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Linda -- I am a social worker (with an M.A. in Behavioral Science) and victim rights advocate for the elderly and dependent adults. I work for a state funded program whose target population is underserved victims of crime in those categories. I do not believe there is a patient's rights advocate at this hospital but I do know the social workers through professional contact and do intend to try to pursue that avenue. I also work closely with Shasta County Adult Protective Services. They, of course, intervene only within the parameters of their criteria: over 65 or dependent adult, client at risk with no help from family and fails at home. Sometimes it's a pretty dismal picture as I see it every day. As is the fact that I might be not be able to do that any more. Must get ready to go to the hospital but want to leave you with a little humor. The neuro's main objection that he came up with to changing to Tegretol was that Ted would have to take two pills a day instead of just one dilantin!!!! I have to tell you, I just stood there rather speechless. There must be a good joke in that like how many pills must a doctor give for PD in order to be a neurologist or something. I mean, how many pills do most PWP's take. Oh well. See you all later. I'm sorry for the personal nature of these messages on the list but I am too busy and tired right now to message everyone individually. Thanks for you patience and understanding. Love, Carole -----Original Message----- From: Linda J Herman <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, January 03, 2002 4:19 AM Subject: Re: TED >Hi Carol, >I have been reading your postings and i'm really sorry to hear about >Ted's condition and the kind of care he's receiving. There seem to be >many difficult experiences faced by PWP when they are hospitalized. I >think it is a good idea to try to get a hospital social worker to >advocate for you and come up with a discharge plan that addresses your >concerns about home care. Also - Is there any type of patient advocate's >program in the hospital? >My son has epilepsy and has been on Tegretol for over 10 years now - it >is supposed to be proven safe and effective - He's had good control of >seizures and no side effects - although he isn't taking all the PD meds >too. Is there a pharmacist you could check with about possible >interactions? >I will be thinkinig of you and Ted, and hoping he sees improvement soon. >Best wishes, >Linda > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn