwhile, few things
are
more socially disapproved than inauthenticity or a refusal to face
reality. In
choosing confrontation, you embrace the "community" of your fellow
victims--another socially approved value. In choosing denial, you are
guilty of
"self-hatred," like a Jew or an African American putting on Wasp airs
or--worse--trying to "pass" as a white Christian.
I don't mean to ridicule these notions. Even eight years along, I can
still
pass as healthy most of the time, or could until this week; but there has
been a
slight pang of disloyalty to the cause in doing so. A woman with multiple
sclerosis once said to me, unknowingly, about disease activists in
general: "We
all pray for someone famous to get our disease." Although I am a very
minor
public figure compared with the Pope--let alone Michael J. Fox!--I
haven't been
doing my bit.
Nevertheless, when I got the diagnosis eight years ago, I chose
denial. If
ever you're entitled to be selfish, I thought (and still think), this is
it. So
I see a good doctor, take my pills most of the time and go about my
business. I
couldn't tell you some of the most basic things about Parkinson's and how
it
works. Modern culture may favor confrontation, but we are genetically
hard-wired, or at least I am, with a remarkable capacity for denial. It
helps,
of course, that the symptoms have been mild. Most days for the past eight
years
I've hardly given a thought to Parkinson's disease.
In the early stages, Parkinson's is mainly a matter of foreboding,
which
makes denial an especially effective therapy. If you fool yourself
skillfully
enough, you can banish thoughts of the disease but retain a liberating
sense of
urgency. It's like having a Get Out of Jail Free card from the prison of
delayed
gratification. Skip the Democratic Convention to go kayaking in Alaska?
Absolutely. Do it now, in case you can't do it later. So what if you had
zero
desire to kayak in Alaska until faced with the prospect that someday you
couldn't? You want to now. And that's good. Although I wouldn't actually
recommend Parkinson's for this reason, the diagnosis is a pretty valuable
warning shot from the Grim Reaper. The victims of Sept. 11 had minutes to
list
their regrets. I've got decades to scratch items off the list.
So I recommend denial--and defend it as a legitimate option. To work
effectively, though, denial requires secrecy, and secrecy pretty much
requires
deception. It's simply easier to go through the day not thinking about
Parkinson's disease if the people you interact with don't know you have
it. This
complicates the case for denial. Deceiving yourself may offend the
cultural
prejudice in favor of relentless self-knowledge, but it does not offend
me. What
you do with yourself in the privacy of your head is nobody else's
business. On
the other hand, deceiving those around you is more troublesome.
Especially if
you're a journalist, whose whole professional value system is wrapped up
in the
idea of the truth: demanding it of others, telling it yourself.
For eight years I have tried not to tell outright lies, but there have
been
some Clintonian evasions and prissy parsing. (Q: "You look tired. Are you
O.K.?"
A: "I feel fine.") And my basic intention has been to deceive. So I'm
sorry
about that. Some topics--Is it decaf?--require absolute honesty. With
others--military secrets, noncontagious diseases--there may be legitimate
exceptions.
The least a misfortune can do to make up for itself is to be
interesting.
Parkinson's disease has fulfilled that obligation, among other ways, by
plunging
me into a maze of deception and self-deception. I have no idea how well
my
deception efforts have worked, and I don't intend to believe everyone who
claims
to have known all along. But in the past couple of years, it seems to me,
the
symptoms have become more evident. There have been rumors. And the short,
somewhat random, list of people who know my secret because I told them
has got
longer--probably too long for all the pledges of secrecy to hold.
I've come to assume that many or even most of the people I interact
with
every day actually do know my secret and are pretending not to. It's been
like
living in that classic childhood fantasy (which was the basis for the Jim
Carrey
movie The Truman Show) that what seems like reality is actually a giant
play
that everyone else is performing for your benefit. Only this play has a
Pirandellian twist: while people are putting on a performance for you,
you are
putting on a performance for them. Or are they? (And are you?) Even this
orgy of
mutual pretense was better than facing the truth in every dealing with
other
people, I thought, and still think.
But eventually, plugging holes in the dike comes to seem more trouble
than
it's worth. So now I'm out. The next phase will be interesting as well.
Call it
part two in a controlled experiment testing those fancy French theories
about
disease as a social construct. I was officially, publicly healthy. Now,
with
almost no objective medical change, I am officially, publicly sick. How
will
that change the actual effect of the disease? Without, I hope, distorting
the
experiment, I predict that this notion of disease as a function of
attitudes
about disease will turn out to be more valid than I would have suspected
eight
years ago.
Those around me who knew will be able to stop acting, but my acting
burden
will probably increase. Everyone I deal with will be scrutinizing me for
symptoms--loving friends and relatives most of all--just as I scrutinize
friends
and relatives who are chronically ill. Up to now my audience has been
either
nonsuspecting or constrained to pretend it didn't suspect. In the future
everyone will all know the script I'm trying not to follow. My
performance, to
be convincing, will have to be better than normal. If you're normal, or
people
think you are, you can clear your throat or trip on a rug or complain of
a
headache without raising alarms or eyebrows. When people know it is
partly
performance, you can't.
Anyone who develops a chronic disease in mid-career dreads being
written
off--being thought of prematurely in the past tense. Three years ago, I
was
offered the editorship of the New Yorker. I told the owner I had
Parkinson's and
invited him to change his mind, but he generously said it didn't matter.
A few
hours later, though, he withdrew the offer with no explanation. I chose
to
believe him that the Parkinson's didn't matter. To withdraw the offer for
that
reason would be, among other things, probably illegal. But I also doubt
that he
would have made the offer in the first place had he known all along.
Parkinson's is the disease most likely to be cured by stem-cell
research,
which is enmeshed in controversy. As I wrote in TIME a few months ago,
you can't
really criticize people whose reason for opposing research that uses
embryos is
that they truly believe embryos are fully human beings. But you can
criticize
politicians who try to escape this yes-or-no dilemma with calls for
compromise
or delay or prestigious panels to study the situation and report back in
a few
months. Can't they hear that sound of clocks ticking? Tempus fugit,
assholes.
As we've all discovered since Sept. 11, the news is a lot more
interesting
when your life may depend on it. So that's another little plus of having
Parkinson's disease. I don't delude myself that the pluses add up to
equal the
minuses. Though I may give that a try.
Michael Kinsley is the editor of Slate.com
Time, December 17, 2001
GRAPHIC: COLOR PHOTO: REX RYSTEDT FOR TIME, EVASIONS Kinsley, at home on
Seattle's Lake Washington, is tired of deception
--part1_144.62ec110.2947db7d_boundary--
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Date: Tue, 11 Dec 2001 21:36:02 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 11th. 2001
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Good Morning All,
Here's the overnight "News & Views".... from the media
Get Well Muhammad!
Cheers ........ murray
NEWS: Congressional Vote Could Mean $143 Million
in Funding to Fight Parkinson's Disease
http://www.nypost.com/health/36374.htm
The Art of Growing Brain Cells
http://dailynews.yahoo.com/h/hsn/20011210/hl/the_art_of_growing_brain_cell=
s_1.html
Prince of Wales to meet Ali biopic stars
http://www.ananova.com/news/story/sm_470304.html
Boxing stars out in force for Muhammad Ali film
http://www.ananova.com/entertainment/story/sm_471163.html
Knockout royal premi=E8re for Ali
http://news.bbc.co.uk/hi/english/entertainment/film/newsid_1703000/1703246=
.stm
* * *
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Date: Wed, 12 Dec 2001 05:40:41 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Murray Charters <[log in to unmask]>
Subject: Bravo Deb and Thankyou Dr. Tatter
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Good Morning All,
I have a cold and took some Ny-Quill cold preparation that acted
adversely on my Parkinson's and left me particularly uncomfortable
and sleepless overnight.
I couldn't sleep, so I was surfing the WWWeb and reading my
e-mail and I read this story of a young lady with MSA who's
getting a DBS for Christmas.
cheers ...... murray
Member Receives Pacemaker
PLWP,inc.
Living With Parkinson=92s Disease
P.O. Box 25310, N.Y. 14625-0310716-671-0649
865-932-7624
[log in to unmask]
http://www.plwp.org
Press Release:
Deborah Setzer:
704) 588-9797
FOR IMMEDIATE RELEASE
December 10, 2001
North Carolina woman to receive brain pacemaker
and raise awareness for parkinson=92s disease
awareness,
N.C.--December 10, 2001=97 Local woman fighting
for her life and the lives of others.
