----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 00:01:31 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Middle of the night...
In-Reply-To: Joan E Blessing Snyder <[log in to unmask]>'s message of Fri, 14
Dec 2001 23:20:16 -0600
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Joan just think of this as you said your
freedom from falling plus your ability
to move about more effeciently. This surely must be difficult to adjust
to mentally. But this to you will manage
and become very adept at tooling around.
My admiration plus a hug or two.
Juanita CG for George 75/71/64
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 00:59:11 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Middle of the night...
MIME-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Joan...as you said...this is a requiem ..but think
of it as a requiem for your falling all the time and for wasting your
energy...and then think of it as a new beginning....and as a PASSPORT TO
FREEDOM.....one where you won't break a bone falling down...where you have
access to shop and go and do things comfortably....and stand in front of
something in the store and not waver or fall (I have a pd balance problem)....it
takes a lot out of us to give up what we were and realize what we've become in
this pd type life...I probably cried the first year...and, well, you know how
it goes....I manuever fairly well but can't stand on lines in stores...but then
I was given a scooter last Spring... for the future is what my friend's mother
said to me...and I wanted to slap her when she said "the
future"..........it belonged to her son who just passed away... and I
swore I wasn't getting "in that damn thing" and it took several months before I
did....only because my family was going to Vegas and I knew I couldn't walk all
around the casinos...it's really great once you get used to it..and if I
misjudge something in the store, I say "sorry, I'm stil practicing or that I
haven't gotten my driver's license yet." and they laugh...and with kids on
bikes or in carriages, I say..."do you want to race???" You can have a lot
of fun with it...just give it time... In one way, you look at it as the end of
your independence but really it does give you your independence back......I,
too, have been very independent all my life and this pd was and is hard to
adjust to....but just be the postive person I know you are from your
postings...get some rest and, yes, the sun will come up and you know things
always are better when the daylight comes....good luck...Joan Hartman
--- Joan Hartman
--- [log in to unmask]
--- EarthLink: It's your Internet.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 08:13:47 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MyFirstname Mylastname - Francine Hailman <[log in to unmask]>
Subject: delete me from your list
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
please delete me from your list....too many e-mails....thanks....
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 08:06:57 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Janice Morgan <[log in to unmask]>
Subject: Re: Middle of the night...
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Joan,
This is Janice I met you in the chat room, would like to say what an
inspiration you have been to us all. I have looked up to you and have had
you in my thoughts, now you will be in my prayers. It is time for us to give
to you now. I heard your pain I had tears in my eyes so I had to write this
and say how much you mean to me and how much I love you as a person. Here is
a hug (((((((((((((((((((Joan ))))))))))))))))) Love Janice or the Bunny
Wabbit
----- Original Message -----
From: Joan E Blessing Snyder <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, December 14, 2001 9:20 PM
Subject: Middle of the night...
This is a requiem.
It is a pity-party for my old life that I need to get out of my system
and to get over.
It hurts so badly..but I shall survive and life will go on as it always
has; I will feel strong again and the sun will come out tomorrow..but it
is late at night and I feel this awful pain of letting go.
Today, my life took a turn and I can never have it the way it used to be
or even make believe anymore that it will ever be the same again.
I am hurting and sad and so very angry.
You see, today, after months of talking about it and putting it off and
denying that it was even ever real, all the pieces came together: my
neuro wrote me a script, a letter saying that it was a real necessity,
my insurance company oked the entire thing and a very nice man came to
my house this afternoon with 3 wheelchairs for me to test drive.
Now it's all over but the shouting and the delivery of my new
jazzy-cobalt blue, 28 inches wide, turns on a dime, power wheelchair.
She's a beauty all right and I am determined to make my peace with
her-just as I did with my blue 28 inch high Schwin back when I was
growing up. But that was then and this is now. Back in my youth, my
bike was my declaration of freedom; I was the oldest of 6 kids and my
mom didn't drive and my dad traveled 5 days out of the week. My bike was
my get out of jail free card and my get out of the house full of
brothers and sisters and my letting my pony tail free so that I could
think straight. That was then.I don't even think that getting my
driver's license ever gave me the thrill of waving good-bye and heading
out to face life on my bike.
But this is now.Now because of this stupid disease that I have come to
terms with over and over again has me down for the count once again.
It is the thought that once I begin to use the chair, it will become
easy for me to get around in and it will become a habit. For so many
years, I prided myself on my independence: before marriage, during
marriage when Stan was sent to Dessert Storm and after he came home-I
tried and succeeded in maintaining my independence. Even since the
diagnosis of my PD 11 years ago, I have managed to go my own way, never
looking backwards or allowing any time for regrets.
That all changed today. It is another milestone in my life that I cannot
hide from or pretend that it isn't there. It will be there all right, in
all of its shiny glory. It is a rite of passage like when the head neuro
at Mayo said, "Yes it is really Parkinson's Disease" or when a judge
finally said, "Your Social Security Disability which you have requested
is granted" and one of the daily concessions that People Living With
Parkinson's make just to accommodate this damn disease.
I was so proud of the way that I had handled this, I likened it to the
oyster of life: when you get a piece of shit in your shell it irritates
and bothers you until slowly your mind wraps itself around this irritant
shaping it and polishing it until one day, it becomes a pearl.
This was my pearl.I had shaped it with the thoughts of how much more I
will be able to accomplish once I no longer have to spend all of my
energy on staying vertical and how much more time I will have when I no
longer must spend so much of my day hauling my fat ass up off the floor.
And won't it be a relief not to fall 25 times a day- cause, boy, this
ole bod sure don't heal like it used to.
I know in my head that all of this is true and in the daylight, sanity
will return to me but it is the middle of the night and all I can think
of is how, at 50 years of age, my life will be lived out seeing the
world from a seated position.
La chiam!!
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 08:14:40 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: PWP
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
On 14 Dec 2001, at 22:08, Clay Felts wrote:
>
> Carmen asked Michael for a definition of PWP. Given the context in
> which his used the term it was not clear to me either. I believe in the
> singular PWP stands for Person With Parkinson's and in the plural it
> means People With Parkinson's.
>
> To have some fun on a wet Friday night I took the three letters and
> decided to play around a bit and see what I could do. The following is
> a result of that effort. I caution you to not search for deep meaning
> in any of them and remember this was done quickly. I challenge all you
> word-smiths out there to come up with some really clever and meaningful
> examples.
SNIP
Good Morning All,
I thought it was "People With 'Puters" ..... murray
[log in to unmask]
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 10:14:42 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jack Savely <[log in to unmask]>
Subject: Re: delete me from your list
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
See the last 2 lines of every message from the list.
That tells you how to resign from the list..........Jack
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 11:27:32 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: PD excercise tape - PWP
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Carmen:
I meant by this acronym to denote a Person With Parkinson's. If I used it
incorrectly, I apologize; I have recently joined this list. By the way, I
am by no means an expert on computer virii, I had just seen previously the
title you mentioned as a virus followed by another extension and the
screen-saver extension. I may have jumped in the discussion prematurely,
not having read all the posts in this thread.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 09:56:59 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
CC - I don't have PD, but I would be interested in a tape like you asked
about. I lost 38 lbs in 3 weeks and lost a great deal of muscle mass and
don't have the strength to exercise or walk far. So when you get your
answer, will you forward it to me? Jo Ann from Houston
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 11:50:40 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: Middle of the night...
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/15/2001 12:23:32 AM, [log in to unmask] writes:
<< I know in my head that all of this is true and in the daylight, sanity
will return to me but it is the middle of the night and all I can think
of is how, at 50 years of age, my life will be lived out seeing the
world from a seated position. >>
Hello Joan,
Your middle-of-the-night musings are poignant and very affecting.
No doubt you will, as you foresee, make your peace with your shiny new
conveyance and continue to turn the irritants, disappointments, and sorrows
of PD into pearls. Thanks, though, for voicing your feelings of sadness on
the list. It helps to be reminded that we don't have to be, and shouldn't
expect ourselves to be, ultra-plucky and super-perky all the time.
Best wishes,
Kathleen
52- dx48 - onset 44
P.S. LIke you, I remember the heady freedom of my teenage bike...I can feel
the breeze on my face and hear the Supremes singing on the tiny transistor
radio I looped over the handlebars.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 12:33:52 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape - PWP
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Michael,
Forgive me for being naive. I am new to this list as well , not to mention
the fact new to computers. If I had known more about viruses , I would of
protected my system by immediately installing a virus program. I"m happy to
say my computer is now free of the virus and my system is now fully
protected. I thank you and others on this list that advised me on this
matter.
As for the definition of PWP, since my mom has PD ,I was just curious of
the term, as I thought it might be a variation of PD. By the way, I'm sorry
to hear that your dad has PD. Seems we are both trying to find help for our
parents. Michael , if I may ask ,are you looking for any particular type of
information on PD ?
Best Regards and God Bless
cc
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 11:27 AM
Subject: PD excercise tape - PWP
> Dear Carmen:
>
> I meant by this acronym to denote a Person With Parkinson's. If I used it
> incorrectly, I apologize; I have recently joined this list. By the way,
I
> am by no means an expert on computer virii, I had just seen previously the
> title you mentioned as a virus followed by another extension and the
> screen-saver extension. I may have jumped in the discussion prematurely,
> not having read all the posts in this thread.
>
> Michael in Tampa
>
> Father is PWP
>
> [log in to unmask]
>
>
> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 12:38:12 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: carmen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Jo Ann,
This tape was suggested to me: I ordered the tape for my mom. Hope its what
your looking for too!
http://www.chairdancing.com/
cc
----- Original Message -----
From: "Jo Ann Coen" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 10:56 AM
Subject: Re: PD excercise tape
> CC - I don't have PD, but I would be interested in a tape like you asked
> about. I lost 38 lbs in 3 weeks and lost a great deal of muscle mass and
> don't have the strength to exercise or walk far. So when you get your
> answer, will you forward it to me? Jo Ann from Houston
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 13:13:58 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Carmen:
Not at all, a very reasonable question. I am not seeking particular
knowledge about PD, but rather, general. Being afflicted with Wegener's
Granulomatosis, an autoimmune disorder, I joined as soon as possible a mail
list of those interested in this disorder. I quickly learned what a fine
resource an interested group such as this can be. When my father was
diagnosed with PD, I joined PIEN and am already gratified. I feel I will
know developments pretty much as they happen.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 10:59:12 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: PD - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I've recently joined this group for the same reason....my Dad casually
mentioned a couple years ago why my uncle committed suicide awhile back. He
told me his brother had PD & then very casually said he did too...He said it
so casually that I really thought nothing of it....
The last 3 yrs he's been acting very odd talkin through his letters alot
about suicide and murder..speaking in rhymes..He's 77 and lives 3 thousand
miles away from me....When he visited last, he turned over backwards in our
chair and jumped right up....he choked on some soup and then feel into the
shower when he went to the bathroom....I thought he was
possessed.....seriously.....he was actin so wierd like he was fighting the
devil inside of him.......
I have a severe genetic liver/lung disease and have been on 02 24 hrs a
day...My disease was only diagnosed in my late 30's....So many years I've
wished that my father would show some compassion but instead he treats my
disease as it its lepracy.....He's always taught my sister, brother & I that
we should commit suicide if we get to the point where we can no longer take
care of ourselves....My brother & sister have committed suicide.....
I've learned over the years that having a physical illness can be an
excellent time to work on our spiritual side....This is what I wanted so
much for my father to experience....He has never had even a finger
broken...I wanted him to see that there is so much more to life....Sure we
have to go through the anger & denial stage but if we just end it all when
the going gets tough I don't think we are really learning what we are
supposed to learn while here this short while on Earth....
My father doesn't want me to know anything about his health because he's
always been so nasty to me and others who have been ill.....I have managed
to become friendly with his bridge partner from afar and this is my only
source to possibly help me know what stage he's in....
She just told me that his hand was shaking and that he had to go into a
hospital awhile back due to dizziness.....I never knew anything....I've been
quickly trying my best to learn about this PD.....His wife has glaucoma and
I feel very sure that he has something not so good on his mind.....In the
meantime I'm reaching out to the suicide hotline for advice and I know that
if I make one wrong move he will never speak to me again......
I don't know when he was diagnosed & I believe he is planning a trip out
here so I think he is still able to hide it somewhat or so he thinks....I
was wondering why his voice was so light and his face without any emotion
and he is so parinoid.....I continue to just show as much support from afar
as I can in hopes that he will convide in me.....I love my Dad and don't
want him to do something drastic ......
Charlotte in San Diego
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 10:13 AM
Subject: PWP - My father
> Dear Carmen:
>
> Not at all, a very reasonable question. I am not seeking particular
> knowledge about PD, but rather, general. Being afflicted with Wegener's
> Granulomatosis, an autoimmune disorder, I joined as soon as possible a
mail
> list of those interested in this disorder. I quickly learned what a fine
> resource an interested group such as this can be. When my father was
> diagnosed with PD, I joined PIEN and am already gratified. I feel I will
> know developments pretty much as they happen.
>
> Michael in Tampa
>
> Father is PWP
>
> [log in to unmask]
>
>
> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 14:20:55 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: LOT OF ? TO ANSWER BY MR. PD
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
FIRST I AM TIERED OF FAMLY CALLING ME AT TIMES. I AM RIGHT. FOLKS TALK =
ABOUT WHAT THE THINK AT NIGHT I DO TO BUT DON'TT KNOW HOW TO PUT IN ON =
PAPER. MY NERO IS FOR THE 2ND TIME IS WRITING MED CARE. I HAVE HAD A =
BIG ELEC. CART FOR YEARS BUT TO BIG FOR IN HOUSE. NOW WE GOT BIG ONE. =
OUR LIVING ROOM IS 35X18 BED ROOM 16X18 EVERY THING IS FIXED SO I WON'T =
FALL ON ANY THING HARD. ALL FURENURR IS WELL PADED. IT HURTS ME TO =
HEAR HOW SOME CAN GO ON TRIPS PLAY GAMES AND SO ON ME TO GO IN A CAR FOR =
10 TO15 MILES IS LIKE GIVING A CHILD CANDY. BUT I AM SO GLAD TO C LOT OF =
U CAN I FEEL PROUD THAT U CAN. ON BACK OF MY CART I GOT A SIGN THAT SAYS =
IF U DON'T LIKE THE WAY I DRIV STAY OFF THE SIDE WALK. AND DO I EVER GET =
LO OF LO LO OVER IT. ONLY THING WRONG WHIT OUR HOME IS SIZE OPENING OF =
DOORS. WHEN I WHENT TO HOSPITAL FOR MY TEST I TOLD ALL I COULD LIKE =
PAINT MY FLOOR PUTING IN MY PATITO. LEVELED OF A TRUCK OF DIRT. NOW ALL =
IT WAS SITNG WHERE THE SUN DON'T SHINE. HOW CAN I TELL TO DO SOMETHING =
UNLEES I CAN MY MOVER IS SAFTY FIXED FOR ME. WHAT IS DIFFERNT OF USING =
MMY MOWER THAN WHEELCHAIR. IT IS JOY STICK DRIVE. I AM AND STILL I AM A =
WHEELER DEALER. WHO HAD A ELEC. CHAIR FOR SAIL NOW I REMEMBER HOW YET TO =
NOT BUY PIG IN A POKE. DID NOT SAY WHERE U LIVED OR THE NAME OF IT. OR =
HOW TO GET IT. I HAVE STOCK A HOME WOTH OVER MILLAN $ LOW ON CASH. I =
USED TO GET $100.OO A DAY FOR POCKET MONE NOW $80 A MONTH NOW ALL CIG =
FOOD WELL ALL THE BASIC. I AM NOT A LOUD TO HAVE CREIT CARDS OR WRITE =
CHECKS OR GET MONEY FROMM THE BANKS. NOT FAIR. AND TO THINK I WAS MY =
OWN BOSS AND MADE GOOD MONEY. IKNOW IW ILL BEAT THIS AS LONG THEY LET ME =
ALONE DON'T DO THIS OR THAT. HECK I AM NOT DEAD JUST OLD AND GOOD =
LOOKING LO LO WHERE WAS I OH WHO HAS THE CHAIR FOR SALE MOM WAS RUSHED =
TO ER LAST NIGHT. HER HEART AGAIN. C I AM BETTER OFF THAN THE BEST C.G =
IN THE WORLD. HOW I LOVE THAT OLD GAL AND BUNNY HAS BEEN HELPING ME ON =
MSN. THATS PRETTY LADY. I KNOW THERE IS SOME THING ELSE I WANTED TO SAY =
BUT I FOR GOT. SO U ALL HANG IN THERE AM I DON OR MR. PD. BAD WORD SO =
MUCH TO DO SO LITTLE TIME. =20
I.Y.Q DON AND =
VIVAN
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 12:00:15 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Michael.....Do you have any idea why my last post didn't go on.....I've got
2 other groups with list serv that also are not giving any mail today.....
Charlotte in San Diego
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 10:13 AM
Subject: PWP - My father
> Dear Carmen:
>
> Not at all, a very reasonable question. I am not seeking particular
> knowledge about PD, but rather, general. Being afflicted with Wegener's
> Granulomatosis, an autoimmune disorder, I joined as soon as possible a
mail
> list of those interested in this disorder. I quickly learned what a fine
> resource an interested group such as this can be. When my father was
> diagnosed with PD, I joined PIEN and am already gratified. I feel I will
> know developments pretty much as they happen.
>
> Michael in Tampa
>
> Father is PWP
>
> [log in to unmask]
>
>
> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.307 / Virus Database: 168 - Release Date: 12/12/2001
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 14:57:03 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: PWP
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/15/2001 1:11:42 AM, [log in to unmask] writes:
<< People with Parkinson's
Pissed-off with politics
Pontificate with purpose.
(Perturbed could be used for Pissed-off)
Parkies whisper poems
Prepared with passion.
Parkies wail parables
Prepared with poison
(I don't like this one but I left it in anyway)
Parkies who party
Party wildly perpetually
Partners with patience
Pensively wonder purpose >>
Clay,
I perused with pleasure your precisely worded pennings.
I suspect that further permutations will proliferate, given the predilections
within PIEN.
Kathleen
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 16:28:48 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Virginia Christiansen <[log in to unmask]>
Subject: Exercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/14/01 7:12:12 PM Eastern Standard Time,
[log in to unmask] writes:
<< Subject: Re: PD excercise tape >>
Also, for exercise for Carmen's mother, if possible do deep water running.
It will also be good for the arthritis. FYI, it is doing the motions of
running and deep water with floats around the waist. Learn how from an
expert and then do it. Any exercise in the water should help.
Virginia Christiansen
[log in to unmask]
Rochester, MN
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 15 Dec 2001 21:23:00 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Ervin,
click on:
http://www.parkinson.org/
click on:
-Ask Dr. Lieberman
click on:
Enter here to submit a question to Dr. Lieberman
At "If you are not a member of "askthedoctor", please choose:"
click on:
Join askthedoctor
On the next screen, type in your e-mail address (be sure you've typed it
correctly)
The remaining fields are all optional, you don't have to do anything if
you don't want to. Scroll down to the bottom of the page, and click
"Save."
You should then get a notification that you have been added to the list
and will get an e-mailed post to that effect.
I hope this works for you, but if not, let me know --
Best,
Kathrynne
ervinmccarthy wrote:
>
> Kathrynne, I find it almost impossible to register on "ask the doctor" I
> keep going in circles when I try to register to ask a question. Maybe you
> can be of some help. Thank you
> [log in to unmask]
--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian"
http://www.parkinson.org/
Author: "Eat well, stay well with Parkinson's disease"
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
http://www.nutritionucanlivewith.com/
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 04:22:27 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: To Kay Misiter Re: MED
CARE-----------------------------------------------
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Kay, my computer [cheeky little devil] will not let me open your =
attachment - says you have a VIRUS!=20
By Norton.
BBA
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 11:19:51 -0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "O'Keefe, Margaret" <[log in to unmask]>
Subject: Re: delete me from your list
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
please delete me from your list.....thanks....
----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 10:11:03 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Holliday <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Carol - I am tenatively planning on having DBS in February if things go as
scheduled and I have been assured by the Cleveland Clinic that my insurance
will cover it (Medicare and GHI). It has been explained to me that even
though Medicare is a Federal program, the State in which the surgery is done
determines elegibility. Therefore, Medicare will cover the operation in
Ohio even though I reside in New York where it us not an eligible expense.
It sounds crazy but it might be worth looking into.
Joan Holliday
[log in to unmask]
Original Message -----
From: Carol Gray <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, November 24, 2001 8:12 PM
Subject: Re: DBS
> Barbara,
>
> be sure to let us know the particulars on DBS after you see your doctor.
I
> would like to have the surgery done but I can't unless medicare will start
> paying for it and it was my understsanding from
> my neurologist that that was not going to be soon.
> good luck!!
>
> carol gray
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 10:16:51 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Jann,
So far, I can still design. Occasionally have a "spastic" moment while
manipulating the mouse. Currently I have more trouble typing for some
reason, but the idea of not being able to work is too scary to ponder for
very long. I have just transferred to my husband's medical, though, so I
won't loose coverage when the inevitable does happen. I work for the YMCA,
very supportive people, a blessing. I try to stay optimistic, count
blessings, remember God only gives us what he knows we can handle . . .
sometimes hard to do.
What about you?
Melanie
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 10:17:23 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Chuck
You are very young to have PD - I'm 44, look younger, but feeling older
every day. I wonder if proximity to computers for long periods of time
could have anything to do with PD.
I hope I am nearing the end of my search for a good doctor. Will see
someone new the end of the month. Not one recommended by APDA regional
office, but in the same office as a recommended doc - hoping to get a foot
in the door at least. So few here in VA. And I will see the APDA regional
specialist in Charlottesville, VA early next year. Don't know if I will be
able to come off meds - would be nice. What prompted you to look for a
specialist? Did your doctor recommend? Did you start researching right
away?
My symptoms are somewhat rare. In addition to only a slight visible tremor,
I have internal tremors and a lot of pain in extremities. Lucked into a
pain med that was working for 24 hours - but after taking it for about one
month, it is already lasting only about 20 hours. I still walk ok. Good
and bad news about un-noticeable symptoms - good news is I haven't had to
tell everyone at work yet, only my boss and immediate co-workers. Bad news
is, expectations for output haven't changed. If you don't look like you feel
bad, hard to convince family you really don't feel good.
Thanks for writing, good luck
Melanie
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 10:18:08 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks, jjjane, for the advise! I will see a new doc the end of the month -
inter view him, see if we can work together.
This service has convinced me that I have the wrong doc; so many have great
ones!
Melanie
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 12:35:31 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: FOR KAY MISTER
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
U ARE SENDING OUT A VIRUS MY NORTON CAUGHT IT U MAY NOT KNOW SO I JUST =
DELETED IT
I.Y.Q. DON AND =
VIVIAN=20
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 13:05:43 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: MED CARE
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
THIS 2ND TIME MY NERO TRYING TO GET HELP FOR ME LIKE A WHEELCHAIR LIKE =
JOAN SAYS SHE GOT. WHEN U GET MY AGE IT IS TOUGH TO GET HELP WHEN =
YOUNG I GOT DISABLE HELP AFTER 65 NO. WHEN I WAS YONG VIVIAN INSURCE =
PAID FOR MY ELECT CART,LIFT CHAIR, AND BED BEFORE I COULD COME HOME WE =
HAD TO HAVE HANDLE BY THE THRONE,SHOWER WHIT A STOOL TO SIT ON. ONLY =
THRONE WE DID NOT HAVE TO FIX WAS IN HER BATHROOM. ALL SO I HAD A =
MEDICAL PERSON COME OUT AND MEASURE ALL OPENING IN MY HOUSE. 24 INCHES =
WAS THE WIDEST FOUND ONE THAT WOULD WORK WITH A JOY STICK TO DRIVE IT. =
MY NERO PUT A PROPE IN MY ANKEL AND IN MY SHOLDER AND SEND ELEC. THOUGH =
SAID I GOT LOT OD MUSELS THAT DOES NOT TOGETER. SO THST IS WHY I CAN'T =
WALK NOT ENOUGH MUSELL TO HOLD ME. SO HE SENT A LETTER TO MED A CARE. =
THEY I HAD TO GO TO A HOUSE PITAL TO BE CHECKED OUT THE SAME AS HE SAID =
BUT WHAT U C ON TV I HAD TO TAKE ALL THOSE TEST. THEY SAID AGAIN I =
COULD STAND FOR 2 MIN THEN I WOULD SLOWLY SINK TO THE GROUND. SAID IF I =
WOULD LEAN WHIT MY BELLY I COULS STAND BETTER. ASK HOW TO DO THAT NO =
ANSWER. BUT DID SAY SOME TIME AFTER YEAR THE WOULS SENT ONE OUT TO CHECK =
MY HOUSE BUT NO TIME WAS WAS SAID. LO LO SO ANY ONE YOUNG START NOW ON =
GETTING WHAT U NEED WHIT THE MED A CARE LAWS U WILL HAVE ALL KIND OF =
PROBLEMS. ONLY THING I KNOW WHEN U GET TO MY AGE U HAVE A CHOICE EITHER =
DIE OR SET WHERE SUN DOES NOT SHINE. I AM SO MAD IF I WAS A WOMEN I =
WOULD SCREAM. SO LIKE I SAID GO WHEN U ARE OFF AND LIE LIKE THE BLUE =
BLAZES. SO HEAR I SIT HAVING A PIY PARTY FOR MY SELF.=20
I.Y.Q. DON =
AND VIVIAN
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 13:10:36 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/16/2001 10:09:55 AM, [log in to unmask] writes:
<< the State in which the surgery is done
determines elegibility. Therefore, Medicare will cover the operation in
Ohio even though I reside in New York where it us not an eligible expense. >>
Joan,
This is great information. Thanks for posting it.
Kathleen
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 13:46:12 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: MED CARE
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/16/2001 10:04:05 AM Pacific Standard Time,
[log in to unmask] writes:
> SO HEAR I SIT HAVING A PIY PARTY FOR MY SELF.
>
> I.Y.Q. DON AND
> VIVIAN
WELL, DON -- YOU ARE CERTAINLY ENTITLED!! DON'T WE ALL HAVE THOSE PARTIES
ONCE IN A WHILE?? IT'S OK ONCE IN A WHILE -- BUT WE HAVE TO TRY TO GET
SOMETHING OUT OF LIFE TO BE HAPPY ABOUT, TOO.
HUGS,
BUNNY
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 15:06:03 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Kathrynne., after I entered my e-mail address and then "save" I get a screen
that says"unable to delete"
click here. I guess there is still something wrong.Thank you for the
patience.
[log in to unmask]
----- Original Message -----
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 9:23 PM
Subject: Re: Information on tremours
> Ervin,
>
> click on:
> http://www.parkinson.org/
>
> click on:
> -Ask Dr. Lieberman
>
> click on:
> Enter here to submit a question to Dr. Lieberman
>
> At "If you are not a member of "askthedoctor", please choose:"
>
> click on:
> Join askthedoctor
>
> On the next screen, type in your e-mail address (be sure you've typed it
> correctly)
>
> The remaining fields are all optional, you don't have to do anything if
> you don't want to. Scroll down to the bottom of the page, and click
> "Save."
>
> You should then get a notification that you have been added to the list
> and will get an e-mailed post to that effect.
>
> I hope this works for you, but if not, let me know --
> Best,
> Kathrynne
>
>
> ervinmccarthy wrote:
> >
> > Kathrynne, I find it almost impossible to register on "ask the doctor" I
> > keep going in circles when I try to register to ask a question. Maybe
you
> > can be of some help. Thank you
> > [log in to unmask]
>
> --
> Kathrynne Holden, MS, RD
> "Ask the Parkinson Dietitian"
> http://www.parkinson.org/
> Author: "Eat well, stay well with Parkinson's disease"
> "Guidelines for Medical Nutrition Therapy for Parkinson's disease"
> http://www.nutritionucanlivewith.com/
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:41:34 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
----- Oorspronkelijk bericht -----
Van: "ervinmccarthy" <[log in to unmask]>
Aan: <[log in to unmask]>
Verzonden: zondag 16 december 2001 21:06
Onderwerp: Re: Information on tremours
Ervin,
The easiest way to join asthedoctor is by email.
Send a (blank) email to the following address:
[log in to unmask]
After a few minutes you get confirmation that you are subscribed.
Then you can ask your question by sending an email to the following address:
[log in to unmask]
Hans.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 16:57:11 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thank you Hans
[log in to unmask]
----- Original Message -----
From: "Hans van der Genugten" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 3:41 PM
Subject: Re: Information on tremours
> ----- Oorspronkelijk bericht -----
> Van: "ervinmccarthy" <[log in to unmask]>
> Aan: <[log in to unmask]>
> Verzonden: zondag 16 december 2001 21:06
> Onderwerp: Re: Information on tremours
>
> Ervin,
>
> The easiest way to join asthedoctor is by email.
>
> Send a (blank) email to the following address:
>
> [log in to unmask]
>
> After a few minutes you get confirmation that you are subscribed.
>
> Then you can ask your question by sending an email to the following
address:
>
> [log in to unmask]
>
> Hans.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 17:37:51 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Charlotte:
If you are concerned about your posts not making PIEN, I am here to tell you
that the one titled 'PWP - My father' did.
Dear Carmen:
I'm a little behind on my e-mails - apparent computer problems. Did you get
your files replaced successfully? Your last post to PIEN indicated that
your computer was now virus-protected.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.307 / Virus Database: 168 - Release Date: 12/11/2001
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 14:53:48 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks alot Michael.....I appreciate your writing and letting me
know.......I'm new and did NOT see it go on nor have I received any other
replys. I am with Home Cox cable and I think they've been having problems
so that might be why I didn't see my post go on...
Charlotte in San Diego..
----- Original Message -----
From: "MICHAEL CASAGRANDE" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 2:37 PM
Subject: PWP - My father
> Dear Charlotte:
>
> If you are concerned about your posts not making PIEN, I am here to tell
you
> that the one titled 'PWP - My father' did.
>
> Dear Carmen:
>
> I'm a little behind on my e-mails - apparent computer problems. Did you
get
> your files replaced successfully? Your last post to PIEN indicated that
> your computer was now virus-protected.
>
> Michael in Tampa
>
> Father is PWP
>
> [log in to unmask]
>
>
> ---
> Outgoing mail is certified Virus Free.
> Checked by AVG anti-virus system (http://www.grisoft.com).
> Version: 6.0.307 / Virus Database: 168 - Release Date: 12/11/2001
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 18:08:34 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
Organization: Five Star Living, Inc.
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Ervin, I have passed on your messages to the webmaster in the hope that
he can help. Will let you know if I hear anything.
Best,
Kathrynne
ervinmccarthy wrote:
>
> Kathrynne., after I entered my e-mail address and then "save" I get a screen
> that says"unable to delete"
> click here. I guess there is still something wrong.Thank you for the
> patience.
--
Kathrynne Holden, MS, RD
"Ask the Parkinson Dietitian"
http://www.parkinson.org/
Author: "Eat well, stay well with Parkinson's disease"
"Guidelines for Medical Nutrition Therapy for Parkinson's disease"
http://www.nutritionucanlivewith.com/
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 20:11:49 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Information on tremours
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thank you Kathrynne, I got the confirmation
[log in to unmask]
----- Original Message -----
From: "Kathrynne Holden, MS, RD" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 6:08 PM
Subject: Re: Information on tremours
> Ervin, I have passed on your messages to the webmaster in the hope that
> he can help. Will let you know if I hear anything.
> Best,
> Kathrynne
>
> ervinmccarthy wrote:
> >
> > Kathrynne., after I entered my e-mail address and then "save" I get a
screen
> > that says"unable to delete"
> > click here. I guess there is still something wrong.Thank you for the
> > patience.
>
> --
> Kathrynne Holden, MS, RD
> "Ask the Parkinson Dietitian"
> http://www.parkinson.org/
> Author: "Eat well, stay well with Parkinson's disease"
> "Guidelines for Medical Nutrition Therapy for Parkinson's disease"
> http://www.nutritionucanlivewith.com/
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 19:26:59 -0600
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: samantha pudge <[log in to unmask]>
Organization: QUALCOMM Eudora Web-Mail (http://www.eudoramail.com:80)
Subject: Re: medication
Mime-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
melanie,
what medicaion has given you some relief from pain? i've tried several and no relief. if i haven't tried the one that helps you, i will ask my doctor about trying it.
thanks, sami
--
On Sun, 16 Dec 2001 10:17:23 Melanie Erickson wrote:
>Hi Chuck
>Lucked into a
>pain med that was working for 24 hours - but after taking it for about one
>month, it is already lasting only about 20 hours. I still walk ok. Good
>and bad news about un-noticeable symptoms - good news is I haven't had to
>tell everyone at work yet, only my boss and immediate co-workers. Bad news
>is, expectations for output haven't changed. If you don't look like you feel
>bad, hard to convince family you really don't feel good.
>
>Thanks for writing, good luck
>Melanie
Join 18 million Eudora users by signing up for a free Eudora Web-Mail account at http://www.eudoramail.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:18:57 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
Subject: Re: medication for Sami
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi Sami, It's called neurontin. I take 300 mg at night, sleep much better,
too! Wake with a bit of a hangover, though. Hangover wears off by 9:00 or
so. The 300 mg lasts almost 24 hours for me. But originally my doc
prescribed 300 at night and 300 more twice through the day. I'd never wake
up if I took that much, but I usually can't take much medication - I over
react to many.
Good luck, let me know if it works for you!
Melanie
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of samantha pudge
Sent: Sunday, December 16, 2001 8:27 PM
To: [log in to unmask]
Subject: Re: medication
melanie,
what medicaion has given you some relief from pain? i've tried several and
no relief. if i haven't tried the one that helps you, i will ask my doctor
about trying it.
thanks, sami
--
On Sun, 16 Dec 2001 10:17:23 Melanie Erickson wrote:
>Hi Chuck
>Lucked into a
>pain med that was working for 24 hours - but after taking it for about one
>month, it is already lasting only about 20 hours. I still walk ok. Good
>and bad news about un-noticeable symptoms - good news is I haven't had to
>tell everyone at work yet, only my boss and immediate co-workers. Bad news
>is, expectations for output haven't changed. If you don't look like you
feel
>bad, hard to convince family you really don't feel good.
>
>Thanks for writing, good luck
>Melanie
Join 18 million Eudora users by signing up for a free Eudora Web-Mail
account at http://www.eudoramail.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:25:14 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/16/01 4:50:27 PM, [log in to unmask] writes:
<< I didn't see my post go on.. >>
I don't think this system is designed to ever shows one owns postings.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 19:46:06 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: PWP - My father
In-Reply-To: Ed Grskovich <[log in to unmask]>'s message of Sun, 16 Dec 2001
21:25:14 EST
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Hi all, there are settings to either get your own postings or not. I get
all of mine.
I am not well versed enough in the system to tell you what to do to make
sure that you get them if you want them.
ANYBODY? How about helping the newbies with info to do this.
Hugs Juanita CG for George 75/71/64
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 22:04:31 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jack Savely <[log in to unmask]>
Subject: Re: PARKINSN SETTINGS
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/enriched; charset="us-ascii"
Hi All:
The following are a few of the settings available on this list....
NOMAIL You have temporarily turned off your subscription and will
not receive any mail from the list
MIME You prefer to receive messages in MIME format
FULLHDR Full (normal) mail headers
REPRO You receive a copy of your own postings
NOACK No acknowledgement of successfully processed postings
If you are getting 2 of your posts, likely you have the REPRO set on.
If you don't get a copy of your posts the control is set to NOREPRO.
Jack
***********************************************************
<bold>E. Jack Savely CG for Jeannette 63/38/37 Topeka, KS
[log in to unmask]
</bold>***********************************************************
<bold>KANSAS - 'THE WHEAT STATE' & HOME OF THE SUNFLOWER & 'TOTO'
Ad Astra per Aspera - 'To the Stars through Difficulty'
</bold>***********************************************************
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 23:06:25 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathy Greis <[log in to unmask]>
Subject: computer mice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Does anyone suggest a mouse to use when my tremors are bad? I have trouble
with a conventional mouse. Kathy Greis
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:30:08 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: PWP - My father
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Yes thank-You....I've always ONLY hit reply ALL for me to get my
postings.....Thanks for bringing it to my attn. that their is another
way.....
Charlotte in San Diego
----- Original Message -----
From: "Juanita Hibbert" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 7:46 PM
Subject: Re: PWP - My father
> Hi all, there are settings to either get your own postings or not. I get
> all of mine.
> I am not well versed enough in the system to tell you what to do to make
> sure that you get them if you want them.
> ANYBODY? How about helping the newbies with info to do this.
> Hugs Juanita CG for George 75/71/64
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:52:37 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: PARKINSN SETTINGS
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Any chance you can set me to Repro? I'd be happy to do it myself if you =
tell me how....
Thanks so much!
Charlotte in San Diego
----- Original Message -----=20
From: Jack Savely=20
To: [log in to unmask]
Sent: Sunday, December 16, 2001 8:04 PM
Subject: Re: PARKINSN SETTINGS
Hi All:
The following are a few of the settings available on this list....
NOMAIL You have temporarily turned off your subscription and will
not receive any mail from the list
MIME You prefer to receive messages in MIME format
FULLHDR Full (normal) mail headers
REPRO You receive a copy of your own postings
NOACK No acknowledgement of successfully processed postings
If you are getting 2 of your posts, likely you have the REPRO set on.
If you don't get a copy of your posts the control is set to NOREPRO.
Jack
***********************************************************
E. Jack Savely CG for Jeannette 63/38/37 Topeka, KS
[log in to unmask]
***********************************************************
KANSAS - 'THE WHEAT STATE' & HOME OF THE SUNFLOWER & 'TOTO'
Ad Astra per Aspera - 'To the Stars through Difficulty'
***********************************************************
---------------------------------------------------------------------- =
To sign-off Parkinsn send a message to: =
mailto:[log in to unmask] In the body of the message put: =
signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:54:26 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nkporter <[log in to unmask]>
Subject: Typos galore
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
NEW TOPIC
Does anybody happen to know why it has become so hard to type? My typing
has been going slowly downhill for about four years, but it seems as if
the "slope got a lot steeper" during he last 6 months.
I sense there is something more going on than a mere deterioration of
manual dexterity. It appears to be more than letters missed due to a
light touch and strings of letter repeatssssssss due to a retarded
release, which are frequent. I see it, to a more or lesser degree, on
many posts to this exchange, so I don't think my problem is especially
unique.
Presently I manage just about two typos per word! This is especially
frustrating since I want to, need to (am obligated to) produce articles
for academic journals in my field. My best typing is done at a slow
pace, with my eyes focused on the monitor, watching as each word appears.
Tedious.
Thank the powers that be for "spell check", although sometimes I am too
far off even for that. Spell check does not catch things like think
instead of thing.
Nancy Porter
65/62/56
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 21:55:08 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nkporter <[log in to unmask]>
Subject: Re: PWP - My father and other stuff
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
If you send a "SET PARKINSN REPRO" command to
[log in to unmask],
LISTSERV will send you a copy of your own messages, so that you can see
that the message was distributed and did not get damaged on the way.
This
information is contained in the "welcoming letter" emailed to all new
subscribers.
I post infequently, but it is always nice to see that my post actually
made it to PIEN.
Nancy Porter
>In a message dated 12/16/01 4:50:27 PM, [log in to unmask] writes:
>
><< I didn't see my post go on.. >>
>
>I don't think this system is designed to ever shows one owns postings.
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 22:01:05 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nkporter <[log in to unmask]>
Subject: Re: computer mice
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
>Does anyone suggest a mouse to use when my tremors are bad? I have trouble
>with a conventional mouse. Kathy Greis
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
I use a Kensington Turbo mouse: it is a stationary object with a big,
(about 2" in diameter) roller ball in the center. All you really need is
an index or middle finger to roll the ball and a thumb for the "click"
button.
NKPorter
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 22:17:55 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: PWP - My father and other stuff
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks so much.....I just lost everything on my computer lately from a virus
so I couldn't look it up...
Charlotte
----- Original Message -----
From: "nkporter" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 8:55 PM
Subject: Re: PWP - My father and other stuff
> If you send a "SET PARKINSN REPRO" command to
> [log in to unmask],
> LISTSERV will send you a copy of your own messages, so that you can see
> that the message was distributed and did not get damaged on the way.
> This
> information is contained in the "welcoming letter" emailed to all new
> subscribers.
> I post infequently, but it is always nice to see that my post actually
> made it to PIEN.
>
> Nancy Porter
>
> >In a message dated 12/16/01 4:50:27 PM, [log in to unmask] writes:
> >
> ><< I didn't see my post go on.. >>
> >
> >I don't think this system is designed to ever shows one owns postings.
> >
> >----------------------------------------------------------------------
> >To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> >In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 01:30:50 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MyFirstname Mylastname <[log in to unmask]>
Subject: Re: PARKINSN SETTINGS
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Please put me on the no-mail list Thanks alot
Duane
([log in to unmask])
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 16 Dec 2001 23:28:27 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 16th. 2001
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Good Morning All,
Here's the overnight "News & Views".... from the media
Cheers ........ murray
NEWS: Drug may relieve Parkinson's therapy side effects
http://dailynews.yahoo.com/h/nm/20011212/hl/parkinsons_1.html
JERUSALEM: Geneticists Study Jewish Genes for Disease Clues
http://dailynews.yahoo.com/h/nm/20011216/sc/health_israel_genetics_dc_1.html
OHIO: State, federal laws threaten the promise of stem cells
http://www.clevelandjewishnews.com/display/inn_news/cells1214.txt
PITTSBURG: Unique stem cells don't trigger immune response,
muscular dystrophy study finds
http://www.post-gazette.com/healthscience/20011211muscle1211p2.asp
LAS VEGAS: 'The Greatest' shows he's still got it
http://www.lvrj.com/lvrj_home/2001/Dec-15-Sat-2001/news/17678226.html
* * *
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 03:53:05 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Howard Harrington <[log in to unmask]>
Subject: Re: computer mice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I use what they call a tracker ball. It is the best way. The mouse is
stationary and you just rotate the ball. It is as if you turned the mouse
upside down and you rotate the ball. I have tried a number of different
kinds and this is the best for me.
----- Original Message -----
From: "Kathy Greis" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 11:06 PM
Subject: computer mice
> Does anyone suggest a mouse to use when my tremors are bad? I have trouble
> with a conventional mouse. Kathy Greis
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 06:38:39 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
On Sun, 16 Dec 2001 21:54:26 -0700 nkporter <[log in to unmask]>
writes:
> NEW TOPIC
>
> Does anybody happen to know why it has become so hard to type? My
> typing has been going slowly downhill for about four years, but it
seems as
> if the "slope got a lot steeper" during he last 6 months.
> I sense there is something more going on than a mere deterioration
> of manual dexterity. It appears to be more than letters missed due to
> a light touch and strings of letter repeatssssssss due to a retarded
> release, which are frequent. I see it, to a more or lesser degree,
> on many posts to this exchange, so I don't think my problem is
> especially unique.
Nancy,
The repeating final letters, as you described was my first sympton of PD.
Looking back. it started many years before i was diagnosed - mostly
probelms repeating the letter "a" - especially words ending in a - would
end up like -- areaaaa. As you wrote probably due to retarded release of
the keys.
I also find keyboarding getting difficult and slow. Adjusting the
keyboard sensitivity (i'm not sure if this is the correct term - its an
option on the Windows control panel) helps a little.
I asked the list recently about voice recognition software - the results
were split almost 50-50. some people found it very useful, others said it
never worked well. The programs some people liked included DragonDictate,
Voice Xpress and ViaVoice. There are a number of versions for each and
prices vary.
Since then i also found a web site - CNet that has reviews of software
and other computer products. Go to:
http://www.cnet.com/software/
Search for "voice recognition"
Does anyonoe else have any suggestions or recommendations,
Linda
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 13:08:35 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Drug May Relieve Parkinson's Therapy Side Effects
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Source: Neurology 2001;57:1829-1834.
Date: 12-12-2001
http://dailynews.yahoo.com/h/nm/20011212/hl/parkinsons_1.html
Wednesday December 12 1:32 PM ET
Drug May Relieve Parkinson's Therapy Side Effects
NEW YORK (Reuters Health) - The experimental drug sarizotan counteracts some
of the debilitating side effects of levodopa, the most commonly used drug
for Parkinson's disease, animal studies show.
The encouraging results in animals should give the green light for clinical
trials of sarizotan and other similar drugs in patients with Parkinson's,
according to the study's authors.
Parkinson's disease is a progressive neurological disorder that causes
tremor, muscle rigidity and movement problems. The main treatment is the
drug levodopa, which helps restore diminishing levels of the brain chemical
dopamine in Parkinson's patients.
But long-term use of the drug often leads to potentially disabling side
effects. Many people who take the drug develop dyskinesia, a condition
marked by involuntary movements of the mouth, face and limbs.
Some research suggests that the complications of levodopa arise in part from
an increase in the release of another brain chemical called serotonin. It is
``conceivable,'' according to a team of researchers led by Dr. Francesco
Bibbiani and colleagues at the National Institute of Neurological Disorders
and Stroke in Bethesda, Maryland, that a class of drugs called 5-HT1A
agonists might relieve some of the side effects by blocking the release of
serotonin.
Bibbiani and his colleagues tested one such drug, sarizotan, in rats and
monkeys that had Parkinson-like symptoms.
Levodopa can relieve such symptoms in rats, but after about 3 weeks, the
animals become less responsive to the drug. But when the rats received a
single dose of sarizotan after taking levodopa for 23 days, the diminished
response was ``virtually reversed,'' Bibbiani and his colleagues report in a
recent issue of the journal Neurology.
As is the case in people with Parkinson's, monkeys on daily levadopa therapy
develop dyskinesias. But Bibbiani and his colleagues found that sarizotan
reduced one form of dyskinesia by as much as 91% in monkeys.
The results of these animal tests, the authors point out, are consistent
with preliminary research showing that the anti-anxiety drug buspirone,
which acts on the same pathway as sarizotan, can improve levodopa-related
complications in people with Parkinson's disease.
Based on the apparent safety and effectiveness of sarizotan in animals,
clinical trials of sarizotan and other similar drugs ``appear warranted,''
the authors conclude.
Merck, the company that is developing sarizotan, provided the drug for the
study.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 13:18:44 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: PMID: 11723272 : Serotonin 5-HT1A agonist improves motor
complications in rodent and primate parkinsonian models.
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
PMID: 11723272
Source: Neurology 2001 Nov 27;57(10):1829-34
Serotonin 5-HT1A agonist improves motor complications in rodent and primate
parkinsonian models.
Bibbiani F, Oh JD, Chase TN.
Experimental Therapeutics Branch, National Institute of Neurological
Disorders
and Stroke, NIH, Bethesda, MD.
BACKGROUND:
Serotoninergic transmission in the basal ganglia is known to influence
dopaminergic mechanisms and motor function.
OBJECTIVE:
To evaluate the possibility that serotoninergic 5-HT1A autoreceptors (by
regulating the release
of serotonin as well as dopamine formed from exogenous levodopa) affect the
response alterations complicating levodopa treatment of PD.
METHODS:
The 5-HT1A receptor agonist sarizotan (EMD128130) was systemically
administered alone and
together with levodopa to parkinsonian rats and nonhuman primates.
RESULTS:
In 6-hydroxydopamine-lesioned rats, sarizotan (2.5 mg/kg PO) had no effect
on the acute rotational response to levodopa but did attenuate the
shortening in motor response duration induced by chronic levodopa treatment.
In 1-methyl-4-phenyl-1,2,3,6-tetrahydropyridine-lesioned monkeys, sarizotan
(2 mg/kg PO) alone had no effect on parkinsonian severity or on the
antiparkinsonian response to levodopa. In contrast, the same dose of
sarizotan reduced levodopa-induced choreiform dyskinesias by 91 +/- 5.9%. In
both species, the motoric effects of sarizotan were blocked by the selective
5-HT1A antagonist WAY100635 (0.1 mg/kg SC), indicating that the observed
sarizotan responses were probably mediated at the 5-HT1A autoreceptor.
CONCLUSION:
Pharmaceuticals acting to stimulate 5-HT1A receptors could prove useful in
the treatment of the motor
response complications in parkinsonian patients.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 08:35:29 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nkporter <[log in to unmask]>
Subject: Re: Typos galore
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
[log in to unmask] replied:
Original post:
>> Does anybody happen to know why it has become so hard to type? My
>> typing has been going slowly downhill for about four years, but it
>>seems as if the "slope got a lot steeper" during he last 6 months.
>> I sense there is something more going on than a mere deterioration
>> of manual dexterity. It appears to be more than letters missed due to
>> a light touch and strings of letter repeatssssssss due to a retarded
>> release, which are frequent. I see it, to a more or lesser degree,
>> on many posts to this exchange, so I don't think my problem is
>> especially unique.
Reply:
>The repeating final letters, as you described was my first sympton of PD.
>Looking back. it started many years before i was diagnosed - mostly
>probelms repeating the letter "a" - especially words ending in a - would
>end up like -- areaaaa. As you wrote probably due to retarded release of
>the keys.
>I also find keyboarding getting difficult and slow. Adjusting the
>keyboard sensitivity (i'm not sure if this is the correct term - its an
>option on the Windows control panel) helps a little.
That fits like a (left hand) glove. The whole thing started late in
1994,
with a barely perceptible, and sort of indescribable glitch in my left
hand.
I kept signing off as NAncy instead of Nancy.
I use a Macintosh at home, and I understand the suggestions about voice
recognition in response to your earlier post, do not apply. I did try
adjusting keyboard sensitivity but it didn't seem to make any difference.
Curiously, the keyboard at the museum is a little easier to use. I think
some of the problem stems from dexterity, but it seems it is also related
to a another form of mis-communication between brain and hand. Not
surprising,
I guess. Solutions to the problem are welcome. So are explanations.
NAncy- there, I did it again
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 13:15:02 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/17/01 10:38:50 AM, [log in to unmask] writes:
<< I use a Macintosh at home >>
Check:
Apple Menu; Control Panel; Keyboard.
For us guys the:
Slider at Key Board Repeat should be set at Slow
Slider at Delay Until Repeat should be set at Long
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 10:32:44 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: ATTN: Bill Harshaw
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Bill,
I have been asked to speak to our local Parkinson's Disease support
group (East Bay) on current developments in the treatment of PD. I
thought that your brochure, which I helped with the editing of back in
February, 2000, might be a helpful thing to share with the group.
I have the manuscript copy that I worked from, but I wonder if you
have a "better copy" with illustrations, etc., that you could e-mail to
me. If so, can I have permission to distribute it at the meeting
(scheduled for February 7, 2002 in Oakland, California)?
I plan to use this talk also as a way to "plug" the PARKINSN List and
hopefully, we will get some more members in the process.
If you can e-mail the brochure in Acrobat (PDF) format, I can just
download and reprint it. If not, and you have the word-processor
version, I can do likewise, but without the illustrations, if any. If
neither applies, then send me "hard copy" and I should be able to
scan it.
Many thanks.
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.rafink.com/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 17:27:31 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
Subject: Re: Typos galore
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Nancy, I don't know why, but I am experiencing the same thing. Maybe it
will help to know that you are not alone. I type a lot and design ads -
lots of graphics - and somehow I equate my career with my freedom and
independence. It scares me to even think about not being able to work; but
my husband and I are trying to plan and prepare for the inevitable. I don't
know when I may have to quit, or when my boss may suggest that I should. I
hope I have four or more years like you have had.
Good luck, God Bless,
Melanie
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of nkporter
Sent: Sunday, December 16, 2001 11:54 PM
To: [log in to unmask]
Subject: Typos galore
NEW TOPIC
Does anybody happen to know why it has become so hard to type? My typing
has been going slowly downhill for about four years, but it seems as if
the "slope got a lot steeper" during he last 6 months.
I sense there is something more going on than a mere deterioration of
manual dexterity. It appears to be more than letters missed due to a
light touch and strings of letter repeatssssssss due to a retarded
release, which are frequent. I see it, to a more or lesser degree, on
many posts to this exchange, so I don't think my problem is especially
unique.
Presently I manage just about two typos per word! This is especially
frustrating since I want to, need to (am obligated to) produce articles
for academic journals in my field. My best typing is done at a slow
pace, with my eyes focused on the monitor, watching as each word appears.
Tedious.
Thank the powers that be for "spell check", although sometimes I am too
far off even for that. Spell check does not catch things like think
instead of thing.
Nancy Porter
65/62/56
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 17:43:28 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: KF Etzold <[log in to unmask]>
Subject: Scooters -- recommendation needed
MIME-Version: 1.0
Content-type: text/plain; charset=us-ascii
Having seen some of the posts on scooters I am curious about
recommendations and prehaps negatives. I saw the positive post by Joan
Hartman -- which kind do you have and do you have complaints. How do you
get the scooter in a car? I think one needs a Van with a lift, right?
But I am interested to hear from anybody who has had experience with them.
How much do they cost?
K-F Etzold cg Carline
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 14:50:37 -0800
Reply-To: Brian Carlson <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Brian Carlson <[log in to unmask]>
Subject: Re: Typos galore
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Typing was my first hint that I had PD. About 1 year before I was diagnosed
I felt like my right hand could not keep up with my left. That was in 1996.
I'm just about to file for disability now because of my typing. I'm a
computer specialist for the federal government. They tried to have me use
voice recognition software, but it doesn't work.
Brian
----- Original Message -----
From: Melanie Erickson <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 17, 2001 2:27 PM
Subject: Re: Typos galore
> Nancy, I don't know why, but I am experiencing the same thing. Maybe it
> will help to know that you are not alone. I type a lot and design ads -
> lots of graphics - and somehow I equate my career with my freedom and
> independence. It scares me to even think about not being able to work;
but
> my husband and I are trying to plan and prepare for the inevitable. I
don't
> know when I may have to quit, or when my boss may suggest that I should.
I
> hope I have four or more years like you have had.
>
> Good luck, God Bless,
> Melanie
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]]On Behalf Of nkporter
> Sent: Sunday, December 16, 2001 11:54 PM
> To: [log in to unmask]
> Subject: Typos galore
>
>
> NEW TOPIC
>
> Does anybody happen to know why it has become so hard to type? My typing
> has been going slowly downhill for about four years, but it seems as if
> the "slope got a lot steeper" during he last 6 months.
>
> I sense there is something more going on than a mere deterioration of
> manual dexterity. It appears to be more than letters missed due to a
> light touch and strings of letter repeatssssssss due to a retarded
> release, which are frequent. I see it, to a more or lesser degree, on
> many posts to this exchange, so I don't think my problem is especially
> unique.
>
> Presently I manage just about two typos per word! This is especially
> frustrating since I want to, need to (am obligated to) produce articles
> for academic journals in my field. My best typing is done at a slow
> pace, with my eyes focused on the monitor, watching as each word appears.
> Tedious.
>
> Thank the powers that be for "spell check", although sometimes I am too
> far off even for that. Spell check does not catch things like think
> instead of thing.
>
> Nancy Porter
> 65/62/56
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 15:32:33 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Scooters vs. wheelchairs-- recommendation needed
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
My first electric scooter was a Pride.....easy to take apart and fit into a
trunk for someone other then yourself.. I was not really thinking much more
then vanity when I purchased the scooter instead of what I have now.
After a few years with that I researched better and decided upon the
Quickie P200 which is like comparing the most expensive quality automoble
to a Chevy.....
You can go to the Sunrise Medical website
http://www.dynopower.freeserve.co.uk/homepages/wheelchair.htmto see Quickies
and compare the various models that would be best suited to your needs.
This company is run by folks who are all disabled and in the Know. They are
each one made specifically for you according to ALL of your many
measurements and needs....These come with two batterys instead of one so
they are much more powerful. It is also a electric chair instead of a
scotter which allows me to get in closer to tables for cards or tight spaces
in stores etc. It turns on a dime and is much more manuverable then the
scooters.
They are also built alot sturdier for tougber terraines so I can go more
places...Quickies are the wheelchair that is in all the races nationwide
with those fabulous colors....I feel alot more in control and secure with
this chair then my other scooter. When I cross a street it has alot more
get up and go.......There's nothing wrong with my Pride Scooter, its just
not like the one I have now....
I'm blessed to have top of the line Ins that covered the cost on both of
these. The first one goes for around $3,000.00 I think and my Quickie is
around 8-10 thousand depending on where you shop....
I sure wish I could find some place that would cover me for a wheelchair
lift as this would help me be much more independent.....It just doesn't make
sense to me that they'll cover a chair and not a lift.....
Charlotte Freemon in San Diego
----- Original Message -----
From: "KF Etzold" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 17, 2001 2:43 PM
Subject: Scooters -- recommendation needed
> Having seen some of the posts on scooters I am curious about
> recommendations and prehaps negatives. I saw the positive post by Joan
> Hartman -- which kind do you have and do you have complaints. How do you
> get the scooter in a car? I think one needs a Van with a lift, right?
>
> But I am interested to hear from anybody who has had experience with them.
> How much do they cost?
>
> K-F Etzold cg Carline
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 17:21:14 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Scooters -- recommendation needed
MIME-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
. I saw the positive post by Joan
Hartman -- which kind do you have and do you have complaints. How do you get the
scooter in a car? I think one needs a Van with a lift, right?
Hi...mine is a Lark which I believe was bought out
by Orthokinetic..and it comes apart into several pieces for easier
lifting....the base, the seat, the two batteries (about 15 lbs. each), and the
steering column which lightens the weight and it can be lifted by hand in and
out of the (large) trunk of my car.....the lift would be easier to drive the
scooter on to ....but my problem is finding a lift for my 1996 Toyota Camry and
so far I I can't ...your car needs to be able to accommodate a Class 3
trailer hitch on the back...and evidently the frame on my Camry can't do
it..it's "off center" .so I think I have to get another vehicle....but in the
meantime, the scooter can be lifted in and out of the trunk...they have various
lifts that can store your scooter on the back of the vehicle or inside the
vehicle....go search on the web (www.alltheweb.com or www.google.com ) for scooters and lifts and get
an idea of what want...or www.blvd.com/
or www.mobilitydiscount.com ....or
www.medsell.com ..there are several
disabilitity sites that can help you with new and used equipment...Hans
recommended an Abilities Expo and I went to the one in Long Beach CA last Spring
and found out that GM and 3-4 other car mfg. offer discounts on vehicle
disability equipment if you buy a new vehicle and that's where I am now..trying
to decide what I want...Go for it...you'll enjoy the freedom. Joan
Hartman
----- Original Message -----
From: KF Etzold
To: [log in to unmask]
Sent: 12/17/01 2:43:28 PM
Subject: Scooters -- recommendation
needed
Having seen some of the posts on scooters I am curious about
recommendations and prehaps negatives. I saw the positive post by
Joan
Hartman -- which kind do you have and do you have complaints. How do
you
get the scooter in a car? I think one needs a Van with a lift, right?
But I am interested to hear from anybody who has had experience with
them.
How much do they cost?
K-F Etzold cg Carline
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
--- Joan Hartman
--- [log in to unmask]
--- EarthLink: It's your Internet.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 10:41:08 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob & Joy Graham <[log in to unmask]>
Subject: Re: Middle of the night...
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Joan,
A belated thank you for posting these middle of the night thoughts. The
use of a wheelchair for Bob has also just recently been foreshadowed, so
your post was well timed.
Sincere good wishes
JOY Graham
>This is a requiem.
>
>It is a pity-party for my old life that I need to get out of my system
>and to get over.
>
>It hurts so badly=85.but I shall survive and life will go on as it always
>has; I will feel strong again and the sun will come out tomorrow=85.but it
>is late at night and I feel this awful pain of letting go.
>
>Today, my life took a turn and I can never have it the way it used to be
>or even make believe anymore that it will ever be the same again.
>
>I am hurting and sad and so very angry.
>
>You see, today, after months of talking about it and putting it off and
>denying that it was even ever real, all the pieces came together: my
>neuro wrote me a script, a letter saying that it was a real necessity,
>my insurance company oked the entire thing and a very nice man came to
>my house this afternoon with 3 wheelchairs for me to test drive.
>
>Now it=92s all over but the shouting and the delivery of my new
>jazzy-cobalt blue, 28 inches wide, turns on a dime, power wheelchair.
>She=92s a beauty all right and I am determined to make my peace with
>her-just as I did with my blue 28 inch high Schwin back when I was
>growing up. But that was then and this is now. Back in my youth, my
>bike was my declaration of freedom; I was the oldest of 6 kids and my
>mom didn=92t drive and my dad traveled 5 days out of the week. My bike was
>my get out of jail free card and my get out of the house full of
>brothers and sisters and my letting my pony tail free so that I could
>think straight. That was then=85I don=92t even think that getting my
>driver=92s license ever gave me the thrill of waving good-bye and heading
>out to face life on my bike.
>
>But this is now=85Now because of this stupid disease that I have come to
>terms with over and over again has me down for the count once again.
>
>It is the thought that once I begin to use the chair, it will become
>easy for me to get around in and it will become a habit. For so many
>years, I prided myself on my independence: before marriage, during
>marriage when Stan was sent to Dessert Storm and after he came home-I
>tried and succeeded in maintaining my independence. Even since the
>diagnosis of my PD 11 years ago, I have managed to go my own way, never
>looking backwards or allowing any time for regrets.
>
>That all changed today. It is another milestone in my life that I cannot
>hide from or pretend that it isn=92t there. It will be there all right, in
>all of its shiny glory. It is a rite of passage like when the head neuro
>at Mayo said, =93Yes it is really Parkinson=92s Disease=94 or when a judge
>finally said, =93Your Social Security Disability which you have requested
>is granted=94 and one of the daily concessions that People Living With
>Parkinson=92s make just to accommodate this damn disease.
>
>I was so proud of the way that I had handled this, I likened it to the
>oyster of life: when you get a piece of shit in your shell it irritates
>and bothers you until slowly your mind wraps itself around this irritant
>shaping it and polishing it until one day, it becomes a pearl.
>
>This was my pearl=85I had shaped it with the thoughts of how much more I
>will be able to accomplish once I no longer have to spend all of my
>energy on staying vertical and how much more time I will have when I no
>longer must spend so much of my day hauling my fat ass up off the floor.
>And won=92t it be a relief not to fall 25 times a day- cause, boy, this
>ole bod sure don=92t heal like it used to.
>
>I know in my head that all of this is true and in the daylight, sanity
>will return to me but it is the middle of the night and all I can think
>of is how, at 50 years of age, my life will be lived out seeing the
>world from a seated position.
>
>La chiam!!
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
a
>In the body of the message put: signoff parkinsn
Bob & Joy Graham
37 D Fremantle Village
Lot 1, Cockburn Rd
South Fremantle WA 6162
Australia
Ph & Fax (08) 9430 4730
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 21:59:01 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Perry Cohen <[log in to unmask]>
Subject: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Business Europe: Big Pharmaceuticals Take the Gloves Off
By Stephen Pollard
12/17/2001
The Wall Street Journal Europe
Has the pharmaceutical industry gone suicidal? After a year in which
the battles over HIV-AIDS treatments in South Africa seemed like one
ongoing PR disaster, the industry has now decided to throw down the
gauntlet over European drug prices.
In what amounts to a high-stakes gamble on the future shape of the
drug business in Europe, big pharmaceutical companies are making it
clear they've had enough of Europe's price-fixing ways. At the
beginning of December, Hank McKinnell, chief executive of Pfizer,
went on the attack over the pricing arrangements insisted on by many
EU governments, arguing that their logical consequence will be a
Europe denied access to new treatments.
Mr. McKinnell's remarks were directed at France, which has an
especially poor record for making new medical technologies available
to patients. Even after they are approved by regulators, their
availability becomes bogged down in negotiations on price. "These
talks can take two to three years longer in France than in any other
country," he said. And, he went on, the discounts pharmaceutical
companies are forced to give in France affect the prices they can
charge elsewhere. Japan, for example, bases its prices on a weighted
average of prices in other markets. By keeping a new drug off the
market in France, companies can thus earn more for it elsewhere.
It's not just Pfizer either. Tom McKillop, chief executive of
AstraZeneca, was also recently quoted as saying, "Europe has got to
get its act together. I think all the major pharmaceutical companies
are making decisions not to launch products [there]."
The crux of the matter is this. European governments demand severe
discounts on pricing. With a base price of 100 in the U.S., the
average French price for a drug, for example, is 42. With research
and development funded by profit, the PhRMA companies argue that the
Europeans are in effect after a free lunch -- access to innovation
without having to pay for it.
A report published earlier this month by the Tufts University Center
for the Study of Drug Development found that the average cost of
developing a new prescription medicine is $802 million. The cost is
so high because, in addition to the usual research and development
costs in other industries and the heavy capital investment required,
only one in five medicines that enter clinical trials ends up being
an approved drug. Development takes an average between 12-15 years.
The Tufts figure is similar to the estimate in a report released this
summer by the Boston Consulting Group, which calculated $880 million.
The industry umbrella group, PhRMA, has released figures showing that
the total sums being invested in R&D are staggeringly high, and
increasing: $30.5 billion in 2001, 18.7% higher than the amount in
2000, and over 300% more than the investment made in 1990.
The two issues of European cost-cutting and increasing research
budgets are, of course, deeply entwined. As Steve Slovick, senior
vice president with the Cambridge Pharma Consultancy in New York, put
it in The Wall Street Journal Europe on Dec. 12, "The U.S. ends up
funding all the research and development," European countries aren't
"paying their fair share."
The industry's line is clear: such sums have to come from somewhere,
and one place they are not coming from is Europe, which by forcing
down prices is refusing to play its part. As one senior industry
figure put it to me: "It's as if every month we get another set of
measures put forward, all with the same aim: cutting our profits,
which means cutting our research, which means cutting back the level
of innovation, which means cutting the number of patients who can be
helped." In recent months further cost-cutting measures have been
announced in Germany, Italy, Spain and Sweden.
In September, for instance, the German government began the process
of cutting back on so-called me-too drugs: the shorthand for new
medicines that deal with a problem for which an existing medicine is
already available. But limiting these treatments cuts a swath through
the basis of almost all scientific innovation -- innovation by
increment. Revolutionary new treatments are rare; most new medicines
do a little more to help, and it is only over time and with a full
body of clinical evidence from the different drugs available that
real transformations in medicine happen. Moves to block "me too"
drugs are thus profoundly short-sighted, and threaten the very basis
of innovation.
It's not just the mainly U.S.-based pharma companies that are
pointing out the growing problem. A year ago, the European Commission
itself published a report by Professor Fabio Pammoli on "Global
Competitiveness in Pharmaceuticals: a European perspective." The
study was commissioned to look out how far and why the European
pharmaceutical industry was losing ground to the U.S. Even the most
superficial glimpse at the industry can see that previously
EU-headquartered companies have moved to the U.S. As one key player
said: "The environment is becoming steadily more inhospitable." Put
simply, the 80 pages of the Pammoli report concluded that the EU
pharma industry was uncompetitive and that governments needed as a
priority to rekindle investment in R&D. Yet far from doing that,
their price-control policies are undermining research.
Novartis AG Chairman Daniel Vasella told The Wall Street Journal
Europe on Dec. 12 that still more investment will go to the U.S.
unless something is done to stem the tide. "Money goes where money
flows. If you have a more attractive market in the U.S. [than in
Europe], you will go there."
Prospects for the short and medium term may not be especially good,
but in the long term something has to give. If pharma companies do
not find the EU "hospitable" -- for which read profitable -- then
there is nothing to force them to stay or, perhaps still more
importantly, to offer their latest treatments to European patients.
The EU will be the loser. But in the long term it is difficult to see
prosperous patients settling for second-class status. Once they
realize what they are being forced to settle for -- and without --
they will surely push for changes which will give them access to new
medicines. The rise of vocal patient groups is merely the beginning
of this. Governments may be the cause of the problem, but the
solution is almost certainly out of their hands.
---
Mr. Pollard is a senior fellow at the Centre for the New Europe, a
Brussels-based think tank.
_______________________________________________
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 19:00:27 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Carmen -
Thanks - I might try the tape. Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 20:32:47 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Joan H. I wish you the very best in finding the right place to have the
surgery. I have many friends on the list that have had it and are very
please \d with the results. One is getting ready to have the other side
done as soon as he gets approval from his insurance. Good luck in
finding the right venue. Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 19:05:50 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: LOT OF ? TO ANSWER BY MR. PD
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Dear Good-lookiung Don - Sure hope Viv is doing better. Golleeee. You
take good care of her now. Have you gotten any tickets for driving your
chair on the wrong side of the road? I think you may be ok for awhile
if you don't start flirting with the other ladies. You may get in
trouble with you-know-who for that, huh? Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 18:40:53 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Nancy - Or should I say NAncy? I had to smile somewhat about your many
typos. However, I'm not the one with PD, and yet my typing has become
horrible, and I used to type 90 WPM, and my employer would rather dictate
while I was typing, than to have me do shorthand and then transcribe it.
I leave off first letters, and middle letters and even do like you did.
I sign off Jo ANn. IN fairness to you, though, my love has been having a
harder time typing on the keyboard. He will sometimes say. Thaaaaaaa is
very nice. Or some such thing. He will sign off as HHHHHHHo, etc. I
can' t speak for him except for what he tells me. He says, that from the
screen to his eyes, to his brain to his hands to his keyboard, just don't
want to cooperate. Maybe others with PD will be able to give you more
info, but I have a hunch it's part of the progression of the disease. I
wish you the very best. Jo Ann from Houston
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 22:23:36 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/17/2001 1:19:19 PM, [log in to unmask] writes:
<< Check:
Apple Menu; Control Panel; Keyboard.
For us guys the:
Slider at Key Board Repeat should be set at Slow
Slider at Delay Until Repeat should be set at Long >>
Ed,
Wow! What a handy tip. Thanks so much!
KKKathleen
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 21:30:17 -0600
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: samantha pudge <[log in to unmask]>
Organization: QUALCOMM Eudora Web-Mail (http://www.eudoramail.com:80)
Subject: Re: seeing your own posts
Mime-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
you have to change the settings for your own post to show up in your own inbox. to change your settings go to ....
http://www.parkinsons-information-exchange-network-online.com/parkmail/maillist.html
--
On Sun, 16 Dec 2001 21:25:14 Ed Grskovich wrote:
>In a message dated 12/16/01 4:50:27 PM, [log in to unmask] writes:
>
><< I didn't see my post go on.. >>
>
>I don't think this system is designed to ever shows one owns postings.
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
>
Join 18 million Eudora users by signing up for a free Eudora Web-Mail account at http://www.eudoramail.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 23:31:53 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Rayilyn Brown <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
nancy, i used to be a whiz at yping, eheh, i attribute my loss of fine motor
skills to micorgraphia, weakness in both hands, fortunayely i'm right handed,
so do most o f typing with right hand. Over 3 yrs ago I ctually typped the
jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see all the
typos?? I didn't know anyone with PD could ytpe welwl. uncorrected, Rayilyn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 00:49:15 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Would anyone know of a way of getting a list of states with a yeah or a nay
by each one if Medicare will or will not cover DBS there? So far we have
Ohio yes, NY no. Does anyone know about NJ?
BBA
----- Original Message -----
From: "Kathleen Cochran" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, December 16, 2001 1:10 PM
Subject: Re: DBS
> In a message dated 12/16/2001 10:09:55 AM, [log in to unmask] writes:
>
> << the State in which the surgery is done
>
> determines elegibility. Therefore, Medicare will cover the operation in
>
> Ohio even though I reside in New York where it us not an eligible
expense. >>
>
> Joan,
>
> This is great information. Thanks for posting it.
>
> Kathleen
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Mon, 17 Dec 2001 22:27:19 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 17th. 2001
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Good Morning All,
Here's the overnight "News & Views".... from the media
I'm heartened by research news in Virginia & Michigan!
Cheers ........ murray
NEWS: PhRMA Survey Finds 176 Neurological Medicines
in Pipeline
http://www.usnewswire.com/topnews/temp/1217-110.html
NEWS: Drug May Help Patients with Advanced Parkinson's
http://dailynews.yahoo.com/h/nm/20011217/hl/parkinsons_2.html
NEWS: Tracking Stem Cells Implanted Into A Living Animal
http://unisci.com/stories/20014/1217011.htm
VIRGINIA: Local researcher's work may lead
to new diabetes treatment
http://www.pilotonline.com/news/br1217vin.html
NEWS: A Saginaw Township researcher is encouraged
by work on adult stem cells.
http://sa.mlive.com/news/index.ssf?/news/stories/20011217sstemcellsbitn.frm
* * *
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 10:28:27 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: CARE list
Mime-Version: 1.0
Content-Type: text/plain; charset=ISO-8859-1
Content-Transfer-Encoding: quoted-printable
ESPECIALLY FOR NEW MEMBERS OF THE PIEN LIST, here's information about CAR=
E =21
CARE (Caregivers Are Really Essential) is a sublist of the main PD list. I=
t
is especially for caregivers (CGs) of Parkinsonians (PWPs). The need for
such a list was evident from feelings expressed on the PD list that there
are times when CGs need to be able to =22let off steam=22 in a place where=
they
will not upset their PWPs. Some of us have CareGiver support groups, where
we can safely express feelings, get practical support, and share
experiences but some do not. The CARE list , as a =22virtual support group=
=22,
serves this need, but DOES NOT shut off the participation of CGs on the
main list.
CGs who want to join CARE, where there is much less traffic than on the
main list, may do so as follows:
Send in body of post (not on subject line) to:
listserv=40listserv.muohio.edu
this command: subscribe CARE your full name
no signature, please.
You will be added to the list, and will receive further instructions.
If you have problems, for CARE ask Camilla Flintermann
<flintec=40muohio.edu>
or Jeff Jones (co-owner) <jpjones=40bigfoot.com>
********************
Camilla Flintermann, former CG for Peter 83/70/55
Oxford, Ohio
<flintec=40muohio.edu>
on the web at http://www.geocities.com/camillahf/index.html
=
=22Ask me about the CARE list for Caregivers of Parkinsoni=
ans =21 =22
And visit the CARE webring at http://www.pdcaregiver.org
THANKS FOR YOUR CONCERN =21 ---Camilla
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 04:42:43 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Deborah Henderson-Setzer <[log in to unmask]>
Subject: Re: DBS
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
I can give you one more state... North Carolina.. Yes... I am having my DBS
on Friday...
Deborah
_________________________________________________________________
MSN Photos is the easiest way to share and print your photos:
http://photos.msn.com/support/worldwide.aspx
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 04:45:50 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: LOT OF ? TO ANSWER BY MR. PD Electric chair and $80/month
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
----- Original Message -----
From: "Don McKinley" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 15, 2001 5:20 PM
Subject: LOT OF ? TO ANSWER BY MR. PD
...... WHO HAD A ELEC. CHAIR FOR SAIL NOW I REMEMBER HOW YET TO NOT BUY PIG
IN A POKE. DID NOT SAY WHERE U LIVED OR THE NAME OF IT. OR HOW TO GET IT.
Me - I did. I really was not trying to sell it to you, Don. I was just
trying to show you to be sure you can handle the joy stick. to steer it.
Actually, though, I'm the only person I ever heard of who can't drive one
very well. I've got arm problems as well as leg problems - and voice
problems - and seeing problems - and swallowing problems..... What, ME bitch
and moan? Heck no, not me!! [I would sell it to you. It cost $4100 a bit
over a year ago and now it just sits over in the corner of the living room
giving me the evil eye. Someone told me to sell it on E-bay and to start
the bidding at $2,950. But this sounds like it might be easier than E-bay -
make me an offer. It's a Pace Saver Scout M-series. It's 23 1/2" wide,
has 2 motors n 2 batteries. It has a 4.3 mph max speed, a 23 mile range,
and just a 20.5" turning radius. I live in Western NJ, about an easy one
day drive from eastern Ohio. We live about 20 miles or so from the Delaware
Water gap, where I-80 crosses the Delaware River. As far as buying a pig in
a poke- just bring it back - I'll give you your money back. Heck - you'd
know where I live, and I don't think I'd want you mad at me! Don't know
what else to say about that.]
I HAVE STOCK A HOME WOTH OVER MILLAN $ LOW ON CASH. I USED TO GET $100.OO A
DAY FOR POCKET MONE NOW $80 A MONTH NOW ALL CIG FOOD WELL ALL THE BASIC. I
AM NOT A LOUD TO HAVE CREIT CARDS OR WRITE CHECKS OR GET MONEY FROMM THE
BANKS. NOT FAIR. AND TO THINK I WAS MY OWN BOSS AND MADE GOOD MONEY. IKNOW
IW ILL BEAT THIS AS LONG THEY LET ME ALONE DON'T DO THIS OR THAT. HECK I AM
NOT DEAD JUST OLD AND GOOD LOOKING LO LO...
I.Y.Q DON AND VIVAN.
I don't know the whole background of all of these financial controls on
you, of course, but if you say its unfair, it probably is unfair. Some
heirs trying to protect an inheritance, perhaps? It sounds to me like you
could use a lawyer [I almost said a good lawyer!] I don't care for most of
them any more than the next guy, but sometimes we need them. Since you
could only pay this lawyer $80/month you would have to find one from Legal
Aid or some outfit like that. I - and I would think most people on this
List who read your posts -would not call you sufficiently incompetent to be
entitled to just 80 bucks a month!
Doesn't sound like nuch fun to me...
BBA
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 03:02:02 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: 1.) Collagen 2.) A P.S.
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
I am interested in finding out if Collagen injections into the vocal =
chords has gained any acceptance in helping increase voice volume. It =
was supposed to last approx. 5 months.Four years ago this month I went =
out to Los Angeles [from the east coast] to have the injections from the =
UCLA doctor who pioneered then for use with PWP. [It was previously used =
on people with scar tissue.] At the time he was one of only two doctors =
anywhere who gave them [ the other being a doctor at some HMO out in =
California, whom the UCLA guy had trained]. After first having gotten a =
test here to make sure I was not allergic to the substance, I flew out =
there. The doc put a TV camera down my nose and showed me that =
injections would do me little good because my vocal chords were still =
fairly close together. And he said the volume of my voice was not that =
bad.
My voice is really bad now. I can communicate only with a small handheld =
computer and a fairly small and portable voice synthesizer, which really =
tax the patience of those around me. I also use a TTY machine for phone =
calls. I am seeing my MDS on Wednesday and I will ask him about these =
injections, but I wanted to see if anyone in this group had ever heard =
of this. If it is still being done by just a small group of CA doctors, =
how good could it be? I would sincerely appreciate any input anyone =
might have on this.
Thanks!=20
BBA
P.S. A number of weeks ago, months, I had asked the group for input on =
two subjects, DBS and my too rapid resting heart rate. A number of =
knowledgeable people came thru on both topics. Meanwhile I had been =
having some computer problems which resulted in my having to reformat my =
hard drive. I lost all my old e-mails, and did not get the chance to =
privately thank those folks for their efforts, but I do so publically =
now. You all provided me with some valuable advice. THANKS!!! BBA
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 19:55:53 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Daniel Parker <[log in to unmask]>
Subject: Re: Typos galore
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
MIME-Version: 1.0
Nancy,
Have you tried using Control Panel/Accessibility Options/Keyboard/StickyKeys and FilterKeys? They help me when I have a hard time on the keyboard.
Regards,
Dan
--
_______________________________________________
Sign-up for your own FREE Personalized E-mail at Mail.com
http://www.mail.com/?sr=signup
1 cent a minute calls anywhere in the U.S.!
http://www.getpennytalk.com/cgi-bin/adforward.cgi?p_key=RG9853KJ&url=http://www.getpennytalk.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 04:48:30 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Can someone tell me how to get spell check on my Outlook Express that I've
been using....I'm a terrible speller too.....
Charlotte in San Diego
----- Original Message -----
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 17, 2001 8:31 PM
Subject: Re: Typos galore
> nancy, i used to be a whiz at yping, eheh, i attribute my loss of fine
motor
> skills to micorgraphia, weakness in both hands, fortunayely i'm right
handed,
> so do most o f typing with right hand. Over 3 yrs ago I ctually typped
the
> jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see all the
> typos?? I didn't know anyone with PD could ytpe welwl. uncorrected,
Rayilyn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 08:15:24 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathy Greis <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Spell check will only work if you have microsoft word or office . On the top
of a new open messege click on spelling. If you don't have one of these
programs I can't help, Kathy
----- Original Message -----
From: Charlotte Freemon <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, December 18, 2001 7:48 AM
Subject: Re: Typos galore
> Can someone tell me how to get spell check on my Outlook Express that I've
> been using....I'm a terrible speller too.....
>
> Charlotte in San Diego
> ----- Original Message -----
> From: "Rayilyn Brown" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, December 17, 2001 8:31 PM
> Subject: Re: Typos galore
>
>
> > nancy, i used to be a whiz at yping, eheh, i attribute my loss of fine
> motor
> > skills to micorgraphia, weakness in both hands, fortunayely i'm right
> handed,
> > so do most o f typing with right hand. Over 3 yrs ago I ctually typped
> the
> > jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see all
the
> > typos?? I didn't know anyone with PD could ytpe welwl. uncorrected,
> Rayilyn
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 05:30:16 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Charlotte Freemon <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks Kathy, I have it for new messages, I just didn't have anything for
when I reply to someone elses messages....
Thanks all the same.
Charlotte in San Diego
----- Original Message -----
From: "Kathy Greis" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, December 18, 2001 5:15 AM
Subject: Re: Typos galore
> Spell check will only work if you have microsoft word or office . On the
top
> of a new open messege click on spelling. If you don't have one of these
> programs I can't help, Kathy
>
>
> ----- Original Message -----
> From: Charlotte Freemon <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, December 18, 2001 7:48 AM
> Subject: Re: Typos galore
>
>
> > Can someone tell me how to get spell check on my Outlook Express that
I've
> > been using....I'm a terrible speller too.....
> >
> > Charlotte in San Diego
> > ----- Original Message -----
> > From: "Rayilyn Brown" <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Monday, December 17, 2001 8:31 PM
> > Subject: Re: Typos galore
> >
> >
> > > nancy, i used to be a whiz at yping, eheh, i attribute my loss of fine
> > motor
> > > skills to micorgraphia, weakness in both hands, fortunayely i'm right
> > handed,
> > > so do most o f typing with right hand. Over 3 yrs ago I ctually
typped
> > the
> > > jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see all
> the
> > > typos?? I didn't know anyone with PD could ytpe welwl. uncorrected,
> > Rayilyn
> > >
> > > ----------------------------------------------------------------------
> > > To sign-off Parkinsn send a message to:
> > mailto:[log in to unmask]
> > > In the body of the message put: signoff parkinsn
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
> >
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 08:27:42 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Deborah Setzer <[log in to unmask]>
Subject: Re: Typos galore
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: multipart/signed; protocol="application/x-pkcs7-signature";
micalg=SHA1; boundary="----=_NextPart_000_0002_01C1879D.DB949E90"
This is a multi-part message in MIME format.
------=_NextPart_000_0002_01C1879D.DB949E90
Content-Type: text/plain;
charset="us-ascii"
Content-Transfer-Encoding: 7bit
Sure thing.
1. Start Outlook
2. Click on Tools on the top toolbar
3. Click on Options
4. The forth tab at the top is Spelling
5. Check off what you want outlook to do
and there you have it... misspell to your hearts content.
Deborah
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of Charlotte Freemon
Sent: Tuesday, December 18, 2001 7:49 AM
To: [log in to unmask]
Subject: Re: Typos galore
Can someone tell me how to get spell check on my Outlook Express that
I've
been using....I'm a terrible speller too.....
Charlotte in San Diego
----- Original Message -----
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, December 17, 2001 8:31 PM
Subject: Re: Typos galore
> nancy, i used to be a whiz at yping, eheh, i attribute my loss of fine
motor
> skills to micorgraphia, weakness in both hands, fortunayely i'm right
handed,
> so do most o f typing with right hand. Over 3 yrs ago I ctually
typped
the
> jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see all
the
> typos?? I didn't know anyone with PD could ytpe welwl. uncorrected,
Rayilyn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
------=_NextPart_000_0002_01C1879D.DB949E90
Content-Type: application/x-pkcs7-signature;
name="smime.p7s"
Content-Transfer-Encoding: base64
Content-Disposition: attachment;
filename="smime.p7s"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------=_NextPart_000_0002_01C1879D.DB949E90--
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 09:35:01 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: JAMES JENKINS <[log in to unmask]>
Subject: Re: Typos galore
Charlotte,
With Outlook Express 6 click on tools then options. One of the tabs is
spelling. Click on the spelling tab and change your settings to suit.
----- Original Message -----
From: "Charlotte Freemon" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, December 18, 2001 8:30 AM
Subject: Re: Typos galore
> Thanks Kathy, I have it for new messages, I just didn't have anything for
> when I reply to someone elses messages....
>
> Thanks all the same.
>
> Charlotte in San Diego
> ----- Original Message -----
> From: "Kathy Greis" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, December 18, 2001 5:15 AM
> Subject: Re: Typos galore
>
>
> > Spell check will only work if you have microsoft word or office . On the
> top
> > of a new open messege click on spelling. If you don't have one of these
> > programs I can't help, Kathy
> >
> >
> > ----- Original Message -----
> > From: Charlotte Freemon <[log in to unmask]>
> > To: <[log in to unmask]>
> > Sent: Tuesday, December 18, 2001 7:48 AM
> > Subject: Re: Typos galore
> >
> >
> > > Can someone tell me how to get spell check on my Outlook Express that
> I've
> > > been using....I'm a terrible speller too.....
> > >
> > > Charlotte in San Diego
> > > ----- Original Message -----
> > > From: "Rayilyn Brown" <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Sent: Monday, December 17, 2001 8:31 PM
> > > Subject: Re: Typos galore
> > >
> > >
> > > > nancy, i used to be a whiz at yping, eheh, i attribute my loss of
fine
> > > motor
> > > > skills to micorgraphia, weakness in both hands, fortunayely i'm
right
> > > handed,
> > > > so do most o f typing with right hand. Over 3 yrs ago I ctually
> typped
> > > the
> > > > jounalsa of my cousinhs deceaased sns son (cycstic fibrosis) see
all
> > the
> > > > typos?? I didn't know anyone with PD could ytpe welwl. uncorrected,
> > > Rayilyn
> > > >
> > >
> ----------------------------------------------------------------------
> > > > To sign-off Parkinsn send a message to:
> > > mailto:[log in to unmask]
> > > > In the body of the message put: signoff parkinsn
> > >
> > > ----------------------------------------------------------------------
> > > To sign-off Parkinsn send a message to:
> > mailto:[log in to unmask]
> > > In the body of the message put: signoff parkinsn
> > >
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 10:11:44 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Renee Morgan <[log in to unmask]>
Subject: MAILING LIST
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Please remove me from mailing list.
Renee Morgan
[log in to unmask]
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 12:52:24 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Parkinson's Awareness & Fundraiser
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
If you know anyone in South Florida, who might be interested in two upcoming
fundraising events, details can be found on our web site at:
WWW.CUREPARKINSONS.ORG
Monday December 31, 2001- New Year's Eve Celebration on board the Sir
Winston (details on our web site)
Sunday March 10, 2002 - Benefit and Auction at Jacobson's in Mizner Park -
fully underwritten by Jacobson's - 900 guests will be attending. Sign on to
our web site for more information. Special guests include Janet Reno and
Morton Kondracke.
We plan to change our e-mail address for posting to the listserve... from
[log in to unmask] to [log in to unmask] within the next several days.
Anyone interested in volunteering, please contact us by e-mail at
[log in to unmask]
Sincerely,
Alison Landes
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 14:12:59 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Don McKinley <[log in to unmask]>
Subject: MY C.G. AND LOVER
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
BEEN HAVING TROUBLE IN TYING TO GET HER SOME FOR XMAS. SHE GOT ALL THE =
DIMONMEN POT AND CLOTHS SHE SAID SHE NEEDED WELL I CAME UP WITH WHAT TO =
GIVE HER. I HAVE A TATOO WHIT A DAGGER GOING THROUGH A HEART AND PLACE =
FOR A NAME FOR I THINK ABOUT 60 YEARS SHE ALWAYS SAID WHEN WAS I GOING =
TO PUT HER NAME IN TO SO THAT WAS WHAT I WAS GOING TO DO WELL MY =
DAUGHTER HAS A ROSE ON HER ANGEL. SO SHE WENT TO SEE HIM IF HE WOULD DO =
IT YES WELL SHE TOLD MOM TAKE ME AS I WOULD NEED MY CART. SHE SAID NO =
THOUGHT IT WOULD HURT ME TO MUCH. NOW THAT IS LOVE BUT MEN U KNOW HOW =
WIVES ARE THEY GOT TO HAVE SOMETHING TO RIDE U ABOUT LO LO SO ISAY I =
GOT THE BEST C. G. THERE IS TELLING HER ANY PAIN I WOULD HAVE WAS WOTH =
IT TO HAVE HER HAPPY. SO NO NAME BUT WHAT I WANT IS FOR MR, PD TO LEAVE =
AND NEVER COME BACK BUT WHITH MOM WHO COULD ASK FOR ANY MORE
I.Y.Q. DON AND =
VIVIAN
LOVE OF MY =
LIVE -56
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 12:06:31 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: jim farrell <[log in to unmask]>
Subject: Re: PARKINSN Digest - 15 Dec 2001 to 16 Dec 2001 (#2001-659)
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Regarding the computer mouse, try the track ball. It's an
upside down mouse.
