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Date: Sat, 19 Jan 2002 07:16:58 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Jan 18th, 2002
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Good Morning All,
Here's the overnight "News & Views".... from the on-line media....
Farewell Frank Shuster! (Canadian comedian succombs to
pneumonia after long battle with Parkinson's) We loved to
listen to your zany humour all my life...
Cheers ..... murray
* * *
Family, friends, entertainers bid farewell to comedian Frank Shuster
http://ca.news.yahoo.com/020117/6/h8f5.html
NEWS: Study Examines Genetic Role in Parkinson's Disease
http://ca.news.yahoo.com/020118/5/hdae.html
NEWS: Closer to Defining Function of Two Proteins
Involved in Neurotransmitter Release
http://www.newswise.com/articles/2002/1/NUROPRTN.SWM.html
NEWS: Expert Panel Urges U.S. Ban on Human Cloning
http://ca.news.yahoo.com/020118/5/hd7h.html
ARTICLE: Panel: Human Cloning is Unsafe
http://www.ptd.net/webnews/wed/ad/Ahuman-cloning.RsAx_CJH.html
NEWS: French Debate Stem Cell Bill
http://www.heraldsun.com/healthmed/34-184161.html
NEWS: New Round in UK Human Clone Battle
http://europe.cnn.com/2002/WORLD/europe/01/18/uk.clone/index.html
NEWS: BBC - Court Approves Cloning Challenge
http://news.bbc.co.uk/hi/english/sci/tech/newsid_1767000/1767503.stm
NEWS: Muhammad Ali Photo Exhibit Opens At Smithsonian
http://www.ptd.net/webnews/wed/dp/Aali-photos.RyH7_CJI.html
KANSAS: The Research Initiative: How Much and For What?
http://cjonline.com/stories/011802/leg_initiative.shtml
ARTICLE: Bioethics Panel's Topic 1: Perfection
http://www.latimes.com/news/printedition/asection/la-000004710jan18.story?coll=la%2Dnews%2Da%5Fsection
* * *
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 10:24:13 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Claustrophobia/Ed Grskovich
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Thanks a million, Ed. You described it so well. To hear from "real
people" makes such a difference. You seem to have a good Internist. Our
family doctor is aware of my husband's slaustrophobia but did not
prescribe anything, saying to him to work on his mind and sleep will
eventually come. (in the bedroom) We just got confirmation of our first
appointment with neurologist, which specializes in movement disorder.
However, we have to wait for almost 6 months. Only if there is some
cancellation we may get sooner in. Now I am not certain if this
clonazepam, would be safe to take from time to time for such a long
period ,almost 6 months. My husband is now not taking any medication
like Requipp to take care of depression which could be "associated" with
claustrophobia. If you have further thoughts about it, please let us
know. Thank you very much.
Emily
----- Original Message -----
From: "Ed Grskovich" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, January 18, 2002 8:13 PM
Subject: Re: Claustrophobia
> In a message dated 1/17/02 11:43:09 AM, [log in to unmask] writes:
>
> << increased claustrophobia >>
>
> That was the first symptom that drove me back to my Internist who
prescribed
> 1 mg tablets of Clonazepam, generic for Klonopin, and send me on to a
neuro
> to look for Parkinson. The claustrophobia was a subset of my
depression.
> Just a few Clonazepam, as need, quickly took away the claustrophobia.
Later,
> Requip seemed to have taken away all the depression. My similar sleep
> issues--bed/room too small--were also settled quickly.
>
> I know persons on Paxil and it seems to also work for them for similar
> problems. However, it doesn't have a "as needed" mode of action.
Therefore,
> it may take weeks to get any effect and by then many people don't want
to
> take a chance by stopping, having the problems return and then having
to
> restart it slowly again and again. That fear can cause dependence as
bad as a
> true addiction.
>
> I'll not waste anyone's time with a long my description of my
depression--I'm
> sure that there are better ones on the Internet. However, it's worth
the time
> to read about it. I thought that I was well informed, but until I got
it, I
> can now see that I really had no true idea of what depression really
was in
> my setting. Basically, for me, many simple things, like reading the
daily
> paper, that used to be fun were not fun any more.
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 10:45:48 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Murray,
We got a pneumonia shots 4 years ago. Our family doctor said that it is
once in lifetime shot. I do not know if booster shot would be
needed.(not, according to our doctor). Since many PD patients are
afflicted with pneumonia, I wonder would it not such once in life time
shot prevent all Parkinsonians to be preveneted from pneumonia. Please
share your thoughts.
Emily
----- Original Message -----
From: "Murray Charters" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 10:16 AM
Subject: News & Views From The Overnight Newswire - Jan 18th, 2002
> Good Morning All,
> Here's the overnight "News & Views".... from the on-line media....
>
> Farewell Frank Shuster! (Canadian comedian succombs to
> pneumonia after long battle with Parkinson's) We loved to
> listen to your zany humour all my life...
>
> Cheers ..... murray
>
> * * *
>
> Family, friends, entertainers bid farewell to comedian Frank Shuster
> http://ca.news.yahoo.com/020117/6/h8f5.html
>
> NEWS: Study Examines Genetic Role in Parkinson's Disease
> http://ca.news.yahoo.com/020118/5/hdae.html
>
> NEWS: Closer to Defining Function of Two Proteins
> Involved in Neurotransmitter Release
> http://www.newswise.com/articles/2002/1/NUROPRTN.SWM.html
>
> NEWS: Expert Panel Urges U.S. Ban on Human Cloning
> http://ca.news.yahoo.com/020118/5/hd7h.html
>
> ARTICLE: Panel: Human Cloning is Unsafe
> http://www.ptd.net/webnews/wed/ad/Ahuman-cloning.RsAx_CJH.html
>
> NEWS: French Debate Stem Cell Bill
> http://www.heraldsun.com/healthmed/34-184161.html
>
> NEWS: New Round in UK Human Clone Battle
> http://europe.cnn.com/2002/WORLD/europe/01/18/uk.clone/index.html
>
> NEWS: BBC - Court Approves Cloning Challenge
> http://news.bbc.co.uk/hi/english/sci/tech/newsid_1767000/1767503.stm
>
> NEWS: Muhammad Ali Photo Exhibit Opens At Smithsonian
> http://www.ptd.net/webnews/wed/dp/Aali-photos.RyH7_CJI.html
>
> KANSAS: The Research Initiative: How Much and For What?
> http://cjonline.com/stories/011802/leg_initiative.shtml
>
> ARTICLE: Bioethics Panel's Topic 1: Perfection
>
http://www.latimes.com/news/printedition/asection/la-000004710jan18.stor
y?coll=la%2Dnews%2Da%5Fsection
>
> * * *
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 10:12:58 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nancy degrazia <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Murray - I just rejoined the PIEN after a 15 month absence. I left because I was going far from my PC for
a month or so, but did not rejoin because of my memories of the frequent bickering.
Your "Overnight News and Views" is a wonderful addition. Its a great service and makes me very glad to be
back. Thank you
Nancy deGrazia 64/58 (people don't seem to sign off this way anymore but I am an old fashioned girl.)
Murray Charters wrote:
> Good Morning All,
> Here's the overnight "News & Views".... from the on-line media....
>
> Farewell Frank Shuster! (Canadian comedian succombs to
> pneumonia after long battle with Parkinson's) We loved to
> listen to your zany humour all my life...
>
> Cheers ..... murray
>
> * * *
>
> Family, friends, entertainers bid farewell to comedian Frank Shuster
> http://ca.news.yahoo.com/020117/6/h8f5.html
>
> NEWS: Study Examines Genetic Role in Parkinson's Disease
> http://ca.news.yahoo.com/020118/5/hdae.html
>
> NEWS: Closer to Defining Function of Two Proteins
> Involved in Neurotransmitter Release
> http://www.newswise.com/articles/2002/1/NUROPRTN.SWM.html
>
> NEWS: Expert Panel Urges U.S. Ban on Human Cloning
> http://ca.news.yahoo.com/020118/5/hd7h.html
>
> ARTICLE: Panel: Human Cloning is Unsafe
> http://www.ptd.net/webnews/wed/ad/Ahuman-cloning.RsAx_CJH.html
>
> NEWS: French Debate Stem Cell Bill
> http://www.heraldsun.com/healthmed/34-184161.html
>
> NEWS: New Round in UK Human Clone Battle
> http://europe.cnn.com/2002/WORLD/europe/01/18/uk.clone/index.html
>
> NEWS: BBC - Court Approves Cloning Challenge
> http://news.bbc.co.uk/hi/english/sci/tech/newsid_1767000/1767503.stm
>
> NEWS: Muhammad Ali Photo Exhibit Opens At Smithsonian
> http://www.ptd.net/webnews/wed/dp/Aali-photos.RyH7_CJI.html
>
> KANSAS: The Research Initiative: How Much and For What?
> http://cjonline.com/stories/011802/leg_initiative.shtml
>
> ARTICLE: Bioethics Panel's Topic 1: Perfection
> http://www.latimes.com/news/printedition/asection/la-000004710jan18.story?coll=la%2Dnews%2Da%5Fsection
>
> * * *
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 10:32:07 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Claustrophobia
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Ed - My love didn't appear to have claustrophobia, but he did suffer from
depression - somtimes severe. He also didn't seem to enjoy life any
more. There were other contributing factors, but most of it was caused
by the depression. I'm glad you found a med that helped you quickly.
Personally, I can't take Paxil, Prozac or Zoloft. Each of them had
severe side effects. I finally settled on Welbutrin, and as you
indicated, it took about 7 days to build up in my system, but it did save
my life (literally). Best wishes to you. Jo Ann from Houston
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 10:53:35 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Dawn's Relief
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Clay - Please send me your personal e address. I'd like to ask you a
couple of questions regarding sleep. Jo Ann
from Houston. My e is [log in to unmask]
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 11:24:13 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: sylvia <[log in to unmask]>
Subject: non pd strange mail
MIME-version: 1.0
Content-type: text/plain; charset=us-ascii
Content-transfer-encoding: 7BIT
Has anyone received messages off line, but referencing on line
messages,from a Kay Misiter, [log in to unmask] I've had 2 now.
First with an attachment [which I did not open]; today with nothing in
it. The address appears to be invalid. My AV didn't pick anything up,
but I'm curious.
----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 22:58:34 +0530
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: vmehra <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I have received one message from Kay Misiter which I could not open. It
would freeze my system and so I had to delete it. I thot I would go to the
main message site online and read it later but I didnt find it there so I
forgot about it. Who is Kay Misiter?
Take care
Lavanya
-----Original Message-----
From: sylvia <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: 19 January 2002 22:57
Subject: non pd strange mail
Has anyone received messages off line, but referencing on line
messages,from a Kay Misiter, [log in to unmask] I've had 2 now.
First with an attachment [which I did not open]; today with nothing in
it. The address appears to be invalid. My AV didn't pick anything up,
but I'm curious.
----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 12:53:14 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Claustrophobia
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 1/19/02 9:20:59 AM, [log in to unmask] writes:
<< Now I am not certain if this clonazepam, would be safe to take from time
to time for such a long period, almost 6 months. >>
First, a footnote. In looking over some of my own older research on the web
on the subject, I notice that clonazepam is called RIVOTRIL in Canada. It's
one of a class of drugs that are used for many different illnesses. Some
illnesses, like seizure disorders and agoraphobia, require long-term
continuous commitment. Some uses, like " . . . for the short-term relief of
the symptoms of anxiety," only call the occasional single, or even half,
pill. Any such relief, if it works quickly, becomes the best foundation for
milking a lot of placebo benefits from just carrying the pill along in one's
pocket--which is not too bad of an addiction. No one questions your anxiety
level if you chose not to drive an auto around without a spare tire, but they
often don't understand the need at times for similar medical support.
Even MD's often don't recognize the need for mental medical relief.
Years ago, talk show host, Jack Parr, said to guest, Oscar Levant, who had a
lot of extraordinary personal concerns:
"Oscar, it's all in you head."
Levant replied:
"What a hell of a place to have it."
I think that six months is too long to wait for any help for this kind of
"wearing away" problem. I would ask my "family" doctor to do me a big favor
and discuss with any of his psychiatrist friends the appropriate care, given
your facts and concerns, pending the visit to the neuro. He may prefer that
your husband visit the psychiatrist himself--O.K.,but, don't settle for a 5
month wait.
ed g
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 13:16:51 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Claustrophobia/Ed Grskovich
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Jack,
So good to hear from you. I happened to buy some book a few years back
on "Overcoming Anxiety without tranquilizers" by Edward H. Drummond,
M.D., psychiatrist. At that time I never knew that this book will become
a reference point in treatment of anxiety. As we all have some type of
anxiety from time to time, I thought it is good to have this particular
book in our library. (Now, I am almost superstitious!). He does talk a
lot about use of benzodiazepines, and one of them is klonopin. In my
opinion, it would be nice not to have these drugs on long term
basis.Basically, this psychiatrist is talking about to take a charge and
get better without anti-anxiety pills. In our particular case, my
husband is very vulnerable at the present time, without any PD drugs
that such step to fight and/or undergo psychiatric treatment (cognitive
or behavioural therapy), would be difficult to undertake.
We will have to discuss the situation of phobia/anxiety with the doctors
and then decide if paxil or klonopin can be of temporary help to my
husband. Thank you, Jack, for your thoughts and help.
Emily
----- Original Message -----
From: <[log in to unmask]>
To: "Emily and Julian Brinac" <[log in to unmask]>
Sent: Saturday, January 19, 2002 11:08 AM
Subject: Re: Claustrophobia/Ed Grskovich
> Emily:
>
> Jeannette has been taking Klonopin for about 10 years. We have even
talked
> about taking some during the day to keep her dyskensia down but have
not
> proceeded to do so.
>
> She takes a 1 Mg tablet before bed time and except for use of the
bathroom
> at night, she sleeps well.
>
> Klonopin is a brand name for Clonazepam.
>
> Jack
>
>
>
>
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 13:28:21 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Claustrophobia
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Ed, your information is invaluable. You have certainly put the things
into perspective.Will press the issue with the family doctor prior to
seeing the neurologist in 5 month time. By the way, our family doctor
does not believe much in psychiatric help. He thinks that some of them
can really mess you up. We do not have choice of doctors in our rural
area. Believe me, some of them here behave like Gods themselves. We will
try to be patient. I know, we have to get some help while waiting for
neurologist. Thanks again.
Emily
----- Original Message -----
From: "Ed Grskovich" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 12:53 PM
Subject: Re: Claustrophobia
> In a message dated 1/19/02 9:20:59 AM, [log in to unmask] writes:
>
> << Now I am not certain if this clonazepam, would be safe to take from
time
> to time for such a long period, almost 6 months. >>
>
> First, a footnote. In looking over some of my own older research on
the web
> on the subject, I notice that clonazepam is called RIVOTRIL in Canada.
It's
> one of a class of drugs that are used for many different illnesses.
Some
> illnesses, like seizure disorders and agoraphobia, require long-term
> continuous commitment. Some uses, like " . . . for the short-term
relief of
> the symptoms of anxiety," only call the occasional single, or even
half,
> pill. Any such relief, if it works quickly, becomes the best
foundation for
> milking a lot of placebo benefits from just carrying the pill along in
one's
> pocket--which is not too bad of an addiction. No one questions your
anxiety
> level if you chose not to drive an auto around without a spare tire,
but they
> often don't understand the need at times for similar medical support.
>
> Even MD's often don't recognize the need for mental medical relief.
>
> Years ago, talk show host, Jack Parr, said to guest, Oscar Levant, who
had a
> lot of extraordinary personal concerns:
> "Oscar, it's all in you head."
>
> Levant replied:
> "What a hell of a place to have it."
>
> I think that six months is too long to wait for any help for this kind
of
> "wearing away" problem. I would ask my "family" doctor to do me a big
favor
> and discuss with any of his psychiatrist friends the appropriate care,
given
> your facts and concerns, pending the visit to the neuro. He may
prefer that
> your husband visit the psychiatrist himself--O.K.,but, don't settle
for a 5
> month wait.
>
> ed g
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 13:35:28 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Donald F. McKinley" <[log in to unmask]>
Subject: LONG STANDING TALK
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: quoted-printable
EVERY SENCE I BEEN ON THE LIST I WOULD NOTT TELL OF THE MEDS I TAKE WHY =
NOW I BE DOGONE WHY NOW BUT I DO TAKE KLONOPIN,PAXIL,PROSAC HOW MUCH NO =
AND WHAT ELSE. I THINK U GOT TO USE MIND OVER MATTER TO MAKE IT. I SLEEP =
FROM 11;30 till 5 ONCE NIGHT I GO TO THE READING ROOM=20
I.Y.Q. DON AND VIVIAN
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 13:39:52 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Donald F. McKinley" <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
----- Original Message -----=20
From: "nancy degrazia" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 8:12 AM
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
> Murray - I just rejoined the PIEN after a 15 month absence. I left =
because I was going far from my PC for
> a month or so, but did not rejoin because of my memories of the =
frequent bickering.
>=20
> Your "Overnight News and Views" is a wonderful addition. Its a great =
service and makes me very glad to be
> back. Thank you
>=20
> Nancy deGrazia 64/58 (people don't seem to sign off this way anymore =
but I am an old fashioned girl.)
> NANCY WHAT DO U CALL THE WAY I CLOSE? AM I JUST AN OLD GOOD LOOKING =
GUY? I.Y.Q. DON & VIVIAN=20
> Murray Charters wrote:
>=20
> > Good Morning All,
> > Here's the overnight "News & Views".... from the on-line media....
> >
> > Farewell Frank Shuster! (Canadian comedian succombs to
> > pneumonia after long battle with Parkinson's) We loved to
> > listen to your zany humour all my life...