Setzer, Financial Consultant for and active
member of an online Parkinson's non-profit
organization PLWP, Inc., People Living With
Parkinson=92s, is living a life of quiet
deterioration and remarkable courage. Deborah
is 39 and lives with the terrible knowledge
that her disease is killing her rapidly, much
more quickly than regular Parkinson's. You see,
she has M.S.A. (Multiple System Atrophy).
Rather than sit around and feel sorry for
herself, this human dynamo has sought out the
talents of Dr. Stephen B. Tatter of Wake-Forest
University in Winston-Salem, N.C.
/Fellowship: Neurosurgery
Massachusetts General Hospital
Harvard Medical School
MD/PhD Degrees:
Cornell University Medical College/The Rockefeller University
Undergraduate: The University of Michigan Ann Arbor
Together these brave people, along with
Deborah's caregiver and supportive husband,
Robert Setzer,Sr. and her family, have
decided to face this disease head-on
(so to speak!!).
On December 21st of this month, Deb will
undergo a type of experimental brain
surgery-a DBS (Deep Brain Stimulator)
for MSA.
Deb will be raising money for PLWP, Inc.
which has an on-line support group at
"http://www.plwp.org"
and who=92s primary mission it is to maintain
quality of life both for the person diagnosed
and they=92re family and friends. After the
risk of infection is over, she will be
accepting donations to autograph her
bald head. She is also donating her hair
to the Children=92s Cancer society, giving
some little girl a brighter outlook on life.
Deborah Setzer at (704-588-9797)or one
of the two Co-Founders of PLWP:
Nancy Abraham (716) 671-0649
or Brenda Tucker at (865) 932-7624.
* * *
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 22:17:04 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob & Joy Graham <[log in to unmask]>
Subject: Re: Anyone in the Kingston Ontario area?
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Hello all,
I was wondering if there are any PIEN members out there - my son and his
wife have gone to live there (actually on Wolfe Island) and I thought it
would be great to let them know if any of you are close by - perhaps he
could visit on my behalf!
Just dreaming from the other side of the world!
Cheers to all
Joy Graham
Bob & Joy Graham
37 D Fremantle Village
Lot 1, Cockburn Rd
South Fremantle WA 6162
Australia
Ph & Fax (08) 9430 4730
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 11:08:56 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Deborah L Setzer <[log in to unmask]>
Subject: Thank You Murray
MIME-Version: 1.0
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Murray,
I just wanted to say Thank You from the bottom of my heart for
posting this. I have just 9 days before my DBS surgery and I really
want to use this to raise the public's awareness of PD. I cannot do
this alone. Your help is so very much appreciated. I hope others
reading this will send it to their local radio stations, television
stations and newspapers as well as their politicians. Together we can
make a difference.
Again, my deepest gratitude,
Deborah
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 10:21:59 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: John Cottingham
<[log in to unmask]>
Subject: Parkinsn Eighth Year Anniversary
MIME-version: 1.0
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Parkinsn's Eighth Anniversary just passed and we are still here doing what
we can to help one another and work to facilitate a cure. Many of us have
participated in drug and surgery studies. Many have participated in surveys
and more will come in the new year. Some have had DBS and have made
significant progress on delaying the progression of our symptoms. What all
this means is still yet to be determined.
New mechanisms of treatment hold great promise, but haven't we heard it all
before? Perhaps stem cells will provide the avenue for treatment and even
the promise of a cure. The sacrifices of today will bring forth the
successes of tomorrow.
Some of you have lost and refound your connection to parkinsn with all the
turmoil of the ISP problems. Some of our subscribers at Home.com are still
without email service. Perhaps this will sort itself out. If you find your
provider has gone out of business don't worry, just let me know where you
are when you can.
The international scope of parkinsn never ceases to amaze me. Below is the
breakdown where our members are located. We appreciate you all.
I wish you and your families the happiest holidays and thank you for your
loving support through the years.
John Cottingham
co-owner Parkinsn
* Country Subscribers
* ------- -----------
* Argentina 1
* Australia 51
* Austria 1
* Belgium 5
* Brazil 7
* Canada 87
* China 2
* Denmark 4
* Finland 2
* France 3
* Germany 8
* Gibraltar 1
* Great Britain 48
* Hungary 2
* India 5
* Indonesia 1
* Israel 6
* Italy 8
* Japan 2
* Malaysia 1
* Mexico 1
* Netherlands 13
* New Zealand 8
* Norway 1
* Philippines 1
* Portugal 5
* Russian Federation 1
* Saudi Arabia 2
* Singapore 1
* South Africa 7
* Spain 11
* Sweden 2
* Switzerland 3
* Taiwan 1
* Thailand 1
* Tonga 1
* Turkey 1
* USA 1,612
* United Arab Emirates 1
* Virgin Islands (U.S.) 1
* ??? 3
*
* Total number of "concealed" subscribers: 56
* Total number of users subscribed to the list: 1922 (non-"concealed" only)
* Total number of countries represented: 41 (non-"concealed" only)
* Total number of local host users on the list: 0 (non-"concealed" only)
*
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 14:11:37 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Noma DePew <[log in to unmask]>
Subject: Re: Parkinsn Eighth Year Anniversary
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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I'm visiting my new neurologist today, and having an EEG. When I saw him
last week, I mentioned the Parkinson's Group as well as the Caregiver's and
Sparkle Group. He asked that I bring in the information about these groups
so he could pass it on to his patients.
Just thought you might like to hear this....
Bunny
----------------------------------------------------------------------
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Date: Wed, 12 Dec 2001 17:54:26 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Parkinsn Eighth Year Anniversary
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John C - Thanks for publishing the countries in which PIEN operates.
I've often wondered. The two of you are still doing a great job, and
it's good that we FINALLY got back to PD issues. Jo Ann
----------------------------------------------------------------------
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Date: Wed, 12 Dec 2001 23:27:09 -0500
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Linda J Herman <[log in to unmask]>
Subject: Two news articles
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Parkinson's seems to have been in the public spotlight the last few days
-let's hope Congress is listening when they vote on HHS funding bill.
Below is a CNN interview with Michael Kinsley, and an article about
Michael J. Fox speaking at a disabilities conference in Vermont.
FROM: CNN
MORNINGS WITH PAULA ZAHN
December 12, 2001 Wednesday 8:48 AM Eastern Time
HEADLINE: Michael Kinsley Reveals in "Time" Magazine He Was Diagnosed
Eight
Years Ago with Parkinson's Disease
GUESTS: Michael Kinsley
BYLINE: Paula Zahn
"HIGHLIGHT: The former host of CNN's "CROSSFIRE" reveals in "Time"
magazine that
he was diagnosed eight years ago with Parkinson's Disease, and somehow
managed
to keep it a secret until now.
PAULA ZAHN, CNN ANCHOR: Sad to say, sometimes it's take famous victims to
dram attention to a serious disease. Lou Gehrig and ALS. Christopher
Reeve and
spinal cord injury. Woody Guthrie and Huntington's Chorea (ph). And now
the
former host of CNN's "CROSSFIRE" reveals in "Time" magazine that he was
diagnosed eight years ago with Parkinson's Disease, and somehow managed
to keep
it a secret until now.
Here's what he writes in "Time" magazine: "I was officially, publicly
healthy. Now with almost no objective medical change, I am officially,
publicly
sick."
Michael Kinsley, editor of slate.com magazine is in his home base of
Seattle.
We've delighted to have you with us this morning. Sorry you had to set
your
alarm so early to join us, but we really wanted to hear your story this
morning.
How are you feeling this morning, Michael?
MICHAEL KINSLEY, EDITOR, SLATE.COM: I'm feeling fine, Paula. How are
you?
ZAHN: I'm doing great.
So tell me what led to your public disclosure, that you have
Parkinson's,
because you've been fighting it for eight years now?
KINSLEY: Well, it's hard to keep a secret, especially among
journalists, who
are most of my friends and my circle, and I think pretty lucky to keep
secret
for eight years. You know, you tell a couple of people and they tell a
couple
of people, and everyone swears everyone else to secrecy. And you know,
the
symptoms are not extreme, but they're visible, if you're looking for
them. And
I feel fortunate that I kept a secret for eight years, but it was getting
to be
more trouble than it was worth.
ZAHN: And what are some of the symptoms you deal with today?
KINSLEY: Well, as I say, I am very lucky. Many people have it more
severely.
It is progressive, but it tends to move at a steady pace. I don't have
much of
the trembling, which is the main symptom. My facial expressions are a bit
-- you
lose your facial expressions. That's the main thing. And my voice gets a
little
hoarse as you can hear, but that's not too burdensome.
ZAHN: So has there been any sense of relief in making this public
announcement?
KINSLEY: Sure, sure, because as I say, keeping it secret was a bit of
a
burden. I had to shut my door in my office when it was time to talk my
pills
and that sort of thing. So I don't have to do that anymore. There's
also a
certain discomfort in going public that you know everyone you know,
knows, and
it makes me a little bit uncomfortable. But I will probably get used to
that
too.
ZAHN: It was interesting, when Janet Reno first announced that she had
Parkinson's, obviously there was a great deal of empathy for her, and I
think
she once expressed in an interview that she really felt that as a nation
that we
were much grown up in our acceptance of people, you know, of people
exhibiting
such strong physical symptoms, do you agree?
KINSLEY: I think Janet Reno personally has made a great contribution
to that,
by being such a strong attorney general, whether you agreed with her
policies or
not, and I basically did. I think even the people who disagreed with her
would
have to concede that she was certainly strong and certainly effective in
pursuing those policies.
ZAHN: Well, She certainly didn't let her diagnosis slow her down,
that's for
sure.
KINSLEY: No, no, and she's now running for governor, of course.
ZAHN: Let's share with our audience a little bit more of what you
wrote in
"Time". You said Parkinson's is the disease most likely to be cured by
stem
cell research, which is enmeshed in controversy. "As I wrote in 'Time' a
few
months ago, you can't really criticize people who's reason for opposing
research
that used embryos and that they truly believe embryos are fully human
beings,
but you can criticize politicians who try to escape this yes or no
dilemma with
calls for compromise or delay, or prestigious panels to study the
situation or
report back in a few months. Can't they hear the sounds of clocks
ticking?"
Do you plan to join in, in this fight, politically?
KINSLEY: Well, I'm -- first of all, I'm not Michael J. Fox or someone
of that
level of celebrity. And second of all, I am a journalist, so I can't
really
become a full-time or even part-time partisan for a cause. But I intend
in a
smaller way to do my bit, sure.
ZAHN: And how much hope do you think stem cell research holds for you?
KINSLEY: I think it holds tremendous hope for me and for others, not
just
with Parkinson's, but with diabetes and a whole -- Alzheimer's, and the
whole
variety of other diseases. Paralysis of various sorts, and it -- you
know,
everyone kids themselves to some extent about miracles coming along. But
as
near as I can tell, this is I'm not kidding myself.
ZAHN: Quick final thought on what you say to people who are very
opposed to
this kind of research. They say you're destroying human life.
KINSLEY: The life involved is an embryo of less than 100 cells, the
size of a
pinhead. It doesn't know itself. It can't feel anything. It isn't
aware. To
me, my life and the life of hundreds of thousands of other people are
more
valuable than the life of that. If you believe otherwise, it's a matter
of
faith, and I respect that. But you're not going to persuade me, and I
don't
think you're going to persuade a majority of Americans of that.
ZAHN: We're going to have to leave there this morning. Michael
Kingsley, glad
to see you. We wish you the best of luck.
KINSLEY: Thanks, Paula.
ZAHN: We know you will continue to with highly productive, and we're
delighted to hear how your progressing, and hopefully, you will continue
to gain
strength.
KINSLEY: Thank you.
ZAHN: Take care, Michael."
------------------------------------------------------------------
FROM: The Associated Press State & Local Wire
December 12, 2001, Wednesday, BC cycle
6:48 PM Eastern Time
HEADLINE: Actor Michael J. Fox addresses second annual disability
conference
BYLINE: By LISA RATHKE, Associated Press Writer
DATELINE: SOUTH BURLINGTON, Vt
" Actor Michael J. Fox, who for seven years kept his Parkinson's
disease
diagnosis secret, said people with disabilities often fear they will be
defined
by their disability.
"People were concerned that it would define them and they would lose
their
jobs and their insurance," Fox said Wednesday.
Fox spoke at a second annual conference on ways to expand employment
opportunities for the disabled in Vermont.
He encouraged more Vermont businesses to hire people with
disabilities, who
he said were more focussed and committed. "If they are anything like me,
they
have learned to be efficient," Fox said. It's always better to employ
people who
want to be at work, he added.
About 55,000 people with disabilities are unemployed or underemployed
in
Vermont. On Wednesday, state and business officials and advocates
discussed ways
to solve transportation barriers for disabled people who want to work.
They also announced the Vermont Business Leadership Network, an effort
by
businesses to share with other businesses their tactics in employing the
disabled.
After being diagnosed with Parkinson's, a degenerative neurological
disease,
in 1991 at age 30, Fox said he refused to be defined by it. Instead he
said he's
been enhanced by it, describing himself as a "fuller person" since coming
down
with Parkinson's, a disease he described as "a gift that keeps on
taking."
"I was me plus what I've gained through having Parkinson's," he said.
Fox started his acting career as Alex Keaton on NBC's Family Ties when
he was
18. He later starred in a dozen movies including Back the Future and
American
President.
In May 2000 he left the TV series Spin City to start the Michael J.
Fox
Foundation to support research on Parkinson's disease.
On Wednesday, the Vermont Division of Vocational Rehabilitation
donated $
10,000 to the cause.
Fox, who with his wife, once owned a farm in South Woodstock, said he
was
glad to be back in Vermont with its strong sense of community. He said he
was
known well enough at a local diner that he could walk in and, without
saying a
word, have a bowl of turkey soup and a Vermont cheddar sandwich placed in
front
of him."
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 23:18:40 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Neil Shook <[log in to unmask]>
Subject: Re: Love You Can Bank On
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Love You Can Bank OnDear Friends,
My name is Paula. I am 47, married 30 years with daughters 22 and =
20 3/4s. I just want to say that I absolutely loved the way Clay Felts =
explained "Love You Can Bank On". I have had definite signs of PD since =
I was 35, but didn't know what was wrong until I saw neurologists in May =
of 1992. October 30, 2000 I had deep brain stimulation on both sides =
and now I am having pain daily with the wires in the back of my neck. =
When my meds wear off they get extremely tight and painful. This just =
started 11/15/01 (I remember I went to the hairdresser and couldn't rest =
my head in the sink). =20
Back to Ray.....My husband is 8 years older than me and now sex =
isn't important to him anymore. At first I thought it was my depressing =
disease. But now I know he loves me still......because he shows me in =
all the ways Ray mentioned. Thanks for setting me straight, Ray.
Paula Shook
----- Original Message -----=20
From: Clay Felts=20
To: [log in to unmask]
Sent: Tuesday, December 11, 2001 2:47 AM
Subject: Love You Can Bank On
Sunday night I attended a PD funding event in Palm Desert. There I =
saw an older couple (older than me) that reminded me of the following =
definition of love you can bank on. I wrote this piece not too long =
after learning I have PD. At the time I was struggling with finding =
some stability in my life and learning all I could about care-givers. =
Since message traffic is low and the holiday season is in the air, =
perhaps the following definition is not too long or overly idealistic. =20
,,,,Clay=20
-- Love you can bank on --=20
The strongest love comes with age and grows with time and, if you are =
lucky, it is a reward you receive during your final years. It is not =
the passion and fire of youth. It has nothing to do with sex for it is =
beyond the age of reproduction and child rearing. It is what I call =
love you can bank on. It doesn't need to be declared, although it =
helps. It is not feed with trinkets, although it helps. It is a deep =
love developed over time that provides security because you know your =
mate is with you for life, no matter what. It provides the closest =
thing to immortality on Earth because as things change around you, it is =
the one constant. You are truly blessed if your love reaches this =
stage. You know it is there and you can draw from the bank any time you =
need. It is dependable. You are the banker for your partner and your =
partner for you. You are there any time your partner needs and no =
matter what size the withdrawal, you give all you can for this is true =
love.
You cannot enter this stage with anger. You have to drop the petty =
score keeping that develops over the year. You have to forgive and with =
forgiveness comes peace. It is sitting around a warm fire not saying =
much for you respect the daydreams you partner is having of days gone by =
and joys yet to come. You kiss with tenderness more than with passion. =
It is the kind love that takes you to a nursing home to feed your lover =
even though they may fail to recognize you. It is the kind of love =
where you can tease with friends and family about how hard it is to live =
with your partner but they see through the joking and know they are =
witness to something truly special. It is totally without jealousy for =
you have grown to relax and trust. It is the kind of love where you =
partner's independence and achievements give you a warm feeling of pride =
and you freely allow time for them to blossom. Even though you may, at =
times, feel the love is being taken for granted, you know in your heart =
it is love being banked on.