Jim
__________________________________________________
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctions for all of
your unique holiday gifts! Buy at http://shopping.yahoo.com
or bid at http://auctions.yahoo.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 16:21:03 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: George Docken <[log in to unmask]>
Subject: Re: computer mice
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
I've had good luck with an Intelli-mouse trackball. The software can be
set to click once to pickup an object, move it with the trackball, then
click again to release. If both hands are preoccupied, there is hardware
that will allow you to steer the cursor by moving your head. Good luck!
-George
Kathy Greis <[log in to unmask]>
Sent by: Parkinson's Information Exchange Network
<[log in to unmask]>
12/16/2001 10:06 PM
Please respond to Parkinson's Information Exchange Network
To: [log in to unmask]
cc:
Subject: computer mice
Does anyone suggest a mouse to use when my tremors are bad? I have trouble
with a conventional mouse. Kathy Greis
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 17:38:24 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
Subject: Re: Middle of the night...
In-Reply-To: <v01540b00b8431364c70f@[202.148.94.216]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
Joan, I've just been catching up on postings - yours has be fighting' mad.
Not at you, but at knowing that what you say is true, that I will have to
"come to terms with my disease" time and time again.
On Friday last week, several people came to me at work commenting on how I
finally "sound much like my regular self again". My boss said I'd "been
testy", a co-worker said she "was afraid to approach me because she thought
I'd bite"! Well, I had been "coming to terms" as you so aptly put it with
not receiving a new position at work that I have been working for since I
began working there. Actually I have been doing it as "additional duties",
but now they recognized it was becoming too much for me and created the
position I've been advocating for so long and asked me if "so-n-so" was
capable of doing the job. Their intention was to help, not hurt, but that's
not the point. The point is that my anger was so visible to everyone else
and transparent to me until they called it to my attention. I HAD been
"testy". At home too, not just at work and couldn't name what it was that
was making me feel that way. It wasn't the job so much, it was the "terms".
I am pretty new to this disease, and have never been very good at "naming"
emotions. So, thank you for helping me see the truth. As angry as I am
right now that it is not fair, I know eventually I will accept. I am going
to keep your e-mail to remind me.
I am sorry you are in a chair, but you seem to have a spirit that will let
your new seated position lead you to a new "view" on life.
God Bless,
Melanie
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of Bob & Joy Graham
Sent: Monday, December 17, 2001 9:41 PM
To: [log in to unmask]
Subject: Re: Middle of the night...
Joan,
A belated thank you for posting these middle of the night thoughts. The
use of a wheelchair for Bob has also just recently been foreshadowed, so
your post was well timed.
Sincere good wishes
JOY Graham
>This is a requiem.
>
>It is a pity-party for my old life that I need to get out of my system
>and to get over.
>
>It hurts so badly….but I shall survive and life will go on as it always
>has; I will feel strong again and the sun will come out tomorrow….but it
>is late at night and I feel this awful pain of letting go.
>
>Today, my life took a turn and I can never have it the way it used to be
>or even make believe anymore that it will ever be the same again.
>
>I am hurting and sad and so very angry.
>
>You see, today, after months of talking about it and putting it off and
>denying that it was even ever real, all the pieces came together: my
>neuro wrote me a script, a letter saying that it was a real necessity,
>my insurance company oked the entire thing and a very nice man came to
>my house this afternoon with 3 wheelchairs for me to test drive.
>
>Now it’s all over but the shouting and the delivery of my new
>jazzy-cobalt blue, 28 inches wide, turns on a dime, power wheelchair.
>She’s a beauty all right and I am determined to make my peace with
>her-just as I did with my blue 28 inch high Schwin back when I was
>growing up. But that was then and this is now. Back in my youth, my
>bike was my declaration of freedom; I was the oldest of 6 kids and my
>mom didn’t drive and my dad traveled 5 days out of the week. My bike was
>my get out of jail free card and my get out of the house full of
>brothers and sisters and my letting my pony tail free so that I could
>think straight. That was then…I don’t even think that getting my
>driver’s license ever gave me the thrill of waving good-bye and heading
>out to face life on my bike.
>
>But this is now…Now because of this stupid disease that I have come to
>terms with over and over again has me down for the count once again.
>
>It is the thought that once I begin to use the chair, it will become
>easy for me to get around in and it will become a habit. For so many
>years, I prided myself on my independence: before marriage, during
>marriage when Stan was sent to Dessert Storm and after he came home-I
>tried and succeeded in maintaining my independence. Even since the
>diagnosis of my PD 11 years ago, I have managed to go my own way, never
>looking backwards or allowing any time for regrets.
>
>That all changed today. It is another milestone in my life that I cannot
>hide from or pretend that it isn’t there. It will be there all right, in
>all of its shiny glory. It is a rite of passage like when the head neuro
>at Mayo said, “Yes it is really Parkinson’s Disease” or when a judge
>finally said, “Your Social Security Disability which you have requested
>is granted” and one of the daily concessions that People Living With
>Parkinson’s make just to accommodate this damn disease.
>
>I was so proud of the way that I had handled this, I likened it to the
>oyster of life: when you get a piece of shit in your shell it irritates
>and bothers you until slowly your mind wraps itself around this irritant
>shaping it and polishing it until one day, it becomes a pearl.
>
>This was my pearl…I had shaped it with the thoughts of how much more I
>will be able to accomplish once I no longer have to spend all of my
>energy on staying vertical and how much more time I will have when I no
>longer must spend so much of my day hauling my fat ass up off the floor.
>And won’t it be a relief not to fall 25 times a day- cause, boy, this
>ole bod sure don’t heal like it used to.
>
>I know in my head that all of this is true and in the daylight, sanity
>will return to me but it is the middle of the night and all I can think
>of is how, at 50 years of age, my life will be lived out seeing the
>world from a seated position.
>
>La chiam!!
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
Bob & Joy Graham
37 D Fremantle Village
Lot 1, Cockburn Rd
South Fremantle WA 6162
Australia
Ph & Fax (08) 9430 4730
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 14:48:42 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nkporter <[log in to unmask]>
Subject: Re: Typos galore
Mime-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Kathy Greis wrote:
>> Spell check will only work if you have microsoft word or office . On the
>>top of a new open messege click on spelling. If you don't have one of these
>> programs I can't help, Kath
Spell Check works very well in Claris Emailer, a Macintosh program which,
alas, is the last remains of Claris. It is still an excellent bit of
work. Some of us, but only a few, do not work on PC's, and many,
although there is a Mac version, do not use Outlook which seems to be the
major carrier for virus and worm attacks. (It nearly brought down a
major Southern California campus during one of the recent infections.)
Back to typos. It almost seems as if there is an emerging dyslexia in
those who have never experienced it before. I find myself reversing
letters in words like hte, nad and many others. This is new for me. Is
dyslexia part of the Parkinson palette also?
Nancy
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 18:03:35 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Melanie Erickson <[log in to unmask]>
Subject: Re: Typos galore
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Nancy - that's actually my main "typo", rearranging letters in words.
Melanie
-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]]On Behalf Of nkporter
Sent: Tuesday, December 18, 2001 4:49 PM
To: [log in to unmask]
Subject: Re: Typos galore
Kathy Greis wrote:
>> Spell check will only work if you have microsoft word or office . On the
>>top of a new open messege click on spelling. If you don't have one of
these
>> programs I can't help, Kath
Spell Check works very well in Claris Emailer, a Macintosh program which,
alas, is the last remains of Claris. It is still an excellent bit of
work. Some of us, but only a few, do not work on PC's, and many,
although there is a Mac version, do not use Outlook which seems to be the
major carrier for virus and worm attacks. (It nearly brought down a
major Southern California campus during one of the recent infections.)
Back to typos. It almost seems as if there is an emerging dyslexia in
those who have never experienced it before. I find myself reversing
letters in words like hte, nad and many others. This is new for me. Is
dyslexia part of the Parkinson palette also?
Nancy
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 17:05:22 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Carole Carey <[log in to unmask]>
Subject: Re: Typos galore
In-Reply-To: <[log in to unmask]>
Mime-version: 1.0
Content-type: text/plain; charset="US-ASCII"
Content-transfer-encoding: 7bit
Nancy-
Eureeka!! I have the exact same dyslexic fingers - the is hte, and is nad,
etc.... It is such a relief to know that I am not alone in yet another
"problem" from this PD! No answer to the problem, just grateful for the
delete key and the auto spell-checker. And grateful to know there is at
least ONE other dyslexic typist out there!
Carole
48/37/30
> From: nkporter <[log in to unmask]>
> Reply-To: "Parkinson's Information Exchange Network"
> <[log in to unmask]>
> Date: Tue, 18 Dec 2001 14:48:42 -0700
> To: [log in to unmask]
> Subject: Re: Typos galore
>
> I find myself reversing
> letters in words like hte, nad and many others. This is new for me. Is
> dyslexia part of the Parkinson palette also?
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 18:42:06 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Parkinson residence
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Dear PIEN readers,
Let me introduce myself. I am Marge Moylan. I have Parkinson's which was
diagnosed in 1986. I am 57 now, and have symptoms that go back to my late
30s. I am a member of the Central New York Parkinson's Support Group, Inc.
which will be celebrating its 10th anniversary next month. Six of our
members including me are serving on a steering committee at the Presbyterian
Home of Central New York which is in the process of planning a wing which
will be a residence for PWP.
I know some of your are aware that the Presbyterian Home has opened this
Parkinson wing. It seems to be a first. We can't find another like It.
Currently the wing has about 6 residents with PD. It is a gradual changeover
from an ordinary wing to the Parkinson's wing. At this point staff on that
wing have had special training in caring for the Parkinson patient to be more
sensitive to our needs. But down the road there will be a complete renovation
of this wing to make it as Parkinson friendly as possible. What we are
looking for right now are ideas, suggestions of specific things that should
be included in the design of the rooms, hallways, and common areas that would
make these suitable, accessible and useful for PWP. We need suggestions to
pass on to our architect.
We have talked about things like a place where we can sit up late to talk,
read, watch TV because we have so much trouble sleeping, and things like
lines at intervals that are part of the carpeting, to step over to break a
freeze, and handrails on outdoor walkways. We've suggested an exercise room
right on the unit in addition to the large rehab center, so that a PWP can go
in on his "on" time to get some exercise when it's useful to him. These are
the kinds of things we are looking for.
If you have any ideas that you would think would make life in a residence
such as this better for PWP, please let us know. You can e-mail suggestions
to me at [log in to unmask]
We are about to enter the fundraising aspect of this project and need some con
crete ideas about what we can do to be the biggest help to PWP.
Thanks so much. Hope to hear from some of you.
Marge Moylan
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 18:47:47 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Raising Awareness & Funds for Parkinson's Mon. Dec. 31 and Sun.
Mar. 10
MIME-Version: 1.0
Content-Type: multipart/mixed; boundary="part1_6d.1f5ced3c.29512fa3_boundary"
--part1_6d.1f5ced3c.29512fa3_boundary
Content-Type: multipart/alternative;
boundary="part1_6d.1f5ced3c.29512fa3_alt_boundary"
--part1_6d.1f5ced3c.29512fa3_alt_boundary
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Dear List Members,
If you know anyone in South Florida, who might be interested in two upcoming
fundraising events, details can be found at
WWW.CUREPARKINSONS.ORG
Monday December 31, 2001- New Year's Eve Celebration on board the Sir
Winston (details on our web site)
Sunday March 10, 2002 - Benefit and Auction at Jacobson's in Mizner Park -
fully underwritten by Jacobson's - 900 guests will be attending. Sign on to
our web site for more information. Special guests include Janet Reno and
Morton Kondracke.
We plan to change our e-mail address for posting to the listserve... from
[log in to unmask] to [log in to unmask] within the next several days.
Anyone interested in volunteering, please contact us by e-mail at
[log in to unmask]
Sincerely,
Alison Landes
--part1_6d.1f5ced3c.29512fa3_alt_boundary
Content-Type: text/html; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
<HTML><FONT FACE=arial,helvetica><FONT SIZE=2>Dear List Members,
<BR>
<BR>If you know anyone in South Florida, who might be interested in two upcoming fundraising events, details can be found at
<BR>
<BR><B>WWW.CUREPARKINSONS.ORG</B>
<BR>
<BR><B>Monday December 31, 2001</B>- New Year's Eve Celebration on board the Sir Winston (details on our web site)
<BR>
<BR><B>Sunday March 10, 2002 </B>- Benefit and Auction at Jacobson's in Mizner Park - fully underwritten by Jacobson's - 900 guests will be attending. Sign on to our web site for more information. Special guests include Janet Reno and Morton Kondracke.
<BR>
<BR>We plan to change our e-mail address for posting to the listserve... from [log in to unmask] to [log in to unmask] within the next several days. Anyone interested in volunteering, please contact us by e-mail at [log in to unmask]
<BR>
<BR>Sincerely,
<BR>Alison Landes</BLOCKQUOTE>
<BR>
<BR>
<BR>Alison Landes
<BR></FONT></HTML>
--part1_6d.1f5ced3c.29512fa3_alt_boundary--
--part1_6d.1f5ced3c.29512fa3_boundary
Content-Type: message/rfc822
Content-Disposition: inline
Return-path: <[log in to unmask]>
From: [log in to unmask]
Full-name: ASLandes
Message-ID: <[log in to unmask]>
Date: Tue, 18 Dec 2001 12:52:24 EST
Subject: Parkinson's Awareness & Fundraiser
To: [log in to unmask]
MIME-Version: 1.0
Content-Type: multipart/alternative; boundary="part2_6d.1f5ced3c.2950dc58_boundary"
X-Mailer: AOL 6.0 for Windows US sub 10551
--part2_6d.1f5ced3c.2950dc58_boundary
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
If you know anyone in South Florida, who might be interested in two upcoming
fundraising events, details can be found on our web site at:
WWW.CUREPARKINSONS.ORG
Monday December 31, 2001- New Year's Eve Celebration on board the Sir
Winston (details on our web site)
Sunday March 10, 2002 - Benefit and Auction at Jacobson's in Mizner Park -
fully underwritten by Jacobson's - 900 guests will be attending. Sign on to
our web site for more information. Special guests include Janet Reno and
Morton Kondracke.
We plan to change our e-mail address for posting to the listserve... from
[log in to unmask] to [log in to unmask] within the next several days.
Anyone interested in volunteering, please contact us by e-mail at
[log in to unmask]
Sincerely,
Alison Landes
--part2_6d.1f5ced3c.2950dc58_boundary
Content-Type: text/html; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
<HTML><FONT FACE=arial,helvetica><FONT SIZE=2>If you know anyone in South Florida, who might be interested in two upcoming fundraising events, details can be found on our web site at:
<BR>
<BR><B>WWW.CUREPARKINSONS.ORG</B>
<BR>
<BR><B>Monday December 31, 2001</B>- New Year's Eve Celebration on board the Sir Winston (details on our web site)
<BR>
<BR><B>Sunday March 10, 2002 </B>- Benefit and Auction at Jacobson's in Mizner Park - fully underwritten by Jacobson's - 900 guests will be attending. Sign on to our web site for more information. Special guests include Janet Reno and Morton Kondracke.
<BR>
<BR>We plan to change our e-mail address for posting to the listserve... from [log in to unmask] to [log in to unmask] within the next several days. Anyone interested in volunteering, please contact us by e-mail at [log in to unmask]
<BR>
<BR>Sincerely,
<BR>Alison Landes
<BR></FONT></HTML>
--part2_6d.1f5ced3c.2950dc58_boundary--
--part1_6d.1f5ced3c.29512fa3_boundary--
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 18:48:27 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "(Nancy) (Holder)." <[log in to unmask]>
Subject: Re: Parkinson residence
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/18/01 3:44:12 PM, [log in to unmask] writes:
<< Dear PIEN readers,
Let me introduce myself. I am Marge Moylan. I have Parkinson's which was
diagnosed in 1986. I am 57 now, and have symptoms that go back to my late
30s. I am a member of the Central New York Parkinson's Support Group, Inc.
which will be celebrating its 10th anniversary next month. Six of our
members including me are serving on a steering committee at the Presbyterian
Home of Central New York which is in the process of planning a wing which
will be a residence for PWP.
I know some of your are aware that the Presbyterian Home has opened this
Parkinson wing. It seems to be a first. We can't find another like It.
Currently the wing has about 6 residents with PD. It is a gradual changeover
from an ordinary wing to the Parkinson's wing. At this point staff on that
wing have had special training in caring for the Parkinson patient to be more
sensitive to our needs. But down the road there will be a complete renovation
of this wing to make it as Parkinson friendly as possible. What we are
looking for right now are ideas, suggestions of specific things that should
be included in the design of the rooms, hallways, and common areas that would
make these suitable, accessible and useful for PWP. We need suggestions to
pass on to our architect.
We have talked about things like a place where we can sit up late to talk,
read, watch TV because we have so much trouble sleeping, and things like
lines at intervals that are part of the carpeting, to step over to break a
freeze, and handrails on outdoor walkways. We've suggested an exercise room
right on the unit in addition to the large rehab center, so that a PWP can go
in on his "on" time to get some exercise when it's useful to him. These are
the kinds of things we are looking for.
If you have any ideas that you would think would make life in a residence
such as this better for PWP, please let us know. You can e-mail suggestions
to me at [log in to unmask]
We are about to enter the fundraising aspect of this project and need some con
crete ideas about what we can do to be the biggest help to PWP.
Thanks so much. Hope to hear from some of you.
Marge Moylan
200
>>
Dear Marge,
What a worthy endeavor! I commit myself to praying for your project,
including the raising of funds, for 10 minutes every day.
--Nancy H.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 19:03:25 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Michele Ritter and Chet Jezierski <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
My husband is the one who was diagnosed with PD, but I have the some of the
same problems typing as have been mentioned, nad for and, teh for the, also
when I capitalize a word, the second letter also is capitalized, words are
run together, when I use the space bar, it doesn't seem to "take." So I
don't know if it's a function of only PD, but perhaps a function of aging
(we are both 54). It drives me crazy, and spell checkers don't find all the
mistakes.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 20:52:33 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
On Mon, 17 Dec 2001 21:59:01 -0500 Perry Cohen <[log in to unmask]> writes:
> Business Europe: Big Pharmaceuticals Take the Gloves Off
> By Stephen Pollard>
> 12/17/2001
> The Wall Street Journal Europe
Thanks Perry - this was an interesting and also disturbing article. The
pharmaceutical industry, as this article reports, seems to be blaming
European governemnts who institute price controls on drug prices, for
driving up the cost of drugs in the U.S. An industry represnetative is
quoted :
>" The crux of the matter is this. European governments demand severe
> discounts on pricing. With a base price of 100 in the U.S., the
> average French price for a drug, for example, is 42. With research
> and development funded by profit, the PhRMA companies argue that the
> Europeans are in effect after a free lunch -- access to innovation
> without having to pay for it."
--- It seems like the industry might be hoping to take criticism off the
pharmaceutical companies and the high prices of medicines in the U.S. by
trying to pit consumers from diferent countries against each other. This
type of "divide and conquer" mentality does not help any of us. It also
diverts attention from the fact that there is still no Medicare
prescription coverage and that many workers and unemployed Americans
lack insurance for their medications, and must pay hundreds of dollars a
month for their meds, out of their pockets.
i remember hearing a very different interpretation on prescription drug
pricing last year at the Families USA confernence and dug up the handout
from a talk by Stephen Schondelmeyer, who teaches at the Un. of Minnesota
and directs the PRIME Institute (Pharmaceutical Research In Management &
Economics)
He suggested that the U.S. should also adopt price controls, such as the
European countries have done. Comparing drug prices among different
countries for 1999-2000, while prices increased close to 6%in the U.S.
they decreased from 4 - 6% among EU countries.
Comparing U.S. and U.K. prices for the same drugs - the costs in U.K.
were 40% less. Why? They analyzed the expenses of the drug firms in both
country and found that "Nearly 2/3 of the U.S. -U.K. price difference
appears to be due to expenses in the U.S. for marketing, advertising and
administrative expenses."
So we, the consumers are paying for all those drug commercials on T.V.,
ads in medical journals, freebies to doctors, etc.
The article also states:
" If pharma companies do not find the EU "hospitable" -- for which read
profitable -- then
> there is nothing to force them to stay or, perhaps still more
importantly, to offer their latest treatments to European patients. "
-- Besides the ethical issues of threatening to withold treatments from
the sick - wouldn't the drug companies loose even more money if they
don't market their new products throughout the world?
And as the article concludes - patient groups are becoming organized and
would not stand for this type of mistreatment.
Any other reactions ?
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 21:33:51 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Ask the doctor
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
To Kathrynne and Hans
I am receiving e-mails from "ask the doctor" but I am having a problem in
asking a question. When I enter my e-mail address as requested and "save" I
get a screen that says "cannot delete" and "click here" which gives me no
results. I am still unable to get to the forum screen to ask a question.
Any help would be appreciated. Thank you
[log in to unmask]
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 22:31:05 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Good luck Deborah. I feel sure you'll do fine and will be better off for
the surgery. Jo Ann from Houston
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 22:38:56 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: MY C.G. AND LOVER
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Ah, Don - You sound like a man who just fell in love when you write about
Viv. Must be nice. Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 22:10:58 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Raising Awareness & Funds for Parkinson's Mon. Dec. 31 and
Sun. Mar. 10
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Allison - Landes is not a common name, and I wondered if you could be
related to Larry and Merle Landes, whose last address I know of, is
Souderton, Pa. Just curious, because I've lost touch with them. Best
wishes, Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 22:29:13 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Rayilyn - You still l have such a great sense of humor. All those
typos!!! As you know, I'm not the one with PD, but by golleeeeee, you'd
think so with my typos. Best toyou Jo Ann
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Tue, 18 Dec 2001 23:48:30 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Dec. 18th. 2001
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
Good Morning All,
Here's the overnight "News & Views".... from the media
The New York Times has a great section on stem cells
and cloning and all the pros and cons.... (Thankyou goes
to my friend Helen in Oregon for alerting us on this one)
If you are offended by in-depth science on cloning & embryos...