> >
> > Cheers ..... murray
> >
> > * * *
> >
> > Family, friends, entertainers bid farewell to comedian Frank Shuster
> > http://ca.news.yahoo.com/020117/6/h8f5.html
> >
> > NEWS: Study Examines Genetic Role in Parkinson's Disease
> > http://ca.news.yahoo.com/020118/5/hdae.html
> >
> > NEWS: Closer to Defining Function of Two Proteins
> > Involved in Neurotransmitter Release
> > http://www.newswise.com/articles/2002/1/NUROPRTN.SWM.html
> >
> > NEWS: Expert Panel Urges U.S. Ban on Human Cloning
> > http://ca.news.yahoo.com/020118/5/hd7h.html
> >
> > ARTICLE: Panel: Human Cloning is Unsafe
> > http://www.ptd.net/webnews/wed/ad/Ahuman-cloning.RsAx_CJH.html
> >
> > NEWS: French Debate Stem Cell Bill
> > http://www.heraldsun.com/healthmed/34-184161.html
> >
> > NEWS: New Round in UK Human Clone Battle
> > http://europe.cnn.com/2002/WORLD/europe/01/18/uk.clone/index.html
> >
> > NEWS: BBC - Court Approves Cloning Challenge
> > http://news.bbc.co.uk/hi/english/sci/tech/newsid_1767000/1767503.stm
> >
> > NEWS: Muhammad Ali Photo Exhibit Opens At Smithsonian
> > http://www.ptd.net/webnews/wed/dp/Aali-photos.RyH7_CJI.html
> >
> > KANSAS: The Research Initiative: How Much and For What?
> > http://cjonline.com/stories/011802/leg_initiative.shtml
> >
> > ARTICLE: Bioethics Panel's Topic 1: Perfection
> > =
http://www.latimes.com/news/printedition/asection/la-000004710jan18.story=
?coll=3Dla%2Dnews%2Da%5Fsection
> >
> > * * *
> >
> > =
----------------------------------------------------------------------
> > To sign-off Parkinsn send a message to: =
mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
>=20
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: =
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>=20
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 18:32:13 +0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Shirley Alt <[log in to unmask]>
I am a new member & have read all the information with
much interest. I am 66, was dianosed with essential
tremors in 97. Have been on neurotin 800 mg tid for
them. Three months ago was told I also have pd & placed
on Sinemet 25/100 tid. However, I am still having
tremors in both hands. At times have trouble holding
utensils and cutting food. Any advice or info on meds
that has proven successful. I would appreciate knowing
anything that you can tell me. Thank you for accepting
me as a member. I look forward to seeing more info on
the web. Wishing everyone a good day. Shirley
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 21:05:43 +0200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Florence Frankel <[log in to unmask]>
MIME-version: 1.0
Content-type: text/plain; charset=Windows-1252
Content-transfer-encoding: 7BIT
Hi Shirley:
You are the only one that can say that you have both Essential Tremors and
Parkinsons Disease.
Three years after I fell due to Osteoporosis, I was told by my Neurologist
in the states that I have
Essential Tremors and he said it was not as serious as Parkinsons Disease,
so he gave me
nothing for Essential Tremors. It so happens my brother has Parkinsons
Disease and this
Neurologist asked me, "Are you worried that you have Parkinsons Disease"?
and I said "yes"!
So I left it at that. About a year ago, just moved to Israel, I started to
have bad balance and
no stability, so I left that go for a while. This got so bad that my family
wanted me to see a
Neurologist out here. I did see as Neurologist out here and I was so bad I
couldn't stand or walk, so by
trial and error he gave me Sinemet, and to my surprise, this medication
helped me alot to the point
I started to feel much better, but not100% but good enough to get by/
What happened, I wrote to the doctor I had in America and told him I am
doing much better on
Sinemet, so he told me that some people can have Essential Tremors and
Parkinsons Disease.
With Essential Tremors, you don't tremor at rest and this is what happens to
me, but I couldn't believe that I also have Parkinsons Disease. Were you
surprised of having to moving disorders?
This is all I have to tell you for now, but I never did get anything for
Essential Tremors. Do you tremor
at rest? People who have Parkinsons tremors at rest.
Let me know how you are getting along, OK? I am in the group for about a
couple of weeks and I
really like it very much.
Take care and write when you can, OK?
Florence Frankel
[log in to unmask]
----- Original Message -----
From: "Shirley Alt" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 8:32 PM
> I am a new member & have read all the information with
> much interest. I am 66, was dianosed with essential
> tremors in 97. Have been on neurotin 800 mg tid for
> them. Three months ago was told I also have pd & placed
> on Sinemet 25/100 tid. However, I am still having
> tremors in both hands. At times have trouble holding
> utensils and cutting food. Any advice or info on meds
> that has proven successful. I would appreciate knowing
> anything that you can tell me. Thank you for accepting
> me as a member. I look forward to seeing more info on
> the web. Wishing everyone a good day. Shirley
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 20:13:19 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-2?Q?Olga_R=F3naky?= <[log in to unmask]>
Subject: Test
MIME-version: 1.0
Content-type: text/plain; charset=iso-8859-2
Content-transfer-encoding: 7BIT
It is just a test of my PC and ISP.
Olga
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 14:32:08 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: Test
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 1/19/2002 11:18:57 AM Pacific Standard Time,
[log in to unmask] writes:
> It is just a test of my PC and ISP.
>
> Olga
You came through loud and clear, Olga!
Hugs,
Bunny
"Art is long, life short; judgment difficult, opportunity transient."
- Goethe
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 09:38:23 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
We had the same experience as this.
Carole
-----Original Message-----
From: vmehra <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Saturday, January 19, 2002 9:33 AM
Subject: Re: non pd strange mail
>I have received one message from Kay Misiter which I could not open. It
>would freeze my system and so I had to delete it. I thot I would go to the
>main message site online and read it later but I didnt find it there so I
>forgot about it. Who is Kay Misiter?
>
>Take care
>Lavanya
>
>
>-----Original Message-----
>From: sylvia <[log in to unmask]>
>To: [log in to unmask] <[log in to unmask]>
>Date: 19 January 2002 22:57
>Subject: non pd strange mail
>
>
>Has anyone received messages off line, but referencing on line
>messages,from a Kay Misiter, [log in to unmask] I've had 2 now.
>First with an attachment [which I did not open]; today with nothing in
>it. The address appears to be invalid. My AV didn't pick anything up,
>but I'm curious.
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
>
>----------------------------------------------------------------------
>To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
>In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 15:57:48 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Wellbutrin/Depression/Claustrophia
MIME-Version: 1.0
Content-Type: text/plain; charset="ISO-8859-1"
Content-Transfer-Encoding: quoted-printable
Emily,
I have no direct knowledge about Wellbutrin [bubroprion], but one very=20
interesting study suggested that besides acting as an antidepressant it migh=
t=20
also help persons with early stage Parkinson's.