----------------------------------------------------------------------
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=========================================================================
Date: Wed, 12 Dec 2001 21:59:09 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: bonnie clay riley <[log in to unmask]>
Subject: Re: Parkinsn Eighth Year Anniversary
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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Hi Norma
Could you also please mention the PLWP Singles Site to your neurologist. It
is an International site for singles with PD to meet, share information and
promote advocacy. There are 71 of us so far. The url to this site is
http://clubs.yahoo.com/clubs/plwpsinglesclub
Also while I am here promoting please PIEN members get out and support a
very worthwhile survey originated by fellow PIEN members. Pass it onto your
Support Groups, newsletters, PD websites. I am talking about the HOW DID WE
GET HERE SURVEY which can be emailed to you and you can email it back. A
lot of hard work has gone into this worthwhile endeavour and the deadline is
coming up. They need everyone's help. For the survey email Edith Love
(note her new email address) at
[log in to unmask]
and return completed surveys to Mario Gonzalez at
[log in to unmask]
Thanks everyone.
Bonnie in Prince Rupert, B.C>
----- Original Message -----
From: "Noma DePew" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, December 12, 2001 11:11 AM
Subject: Re: Parkinsn Eighth Year Anniversary
> I'm visiting my new neurologist today, and having an EEG. When I saw him
> last week, I mentioned the Parkinson's Group as well as the Caregiver's
and
> Sparkle Group. He asked that I bring in the information about these
groups
> so he could pass it on to his patients.
> Just thought you might like to hear this....
> Bunny
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Thu, 13 Dec 2001 05:59:41 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 12th. 2001
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
Good Morning All,
Here's the overnight "News & Views".... from the media
If they can "fix" a monkey's spine ... maybe there's hope
fer an ol' apes "Elevator Back"!
Cheers ........ murray
NEWS: Stem cells used to heal monkey spines
http://www.japantimes.co.jp/cgi-bin/getarticle.pl5?nn20011211a2.htm
NEWS: Infant Asian biotech sector faces teething problems
http://www.siliconvalley.com/docs/regions/asia/065225.htm
Michael Kinsley: A Healthy State of Denial
http://www.guardian.co.uk/health/story/0,3605,617716,00.html
OPINION:=A0Cloning for healing: the end that justifies the means
http://www.smh.com.au/news/0112/13/opinion/opinion4.html
OPINION: The Weaknesses of Science for Profit
http://www.nytimes.com/2001/12/04/opinion/04VARM.html
OPINION: Religious Right Hijacks Stem Cell Debate
http://www.boston.com/dailyglobe2/344/oped/Religious_right_hijacks_stem_ce=
ll_debate+.shtml
BOSTON: Lawmakers to debate partial ban on human cloning
http://www.boston.com/dailynews/345/region/Lawmakers_to_debate_partial_ba:=
.shtml
NEWS: Monkey Spinal Injuries 'Repaired' Using Stem Cells
http://www.ananova.com/news/story/sm_470673.html?menu=3Dnews.scienceanddis=
covery
* * *
----------------------------------------------------------------------
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=========================================================================
Date: Thu, 13 Dec 2001 07:19:32 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Janice Morgan <[log in to unmask]>
Subject: Re: Non-invasive Device Study and MSA
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Phil,
What is MSA. Janice
----- Original Message -----
From: Phil E.Gesotti <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 10, 2001 5:47 AM
Subject: Re: Non-invasive Device Study and MSA
> > phil,
> > i am interested in learning more about this study, live in the dc area
> > so travel is not a great problem. However, i was recently diagnosed
> > with msa. fortunately i am in the 25% who responds to parkinson's
> > medication. would i be elegablle for this study?
> >
> > thank you.
> > cathy 52/dx pd 47/dx msa 52
> >
> >
>
> Cathy,
>
> Since we don't understand why it works for some people and not for
> others, I don't see why it wouldn't be worth a shot. The key symptom we
> are looking for is start hesitation and freezing. Since it is a cueing
> device, if you respond to other external cues, such as, sounds,
> caregiver touch, patterns on walls/floors, there is a good chance that
> you will respond to the device. If you find it easier to lift your arms
> when holding some kind of weight versus empty handed, then you might
> also benefit from the device.
>
> If you feel at times that you can't initiate movement because your
> muscles are locked from fighting each other, this would be another good
> sign. Also, inability to time movements is a symptom that might respond.
>
> Characterizing patient symptoms that respond to the device is what the
> study is all about.
>
> Phil Gesotti 52/dx 46
>
> ----------------------------------------------------------------------
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> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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Date: Thu, 13 Dec 2001 07:54:23 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: bonnie clay riley <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Dec. 12th. 2001
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
G-Morning. I thought it was one of those websites you built????? Sorry, no
sleep last night - off to First Aid course. Yuck!
Bonnie
----- Original Message -----
From: "Murray Charters" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 13, 2001 5:59 AM
Subject: News & Views From The Overnight Newswire - Dec. 12th. 2001
> Good Morning All,
> Here's the overnight "News & Views".... from the media
>
> If they can "fix" a monkey's spine ... maybe there's hope
> fer an ol' apes "Elevator Back"!
>
> Cheers ........ murray
>
> NEWS: Stem cells used to heal monkey spines
> http://www.japantimes.co.jp/cgi-bin/getarticle.pl5?nn20011211a2.htm
>
> NEWS: Infant Asian biotech sector faces teething problems
> http://www.siliconvalley.com/docs/regions/asia/065225.htm
>
> Michael Kinsley: A Healthy State of Denial
> http://www.guardian.co.uk/health/story/0,3605,617716,00.html
>
> OPINION: Cloning for healing: the end that justifies the means
> http://www.smh.com.au/news/0112/13/opinion/opinion4.html
>
> OPINION: The Weaknesses of Science for Profit
> http://www.nytimes.com/2001/12/04/opinion/04VARM.html
>
> OPINION: Religious Right Hijacks Stem Cell Debate
>
http://www.boston.com/dailyglobe2/344/oped/Religious_right_hijacks_stem_cell
_debate+.shtml
>
> BOSTON: Lawmakers to debate partial ban on human cloning
>
http://www.boston.com/dailynews/345/region/Lawmakers_to_debate_partial_ba:.s
html
>
> NEWS: Monkey Spinal Injuries 'Repaired' Using Stem Cells
>
http://www.ananova.com/news/story/sm_470673.html?menu=news.scienceanddiscove
ry
>
> * * *
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Thu, 13 Dec 2001 08:33:24 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: v perry <[log in to unmask]>
Subject: New to List from Rosemount, MN 47 have had PD 12 Yrs F
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hello List Members,
I found this list on the People Living With
Parkinson's and Dumpster website. I have been living
with the diagnose of PD for about 12 years. My
disease has recently begun progressing more rapidly.
I am taking 1 Mirapex, 1 Sinemet Regular 25/100, 1
Sinemet CR 25/100 all 4 times a day. I add an extra
Sinemet CD 25/100 at night to try to get more than 3
hours of sleep. My doctor recently tried switching me
from Mirapex to Requip. Within 2 days I was reduced
to a sobbing heap on the couch. Switched back to
Mirapex and am back to where I was. The drugs seem to
wear off earlier all the time. When the drugs wear
off I feel famished and need to eat or next dose
doesn't work. Anyone else have that problem?
I am a musician and music teacher. I have cut back
from 40 private lesson students to 18, but still find
myself canceling lessons at the last minute as unable
to teach due to symptoms. Can no longer solo but am
still able to play with groups.
Am married to a music teacher who is also the very
best drummer in the twin cities. He signed his life
sentence with me 6 months before my diagnose. It was
his great sence of humor that attracted me to him and
I don't know how we could have made it through the
last 12 years without it.
Well I am rambling too much. Would love to meet you.
Would also be interested in participating in the
survey regarding the cause of Parkinson's.
Best regards,
Vicky
__________________________________________________
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctions for all of
your unique holiday gifts! Buy at http://shopping.yahoo.com
or bid at http://auctions.yahoo.com
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 12:56:33 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: Parkinsn Eighth Year Anniversary
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/12/2001 10:00:37 PM Pacific Standard Time,
[log in to unmask] writes:
> Hi Norma (actually my name is Noma)
>
> Could you also please mention the PLWP Singles Site to your neurologist.
> It
> is an International site for singles with PD to meet, share information and
> promote advocacy. There are 71 of us so far. The url to this site is
> http://clubs.yahoo.com/clubs/plwpsinglesclub
>
>
I'll be most happy to do that......
When I visited the Neuro's office for my EEG exam yesterday, I gave him (via
his nurse) the info I have gathered re the Parkinson's Group, the Caregiver's
Group, and the Sparkle Group.....I know he will be happy to have this
additional information...
If there are any other groups you think he should have, let me know.
Bunny
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 13:21:31 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bonnie <[log in to unmask]>
Subject: SPARKLE list available
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
******* Subject: SPARKLE list available
Due to an abundance of non-PD posts on PIEN, the SPARKLE list was created &
came into existance on August 15, 1999.
SPARKLE stands for Smiling PARKies Live Easier
You are welcome to post any topic on SPARKLE, including jokes, urls,
tributes, poems, riddles, chitchat, & even some(times) PD talk. Altho we
love to laugh, we also cry together. We have even been known to twinkle the
nose of a Bunny Wabbit. Come join the fun to see what we are all about &
unload from the stresses & strains of the world of PD.
You may join by sending a (blank) e-mail to
[log in to unmask]
Or you may join thru our website at
http://www.geocities.com/sparklelist
SPARKLE list-owners
Bonnie Rowley
<[log in to unmask]>
Hans van der Genugten
<[log in to unmask]>
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.306 / Virus Database: 166 - Release Date: 12/4/01
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 16:05:57 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Oprah Show and medical research
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Hi All -
Earlier this week the Oprah Show flew yours truly out to Chicago from my home
in Rhode Island. I was invited to participate in their Medical Miracles
episode. To my surprise it is scheduled for broadcast tomorrow; Friday,
December 14. Check your local listings for time/channel.
The surgeon, Dr. Schumacher, also flew in from Florida to take part in this.
And as guests of the show we were treated like Royalty! Fabulous hotel,
great food, stretch limo, etc.
Any questions after the show? Feel free to write directly to me.
Jim Finn
----------------------------------------------------------------------
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=========================================================================
Date: Thu, 13 Dec 2001 17:51:36 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Hi all , my mom is 65 and has PD for the last 7 years , she also had =
other problems such as arthritis , mainly in her left ankle and heel. =
Her toes are also badly affected by the PD , her toes are literally =
curled up which also interferes with her walking.. Her doctor told her =
she needs to excercise , such as walking , but needless to say she is in =
pain when she walks , at best she can walk for minutes at a time before =
she has to sit down. I want to help her find some type of video =
instruction that will help with her dilema . Any ideas ?
Peace be with you
cc
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 17:02:24 -0600
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: samantha pudge <[log in to unmask]>
Organization: QUALCOMM Eudora Web-Mail (http://www.eudoramail.com:80)
Subject: Re: PD excercise tape
Mime-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
carmen,
try chair dancing. there are two tapes - one for exercise and one for toning. voth are done sitting in a chair.
http://www.chairdancing.com/
--
On Thu, 13 Dec 2001 17:51:36 carmen wrote:
>Hi all , my mom is 65 and has PD for the last 7 years , she also had other problems such as arthritis , mainly in her left ankle and heel. Her toes are also badly affected by the PD , her toes are literally curled up which also interferes with her walking.. Her doctor told her she needs to excercise , such as walking , but needless to say she is in pain when she walks , at best she can walk for minutes at a time before she has to sit down. I want to help her find some type of video instruction that will help with her dilema . Any ideas ?
>
>Peace be with you
>cc
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
>
Join 18 million Eudora users by signing up for a free Eudora Web-Mail account at http://www.eudoramail.com
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 15:37:47 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: David Moreland <[log in to unmask]>
Subject: 2 of everey thing
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
I am geting two of each post which I get from parkinsn. Is there a way to
get one of them to stop coming?
Yours and His
David L. MORELAND
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 13 Dec 2001 21:58:44 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: : Parkinsn Eighth Year Anniversary
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
John & whoever,
I think that the count of subscribers from Mexico is - - 0. We just moved
from Mexico back to Iowa, and I do not know of others who live there.
Happy Holidays
Nancy V
----------------------------------------------------------------------
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=========================================================================
Date: Thu, 13 Dec 2001 21:01:07 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Leo Fuhr <[log in to unmask]>
Subject: Re: New to List from Rosemount, MN 47 have had PD 12 Yrs F
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Welcome to PIEN. This is a good place to learn from others. We do all
react differently to meds. Seems like we often are in a "time to change"
with meds. I'm increasing agonist to try to extend and improve how my body
uses sinemetCR.
Try us out and learn and share.
Jeanette Fuhr
Vicki wrote about...
Subject: New to List from Rosemount, MN 47 have had PD 12 Yrs F
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 00:03:49 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bill Bell <[log in to unmask]>
Subject: Autoreply: PARKINSN Digest - 12 Dec 2001 to 13 Dec 2001
(#2001-655)
I will be out of the office from December 13th thru December 31st.
Please contact Craig Howard at 206-935-6275 OR email
[log in to unmask] if you need immediate assistance.
Have a wonderful holiday season.
Bill
Bill Bell
Executive Director
Northwest Parkinson's Foundation
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 00:20:17 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: v perry <[log in to unmask]>
Subject: Re: New to List from Rosemount, MN 47 have had PD 12 Yrs F
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Hi Leo,
Thanks for your response. I had tried increasing my agonist (Miripex) but began having memory problems so had to cut back. May try adding Comtan though. I tried it once before with no apparent relief of symptoms, but may not have given it enough time.
Best Regards,
Vicky Lynn
Leo Fuhr <[log in to unmask]> wrote: Welcome to PIEN. This is a good place to learn from others. We do all
react differently to meds. Seems like we often are in a "time to change"
with meds. I'm increasing agonist to try to extend and improve how my body
uses sinemetCR.
Try us out and learn and share.
Jeanette Fuhr
Vicki wrote about...
Subject: New to List from Rosemount, MN 47 have had PD 12 Yrs F
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
---------------------------------
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctionsfor all of your holiday gifts!
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 05:58:11 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: 2 of everey thing
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi David,
I am also getting 2 of everything, and am wondering how to stop them .
peace be with you
cc
----- Original Message -----
From: "David Moreland" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 13, 2001 6:37 PM
Subject: 2 of everey thing
> I am geting two of each post which I get from parkinsn. Is there a way to
> get one of them to stop coming?
> Yours and His
> David L. MORELAND
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 06:03:38 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Samantha,
Thank you so much for you swift reply . This is the perfect tape for my mom
. Thank you again !
God Bless You
cc
----- Original Message -----
From: "samantha pudge" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 13, 2001 6:02 PM
Subject: Re: PD excercise tape
> carmen,
>
> try chair dancing. there are two tapes - one for exercise and one for
toning. voth are done sitting in a chair.
>
> http://www.chairdancing.com/
>
>
> --
>
> On Thu, 13 Dec 2001 17:51:36 carmen wrote:
> >Hi all , my mom is 65 and has PD for the last 7 years , she also had
other problems such as arthritis , mainly in her left ankle and heel. Her
toes are also badly affected by the PD , her toes are literally curled up
which also interferes with her walking.. Her doctor told her she needs to
excercise , such as walking , but needless to say she is in pain when she
walks , at best she can walk for minutes at a time before she has to sit
down. I want to help her find some type of video instruction that will help
with her dilema . Any ideas ?
> >
> >Peace be with you
> >cc
> >
> >----------------------------------------------------------------------
> >To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> >In the body of the message put: signoff parkinsn
> >
>
>
> Join 18 million Eudora users by signing up for a free Eudora Web-Mail
account at http://www.eudoramail.com
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 05:56:52 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MyFirstname Mylastname - Francine Hailman <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
My Mom who is 72 has had tremours for at least l0 years, mainly in her
hands. She can barely hold a glass or eat her food now. I have developed
tremours mainly in my hands also. I am wondering if there are any
alternative medications that control the tremours? I am also interested in
any information on tremours. Thanks.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 06:06:10 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape
Comments: To: Kay Misiter <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Hi Kay,=20
The attachment you sent me didnt open , can you tell me what it is ? =
thanks
You_ARE_FAT!.MP3.scr (29.0KB)
peace be with you=20
cc
----- Original Message -----=20
From: Kay Misiter=20
To: [log in to unmask]
Sent: Thursday, December 13, 2001 8:11 PM
Subject: Re: PD excercise tape
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 04:01:06 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 13th. 2001
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Good Morning All,
Here's the overnight "News & Views".... from the media
Stem Cells; Gene Therapy; Better Drugs; A Cure!
"mesenchymal stem cell research"
Put that in your "glossary"...
A "Major Breakthrough" is a'comin'!
Cheers ........ murray
BBC NEWS: Stem cell transplant boost
http://news.bbc.co.uk/hi/english/health/newsid_1706000/1706305.stm
NEWS: Britain to Allow In-Vitro Selection
http://dailynews.yahoo.com/h/ap/20011213/hl/designer_babies_2.html
NEWS: Gene Therapy Studied for Muscular Dystrophy
http://dailynews.yahoo.com/h/nm/20011212/hl/therapy_1.html
NEWS: Sickle Cell Cured in Mice
http://dailynews.yahoo.com/h/hsn/20011213/hl/sickle_cell_cured_in_mice_1.html
NEWS: Drugs to Spur New Cells, and Without the Politics
http://dailynews.yahoo.com/h/nyt/20011213/bs/drugs_to_spur_new_cells_and_without_the_politics_1.html
* * *
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 08:13:54 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Francine, I would e-mail Dr. Lieberman -- he has experience with all
kinds of movement disorders and usually answers within 24 hours. If
you'd like to write him, go to:
http://www.parkinson.org/
Scroll down the page to:
Ask Dr. Lieberman, NPF Medical Director
Click on this, and follow the directions.
Best,
Kathrynne
MyFirstname Mylastname - Francine Hailman wrote:
>
> My Mom who is 72 has had tremours for at least l0 years, mainly in her
> hands. She can barely hold a glass or eat her food now. I have developed
> tremours mainly in my hands also. I am wondering if there are any
> alternative medications that control the tremours? I am also interested in
> any information on tremours. Thanks.
--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian"
http://www.parkinson.org/
Author: "Eat well, stay well with Parkinson's disease"
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
http://www.nutritionucanlivewith.com/
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 09:16:11 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Carmen:
Odds are good that this attachment contained a virus. Please run an
anti-virus check on your system.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
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----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 10:17:12 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MyFirstname Bernard Mylastname Platt <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Anti-tremor drugs include Anticholinergics: Kemadrine (Procycladine) and
Benzatropine (Cogentin). My wife is 71 and has Parkinsonism (Not PD)
therefore levodopa drugs are contraindicated. She's starting Kemadrine today
so we're hoping from some relief from constant, almost unbearable tremor.
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 12:43:26 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Re: Information on a Parkinson exercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I need information on a Parkinson exercise tape for a functional parkie who
wants to remain functional. I do not need to sit while exercising, but I do
need to be careful of my back which seems to be in a constant state of some
level of pain and stiffness..
I I remember someone mentioning that such a tape was available. If so
please advise. Thanks in advance.
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 12:54:43 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Attachment won't open.
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/14/01 5:02:41 AM, [log in to unmask] writes:
<< You_ARE_FAT!.MP3.scr >>
Attachment won't open. Lucky, you! It's a virus.
See the following list for other names for the same thing:
card.DOC.pif
docs.DOC.pif
fun.MP3.pif
HAMSTER.DOC.PIF
Humor.MP3.scr
IMAGES.DOC.pif
Me_nude.MP3.scr
New_Napster_Site.MP3.pif
Pics.DOC.scr
README.MP3.scr
S3MSONG.DOC.scr
SEARCHURL.MP3.pif
SETUP.DOC.scr
Sorry_about_yesterday.MP3.pif
Sorry_about_yesterday.MP3.scr
stuff.MP3.pif
YOU_ARE_FAT!.DOC.pif
YOU_are_FAT!.MP3.scr
Didn't open? Is it possible that you have a Macintosh?
ed g
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 13:55:41 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Information on a Parkinson exercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
[log in to unmask] wrote:
>
> I need information on a Parkinson exercise tape for a functional parkie who
> wants to remain functional. I do not need to sit while exercising, but I do
> need to be careful of my back which seems to be in a constant state of some
> level of pain and stiffness..
> I I remember someone mentioning that such a tape was available. If so
> please advise. Thanks in advance.
There is a tape made by a nurse (actually a series of tapes, for
different conditions) called "Sit and be Fit." Also one called
"Chairdancing." They can be ordered from Collage Videos:
http://www.collagevideo.com/
click "Place an order" then
"Special Situations"
You should then get a list of the various videos.
Best,
Kathrynne
--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian"
http://www.parkinson.org/
Author: "Eat well, stay well with Parkinson's disease"
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
http://www.nutritionucanlivewith.com/
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 13:36:25 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Parkinsn Eighth Year Anniversary/countries
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
On Wed, 12 Dec 2001 10:21:59 -0600 John Cottingham
<[log in to unmask]> writes:
in part,
> Parkinsn's Eighth Anniversary just passed and we are still here doing
> what
> we can to help one another and work to facilitate a cure.
and he then provides a listing of the countries of our PIEN
correspondents.
John, thank you for the list of countries. Are a good
number of the USA members actually on American e-mail
addresses around the world? Do these include permanent
residents in other coutnries?
Ivan :-)
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 13:53:43 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: a singer among us
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Dear friends,
Some of you may be interested to know
that , while approaching the end of 16 years
as a PWP, I am STILL SINGING!
It has been a wonderful challenge
to continue, especially since my speech
now softens, and my tongue gets stuck
when my meds are "wearing off."
But, with weekly voice coaching,
and after memorizing
a 2- hour program of songs
for my local mens'' chorale, and having
rehearsed weekly or even twice a week, since
early September, I gave performances on Friday, Saturday
and Sunday, here in Maine!
There are at his time 34 singers. I am one of
10 basses (lowest voices).
Our program includes seasonal,
traditional, gospel and entertaining
songs. They range from Veni, Veni, Emmanuel
to a modern version of Silent Night. We use
five languages from four continents.
Tomorrow and again on Sunday, we perform
as guests of an historic church, the
Arlington Street Unitarian-Universalist Church,
in Boston , Massachusetts.
I swear by my singing and voice program. It
is great exercise, and is elevating spiritually,
physically and mentally.
Wishing all of you inner peace during the challenging
days ahead, and best wishes from
Ivan Suzman
52-39-36
:-)
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 14:42:27 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Kathrynne, I find it almost impossible to register on "ask the doctor" I
keep going in circles when I try to register to ask a question. Maybe you
can be of some help. Thank you
[log in to unmask]
----- Original Message -----
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 8:13 AM
Subject: Re: Information on tremours
> Francine, I would e-mail Dr. Lieberman -- he has experience with all
> kinds of movement disorders and usually answers within 24 hours. If
> you'd like to write him, go to:
> http://www.parkinson.org/
>
> Scroll down the page to:
>
> Ask Dr. Lieberman, NPF Medical Director
>
> Click on this, and follow the directions.
> Best,
> Kathrynne
>
> MyFirstname Mylastname - Francine Hailman wrote:
> >
> > My Mom who is 72 has had tremours for at least l0 years, mainly in her
> > hands. She can barely hold a glass or eat her food now. I have
developed
> > tremours mainly in my hands also. I am wondering if there are any
> > alternative medications that control the tremours? I am also interested
in
> > any information on tremours. Thanks.
>
> --
> Kathrynne Holden, MS, RD
> "Ask the Parkinson Dietitian"
> http://www.parkinson.org/
> Author: "Eat well, stay well with Parkinson's disease"
> "Guidelines for Medical Nutrition Therapy for Parkinson's disease"
> http://www.nutritionucanlivewith.com/
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 15:03:56 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: MED.CARE
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
I WENT TO MY NERO TO SEE ABOUT A ELEC. WHEELCHAIR. THEY SENT ME TO BE =
INTERVIEWED. SO I WENT OF COUSES I WON'T GO THROUGH ALL THEY ASKED. BUT =
I CAN NOT LIE SO TOLD HOW I PAINED MY BASEMENT. AND CUT MY GRASS. TOLD I =
HAD A BIG ELEC CART FOR OUT SIDE BUT COULD NOT USE IT IN THE HOUSE. AND =
A REGULAR CHAIR WAS TO WIDE TO GET THROUGH BATHROOM DOOR AND TO THE =
KITCHEN AND OTHER PLACES. EVEN HAD A MEDICAL PLACE COME OUT AND MESURE =
MY DOORS. NO GOOD SAID IF I CAN DO WHAT I SAID I DID NOT NEED ONE I =
ASKED WHAT WAS DIFFERENT IN CHAIR OR RIDEING MY MOWER. AND I SET ON =
WHERE SUN DON'T SHINE IF I COOD DO THAT I DID NOT NEED HELP SO THAT WAS =
THAT. SO ALL I CAN SAY LIE LIE AND GO AT OFF TIMES AND GET SOME ONE TO =
GO WHIT U TO LIE OR HELP U LIE. DOES IT PAY TO TELL THE TRUTH? TO PROUD =
TO ASK FOR HELP FROM MY CHURCH OR ANY ONE ELSE.. I WILL REPEAT I WILL =
GET BY. SO NO BODY SEND ANY MONEY. THEY ONLY COST $6000.OO BUT WILL GET =
IT SOME WAY. SELL VIVIAN LOLO NO BYER'S LOLO GOT KITCHEN CHAIR WHIT BIG =
ROLLERS TO GET AROUND HARD ON MOM AND I BUT TILL WE GET WE WILL DO IT SO =
MY ADVICE AS BAD AS ITT IS THAT IS WHAT U GOT TO DO BUT I CANT GOOD LUCK =
WEN U TRY
I.Y.Q. DON =
AND VIVIAN
LOVE OF MY =
LIVE- 56
[log in to unmask]
don mckinley
2440 lakewood
lima.oh 45805
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 15:47:22 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Norma Dikeman <[log in to unmask]>
Subject: Re: MED.CARE
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: quoted-printable
We tried to get an electric wheelchair for my husband. The doctor has to =
write a prescription which includes his opinion as to whether it is neede=
d. He said my husband can still get around so he didn't recommend it at t=
his point as he really needs to move around as much as possible. I agreed=
and so we will wait and, with luck, maybe he won't need the chair for qu=
ite some time.