You are hereby forewarned... this may be graphic...
These articles and the attending Interactives sum up all
the info we've assembled to date...
Oh, one thing, the New York Times requires you register
online... But it is FREE...
My eyes are buggin' out 'n I'm gettin' overtired.... I
need some sleep...
Do these ARTICLES announce a CURE? Nope!
Still a long time away.....
Personally, I'm looking forward to seeing the movie "Ali"
over the holidays...
Cheers ........ murray
INTERACTIVE FEATURE
An Embryonic Journey - Fifty-six days in the life of an embryo,
from fertilization until it becomes a fetus.
http://www.nytimes.com/indexes/2001/12/18/science/index.html
ALSO Click on:
=95 Timeline: Stem Cell Research
=95 Graphic: The Body's Master Builders
=95 Adult Stem Cells; Repairing the Body
=95 Stem Cell Lines
A Thick Line Between Theory and Therapy, as Shown With Mice
http://www.nytimes.com/2001/12/18/science/life/18MICE.html
Controversy Over Cloning Reignites in Congress
http://www.nytimes.com/2001/12/18/health/genetics/18CELL.html
In Tiny Cells, Glimpses of Body's Master Plan
http://www.nytimes.com/2001/12/18/health/genetics/18NEXT.html
In Production of Stem Cells, Many Featured Actors but Few Stars
http://www.nytimes.com/2001/12/18/health/genetics/18PLAY.html
Scientists Seek Ways to Rebuild the Body, Bypassing the Embryos
http://www.nytimes.com/2001/12/18/health/genetics/18ALTE.html
Apostle of Regenerative Medicine Foresees Longer Health and Life
http://www.nytimes.com/2001/12/18/health/genetics/18HASE.html
Personal Health: Weighing the Rights of the Embryo
Against Those of the Sick
http://www.nytimes.com/2001/12/18/health/genetics/18BROD.html
Use of Cloning to Tailor Treatment Has Big Hurdles, Including Cost
http://www.nytimes.com/2001/12/18/health/genetics/18COST.html
Defining the Undefinable: The Living Cell
http://www.nytimes.com/2001/12/18/health/genetics/18LIFE.html
Stem Cell Glossary
http://www.nytimes.com/2001/12/18/health/genetics/18GLOS.html
ARTICLE: Shoulder-to-Shoulder With Ali
http://www.washingtonpost.com/wp-dyn/articles/A57976-2001Dec18.html
NEWS: Chinese research embraces therapeutic cloning
http://www.siliconvalley.com/docs/news/depth/china121801.htm
BBC NEWS: Stem cell ethics under microscope
Europe wrestles with stem cell question
http://news.bbc.co.uk/hi/english/world/europe/newsid_1717000/1717094.stm
http://news.bbc.co.uk/hi/english/world/europe/newsid_1717000/1717039.stm
* * *
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 09:56:50 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Hans van der Genugten <[log in to unmask]>
Subject: Re: Ask the doctor
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
----- Oorspronkelijk bericht -----
Van: "ervinmccarthy" <[log in to unmask]>
Aan: <[log in to unmask]>
Verzonden: woensdag 19 december 2001 3:33
Onderwerp: Ask the doctor
Ervin,
>>> I am receiving e-mails from "ask the doctor" but I am having a problem
in asking a question. <<<
To ask a question, you don't have to go to the forum on the website.
Because you are a member, you can ask your question by sending it by e-mail
to:
[log in to unmask]
Hans.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 05:30:54 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Deborah Henderson-Setzer <[log in to unmask]>
Subject: Re: DBS
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Thank You Joanne,
They are shaving my head at 1 PM today. I must say that nerves are setting
in.
Deborah
_________________________________________________________________
Join the world’s largest e-mail service with MSN Hotmail.
http://www.hotmail.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 09:04:19 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Deborah,
I and so many others are thinking of you.
Wishing you a successful surgery, a speedy recovery, and all the benefits
that this procedure has been shown to bring.
Hang on to that courage and strength that have served you so well.
With warm regards,
Kathleen
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 10:30:36 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Ask the doctor
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks Hans. Got it now.
[log in to unmask]
----- Original Message -----
From: "Hans van der Genugten" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, December 19, 2001 3:56 AM
Subject: Re: Ask the doctor
> ----- Oorspronkelijk bericht -----
> Van: "ervinmccarthy" <[log in to unmask]>
> Aan: <[log in to unmask]>
> Verzonden: woensdag 19 december 2001 3:33
> Onderwerp: Ask the doctor
>
> Ervin,
>
> >>> I am receiving e-mails from "ask the doctor" but I am having a problem
> in asking a question. <<<
>
> To ask a question, you don't have to go to the forum on the website.
>
> Because you are a member, you can ask your question by sending it by
e-mail
> to:
>
> [log in to unmask]
>
> Hans.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 13:01:21 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Linda:
I'm afraid I must disagree with your conclusions. Drug companies that
choose not to participate in EU markets are not withholding treatments for
the sick.
I know that these companies are far from popular, and probably rightly so.
But in acting in their stockholders' and management's best interest, they
actually do (and must if they are to be successful) act in their customers'
best interest.
It is in our interest if successful new drugs are developed. The price of
holding down prices by countries and communities is fewer drugs developed,
though drugs already out probably bear a lower cost to those lucky enough to
get them. This is a happy outcome for those who will never need new drugs
to be developed. Unfortunately, even the currently healthy can not say with
certainty they will always be in the position where new medications might
not benefit them.
Companies will only develop successful new drugs if their projections show
that revenues from these will make up for their many unsuccessful efforts.
I favor fewer attempts to control this market. Free enterprise has many
failings but other systems have many more.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.307 / Virus Database: 168 - Release Date: 12/11/2001
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 11:31:07 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ellen Reitkopp <[log in to unmask]>
Subject: Introduction
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
My name is Ellen Reitkopp. I am semi-retired and living in Florida enjoying the warmth and the sports. I was recently diagnosed with early stage Parkinsons-trouble brushing my teeth and not much right arm swing when walking. Also some change in gait with the right foot. There is a disagreement between my internist and neurologist at Kaiser and the specialist I went to on my own. They are not convinced it is Parkinsons. They still think it might be a micro TIA. Historically, has Kaiser Permanente been reluctant to diagnose PD? NIH has agreed to see me in February to add another opinion which they have agreed to accept. They want to see more symptons before they put me on medications. The specialist says why wait? She recommends Requip to start in order to delay the onset of more severe effects. I did start 2000 units of vitamin E and this did ease some of the sensations. I feel as though I am being pulled apart instead of reassured that we are moving together in the right direction. Please share your combined wisdom. Thank you.
---------------------------------
Do You Yahoo!?
Check out Yahoo! Shopping and Yahoo! Auctionsfor all of your holiday gifts!
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 14:55:15 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Greg & Suzanne <[log in to unmask]>
Subject: Roller Computer Chair For One With Poor Balance
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"; format=flowed
Hi--
My Mom is looking for a roller computer chair. She was wondering if any of
you have found a such a chair which could be locked and unlocked
easily. She is concerned about losing her balance when she gets up out of it.
Thanks,
Suzanne
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 13:32:23 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Robert A. Fink, M. D." <[log in to unmask]>
Subject: Re: Introduction
Comments: To: [log in to unmask]
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Date sent: Wed, 19 Dec 2001 11:31:07 -0800
Send reply to: [log in to unmask]
From: Ellen Reitkopp <[log in to unmask]>
Subject: Introduction
To: [log in to unmask]
> There is a
> disagreement between my internist and neurologist at Kaiser and the
> specialist I went to on my own. They are not convinced it is
> Parkinsons. They still think it might be a micro TIA. Historically,
> has Kaiser Permanente been reluctant to diagnose PD?
Ellen,
What imaging studies have you had? There are other possibilities (of
a diagnosis) as well.
Best,
Bob
**********************************************
Robert A. Fink, M. D., F.A.C.S., P. C.
2500 Milvia Street Suite 222
Berkeley, California 94704-2636
Telephone: 510-849-2555 FAX: 510-849-2557
WWW: http://www.rafink.com/
mailto:[log in to unmask]
"Ex Tristitia Virtus"
*********************************************
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 18:19:16 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: KF Etzold <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-type: text/plain; charset=us-ascii
Linda & Michael and everybody else:
Pricing of drugs can be presented in moral terms, i.e. one can advocate
there should be social justice and everybody has a right to the proper and
most efficacious drugs. Unfortunately the real world does work like this.
There will always be shades of gray. Can everybody have a Rolls Royce and a
10,000 square foot house? In looking at the price of drugs one can argue
they are too high for many people. As was pointed out here and in the media
the cost of developing drugs is very high. So, a more realistic question is
to ask where is the money from the sale of drugs going? Are the profits of
the drug companies excessive (especially when compared to those of other
businesses)? If they are then the governments can do something about it (
by creating rules like those in Europe). But if they are not other
mechanisms must be found to pay for them. These mechanisms would be
insurance plans or government actions. There is a hidden uncertainty in
this: What is the proper allocation of resources for medical activities.
The society as a whole needs to decide how much for various activities
needs to be spent. Defence, Infrastructure (roads), medical, etc.
It is unfortunately true that for new drugs the relevant companies have a
monopoly which allows them to charge essentially anything, without bounds.
But why have established drugs for which the development cost has long been
paid off have risen as well, above the rate of inflation?
A simple answer again is to ask: are the drug company profits excessive? I
think if they are we would all be buying Drug Company stocks.
So what is the answer? The first is to streamline and make more efficient
the development process. The second is to find a way to distribute the
load. This is what insurance companies do now in collaboration with
employers (in a rather ineffective and inefficient way). Unfortunately the
cost of medical activities has risen steeply recently and shows very little
sign of slowing down. In fact Carline (the PWP) recently has gotten kicked
out of an Aetna HMO because their costs have risen too steeply, so oops,
here goes her plan.
Should medical care be free enterprise based or should there be a
government based system. The latter tend to be inefficient and cumbersome
and the former have unaffordable prices. We need somebody to design a
system. Maybe something like a constitutional convention (similar in
concept of the framers of the constitution) is needed.
For those who favor "free enterprise" and who argue that it works in the
US, I would point out that in all such systems there are (government and
Legal) controls, so that in some sense there is no such thing as "free
enterprise" it is always only more or less free. The other observable fact
in the US is that the system as it is practiced now has increased the gap
between rich and poor and the gap is larger than in many other
industrialized countries. So maybe the thing we need to go after is
equalization.
K-F cg Carline
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 19:01:41 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 12/19/01 5:23:16 PM, [log in to unmask] writes:
<< A simple answer again is to ask: are the drug company profits excessive? I
think if they are we would all be buying Drug Company stocks. >>
Please allow just a minor comment to a very reasoned analysis:
It seems to me that any potential for monopoly generated profits is already
factored into the present companies stock prices--including reduced profits
that would follow from any possible changes in patent laws. However, the
price of stocks in new drug companies may not be fully valued (I doubt
it--there are too many optimists around) in relation to their potential
monopoly profits.
A better investment to get your hands on some of that money would be a trial
lawyer's education. If it is too late for that then go for a political
position where very generous trial lawyers "contributions" can help with your
expenses.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 19:29:08 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Kastner <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
In-Reply-To: <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1" ; format="flowed"
Content-Transfer-Encoding: 8bit
I live in Canada. We believe that a modern society has as one of its
basic human rights the medical care of its citizens. I know I am
going to be inundated by rebuttals because the wealthy pharmaceutical
companies as well as the wealthy hospital companies as well as --
especially -- the insurance companies have carried on a ceaseless
campaign to convince people that looking after the underprivileged in
the state is evil and it is "socialism" and it is ba-a-ad.
As was outlined about ten years ago, a single-payer medical system is
better able to control costs than an out-of-control private
profit-based system. Staistically, Canada pays out a lower percentage
of its GNP for medical care than most if not all industrialized
nations. Why?
Because insurance companies promote extravagance because their
profits are predicated on their paid-out claims. Any controls at all
are easily corrupted and the song goes on.
Every once in a while a TV investigative team highlights the abuses
and the resultant grief suffered by those least able to bear it.
Ho-hum.
Of course the underlying reasons for the ever-higher costs of medical
care and pharmaceuticals is due to the ever-emergent new and
expensive treatments, calling for higher and higher costs. And only a
single-pay system can control those costs, IMHO.
Cost of pharmaceuticals in Canada is 25% of the regular price (which
apparently is already lower than USA) with a monthly maximum, after
which there is absolutely no charge. Being 62, I pay a maximum of
$62.99 per month and after age 65, it will drop by a third or a half.
And that is in Cdn$, which are only worth 63¢ at the moment.
Yes indeed, it may be an evil system and can lead to a healthier
population but we like it...
(...running and ducking!)
,\\urray
.-. .-.
/ \ .-. .-. / \
/ \ / \ .-. .-. / \ / \
/__Murray_Kastner_____\_____/___\___/___\____ mailto:[log in to unmask]
\ / \ / `-' \ / \ / \
\ / `-' `-' \ /
`-' `-'
>Linda & Michael and everybody else:
>
>Pricing of drugs can be presented in moral terms, i.e. one can advocate
>there should be social justice and everybody has a right to the proper and
>most efficacious drugs. Unfortunately the real world does work like this.
>There will always be shades of gray. Can everybody have a Rolls Royce and a
>10,000 square foot house? In looking at the price of drugs one can argue
>they are too high for many people. As was pointed out here and in the media
>the cost of developing drugs is very high. So, a more realistic question is
>to ask where is the money from the sale of drugs going? Are the profits of
>the drug companies excessive (especially when compared to those of other
>businesses)? If they are then the governments can do something about it (
>by creating rules like those in Europe). But if they are not other
>mechanisms must be found to pay for them. These mechanisms would be
>insurance plans or government actions. There is a hidden uncertainty in
>this: What is the proper allocation of resources for medical activities.
>The society as a whole needs to decide how much for various activities
>needs to be spent. Defence, Infrastructure (roads), medical, etc.
>
>It is unfortunately true that for new drugs the relevant companies have a
>monopoly which allows them to charge essentially anything, without bounds.
>But why have established drugs for which the development cost has long been
>paid off have risen as well, above the rate of inflation?
>A simple answer again is to ask: are the drug company profits excessive? I
>think if they are we would all be buying Drug Company stocks.
>
>So what is the answer? The first is to streamline and make more efficient
>the development process. The second is to find a way to distribute the
>load. This is what insurance companies do now in collaboration with
>employers (in a rather ineffective and inefficient way). Unfortunately the
>cost of medical activities has risen steeply recently and shows very little
>sign of slowing down. In fact Carline (the PWP) recently has gotten kicked
>out of an Aetna HMO because their costs have risen too steeply, so oops,
>here goes her plan.
>
>Should medical care be free enterprise based or should there be a
>government based system. The latter tend to be inefficient and cumbersome
>and the former have unaffordable prices. We need somebody to design a
>system. Maybe something like a constitutional convention (similar in
>concept of the framers of the constitution) is needed.
>
>For those who favor "free enterprise" and who argue that it works in the
>US, I would point out that in all such systems there are (government and
>Legal) controls, so that in some sense there is no such thing as "free
>enterprise" it is always only more or less free. The other observable fact
>in the US is that the system as it is practiced now has increased the gap
>between rich and poor and the gap is larger than in many other
>industrialized countries. So maybe the thing we need to go after is
>equalization.
>
>K-F cg Carline
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to: mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
--
.-. .-.
/ \ .-. .-. / \
/ \ / \ .-. .-. / \ / \
/__Murray_Kastner_____\_____/___\___/___\____ mailto:[log in to unmask]
\ / \ / `-' \ / \ / \
\ / `-' `-' \ /
`-' `-'
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 17:19:40 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Hi..you made some "makes you think" comments
so I went to
www.business.com and
entered top CEOs salary in the search box and
you get a whole list of information links on CEO salaries ...hard to believe
some people make that kind of money..but then look at the sports figures.... and
also under the same link www.business.com you can click on an industry
and get even more details on that industry (such as healthcare)...try it...it
gives the the business end of those industries like health care...while in
Healthcare I went into Solucient who provides solutions for the health
industry..... and a few other links...after doing this, I think we're all
in trouble in getting lower cost prescription drugs in the U.S.....I wonder how
Canada makes their system work...???
Joan Hartman
---- Original Message -----
From: KF Etzold
To: [log in to unmask]
Sent: 12/19/01 3:19:16 PM
Subject: Re: Cost of Prescription
Drugs
--- Joan Hartman
--- [log in to unmask]
--- EarthLink: It's your Internet.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 23 Dec 2001 21:35:47 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: BARBARA DAVIS <[log in to unmask]>
Subject: Re: DBS
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I past stage 1 so far Stage 2 , will be fun. No
med for 12 hr.
----- Original Message -----
From: "BARBARA DAVIS" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, December 01, 2001 7:33 PM
Subject: Re: DBS
> ----- Original Message -----
> From: "BARBARA DAVIS" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, November 27, 2001 9:28 PM
> Subject: DBS
>
>
> > Hello list members, I hope you all had a good Thanksgiving.Good things
are
> suppose come in threes. I got a scooter, the next day , we got the 2
bedroom
> appartment. we were wating for A week or two later . i went to the Docter
.
> She ask me if had thought of surgery. I HAVE >>>DBS>>> I will have a
> evalulation on the 19 on DEC Can you tell me what is involved in
> evalulation.
> >
> > Thank you
> > Barbara Davis
> >
> > ----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to:
> mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
> >
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Wed, 19 Dec 2001 21:13:46 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Rayilyn Brown <[log in to unmask]>
Subject: Re: JoAnn/superwomen/PD/exercise
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
thanx, JoAnn....the PWP, me, flunked as caregiver for my mom who had a stroke
on Nov27. I was doing OK at first, but after misisnformation, ordrers
sudssdenly giben and rescinded, my abasent brother, I collapsed, not
superwoman after all. Mom, 87 , is doing great coming home Fri. with 24 hr
CGers. I recovered somewhat today by getting back on treadmill after 3 wks
absence, for 1/2 mile, there is something about treadmilling that restores my
stride. made it to grocry store. Ho, ho, ho. Rayilyn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 00:04:58 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Nick Drozdowski <[log in to unmask]>
Subject: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
My wife has been taking the same meds and amounts for the last 4 years: 1/day
amantadine, 2/day eldepryl, and 3-4/day mirapex (.25mg). She was taking 2
amantadine/day about 6 months ago, but reduced it to one
The last 6-8 months, she has had bad constipation, even though she eats lots of
veggies and fruits. Anyone have a solution?
Nick
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 07:00:39 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
The following article gives the viewpoint of a consumer advocacy
organization
As Michael and others wrote - maybe the drug companies' high profits
should be a welcome announcement for us. The question i would ask is -
where the profits going -- towards developing new drugs or elsewhere?
ALSO
Murray Kastner wrote that in Canada - "We believe that a modern society
has as one of its
basic human rights the medical care of its citizen... "
-- Murray I don't think you'll need to do much "running and ducking"
from this group!!
Living near the Canadian border, we hear there are organized bus trips to
Ontario to purchase meds - mostly by seniors who can't afford the prices
in New York.
Linda
FROM:
"High Cost of New Drug Development Exposed as Myth.
Arthur A. Levin
08/01/2001
HealthFacts
Center for Medical Consumers, Inc.
"U.S. drug manufacturers actually spend about one-fifth of the amount
that they
claim it costs for the research and development required to market a new
prescription drug. This finding was published last month in a report
issued by
Public Citizen's Congress Watch, a Washington- based consumer advocacy
organization. Rx R&D Myths is based on reviews of government and industry
data.
The drug industry's historic defense of extraordinarily high
profitability has
been that its revenues are critical for adequately funding the very high
and
risky investment costs of drug research and development (R&D). Current
political
efforts to control costs and thus industry profits will, the industry
threatens,
deprive Americans of important treatments. Alan Holmer, President of the
Pharmaceutical Research and Manufacturers of America (PhRMA), the
brand-drug
industry trade association warned on National Public Radio, "Believe me,
if we
impose price controls...and if you reduce the R&D...it's going to harm my
kids
and it's going to harm those millions of Americans who have
life-threatening
conditions."
But, according to Frank Clemente, director of Congress Watch, "This R&D
scare is
built on myths and falsehoods." The report's findings are politically
important
because the industry's previously unchallenged scare tactics have been
very
effective in stymying efforts to provide Medicare drug coverage and rein
in
skyrocketing drug costs. PhRMA, of course, never mentions the fact that
the
majority of drugs brought to market (over 75%) are not innovative
products with
clinically important therapeutic gains. Many are so-called "me-too" drugs
offering no advantages over existing products and with R&D costs that are
much
lower than those for truly innovative new products.
Congress Watch researchers found that the actual after-tax cash outlay
for the
R&D involved in getting a new drug to market is approximately $110
million
dollars--as opposed to the $500 million figure traditionally bandied
about by
the PhRMA. The new estimate of $110 million R&D outlay per new approved
drug
also includes the costs of R&D for those drugs that fail to reach the
market.
The report also found that "Industry R&D risks and costs are
significantly
reduced by taxpayer-funded research." An internal National Institute of
Health
document obtained by Congress Watch through the Freedom of Information
Act
showed that publically funded research is critical to the development of
top-selling drugs. NIH estimated that 55% of the research projects
leading to
the discovery and development of the five top-selling drugs in 1995 were
taxpayer- funded.
Undaunted, PhRMA has stood by its $500 million per new drug R&D estimate.
Jeff
Trewitt, a spokesperson for the association said that the figure "may
even be
conservative." PhRMA's own higher estimate is based on a 1991 published
study
that, according to Public Citizen, included significant expenses that are
tax
deductible as well as higher than justifiable estimates of the financial
risks
of R&D.
The industry successfully fought a nine-year court battle all the way to
the
U.S. Supreme Court to keep the federal watchdog General Accounting Office
from
seeing all of its R&D financial records. While Congress has the authority
to
subpoena industry records it has so far failed to do so. Its reluctance
just
might be influenced by the industry behavior documented in another recent
Congress Watch report.
The Other Drug War describes the drug industry as spending over $92
million to
hire 625 lobbyists in 2000, half of whom were former members of Congress
or had
worked in Congress or other federal agencies. In all of 2000, the
industry spent
a total of $177 million on lobbying, $65 million on so-called "issue" ads
attacking its political opponents and sprinkled $20 million around the
halls of
Congress in campaign contributions.