"BOSTON, Sep 27, 2001 (United Press International via COMTEX) -- Preliminary=
=20
laboratory studies suggest the antidepressant bubroprion may help slow the=20
degenerative Parkinson's disease, but whether the approach works in humans=20
remains to be seen. "
See: <A=20
HREF=3D"http://www.lef.org/newsarchive/disease/2001/09/27/up/0000-3137-bc-us=
-par
kinsons.html">Antidepressant May Slow Parkinson's</A>
Or:=20
http://www.lef.org/newsarchive/disease/2001/09/27/up/0000-3137-bc-us-parkins=
on
s.html
However, after you see the neuro and get PD meds, a warning comes into play.
See the following from the St. Louis Parkinson Newsletter:
Does Wellbutrin, an antidepressant, relieve PD symptoms?
Wellbutrin (buproprion) inhibits the reuptake of dopamine at the nerve cell=20
terminal.=A0 Thus, it can strengthen the effect of the remaining dopamine.=
=A0=20
That is, in the PD patient, the remaining dopamine nerve cells release=20
dopamine (but not enough of it).=A0 Then Wellbutrin inhibits the nerve cell=20
from taking it back out of the synapse (gap between the nerve cells) where i=
t=20
acts.=A0 This =ECreuptake=EE is one of the ways its action would usually be=20
stopped.=A0 So the remaining dopamine can have a =ECstronger=EE=A0 effect be=
cause it=20
is allowed to work longer.=A0 This is not a very strong effect.=A0 If you gi=
ve=20
Wellbutrin alone to a PD patient, he is not usually noticeably better with=20
respect to his parkinsonian symptoms.=A0 Wellbutrin also inhibits=20
norepinephrine and serotonin reuptake which are probably important for its=20
antidepressant effect.=A0 My chief concern is that when it is given with=20
levodopa it may enhance the effect of levodopa a little but it has an even=20
greater chance of enhancing the potential side effects of levodopa.=A0 I wou=
ld=20
agree with the warning put out by its maker, Glaxo Wellcome, in the Physicia=
n=20
Desk Reference that =EClimited clinical data suggest a higher incidence of=20
adverse events in patients receiving concurrent administration of buproprion=
=20
and levodopa.=A0 Administration of Wellbutrin SR tablets to patients receivi=
ng=20
levodopa concurrently should be undertaken with caution, using small doses=20
and gradual dose increases.=EE=A0 I would also point out that Zyban, markete=
d as=20
an aid to help stop smoking, is the same thing as Wellbutrin.=A0 It is just=20
another name for buproprion.
To repeat, if the patient is also being given levodopa, Wellbutrin "may=20
enhance the effect of levodopa a little but it has an even greater chance of=
=20
enhancing the potential side effects of levodopa."
ed g=20
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 13:00:11 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
In-Reply-To: Emily and Julian Brinac <[log in to unmask]>'s message of Sat,
19 Jan 2002 10:45:48 -0500
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Emily our Dr suggested a booster for pnuemonia shot about every 10yrs.
Said they sure won't hurt anyone, better safe than sorry.
Hugs Juanita CG for George 75/71/64
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 23:04:44 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?Olga_R=F3naky?= <[log in to unmask]>
Subject: Please ASAP advice
Comments: cc: CARELIST <[log in to unmask]>
MIME-version: 1.0
Content-type: text/plain; charset=iso-8859-1
Content-transfer-encoding: 7BIT
Hi, Friends
I strongly need your help, ASAP. I felt myselllf terrible ( dizziness, numb
in my head, mainly aat the back and lower part of my head and in my lips,
nose, paarallel with a strong feeeling of being "pressurized") many times,
but I did not know what it was. A week ago I got a blood pressure measuring
tool (?) aand every day I controlled my BP. Today evening (now it is 23:00
aat night) I felt again very awful, and my BP was extremly low 95/61, then
92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as the
snow outside. Usually I d have a "normal" or a bit low BP, but not like
this.
As it is late night in Hungary now and I am not well and eeeven aa sstrong
coffee couldn't help.plesae would anybody tell me what is it and what to do?
I did no tkae the evening meds, I was afraid,
I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex 1-1-2
0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I have
arrythmia) 1/ddiem and Ditropan 3xx1-these are the most important drugs.
Thanks
Olga
PWP 49/47/40 and CG for my own
Hungary
[log in to unmask]
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 14:23:42 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Essential tremors or PD?
In-Reply-To: Shirley Alt <[log in to unmask]>'s message of Sat, 19 Jan 2002
18:32:13 +0000
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Shirley, I'm no Dr. That said I will now
voice my opinions. First my PWP was
told iniatially essential tremors. I dissagreed for several reasons. So
to appease me, mostly to prove me wrong the nuero put George on
carbidopa/levadopa 25/100 1 tab 4 times a day. Nuero stated if it helps
it's parkinsons if it doesn't help it is not PD.
Within 7 days Georges tremors showed
great improvement. However your 3 times a day may need to be tweaked up
a bit.
Just food for thought from our experience.
Hugs Juanita CG for George 75/71/64
PS That nuero is no longer Georges
nuero.
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 14:28:55 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Please ASAP advice
In-Reply-To: =?ISO-8859-1?Q?Olga_R=F3naky?= <[log in to unmask]>'s message of
Sat, 19 Jan 2002 23:04:44 +0100
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Olga get to an emergency room NOW.
This is nothing to mess around with.
Keep us posted. Hugs Juanita
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 17:35:18 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
Olga,
It is not time for preaching at this time as you might be in the
emergency situation. Since I am from European background, I know that
doctors come for emergency home visit (usually at any time). You may use
this avenue until they figure out what is causing your low blood
pressure and perhaps some seizure. Your medication may have to be
adjusted. I am new here but I am very concerned about you. I know you
are asking people what to do about medication, but try to reach the
doctor or go to hospital emergency. Please let us know how you are
doing.