Norma cg for Gordie 66/8
Don McKinley wrote:
> I WENT TO MY NERO TO SEE ABOUT A ELEC. WHEELCHAIR. THEY SENT ME TO BE I=
NTERVIEWED. SO I WENT OF COUSES I WON'T GO THROUGH ALL THEY ASKED. BUT I=
CAN NOT LIE SO TOLD HOW I PAINED MY BASEMENT. AND CUT MY GRASS. TOLD I H=
AD A BIG ELEC CART FOR OUT SIDE BUT COULD NOT USE IT IN THE HOUSE. AND A=
REGULAR CHAIR WAS TO WIDE TO GET THROUGH BATHROOM DOOR AND TO THE KITCHE=
N AND OTHER PLACES. EVEN HAD A MEDICAL PLACE COME OUT AND MESURE MY DOORS=
=2E NO GOOD SAID IF I CAN DO WHAT I SAID I DID NOT NEED ONE I ASKED WHAT=
WAS DIFFERENT IN CHAIR OR RIDEING MY MOWER. AND I SET ON WHERE SUN DON'T=
SHINE IF I COOD DO THAT I DID NOT NEED HELP SO THAT WAS THAT. SO ALL I C=
AN SAY LIE LIE AND GO AT OFF TIMES AND GET SOME ONE TO GO WHIT U TO LIE O=
R HELP U LIE. DOES IT PAY TO TELL THE TRUTH? TO PROUD TO ASK FOR HELP FR=
OM MY CHURCH OR ANY ONE ELSE.. I WILL REPEAT I WILL GET BY. SO NO BODY =
SEND ANY MONEY. THEY ONLY COST $6000.OO BUT WILL GET IT SOME WAY. SELL VI=
VIAN LOLO NO BYER'S LOLO GOT KITCHEN CHAIR WHIT BIG
> ROLLERS TO GET AROUND HARD ON MOM AND I BUT TILL WE GET WE WILL DO IT S=
O MY ADVICE AS BAD AS ITT IS THAT IS WHAT U GOT TO DO BUT I CANT GOOD LUC=
K WEN U TRY
>
> I.Y.Q. DON =
AND VIVIAN
> LOVE OF MY=
LIVE- 56
>
> [log in to unmask]
>
> don mckinley
> 2440 lakewood
> lima.oh 45805
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:[log in to unmask]
to.ca
> In the body of the message put: signoff parkinsn
--
http://nordike.homestead.com/NordikeHome.html
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 04:08:00 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Phil E.Gesotti" <[log in to unmask]>
Subject: Re: What is MSA
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Hi Janice,
Here is a link to the NPF website that describes Multiple System Atropy
(MSA). It does a better job than I can. Basically, it says that you
have degeneration in the brain in other areas besides the substantia
nigra (PD affected area).
http://www.parkinson.org/atrophy.htm
Phil Gesotti 52/dx46
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 13:14:17 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: v perry <[log in to unmask]>
Subject: Re: a singer among us
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Dear Ivan,
I also find music to be a wonderful way to keep my spirits. I am a woodwind player and play in a band called "The John Phillip Sousa Memorial Band" based in Edina, MN. We play a concert the last Sunday of every month to standing room only audiences. I play clarinet, oboe and occasionally Sax. I also play as a pit musician for several Community Theatres in my area.
Why don't you consider trying out for the chorus next time there are auditions for a musical in a community theatre group in your area? Keep singing!!
Best Regards,
Vicky
Ivan M Suzman <[log in to unmask]> wrote: Dear friends,
Some of you may be interested to know
that , while approaching the end of 16 years
as a PWP, I am STILL SINGING!
It has been a wonderful challenge
to continue, especially since my speech
now softens, and my tongue gets stuck
when my meds are "wearing off."
But, with weekly voice coaching,
and after memorizing
a 2- hour program of songs
for my local mens'' chorale, and having
rehearsed weekly or even twice a week, since
early September, I gave performances on Friday, Saturday
and Sunday, here in Maine!
There are at his time 34 singers. I am one of
10 basses (lowest voices).
Our program includes seasonal,
traditional, gospel and entertaining
songs. They range from Veni, Veni, Emmanuel
to a modern version of Silent Night. We use
five languages from four continents.
Tomorrow and again on Sunday, we perform
as guests of an historic church, the
Arlington Street Unitarian-Universalist Church,
in Boston , Massachusetts.
I swear by my singing and voice program. It
is great exercise, and is elevating spiritually,
physically and mentally.
Wishing all of you inner peace during the challenging
days ahead, and best wishes from
Ivan Suzman
52-39-36
:-)
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
---------------------------------
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctionsfor all of your holiday gifts!
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 17:35:22 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Attachment won't open.
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
No Ed, its and IBM
[log in to unmask]
----- Original Message -----
From: "Ed Grskovich" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 12:54 PM
Subject: Re: Attachment won't open.
> In a message dated 12/14/01 5:02:41 AM, [log in to unmask] writes:
>
> << You_ARE_FAT!.MP3.scr >>
>
> Attachment won't open. Lucky, you! It's a virus.
> See the following list for other names for the same thing:
> card.DOC.pif
> docs.DOC.pif
> fun.MP3.pif
> HAMSTER.DOC.PIF
> Humor.MP3.scr
> IMAGES.DOC.pif
> Me_nude.MP3.scr
> New_Napster_Site.MP3.pif
> Pics.DOC.scr
> README.MP3.scr
> S3MSONG.DOC.scr
> SEARCHURL.MP3.pif
> SETUP.DOC.scr
> Sorry_about_yesterday.MP3.pif
> Sorry_about_yesterday.MP3.scr
> stuff.MP3.pif
> YOU_ARE_FAT!.DOC.pif
> YOU_are_FAT!.MP3.scr
>
> Didn't open? Is it possible that you have a Macintosh?
>
> ed g
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 17:40:31 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: Re: MED.CARE
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
DON, DO YOU WANT TO BUY ONE [POWER WHEELCHAIR] WITH LESS THAN 30 HOURS OF
USE ON IT, THAT COST, $4,100 NEW, FOR $2,900? I'M SELLING IT BECAUSE I
FIND MY 3 WHEEL SCOOTER EASIER TO USE INSIDE THAN THE WHEEL CHAIR. I HAVE
DONE A BUNCH OF DAMAGE TO OUR WOODWORK WITH IT. THE PROBLEM I HAVE WIHT IT
IS THAT IT IS HARD FOR ME TO STEER IT WITH IT'S "JOYTICK " CONTROL. I GUESS
I WOULD NOT BE A GOOD F-18 PILOT. SO I DECIDED TO SELL IT. IT IS A GOOD
ONE, & IS SUPPOSEDLY GOOD FOR TIGHT SPACES. HAS ANYONE EVER TRIED SELLING
SOMETHING ON E-BAY?
BBA
----- Original Message -----
From: "Norma Dikeman" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 3:47 PM
Subject: Re: MED.CARE
We tried to get an electric wheelchair for my husband. The doctor has to
write a prescription which includes his opinion as to whether it is needed.
He said my husband can still get around so he didn't recommend it at this
point as he really needs to move around as much as possible. I agreed and so
we will wait and, with luck, maybe he won't need the chair for quite some
time.