I wonder, if the industry has nothing to hide about how it calculates the
R&D
costs of a new drug, why does it so strenuously resist efforts by the
independent General Accounting Office to examine its financial records? "
---
Arthur A. Levin, MPH, is the director of the Center for Medical Consumers
in New
York City.
AND FROM:
INSIDE THE INDUSTRY - FORTUNE 500: DRUG MAKERS ARE 'MOST PROFITABLE'
INDUSTRY
04/20/2001
American Health Line
"The pharmaceutical industry has proved "largely immune to the economic
gyrations" that shook several other industries this year, making the
industry
"more profitable than any other," according to the new "Fortune 500"
rankings.
Fortune reports that the introduction of new pharmaceuticals and
increased sales
of patented "blockbuster" drugs helped create "a steady stream of
revenues" for
drug makers. The drug industry was the most profitable sector in 2000,
posting
an 18.6% return on revenues and a 17.7% return on assets. The
pharmaceutical
industry was ranked second in return on shareholders' equity, with a
29.4%
profit rate. Merck & Co. and Bristol-Myers Squibb both ranked among the
magazine's 20 most profitable companies. Merck took 11th place with $6.8
billion
in profits and Bristol-Myers Squibb finished 19th with profits of $4.7
billion.
Pfizer, which saw its revenues rise 82.5% last year, ranked fourth in
overall
market value with $243.2 billion. Amgen, Eli Lilly, Schering- Plough and
Bristol-Myers Squibb all ranked among the top 20 companies producing the
largest
return on revenues. Within the drug industry, Merck posted the largest
total
revenue with $40.3 billion, followed by Pfizer with $29.5 billion,
Johnson &
Johnson with $29.1 billion, Bristol-Myers Squibb with $21.3 billion and
Pharmacia with $18.1 billion. "
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 08:13:06 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Norma Dikeman <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
And alot of Canadians come to the States for medical procedures they can't get
done in Canada without waiting 6 months or better. Seems I heard something about
the doctors not being too happy either.
Norma
Linda J Herman wrote:
> The following article gives the viewpoint of a consumer advocacy
> organization
> As Michael and others wrote - maybe the drug companies' high profits
> should be a welcome announcement for us. The question i would ask is -
> where the profits going -- towards developing new drugs or elsewhere?
> ALSO
> Murray Kastner wrote that in Canada - "We believe that a modern society
> has as one of its
> basic human rights the medical care of its citizen... "
> -- Murray I don't think you'll need to do much "running and ducking"
> from this group!!
> Living near the Canadian border, we hear there are organized bus trips to
> Ontario to purchase meds - mostly by seniors who can't afford the prices
> in New York.
> Linda
>
> FROM:
>
> "High Cost of New Drug Development Exposed as Myth.
> Arthur A. Levin
> 08/01/2001
> HealthFacts
> Center for Medical Consumers, Inc.
>
> "U.S. drug manufacturers actually spend about one-fifth of the amount
> that they
> claim it costs for the research and development required to market a new
> prescription drug. This finding was published last month in a report
> issued by
> Public Citizen's Congress Watch, a Washington- based consumer advocacy
> organization. Rx R&D Myths is based on reviews of government and industry
> data.
>
> The drug industry's historic defense of extraordinarily high
> profitability has
> been that its revenues are critical for adequately funding the very high
> and
> risky investment costs of drug research and development (R&D). Current
> political
> efforts to control costs and thus industry profits will, the industry
> threatens,
> deprive Americans of important treatments. Alan Holmer, President of the
> Pharmaceutical Research and Manufacturers of America (PhRMA), the
> brand-drug
> industry trade association warned on National Public Radio, "Believe me,
> if we
> impose price controls...and if you reduce the R&D...it's going to harm my
> kids
> and it's going to harm those millions of Americans who have
> life-threatening
> conditions."
>
> But, according to Frank Clemente, director of Congress Watch, "This R&D
> scare is
> built on myths and falsehoods." The report's findings are politically
> important
> because the industry's previously unchallenged scare tactics have been
> very
> effective in stymying efforts to provide Medicare drug coverage and rein
> in
> skyrocketing drug costs. PhRMA, of course, never mentions the fact that
> the
> majority of drugs brought to market (over 75%) are not innovative
> products with
> clinically important therapeutic gains. Many are so-called "me-too" drugs
>
> offering no advantages over existing products and with R&D costs that are
> much
> lower than those for truly innovative new products.
>
> Congress Watch researchers found that the actual after-tax cash outlay
> for the
> R&D involved in getting a new drug to market is approximately $110
> million
> dollars--as opposed to the $500 million figure traditionally bandied
> about by
> the PhRMA. The new estimate of $110 million R&D outlay per new approved
> drug
> also includes the costs of R&D for those drugs that fail to reach the
> market.
> The report also found that "Industry R&D risks and costs are
> significantly
> reduced by taxpayer-funded research." An internal National Institute of
> Health
> document obtained by Congress Watch through the Freedom of Information
> Act
> showed that publically funded research is critical to the development of
> top-selling drugs. NIH estimated that 55% of the research projects
> leading to
> the discovery and development of the five top-selling drugs in 1995 were
> taxpayer- funded.
>
> Undaunted, PhRMA has stood by its $500 million per new drug R&D estimate.
> Jeff
> Trewitt, a spokesperson for the association said that the figure "may
> even be
> conservative." PhRMA's own higher estimate is based on a 1991 published
> study
> that, according to Public Citizen, included significant expenses that are
> tax
> deductible as well as higher than justifiable estimates of the financial
> risks
> of R&D.
>
> The industry successfully fought a nine-year court battle all the way to
> the
> U.S. Supreme Court to keep the federal watchdog General Accounting Office
> from
> seeing all of its R&D financial records. While Congress has the authority
> to
> subpoena industry records it has so far failed to do so. Its reluctance
> just
> might be influenced by the industry behavior documented in another recent
>
> Congress Watch report.
>
> The Other Drug War describes the drug industry as spending over $92
> million to
> hire 625 lobbyists in 2000, half of whom were former members of Congress
> or had
> worked in Congress or other federal agencies. In all of 2000, the
> industry spent
> a total of $177 million on lobbying, $65 million on so-called "issue" ads
>
> attacking its political opponents and sprinkled $20 million around the
> halls of
> Congress in campaign contributions.
>
> I wonder, if the industry has nothing to hide about how it calculates the
> R&D
> costs of a new drug, why does it so strenuously resist efforts by the
> independent General Accounting Office to examine its financial records? "
> ---
> Arthur A. Levin, MPH, is the director of the Center for Medical Consumers
> in New
> York City.
>
> AND FROM:
> INSIDE THE INDUSTRY - FORTUNE 500: DRUG MAKERS ARE 'MOST PROFITABLE'
> INDUSTRY
> 04/20/2001
> American Health Line
>
> "The pharmaceutical industry has proved "largely immune to the economic
> gyrations" that shook several other industries this year, making the
> industry
> "more profitable than any other," according to the new "Fortune 500"
> rankings.
> Fortune reports that the introduction of new pharmaceuticals and
> increased sales
> of patented "blockbuster" drugs helped create "a steady stream of
> revenues" for
> drug makers. The drug industry was the most profitable sector in 2000,
> posting
> an 18.6% return on revenues and a 17.7% return on assets. The
> pharmaceutical
> industry was ranked second in return on shareholders' equity, with a
> 29.4%
> profit rate. Merck & Co. and Bristol-Myers Squibb both ranked among the
> magazine's 20 most profitable companies. Merck took 11th place with $6.8
> billion
> in profits and Bristol-Myers Squibb finished 19th with profits of $4.7
> billion.
> Pfizer, which saw its revenues rise 82.5% last year, ranked fourth in
> overall
> market value with $243.2 billion. Amgen, Eli Lilly, Schering- Plough and
> Bristol-Myers Squibb all ranked among the top 20 companies producing the
> largest
> return on revenues. Within the drug industry, Merck posted the largest
> total
> revenue with $40.3 billion, followed by Pfizer with $29.5 billion,
> Johnson &
> Johnson with $29.1 billion, Bristol-Myers Squibb with $21.3 billion and
> Pharmacia with $18.1 billion. "
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
--
http://nordike.homestead.com/NordikeHome.html
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 14:49:44 +0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: George Marcus <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
It appears it is now legal to purchase drugs from Canada
via mail order,internet (at least according to an ad in
a magazine that I rerad), -prices are substantially
lower than US mail order sources. You can find names of
sources on the net.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 08:13:34 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>
Subject: Re: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
Nick,
This is aVery common problem that PWP's experience. It is partly brought
on by some of the meds and also due to the fact that with PD, everything
seems to slow down including the intestines.
Search of NPF site for constipation came up with 55 items to look at:
Search Results
Keywords (all terms, case insensitive): constipation
(1,065 files searched; 55 matches found)
Matches 1 - 10
Constipation
Keyword Matches: 15; Size: 8 kb; Last Updated: 23 Mar 2001
~||{ National Parkinson Foundation }||~ NPF ~||{ A World Wide
Organization }||~ We thought you might be interested in the following from
Dr. Lieberman's book "Shaking Up Parkinson". The article was excerpted from
an article by
PATIENT PERSPECTIVES ON PARKINSON'S
Keyword Matches: 13; Size: 6 kb; Last Updated: 14 Feb 2000
19. CONSTIPATION AND PARKINSON'S It is ironic that Sid was preparing to
write this essay on constipation, not knowing that it was going to be the
cause of his death. The reason we had chosen this topic as the next in our
series of essays was that we
Parkinson's Disease: Nutrition Matters
Keyword Matches: 11; Size: 3 kb; Last Updated: 14 Feb 2000
CHAPTER 3Constipation Why does constipation occur so frequently with
Parkinson's? Constipation is defined as having fewer than three bowel
movements per week. There appear to be two main reasons for the frequency of
constipation in PD: Medications us
Parkinson's Disease: Nutrition Matters
Keyword Matches: 4; Size: 3 kb; Last Updated: 14 Feb 2000
Why can't I just use laxatives? Many people prefer laxatives, which are
powerful, but work in a different way. Laxatives stimulate the nerve endings
of the colon, causing rapid removal of bowel contents. Over time, stimulant
laxatives damage the lini
Parkinson's Disease: What You Should Know
Keyword Matches: 4; Size: 4 kb; Last Updated: 14 Feb 2000
graphicPREVENTING CONSTIPATION Parkinson's disease often slows food
processing throughout the gastrointestinal tract, from chewing and
swallowing to gastric emptying to elimination. In addition, medications used
to treat PD can slow peristalsis, the
Parkinson's Disease: Medications
Keyword Matches: 4; Size: 4 kb; Last Updated: 14 Feb 2000
CONSTIPATION Constipation is reported by a majority of individuals with
Parkinson's disease. This is likely due to degeneration in the nerves of the
colon, which results in slowed passage of stool through the large bowel.
Dystonias (involuntary muscl
Frequency of Bowel Movements
Keyword Matches: 3; Size: 7 kb; Last Updated: 21 Aug 2001
~||{ National Parkinson Foundation }||~ NPF ~||{ A World Wide
Organization }||~ The following article appeared in Neurology, the journal
of the American Academy of Neurology. The article was picked up by the
national news medi
Encarta Encyclopedia August 1999
Keyword Matches: 2; Size: 55 kb; Last Updated: 10 Aug 2000
~||{ National Parkinson Foundation }||~ NPF ~||{ A World Wide
Organization }||~ Encarta Encyclopedia August 1999 PARKINSON DISEASE
INTRODUCTION Parkinson disease (PD) is a slowly progressive disease of the
nervous system. Ther
Nutrition Swallowing in Parkinson's Disease
Keyword Matches: 2; Size: 9 kb; Last Updated: 10 Aug 2000
~||{ National Parkinson Foundation }||~ NPF ~||{ A World Wide
Organization }||~ Nutrition and Swallowing In Parkinson's Disease Janet
Schwantz, M.S., CCC/SP Neurology Research & Education Center, Lubbock, Texas
A National
Parkinson's Disease: Medications
Keyword Matches: 2; Size: 9 kb; Last Updated: 30 May 2000
Contents Chapter 1. Introduction to Pharmacotherapy for Parkinson's Disease
Symptoms Dopaminergic Drugs Chapter 2. Levodopa - Still the Gold Standard
Carbidopa/Levodopa (SINEMET®) Carbidopa (LODOSYN®) Optimal Treatment With
Carbidopa/Levodopa (SINEME
Would suggest that you go to http://www.parkinson.org/search.htm
and take a look - just type in "constipation" and the rest will come up.
Good Luck, Rob
----- Original Message -----
From: "Nick Drozdowski" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 20, 2001 1:04 AM
Subject: Constipation
> My wife has been taking the same meds and amounts for the last 4 years:
1/day
> amantadine, 2/day eldepryl, and 3-4/day mirapex (.25mg). She was taking 2
> amantadine/day about 6 months ago, but reduced it to one
>
> The last 6-8 months, she has had bad constipation, even though she eats
lots of
> veggies and fruits. Anyone have a solution?
>
> Nick
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 13:16:53 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: MICHAEL CASAGRANDE <[log in to unmask]>
Subject: Cost of Prescription Drugs - Extraordinary profits
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Dear Linda:
Good question - where do the profits go? I can't pretend to any special
knowledge here, never having worked for a pharmaceutical.
Let's examine the alternatives under the scenario " In 2002, Company X, a
pharmaceutical, earns record profits because it has developed and brought
product V to market."
A. The board of directors declares an extraordinary dividend to the
stockholders - directors and top management are usually major stockholders
though their holdings typically amount to only a few percent. All earnings
greater than the average over the last ten years are paid out to the
stockholders - most of whom are members of the investing public.
-X could have reinvested this money in research and development
thus improving the company's product pipeline (products that will be
available in the future), more efficient fixed assets, improved management
structure or hiring of employees at every level, but instead go for the
quick killing. Board members, management and large stockholders receive
millions - average holders receive thousands instead of hundreds.
-X's earnings prospects for the future are diminished. It could
have reinvested most of its profit with the expectation of greater earnings.
Investors and analysts expect that - the current stock price reflects
expected future earnings - since these are down, X's stock price goes down.
-Y and Z invest in the areas that X failed to invest additionally
in. Y and Z's competitive position is bettered; X's worsened. People that
hold X's debt see it go down in value - creditors are more reluctant to
extend credit to X.
X's stockholders have received an extraordinary dividend - however, their
basic holdings (typically fifteen to thirty times the company's normal
earnings per share) have declined. X's prospects for raising future capital
are diminished - X would get less if X tried to sell stock; potential and
actual creditors look at X more critically, want to lend less and charge a
higher rate of interest. As X has not invested its extraordinary profits,
it can only reinvest ordinary profits plus a smaller amount now available in
the capital markets. This further decreases X's earnings prospects.
This is a situation I don't remember hearing about - I don't believe it ever
occurs because the board of directors and top management are composed of
people with experience and know what would happen.
B. The board of directors votes to give top management, many of whom sit on
the board, incredible bonuses. Because a new drug brought to market can
yield many hundreds of millions, and much of the cost has already been
incurred in research and development, hundreds of millions are still left
for these bonuses.
-X's stock price goes down as in A above, but probably even more
sharply. Stockholders in the public have just figured out X is not being
run for their benefit, but management's. What are shares in X worth if any
earnings above average will just be paid to management and the board? Very
sharp questions are raised at the next annual meeting, which probably has an
agenda item which includes electing a new board of directors. New board
would summarily fire top management. Stockholders sue former board members,
charging breach of fiduciary duty.
-X's debt decreases in value - rate X has to pay for new debt
goes up - new credit is harder to obtain
This scenario or something like it is possible - though just barely. The
individuals on the board and in management that arrived at the huge bonus
decision probably won't sit on any more boards or work at high levels again.
They will have their huge bonuses but won't be welcome at the country club.
Their stock holdings and retirement funds will have declined in value.
Good-bye golden parachutes. I have rarely if ever heard about this
situation, though from time to time bonuses which are subjectively and
objectively large do happen.
C. The board of directors approves of management's plan to reinvest most of
the extraordinary profits in hopes of streamlining operations thus cutting
costs or successfully discovering and marketing another V. The financial
markets react favorably; stock price goes up because earnings prospects are
increased. Creditors are more willing to extend more credit. The rate X
has to pay for debt goes down.
This often happens - pharmaceutical stock prices routinely jump when the FDA
has approved their drug - or even when a trial phase has been successfully
completed. Directors and managers holdings increase in value. Increased
bonuses are voted to top managers and employees - X can afford more
compensation because it can streamline operations or pay less interest on
new debt because rates go down.
Most likely by far is C - tradeoff is much higher current return in A and B,
but C offers the potential for large payoff in stock prices AND large (but
not huge) bonuses. If management continues to be successful, the increased
future earnings may persist for many years. The payoff in the corporate
world is highest for those successful over a long period.
Michael in Tampa
Father is PWP
[log in to unmask]
---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.307 / Virus Database: 168 - Release Date: 12/11/2001
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 14:09:54 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Fw: Wooden Bowl
Comments: To: Toni McCarthy <[log in to unmask]>,
[log in to unmask], Sue Gerard <[log in to unmask]>,
Mike McCarthy <[log in to unmask]>, Frank Kolb <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
[log in to unmask]
Subject: Fwd: Wooden Bowl
> > Date Sent: 18 Dec 2001 07:55 AM
> >
> >
> >
> >
> > ----------- Original Message -----------
> > From: [log in to unmask]
> > Sent To: [log in to unmask]
> > Subject: Wooden Bowl
> > Date Sent: 15 Dec 2001 01:44 PM
> >
> > > Wooden Bowl
> > >
> > > A frail old man went to live with his son, daughter-in-
> > > law, and four-year grandson.
> > >
> > > The old man's hands trembled, his eyesight was blurred,
> > > and his step faltered.
> > >
> > > The family ate together at the table. But the elderly
> > > grandfather's shaky hands and failing sight made eating difficult.
> > > Peas rolled off his spoon onto the floor.
> > >
> > > When he grasped the glass, milk spilled on the
> > > tablecloth. The son and daughter-in-law became irritated with the
mess.
> > > We must do something about Grandfather," said the son.
> > > I've had enough of his spilled milk, noisy eating, and food on the
> > > floor. So the husband and wife set a small table in the corner.
> > >
> > > There, Grandfather ate alone while the rest of the
> > > family enjoyed dinner.
> > >
> > > Since Grandfather had broken a dish or two, his food was
> > > served in a wooden bowl.
> > >
> > > When the family glanced in Grandfather's direction,
> > > sometime he had a tear in his eye as he sat alone. Still, the only
words
> > > the couple had for him were sharp admonitions when he dropped a fork
or
> > > spilled food.
> > > The four-year-old watched it all in silence.
> > >
> > > One evening before supper, the father noticed his son playing with
wood
> > > scraps on the floor. He asked the child sweetly, "What
> > > are you making?"
> > >
> > > Just as sweetly, the boy responded, "Oh, I am making a little bowl for
> > > you and Mama to eat your food when I grow up." The four- year-old
smiled
> > > and went back to work. The words so struck the parents
> > > that they were speechless. Then tears started to stream down their
> > > cheeks. Though no word was spoken, both knew what must be done. That
> > > evening the husband took Grandfather's hand and gently
> > > led him back to the family table. For the remainder of his days he ate
> > > every meal with the family. And for some reason, neither husband nor
> > wife
> > >
> > > seemed to care any longer when a fork was dropped, milk spilled, or
the
> > > tablecloth soiled.
> > >
> > > On a positive note, I've learned that, no matter what
> > > happens how bad it seems today, life does go on, and it will be better
> > > tomorrow.
> > >
> > > I've learned that you can tell a lot about a person by the way he/she
> > > handles three things: a rainy day, lost luggage, and tangled Christmas
> > > tree lights.
> > >
> > > I've learned that, regardless of your relationship with your parents,
> > > you'll miss them when they're gone from your life.
> > >
> > >
> > > I've learned that making a "living" is not the same thing as making a
> > > "life."
> > >
> > > I've learned that life sometimes gives you a second chance.
> > >
> > > I've learned that you shouldn't go through life with a catcher's mitt
> > > on both hands.
> > >
> > > You need to be able to throw something back.
> > >
> > > I've learned that if you pursue happiness, it will elude you. But, if
> > > you focus on your family, your friends, the needs of others, your work
> > > and doing the very best you can, happiness will find you.
> > >
> > > I've learned that whenever I decide something with an open heart, I
> > > usually
> > > make the right decision.
> > >
> > > I've learned that even when I have pains, I don't have to be one.
> > >
> > > I've learned that every day, you should reach out and touch someone.
> > > People love that human touch -- holding hands, a warm hug, or just a
> > > friendly pat on the back. I've learned that I still have
> > > a lot to learn.
> > >
> > > I've learned that you should pass this on to everyone you care about.
I
> > > just did.
> > >
> > > Sometimes they just need a little something to make them smile.
> > >
> > > People will forget what you said ... people will forget what you did
...
> > > but people will never forget how you made them feel.
> >
> >
> >
> >
> > --------- End Original Message ---------
> > --------- End Original Message ---------
> >
> >
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 14:41:21 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Phil Tompkins <[log in to unmask]>
Subject: PD Index URL change
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
To anyone who accesses Parkinson's disease information on the
Internet via PD Index, which I own and administer, please note that
URL www.pdindex.com has been dropped, and only www.pdindex.org is in
use. www.pdindex.com only existed to provide redirection to
www.pdindex.org.
Any web page references to www.pdindex.com must be updated to
www.pdindex.org. I am sorry if this creates any inconvenience.
Phil Tompkins
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 14:46:29 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: ervinmccarthy <[log in to unmask]>
Subject: Re: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Nick, I have been using Herbal Fiber Blend from Aim Corp. that has been
working quite well for me. you can probably get more information at
1-800-456-2462. I have been taking it for about a year and a half with good
results. Good luck
[log in to unmask]
----- Original Message -----
From: "Nick Drozdowski" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 20, 2001 3:04 AM
Subject: Constipation
> My wife has been taking the same meds and amounts for the last 4 years:
1/day
> amantadine, 2/day eldepryl, and 3-4/day mirapex (.25mg). She was taking 2
> amantadine/day about 6 months ago, but reduced it to one
>
> The last 6-8 months, she has had bad constipation, even though she eats
lots of
> veggies and fruits. Anyone have a solution?
>
> Nick
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 14:18:08 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: George Docken <[log in to unmask]>
Subject: Re: Typos galore
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Ed Grskovich <[log in to unmask]>
Sent by: Parkinson's Information Exchange Network
<[log in to unmask]>
12/17/2001 12:15 PM
Please respond to Parkinson's Information Exchange Network
To: [log in to unmask]
cc:
Subject: Re: Typos galore
In a message dated 12/17/01 10:38:50 AM, [log in to unmask] writes:
<< I use a Macintosh at home >>
Check:
Apple Menu; Control Panel; Keyboard.
For us guys the:
Slider at Key Board Repeat should be set at Slow
Slider at Delay Until Repeat should be set at Long
Additional info: One of the computer techs at my office saifd that Apple
Macintosh operating system OS-9 has built-in voice recognition software
(possibly in conjunction with the security functions. He also said that
Dragon software might have something for the earlier Macs. -George D.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 15:04:45 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: George Docken <[log in to unmask]>
Subject: Re: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
My current method for minimizing constipation is to take two fibre tablets
morning and evening. During the day, I try to get at least 1/2 ounce of
water per pound of body weight. (Other beverages - coffee, juice, etc.
require processing by the body and should be enjoyed IN ADDITION to water
- not instead of it.) The body prioritizes it's use of water and
softening stools is one of the early victims. Several sources have also
expressed cautions about using laxatives, even natural ones, on a
long-term basis. Good Luck, George
Nick Drozdowski <[log in to unmask]>
Sent by: Parkinson's Information Exchange Network
<[log in to unmask]>
12/20/2001 02:04 AM
Please respond to Parkinson's Information Exchange Network
To: [log in to unmask]
cc:
Subject: Constipation
My wife has been taking the same meds and amounts for the last 4 years:
1/day
amantadine, 2/day eldepryl, and 3-4/day mirapex (.25mg). She was taking 2
amantadine/day about 6 months ago, but reduced it to one
The last 6-8 months, she has had bad constipation, even though she eats
lots of
veggies and fruits. Anyone have a solution?
Nick
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 16:47:05 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Maxine Krugman <[log in to unmask]>
Subject: introduction
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
hi
my name is maxine krugman. my husband was diagnosed 12 years ago. he is 74
and i am 55. i have been reading and learning from all of you for a couple of
months and thought that perhaps i should let you know i've been added to this
wonderful list.
you are each a source of inspiration, on good days and not so good ones, and
i appreciate the honesty with which you share.
anyway, though i'd say hello...
maxine
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 15:19:45 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: NicoleAntonia <[log in to unmask]>
Subject: Re: PD Index URL change
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I just wanted to say your letter prompted me to visit www.pdindex.org and I
was pleased that I had...It is very imformative and easy to use which isnt
the case with many info sites...thank you..
Nicole DeFrancesco
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 15:25:09 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: NicoleAntonia <[log in to unmask]>
Subject: Re: Fw: Wooden Bowl
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thank you for that wonderful message...I am passing it along to my
caregiver...hopefully he will think of it when I spill a drink on his
beloved carpet...
Nicole DeFrancesco
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 19:14:00 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Neil Shook <[log in to unmask]>
Subject: Re: Parkinson residence
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Hi,
I admire you so much for your goals with the PD wing at the
Presbyterian home. I have some ideas but I haven't had PD as long as you so
maybe my ideas are just everyday details that you have already built in,
such as bed that head can be elevated, easy to open door knobs, easy to use
faucets, chairs for toilet, and showers.
I would like to introduce myself. My name is Paula. I am 47. I had
been diagnosed 5/27/92 and I had deep brain stimulation on both sides on
10/30/2000.
I buried my mother on Sat. & had brain surgery on Monday......6 a.m. to the
hospital for surgery until 9 p.m.. The surgery was not painful at all, but I
developed swelling of the feet and legs, so we didn't know for about 4
months of using electric leg pumps 3 times a day how successful the
operation really was. In hindsight I would do it again, although I hope it
doesn't come to that. DBS took care of dystonia in my right foot, but my
meds are still very necessary. The biggest problem is sometimes they get
turned off and I have to think, "Did I lean too close to the magnet around
the refrigerator door"? I have a blue magnet that I can put against my
stimulator for three seconds and it will turn back on. I am very anxious to
get a remote that Meditronics is devising, but they're not coming out til
Jan 2002. Happy to answer any ?????s.
Paula
----- Original Message -----
From: <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, December 18, 2001 6:42 PM
Subject: Parkinson residence
> Dear PIEN readers,
> Let me introduce myself. I am Marge Moylan. I have Parkinson's which was
> diagnosed in 1986. I am 57 now, and have symptoms that go back to my late
> 30s. I am a member of the Central New York Parkinson's Support Group,
Inc.
> which will be celebrating its 10th anniversary next month. Six of our
> members including me are serving on a steering committee at the
Presbyterian
> Home of Central New York which is in the process of planning a wing which
> will be a residence for PWP.
>
> I know some of your are aware that the Presbyterian Home has opened this
> Parkinson wing. It seems to be a first. We can't find another like It.
> Currently the wing has about 6 residents with PD. It is a gradual
changeover
> from an ordinary wing to the Parkinson's wing. At this point staff on
that
> wing have had special training in caring for the Parkinson patient to be
more
> sensitive to our needs. But down the road there will be a complete
renovation
> of this wing to make it as Parkinson friendly as possible. What we are
> looking for right now are ideas, suggestions of specific things that
should
> be included in the design of the rooms, hallways, and common areas that
would
> make these suitable, accessible and useful for PWP. We need suggestions
to
> pass on to our architect.
>
> We have talked about things like a place where we can sit up late to talk,
> read, watch TV because we have so much trouble sleeping, and things like
> lines at intervals that are part of the carpeting, to step over to break a
> freeze, and handrails on outdoor walkways. We've suggested an exercise
room
> right on the unit in addition to the large rehab center, so that a PWP can
go
> in on his "on" time to get some exercise when it's useful to him. These
are
> the kinds of things we are looking for.
>
> If you have any ideas that you would think would make life in a residence
> such as this better for PWP, please let us know. You can e-mail
suggestions
> to me at [log in to unmask]
>
> We are about to enter the fundraising aspect of this project and need some
con
> crete ideas about what we can do to be the biggest help to PWP.
>
> Thanks so much. Hope to hear from some of you.
>
> Marge Moylan
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 19:16:33 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: tony schoonenberg <[log in to unmask]>
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
_________________________________________________________________
Send and receive Hotmail on your mobile device: http://mobile.msn.com
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Thu, 20 Dec 2001 21:32:58 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: introduction
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Maxine - Glad you are here to gleen mor information. Sorry for the
reason. You wil have a long bumpy road ahead of you, but keep in touch
with us, and it will help you through it. Best wishes, Jo Ann from
Houston
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 01:05:03 -0500
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Perry Cohen <[log in to unmask]>
Subject: Re: Cost of Prescription Drugs
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Linda, as usual you provide a thoughtful analysis of an important issue. My
comment is derived from experience in my role as patient representative at FDA
for PD and my experience initiating a program for the PDF that I call the
pipeline project (AKA Parkinson-FDA-Industry initiative, see
www.parkinsonscare.org/RxDEv.html).
Given the NIH research agenda and the momentum building in genomics and
understanding of the disease process at the cellular level, cures could be found
in the next 5 years, but there's a catch. Tacked on to the discovery is 5 to 10
years development of the treatment in animal models and evaluation and proof of
safety and effectiveness for humans by FDA. While getting new treatments through
the pipeline was always important, currently a new generation of
neuro-protective compounds, which promise to slow the progression while we wait
for the cure, is now reaching clinical phases of evaluation by FDA.
When advocates in Washington met 2 years ago with Dr. Harold Varmus, Director of
NIH, he said, "you should be lobbying industry." He was right. Working from the
knowledge produced by science (NIH's primary mission), industry has the role of
developing, manufacturing and distributing the treatments. As patients with a
chronic degenerative condition, our interests are almost totally aligned with
industry in the desire for safe, effective, and timely new treatments. While
the FDA is only concerned with the first two, thanks to patent law and
intellectual property, pharmaceutical companies are highly motivated by big
profits to get improved treatments to market fast. Working with FDA we need to
try to find ways to accelerate the process (using fast-tracking and accelerated
review provisions of FDA law and working to speed recruitment and process of
clinical research ) without sacrificing a reasonable assessment from the patient
perspective of risk - benefit tradeoff of safety and effectiveness. Only when
it comes to price do our interests diverge from industry. The questions are how
much profit is needed to provide incentive to industry? who pays? and are price
controls the answer?
Who pays for prescription drugs and how much is the central question. The issue
is a concern for the individual depending on which insurance group if any he/she
falls into. This question can also be addressed on a macro level of relative
payment by different countries as well as the total cost to consumers versus
profits to producers.
Individuals with PD of course need very good insurance coverage for
medications. Medicare does not cover prescription drugs except for the minority
of seniors who have signed up for managed care plans. For non-medicare as well
as medicare, the coverage for medications seems to be going in the wrong
direction as health plans raise copays and put caps on coverage so the sickest
people who are lucky enough to have effective treatments (that's us) pay the
most. With no government intervention requiring minimum coverage the health
plans are motivated to limit coverage in order to attract the healthier people
with low premiums. Although it is a form of tax, I think it would be fair for
the society to set a standard minimum coverage including catastrophic coverage
after a certain level of out of pocket costs to protect people with very high
costs from dire choices of food or medicine. Ironically medicare recipients had
such catastrophic coverage in the 80's but in what I believe were terribly
misguided protests over paying the few hundred $ in premiums, the senior lobby
pressured the congress to rescind this coverage.
The Innovation Imperative. Bolstered by the engine of basic science largely
funded by NIH and the system of patent protections and insurance coverage for
health care provides powerful economic incentive for taking huge risks of
developing new treatments. We who benefit from this development especially
don't want to throw out the baby (innovation) with the bath water (the high cost
of drugs). Among developed countries, whether the US should pay far more than
Europe and Canada is another issue as is the obligation toward lesser developed
countries. Whether drug companies should receive excess profits from high
monopoly prices is also questionable.
My view is that market forces and the free exchange of information and products
is the most efficient and effective, although not perfect, method to set prices.
So if Canada and Europe enjoy lower prices, loosening restrictions on mail order
or other ways to import prescription drugs will give consumers in the US more
leverage in transactions to squeeze excess profits from industry.
Unfortunately, just last year an effort to do this was turned back by the
Secretary of HHS, citing lower manufacturing standards and inability to control
the quality of the product produced overseas. It appears that we have our work
cut out for us politically to level prices across countries by loosening
restrictions on buying from outside the US.
Price controls are not the answer in my view. I do not think price controls have
ever worked effectively in a market economy because of the distortions they
cause in economic activity, When it comes to who pays and how much, I think
forming buyer cooperatives, large groups of consumers, by state or multi state
will also give consumers in the US more leverage in transactions to squeeze
excess profits from industry.
An example of an attempt to implement these ideas is DC Prescription Drug Task
Force Formed by the Insurance Commissioner in DC, this task force is taking a
three step approach to address the issue of lack of coverage and the high and
increasing cost of medicine. The task force is considering joining a buying
cooperative, the New England Consortium. In addition a consumer counseling
service is contemplated to help people with high drug costs understand the
complex of choices available from patient assistant programs of drug companies
and charities. The third component is a subsidy for catastrophic coverage. One
source of revenue contemplated is the income from the 8 figure proceeds from the
conversion to for-profit status of a large tax exempt health plan.
Perry Cohen
Washington, DC
www.parkinsonscare.org
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 02:19:07 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Rayilyn Brown <[log in to unmask]>
Subject: Re: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Colace is terrific.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 06:45:42 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Fw: from PAN : Labor-HHS Conference Report/ Good News!
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
--------- Forwarded message ----------
From: "Laura Eckart" <[log in to unmask]>
Date: Thu, 20 Dec 2001 17:45:57 -0500
Subject: Labor-HHS Conference Report/ Good News!
Today the House and Senate passed the Conference Report for
FY 02 Labor-HHS Appropriations. Below is a summary of this somewhat
complex
bill and our results. I know you will be pleased with the results.
We had a truly outstanding year and we would like to thank
all of you for your efforts - Together we can make a difference!
Results:
> We are very happy to report that the Office of Director language for
> the Conference Report for the FY 02 Labor-HHS Appropriations does not
> contain any language regarding Parkinson's disease! There was no
> additional language in the Conference Report which means that the
> excellent Senate language that we reported to you earlier stands.
>
> Background
>
> As you know, the Senate and House differed in several areas
> regarding Parkinson's in their respective committee reports. The most
> notable difference was the language contained in the Office of
Director,
> with the Senate language being significantly stronger. While the
language
> was not an earmark, it was as strong as a patient/disease group has
ever
> seen. We were very pleased to get this unprecedented language into the
> Senate Report. The House and Senate also differed on funding levels for
> the NINDS, NIEHS and on the Office of the Director Language. In all
cases,
> the Senate report contained the preferred language.
>
> Because the Senate language was so strong, not everyone was pleased
> with this language. In fact, many on the House side and at NIH were
> hoping that this language would be taken out of the bill entirely and
the
> Senate would concur with the House on the Office of Director language.
We
> worked very hard to ensure that at the very least, the Senate language
> remained in its report and that the conferees did not include any
language
> on Parkinson's research.
>
> The language that was included in the Conference Report, Office of
> the Director, applied to all disease group research. It says, "The
> conferees also expect NIH to carefully consider the language in both
the
> House and the Senate reports and give it appropriate weight when
> determining funding allocations across disease areas. Regarding the
cases
> in which the House or Senate reports reference funding levels for a
> specific disease, the conferees are agreed that these are intended only
to
> express relative priority and are not funding earmarks." Our
> analyses/intelligence is that this language was included to address the
> House concerns that no earmark precedents be established, a fact which
we
> contended, while at the same time keeping the Senate language in the
final
> bill. Our language in the Senate proved to be a point of contention
> throughout the conference and this language satisfied both the House
and
> the Senate.
>
To read the Senate language please go to:
http://thomas.loc.gov/cgi-bin/cpquery/1?cp107:./temp/~cp107FLk6:e567864:&
&si
d=kLF01p&&report=sr084.107&&sel=TOC_567863&&previous_query=&&xform_type=1
000
&&hold_doc_count=1&&level=3&&variant=no&&item_number=1&&bool=n&
> We thank everyone who participated in this process; it truly was a
> team effort! Again, this is a great victory for Parkinson's; we all
> should be proud of this accomplishment and mindful that our fight is
not
> over.
>
> Please let us know if you have any questions.
>
> Have a joyous Holiday Season.
>
> John Rogers and Laura Eckart
>
>
Background Information on Conference Reports:
Once the House and the Senate have passed their version of a
bill, it goes to conference where they work out the differences contained
in
their separate bills. In conference, "Conferees" create one new bill
that
then is sent back to both bodies of Congress. Then the " Conference
Report"
is voted on for the final time. Once that is done, the bill is sent to
the
President for signature or veto. It is expected that the President will
sign this bill.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 06:43:09 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Fw: From PAN : Defense Conference Report/ Good News
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
--------- Forwarded message ----------
From: "Laura Eckart" <[log in to unmask]>
Date: Thu, 20 Dec 2001 17:37:35 -0500
Subject: Defense Conference Report/ Good News
Today the House and Senate passed the Department of Defense Conference
Report. We are pleased to report that the Neurotoxin Exposure Treatment
Research Program (NETRP) received $17 million dollars in funding, which
is a
$2 million dollar increase from last year!
> As you know, the NETRP is traditionally funded through the House and
not
> in the Senate. In past years, the program would be funded in the House
and
> that amount of funding would be divided in half in Conference. We are
very
> pleased we received $20 million in the House and no funding in the
Senate,
> and concluded with $17 million in the program.
>
> This is a big victory for the Parkinson's community especially given
that
> this program received zero dollars in the President's budget. We would
> like to thank everyone who worked on this effort!
>
> Let me know if you have any questions.
>
> Seasons Greetings.
>
> John Rogers and Laura Eckart
>
Background Information on Conference Reports:
Once the House and the Senate have passed their version of a bill, it
goes
to conference where they work out the differences contained in their
separate bills. In conference, "Conferees" create one new bill that then
is
sent back to both bodies of Congress. Then the " Conference Report" is
voted on for the final time. Once that is done, the bill is sent to the
President for signature or veto. It is expected that the President will
sign this bill.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 20:42:10 +0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bob & Joy Graham <[log in to unmask]>
Subject: Re OUR Parkinson residence
Mime-Version: 1.0
Content-Type: text/plain; charset="us-ascii"
Dear List members,
There has been quite a few posts about remodelling or building homes for
PWP, so I thought it would be timely to send you the following about the
house Bob and I made, and the video which details it all.
We make absolutely no profit from the sale of this video which is owned and
copyrighted by the Parkinson's Assocaition of Western Australia.
Sincerely
JOY Graham
.................................................................
A Special Home For Bob
Launched at the 6th Multi-Disciplinary Conference on Parkinson's Disease,
Melbourne, Australia 2001.
This short educational video and accompanying 4 page hand-out provides
detailed information about the design and the special products used in a
home which was specifically designed for a person with Parkinson's Disease,
the particular focus being to lessen the impact of backward falling. The
home is practical "cozy, vibrant and interesting", easy to maintain and
works well for both partners. The owners have shown how to maximise a
person's abilities and minimise the impact of disabilities. A valuable
resource for health professionals and for anyone wanting to design with the
specific needs of any individual. Empowering, the video reinforces the
holistic approach needed to address the challenges of PD or any
neurological disorder.
Filmed by Mondo Productions for the Parkinson's Association of Western
Australia.
For ordering details you can go to "Publications" at
http://www.quartec.com.au/parkinsons or use the form below
........................................................................
HOW TO PURCHASE
* Direct from the Parkinson's Association of Western Australia office
at ADA House, 54 - 58 Havelock St, West Perth
* By CREDIT CARD, CHEQUE or MONEY ORDER made out to: Parkinson's
Association of WA (postal address below)
Video Cost: Aust $ 25.50 (includes 4 page info. sheet) (Prices include GST)
ABN: 88 404 764 099
ADD Postage & Handling costs:
Within Australia: 1-2 videos + $3.80;
USA & Canada: 1 video + Aust $11.50
United Kingdom: 1 video + Aust $13.00
VIDEO ORDER FORM
Please circle video format required:
PAL (Australia, UK, NZ ) NTSC (USA, CANADA) SECAM;
MONOCHROME; PAL M
Number of videos ______ $ _______
Add Postage & Handling costs $ _______Total $ ______
CREDIT CARD DETAILS (please print)
Visa Master card Bankcard (please circle)
Name on card: ___________________________
Card Number:______/ _______/ ______/ ____ /
Expiry date ____/_____ Amount $ ______
Signature _______________________________
Please post video/s to (please print)
Name....................................................
Address...................................................................Po
st Code...........
Post or Fax your order to:
Parkinson's Association of WA
PO Box 910, WEST PERTH WA 6872
Fax: (08) 9322 9344 Overseas Fax: 61 8 9322 9344
.....................................................................
Bob & Joy Graham
37 D Fremantle Village
Lot 1, Cockburn Rd
South Fremantle WA 6162
Australia
Ph & Fax (08) 9430 4730
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 12:28:32 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Re: PD excercise tape
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Unfortunately, all the answers arefor sitting tapes which do,nothing to
strengthen your legs and are not appropriate for general conditioning.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 18:58:06 +1100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Anna and Jim <[log in to unmask]>
Subject: Re: Constipation
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Rob is spot on with his research on the NPF site.
The usual problem is not constipation as such, but a separate disorder =
referred to as "difficulty defecating". One can have one or both =
disorders; in my experience, "difficulty defecating" is the more common =
disorder among PWP's.
It is usually a combination of:
1. The slow, weak, passage of food through the digestive system, called =
"poor peristalsis"; this is a direct symptom of PD.
2. A weakening of the muscles used to "straighten" the "ano-rectal =
flap", a right-angled portion at the end of the rectum; again, a symptom =
of PD.
3. The usual and natural process of the body recovering water from the =
rectum.
It can be VERY DANGEROUS to give a person with this problem a laxative, =
without also giving either a stool softener, or, in extreme cases, an =
enema, as the laxative will only cause the stool to pass as far as the =
"blockage", and it will then compact into a hard, solid, one-piece mass, =
frequently requiring surgery to remove.
Sorry to be so alarmist, but I have personally experienced all phases of =
both disorders, and believe you me, "it ain't pretty"!
One needs to consult not only a good, knowledgeable "neuro", but an =
aware, sympathetic GP.
My own (strictly personal) answer to the problem is a quarter-teaspoon =
of "Epsom salts" (magnesium sulphate) daily, in warm water (it can be =
tea or coffee, if you can stand the taste!). This is maintenance, after =
the initial problem is solved; it keeps the stool softish, making it =
easier to pass.
(Is there any "pleasant" side effect from PD!?!?)
Jim
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 22:50:11 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Maxine Krugman <[log in to unmask]>
Subject: thank you
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Jo Ann and Nancy, thanks for the welcoming words. I really should tell you
just a little more about myself and my situation.
I live in a suburb of Sacramento, California. i am president of the Parkinson
Association out this way and we have about 15 support groups in this general
area, some affiliated with us, some not, but with whom we communicate.
i "know" several people on this list as a result of direct communication
prior to joining. So...i have access to lots of information but always want
more.
finally, though, i feel my very strong self needing to reach out from time to
time because i don't want to discuss too many of my issues here in this
region. everyone knows us and i don't want to embarrass my husband, ever.
he's doing great but has some mental deterioration which is a challenge as we
all know, caregivers and PWP.
I just want to say thank you for this incredible resource. i know some of the
comments are more credible than others and i will keep that in mind. i just
appreciate being here. take good care, everyone.
maxine mk
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 23:11:56 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jane Ross <[log in to unmask]>
Subject: Re: thank you
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Maxine
Happy to meet you. I am the leader of a support group in Klamath Falls, OR.
and my daughter and family live in Eldorado Heights, east of Sacramento I
would love to attend one of your meetings and tell my story with Parkinson's.
jjjane
http://www.geocities.com/janet313/pienet/ross/
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Fri, 21 Dec 2001 23:34:26 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Phil Tompkins <[log in to unmask]>
Subject: Long term care insurace with PD?
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Does anyone know of a long term care insurance plan that accepts
people who have PD as a pre-existing condition?
Phil Tompkins
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