Emily
----- Original Message -----
From: "Olga Rónaky" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 5:04 PM
Subject: Please ASAP advice
> Hi, Friends
>
> I strongly need your help, ASAP. I felt myselllf terrible ( dizziness,
numb
> in my head, mainly aat the back and lower part of my head and in my
lips,
> nose, paarallel with a strong feeeling of being "pressurized") many
times,
> but I did not know what it was. A week ago I got a blood pressure
measuring
> tool (?) aand every day I controlled my BP. Today evening (now it is
23:00
> aat night) I felt again very awful, and my BP was extremly low 95/61,
then
> 92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as
the
> snow outside. Usually I d have a "normal" or a bit low BP, but not
like
> this.
> As it is late night in Hungary now and I am not well and eeeven aa
sstrong
> coffee couldn't help.plesae would anybody tell me what is it and what
to do?
> I did no tkae the evening meds, I was afraid,
> I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex
1-1-2
> 0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I
have
> arrythmia) 1/ddiem and Ditropan 3xx1-these are the most important
drugs.
>
> Thanks
>
> Olga
> PWP 49/47/40 and CG for my own
> Hungary
> [log in to unmask]
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 14:39:59 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Olga...either go directly to a hospital emergency
room or call an ambulance or a neighbor to take you there now......you have some
problems that need to be seen by a doctor....go now ...with low blood pressure
you can pass out and not be able to do anything to help yourself...will keep you
in my prayers....Joan Hartman
----- Original Message -----
From: Olga R?naky
To: [log in to unmask]
Sent: 1/19/02 2:04:44 PM
Subject: Please ASAP advice
Hi, Friends
I strongly need your help, ASAP. I felt myselllf terrible ( dizziness,
numb
in my head, mainly aat the back and lower part of my head and in my
lips,
nose, paarallel with a strong feeeling of being "pressurized")
many times,
but I did not know what it was. A week ago I got a blood pressure
measuring
tool (?) aand every day I controlled my BP. Today evening (now it is
23:00
aat night) I felt again very awful, and my BP was extremly low 95/61,
then
92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as
the
snow outside. Usually I d have a "normal" or a bit low BP, but not
like
this.
As it is late night in Hungary now and I am not well and eeeven
aa sstrong
coffee couldn't help.plesae would anybody tell me what is it and what to
do?
I did no tkae the evening meds, I was afraid,
I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex
1-1-2
0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I
have
arrythmia) 1/ddiem and Ditropan 3xx1-these are the most
important drugs.
Thanks
Olga
PWP 49/47/40 and CG for my own
Hungary
[log in to unmask]
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
--- Joan Hartman
--- [log in to unmask]
--- EarthLink: It's your Internet.
----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn
=========================================================================
Date: Sat, 19 Jan 2002 18:24:01 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Bruce Anderson <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 8bit
i had 90 over 60 once and i passed out. it turned out i had a bleeding
ulcer and i had 1/3 of my blood in my srtomach..GET TO A HOSPITAL!!!
bba
----- Original Message -----
From: "Olga Rónaky" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 5:04 PM
Subject: Please ASAP advice
> Hi, Friends
>
> I strongly need your help, ASAP. I felt myselllf terrible ( dizziness,
numb
> in my head, mainly aat the back and lower part of my head and in my lips,
> nose, paarallel with a strong feeeling of being "pressurized") many
times,
> but I did not know what it was. A week ago I got a blood pressure
measuring
> tool (?) aand every day I controlled my BP. Today evening (now it is 23:00
> aat night) I felt again very awful, and my BP was extremly low 95/61, then
> 92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as the
> snow outside. Usually I d have a "normal" or a bit low BP, but not like
> this.
> As it is late night in Hungary now and I am not well and eeeven aa
sstrong
> coffee couldn't help.plesae would anybody tell me what is it and what to
do?
> I did no tkae the evening meds, I was afraid,
> I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex
1-1-2
> 0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I have
> arrythmia) 1/ddiem and Ditropan 3xx1-these are the most important drugs.
>
> Thanks
>
> Olga
> PWP 49/47/40 and CG for my own
> Hungary
> [log in to unmask]
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 20 Jan 2002 01:53:42 +0200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Florence Frankel <[log in to unmask]>
Subject: Re: Essential tremors or PD?
MIME-version: 1.0
Content-type: text/plain; charset=iso-8859-1
Content-transfer-encoding: 7BIT
I must say that I was told I have Essential Tremors of which I accepted
because at rest people do not have the tremors, like those with Parkinsons
who tremors while at rest.
You are so correct when you said when George was put on carbidopal/levadopa
(Sinemet) and got better. This is exactly what happened to me that I feel
much better being on Sinemet, even though I am not 100%. It seems to me
that George is on the right track. I feel this way about myself. So long as
George responded on Sinemet unfortunately he has Parkinsons Disease. The
fact I respond to
Sinemet is the reason why I was told I have Parkinsons Disease. So be glad
he is feeling better.
Let me know how George is doing, OK?
Good luck to you, Shirley!!!!
Florence Frankel
[log in to unmask]
----- Original Message -----
From: "Juanita Hibbert" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 12:23 AM
Subject: Essential tremors or PD?
> Shirley, I'm no Dr. That said I will now
> voice my opinions. First my PWP was
> told iniatially essential tremors. I dissagreed for several reasons. So
> to appease me, mostly to prove me wrong the nuero put George on
> carbidopa/levadopa 25/100 1 tab 4 times a day. Nuero stated if it helps
> it's parkinsons if it doesn't help it is not PD.
> Within 7 days Georges tremors showed
> great improvement. However your 3 times a day may need to be tweaked up
> a bit.
> Just food for thought from our experience.
> Hugs Juanita CG for George 75/71/64
> PS That nuero is no longer Georges
> nuero.
>
> ----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 08:58:23 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>
Subject: Re: weight loss
I dont think Parkinsons is normally associated with weight loss. My Mom has
poor appetite and eats poorly . finally we figured out she was succumbing
slowly to Alzheimers and had pretty much lost her sense of taste so nothing
much tasted good for her so why eat. Since we have gone to high protein
meals and stimulating through out the meal with constant questions about how
she like this or that and did she remember to try her salad and on and on,
she is improving. The questions dont bother her because she doesnt remember
them as you go through the meal and low and behold we are getting meals into
her quicker than ever and with the better nutrition whether she can taste it
or not she is doing better. Not a lot but she is better.
This may be similar to what is going on with your husband , a loss of taste
sensation and hence no interest in eating. Rob
----- Original Message -----
From: "NITA ANDRES" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, January 01, 2002 8:17 PM
Subject: weight loss
> My husband has lost about 40 lbs in a year to a year and half. Is this
unusual PWPs? I have read all the books ( that I know about ) and found no
reference. I cannot get enough calories into him and he does eat well. We
have been to a nutritionist to no avail.
> He has no tremor at all. I have seen PWPs on TV ( M. ALi _ and he does not
appear to be skinny. Any help out there?
>
> Nita Andres CG David 83
>
> ----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 07:28:57 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>
Subject: Re: Dawn's Relief
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Dawn's ReliefIn general you can take Melatonin but not the over =
thecounter meds like Nyquil or Sominex to help you sleep because the =
drug interaction is possibly fatal if you are on the MAO B inhibitor, =
eldepryl. Parky meds do have some strange interactions so check the =
National Parkinson Drug Interaction List and proceed cautiously. =
Sometimes even the pharmacists arent even up on what the parky shouldnt =
take. . I guess you could always overdose on warm milk and cookies with =
a boring book Good Luck with your next nights sleep. Rob
----- Original Message -----=20
From: Clay Felts=20
To: [log in to unmask]
Sent: Saturday, January 19, 2002 6:50 AM
Subject: Dawn's Relief
This is a result of being sleepless in "Parkieland". I am one of =
those who is up and down all night. Does anyone have suggestions for =
sleeping longer hours.? I have worked with my doctor adjusting =
medications without finding an answer, yet. The problem is that no =
matter what I do or take, I wake up in 3 to 4 hours and can not get back =
to sleep. Any suggestions for 8 hours of sleep?
I am struck by how often in the night that I am reminded of people who =
have died that were close to me even though I don't believe in such a =
thing. I remember as a child seeing monsters in my room. I would hide =
under the covers and soon fall asleep, all warm and relaxed. As an =
adult, I no longer see monsters. I will get a flashing glimpse of =
something, or feel a presence. This only happens as I am waking up.
.Clay=20
Dawn's Relief=20
I stare at the emptiness but I'm not bold.=20
My room in the wee hours is lonely and cold.=20
In shadows that harbor my ghosts of the night=20
Are places where spirits oft-linger from sight.=20
My mind plays its tricks so I talk to the dead=20
And often I struggle controlling my head.=20
The hours move so slowly, I pray for the sun.=20
But god just ignores 'cause his will will be done=20
When young I saw monsters while snuggled and safe.=20
At dawn in the chill now they dance without grace.=20
I am scared that the call for my death maybe now.=20
I refuse to acknowledge a beckon to bow.=20
As night turns to dawn sleep returns as a friend.=20
I dream of lost ladies, which saves me again.=20
And, the warmth of the sun fills my room with such cheer.=20
'Tis a wonderful life and I'm glad I'm still here.=20
Clay Felts=20
January 2002=20
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 20:35:44 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Roger Seymour <[log in to unmask]>
Subject: Re: Dawn's Relief
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Dawn's ReliefHi Clay.
I don't have an answer, but just an observation. Though in early stages =
of PD, I find myself "neglecting" my left side, where the tremors occur =
and I have movement difficulties (poor coordination, slowness, etc.). =
Maybe "protecting" might be a better word - I'm letting my right hand do =
more of what the left normally does.
I have also noticed that, perhaps because I am still getting used to my =
limitations, that I have cut back on the amount of physical activity =
that I used to have, including regular exercise. The more sedentary =
life style, combined with drugs (selegiline) which my neurologist says =
may cause "more vivid" dreams, I have found my nights to be less =
restful. But, I have noticed this same trend in past years when I've =
stopped regular exercise - I'm simply not dissipating the energy and =
tension that normally builds up during the day. That's why my priority =
is to try to get back on a regular program. Besides, I need to try to =
maintain some muscle tone and balance (that is, not letting my left side =
get so much weaker than my right side).
Don't know if any of this might relate. Good luck.
Roger
----- Original Message -----=20
From: Clay Felts=20
To: [log in to unmask]
Sent: Saturday, January 19, 2002 8:50 AM
Subject: Dawn's Relief
This is a result of being sleepless in "Parkieland". I am one of =
those who is up and down all night. Does anyone have suggestions for =
sleeping longer hours.? I have worked with my doctor adjusting =
medications without finding an answer, yet. The problem is that no =
matter what I do or take, I wake up in 3 to 4 hours and can not get back =
to sleep. Any suggestions for 8 hours of sleep?
I am struck by how often in the night that I am reminded of people who =
have died that were close to me even though I don't believe in such a =
thing. I remember as a child seeing monsters in my room. I would hide =
under the covers and soon fall asleep, all warm and relaxed. As an =
adult, I no longer see monsters. I will get a flashing glimpse of =
something, or feel a presence. This only happens as I am waking up.
.Clay=20
Dawn's Relief=20
I stare at the emptiness but I'm not bold.=20
My room in the wee hours is lonely and cold.=20
In shadows that harbor my ghosts of the night=20
Are places where spirits oft-linger from sight.=20
My mind plays its tricks so I talk to the dead=20
And often I struggle controlling my head.=20
The hours move so slowly, I pray for the sun.=20
But god just ignores 'cause his will will be done=20
When young I saw monsters while snuggled and safe.=20
At dawn in the chill now they dance without grace.=20
I am scared that the call for my death maybe now.=20
I refuse to acknowledge a beckon to bow.=20
As night turns to dawn sleep returns as a friend.=20
I dream of lost ladies, which saves me again.=20
And, the warmth of the sun fills my room with such cheer.=20
'Tis a wonderful life and I'm glad I'm still here.=20
Clay Felts=20
January 2002=20
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 20:29:00 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Arlene Allen <[log in to unmask]>
Subject: To Clay - Re: Dawn's Relief
Mime-Version: 1.0
Content-Type: text/plain; format=flowed
Clay,
You mentioned that you are seeing fleeting visions and a presence when
waking up. Have you mentioned this to your neuro?? This could be an
important thing to know as it may require some changes in your medication.