Norma cg for Gordie 66/8
Don McKinley wrote:
> I WENT TO MY NERO TO SEE ABOUT A ELEC. WHEELCHAIR. THEY SENT ME TO BE
INTERVIEWED. SO I WENT OF COUSES I WON'T GO THROUGH ALL THEY ASKED. BUT I
CAN NOT LIE SO TOLD HOW I PAINED MY BASEMENT. AND CUT MY GRASS. TOLD I HAD A
BIG ELEC CART FOR OUT SIDE BUT COULD NOT USE IT IN THE HOUSE. AND A REGULAR
CHAIR WAS TO WIDE TO GET THROUGH BATHROOM DOOR AND TO THE KITCHEN AND OTHER
PLACES. EVEN HAD A MEDICAL PLACE COME OUT AND MESURE MY DOORS. NO GOOD SAID
IF I CAN DO WHAT I SAID I DID NOT NEED ONE I ASKED WHAT WAS DIFFERENT IN
CHAIR OR RIDEING MY MOWER. AND I SET ON WHERE SUN DON'T SHINE IF I COOD DO
THAT I DID NOT NEED HELP SO THAT WAS THAT. SO ALL I CAN SAY LIE LIE AND GO
AT OFF TIMES AND GET SOME ONE TO GO WHIT U TO LIE OR HELP U LIE. DOES IT PAY
TO TELL THE TRUTH? TO PROUD TO ASK FOR HELP FROM MY CHURCH OR ANY ONE
ELSE.. I WILL REPEAT I WILL GET BY. SO NO BODY SEND ANY MONEY. THEY ONLY
COST $6000.OO BUT WILL GET IT SOME WAY. SELL VIVIAN LOLO NO BYER'S LOLO GOT
KITCHEN CHAIR WHIT BIG
> ROLLERS TO GET AROUND HARD ON MOM AND I BUT TILL WE GET WE WILL DO IT SO
MY ADVICE AS BAD AS ITT IS THAT IS WHAT U GOT TO DO BUT I CANT GOOD LUCK WEN
U TRY
>
> I.Y.Q. DON AND
VIVIAN
> LOVE OF MY
LIVE- 56
>
> [log in to unmask]
>
> don mckinley
> 2440 lakewood
> lima.oh 45805
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
--
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----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 17:49:34 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Leo Fuhr <[log in to unmask]>
Subject: Re: Oprah Show and medical research
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Jim Finn and his surgeon looked great on OPRAH today. I especially was
impressed when Jim got up from his chair and walked smartly about the
studio. If you missed the show write to Jim [log in to unmask] for the URL
that tells his fetal pig cell implant success story.
Jeanette Fuhr
----- Original Message -----
From: <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 13, 2001 3:05 PM
Subject: Oprah Show and medical research
Hi All -
Earlier this week the Oprah Show flew yours truly out to Chicago from my
home
in Rhode Island. I was invited to participate in their Medical Miracles
episode. To my surprise it is scheduled for broadcast tomorrow; Friday,
December 14. Check your local listings for time/channel.
The surgeon, Dr. Schumacher, also flew in from Florida to take part in this.
And as guests of the show we were treated like Royalty! Fabulous hotel,
great food, stretch limo, etc.
Any questions after the show? Feel free to write directly to me.
Jim Finn
----------------------------------------------------------------------
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----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 19:09:13 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Rayilyn Brown <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I've read you should weigh them down. Rayilyn who wears a leg weight, need
one for wrist.
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 19:35:32 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: MED.CARE
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/14/2001 12:05:13 PM Pacific Standard Time,
[log in to unmask] writes:
> WILL REPEAT I WILL GET BY. SO NO BODY SEND ANY MONEY. THEY ONLY COST
> $6000.OO BUT WILL GET IT SOME WAY. SELL VIVIAN LOLO NO BYER'S LOLO GOT
> KITCHEN CHAIR WHIT BIG ROLLERS TO GET AROUND HARD ON MOM AND I BUT TILL WE
> GET WE WILL DO IT SO MY ADVICE AS BAD AS ITT IS THAT IS WHAT U GOT TO DO
> BUT I CANT GOOD LUCK WEN U TRY
>
> I.Y.Q. DON AND
> VIVIAN
> LOVE OF MY
> LIVE- 56
>
>
WELL, DON -- THAT STORY REALLY MADE ME ANGRY!! I'M SURE GLAD YOU QUALIFIED
SELLING YOUR DARLING VIVIAN!!
ALL KIDDING ASIDE, I SINCERELY BELIEVE THAT WHEN YOU NEED A PIECE OF
EQUIPMENT AND YOU ARE DISABLED FOR ANY REASON, THAT THE "PEOPLE WHO MAKE THE
FINAL DECISION" SHOULD SEE YOU IN YOUR "OFF" PERIODS.
HUGS TO BOTH OF YOU,
BUNNY
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 20:14:36 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MyFirstname Mylastname - Francine Hailman <[log in to unmask]>
Subject: Re: 2 of everey thing
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
I am also getting two of everything....and this is rediculous. Please see
what you can do thanks.
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 21:26:53 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Michael:
Upon your advice , I downloaded Norton antivirus program and ran a full
system scan. Sadly to say, my system does have a virus called
W32.Badtrans.B@dd . The following items are infected :
winnt\system32\kdll.dll , winnt\system32\kernel32.exe .
Michael , I know I have to delete these files , but how or where do I
replace these essential files ? I have the original Windows2000 Prof Cd, but
I don't know how to extract these 2 particular files from the CD since most
files are Cab files.
Can you advise me how to proceed before I delete these files .
Thank you sincerely,
cc
P.S.
I hope this helps others on this message board who were so misfortunate .
It's ashamed someone would purposely use this PD message board to inflict
harm to others.
God Bless
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 9:16 AM
Subject: PD excercise tape
> Dear Carmen:
>
> Odds are good that this attachment contained a virus. Please run an
> anti-virus check on your system.
>
> Michael in Tampa
>
> Father is PWP
>
> [log in to unmask]
>
>
> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
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=========================================================================
Date: Fri, 14 Dec 2001 21:29:26 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
By the way Michael what is PWP ?
God Bless
cc
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 9:16 AM
Subject: PD excercise tape
> Dear Carmen:
>
> Odds are good that this attachment contained a virus. Please run an
> anti-virus check on your system.
>
> Michael in Tampa
>
> Father is PWP
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 19:14:21 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Jim Finn /Oprah
In-Reply-To: [log in to unmask] message of Fri, 14 Dec 2001 12:43:26 EST
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Jim you appeared so professional in front of the camera. So good to
actually SEE how well you are doing. Keep up the
positive advocating for PD research. Great shot in the arm for the
cause.
You do look GREAT.
Hugs Juanita CG for George 75/71/64
----------------------------------------------------------------------
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=========================================================================
Date: Fri, 14 Dec 2001 22:42:14 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ivan M Suzman <[log in to unmask]>
Subject: Re: Jim Finn /Oprah
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Jim,
Thanks for your wilingness to show
the world your great progress. And
your sense of humor-so important
for PWP's.
Plus your clothes looked terrific-
very well chosen.
Ivan Suzman
:-)
On Fri, 14 Dec 2001 19:14:21 -0800 Juanita Hibbert <[log in to unmask]>
writes:
> Jim you appeared so professional in front of the camera. So good to
> actually SEE how well you are doing. Keep up the
> positive advocating for PD research. Great shot in the arm for the
> cause.
> You do look GREAT.
> Hugs Juanita CG for George 75/71/64
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 14 Dec 2001 23:54:29 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Bad attachments
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/14/01 8:21:43 PM, [log in to unmask] writes:
<< It's ashamed someone would purposely use this PD message board >>
The connection is not purposefully or direct. Once the virus gets set on
someone's machine, It knows how to use your "old Mail" files, generally in
something like Outlook Express e-mail program, to send out the "worm" to
others from whom you've received mail recently. Persons who post on any List
like PARKINSN are more likely to receive such possibly harmful e-mail only
because of the wide worldwide circulation of their postings.
You're getting very good advice from Michael. In addition to getting the bad
stuff out, you may want to relock all the doors.
If you have Outlook Express as your e-mail program consider the following:
The email uses a known exploit in certain versions of Outlook Express 5 in
order to launch the attached file automatically. Microsoft has released a
patch which reportedly addresses this vulnerability. It is available at
http://www.microsoft.com/technet/security/bulletin/MS01-027.asp.
(This patch fixes a number of vulnerabilities in Microsoft's software,
including the one exploited by this worm.)
that's from: http://www.sophos.com/virusinfo/analyses/w32badtransb.html
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