Arlene in Boynton Beach, FL
_________________________________________________________________
Join the world’s largest e-mail service with MSN Hotmail.
http://www.hotmail.com
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Date: Sat, 19 Jan 2002 20:48:07 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Roger Seymour <[log in to unmask]>
Subject: Nicotine Patches
MIME-Version: 1.0
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Hi Group.
Well, we're almost getting back to normal here in Upstate NY - about 9
inches of snow on the ground right now. I suppose his might sound a bit
strange to some, but I really enjoyed getting out there and shoveling the
stuff. There's a unique quiet and peacefulness about being outside in
new-fallen snow, flakes drifting down around you...
Anyway... my wife read an article recently in the local paper about the
apparent benefits that some people have seen using nicotine patches. One
person, described in this article, reported a dramatic reversal of their PD
symptoms after using the patches. Anyone have any comments on this?
Roger
----------------------------------------------------------------------
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=========================================================================
Date: Sat, 19 Jan 2002 14:30:49 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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I agree that you need to go to an emergency room or doctor ASAP.
Carole
-----Original Message-----
From: Olga Rónaky <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Saturday, January 19, 2002 2:14 PM
Subject: Please ASAP advice
Hi, Friends
I strongly need your help, ASAP. I felt myselllf terrible ( dizziness, numb
in my head, mainly aat the back and lower part of my head and in my lips,
nose, paarallel with a strong feeeling of being "pressurized") many times,
but I did not know what it was. A week ago I got a blood pressure measuring
tool (?) aand every day I controlled my BP. Today evening (now it is 23:00
aat night) I felt again very awful, and my BP was extremly low 95/61, then
92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as the
snow outside. Usually I d have a "normal" or a bit low BP, but not like
this.
As it is late night in Hungary now and I am not well and eeeven aa sstrong
coffee couldn't help.plesae would anybody tell me what is it and what to do?
I did no tkae the evening meds, I was afraid,
I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex 1-1-2
0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I have
arrythmia) 1/ddiem and Ditropan 3xx1-these are the most important drugs.
Thanks
Olga
PWP 49/47/40 and CG for my own
Hungary
[log in to unmask]
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Date: Sat, 19 Jan 2002 20:00:12 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: NITA ANDRES <[log in to unmask]>
Subject: Re weight loss
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
This is not very scientific, but it is working. Big Snickers at 500 calor=
ies a pop. He brushes his teeth well, always has. So far he has gained 10=
lbs. It is almost funny after having seen a nutritionist to wind up with=
Snickers. Which I should have thought of in the first place.
Nita, cg David 83
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Date: Sun, 20 Jan 2002 08:38:30 +0530
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: vmehra <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I got a message from Terry Kempf with an attachment and this froze my system
too like the one from Kay Misiter. The subject was Re. Re. non pd strange
mail.
Strange actually
Take care
Lavanya
----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 14:53:08 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Just Thinking Out Loud
Comments: cc: [log in to unmask]
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As a social worker/advocate for under-served victims of crime =
(especially elders and dependent adults), I know what it is to see =
difficult, depressing and occasionally hopeless situations day after =
day. Sometimes you can help and sometimes you cannot. People in social =
services/human services occupations can easily get burned out. I would =
hope that doctors, nurses and other healthcare professionals would =
constantly be evaluating themselves for that possibility. But, =
tragically, I think they do not. There should definitely be some sort =
of mechanism in place for this . . . especially in hospitals and medical =
centers where emergency medical care goes on 24/7. Just because we know =
about something (like the possibility of burn-out), doesn't mean we =
always stop and take the time to do anything about it. Especially when =
it comes to ourselves. It's so easy to see it in others and give advice =
to other people. Just felt like expressing my ruminations.
Carole Menser, M.A.
spouse of Ted (54/46/40)
zip 96003 =20
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Date: Sat, 19 Jan 2002 19:33:49 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>
Subject: Re: Wellbutrin/Depression/Claustrophia
Ed,
I do have personal experience with Wellbutrin. It wasnt a good one either.
After a couple of weeks, it seemed like I was on Requip again because I
startedto pass out again with Sleep Attacks like what the Requip caused with
me.I know it does work well for some though . Your article pretty well say
what is needed.
Do you have a link for the St. Louis Parkinson Newsletter. I'm always
interested in new sources of information. Rob
----- Original Message -----
From: "Ed Grskovich" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 1:57 PM
Subject: Re: Wellbutrin/Depression/Claustrophia
> Emily,
> I have no direct knowledge about Wellbutrin [bubroprion], but one very
> interesting study suggested that besides acting as an antidepressant it
might
> also help persons with early stage Parkinson's.
>
> "BOSTON, Sep 27, 2001 (United Press International via COMTEX) --
Preliminary
> laboratory studies suggest the antidepressant bubroprion may help slow the
> degenerative Parkinson's disease, but whether the approach works in humans
> remains to be seen. "
> See: <A
>
HREF="http://www.lef.org/newsarchive/disease/2001/09/27/up/0000-3137-bc-us-p
ar
>
> kinsons.html">Antidepressant May Slow Parkinson's</A>
> Or:
>
http://www.lef.org/newsarchive/disease/2001/09/27/up/0000-3137-bc-us-parkins
on
>
> s.html
>
> However, after you see the neuro and get PD meds, a warning comes into
play.
>
> See the following from the St. Louis Parkinson Newsletter:
>
> Does Wellbutrin, an antidepressant, relieve PD symptoms?
> Wellbutrin (buproprion) inhibits the reuptake of dopamine at the nerve
cell
> terminal. Thus, it can strengthen the effect of the remaining dopamine.
> That is, in the PD patient, the remaining dopamine nerve cells release
> dopamine (but not enough of it). Then Wellbutrin inhibits the nerve cell
> from taking it back out of the synapse (gap between the nerve cells) where
it
> acts. This ěreuptakeî is one of the ways its action would usually be
> stopped. So the remaining dopamine can have a ěstrongerî effect because it
> is allowed to work longer. This is not a very strong effect. If you give
> Wellbutrin alone to a PD patient, he is not usually noticeably better with
> respect to his parkinsonian symptoms. Wellbutrin also inhibits
> norepinephrine and serotonin reuptake which are probably important for its
> antidepressant effect. My chief concern is that when it is given with
> levodopa it may enhance the effect of levodopa a little but it has an even
> greater chance of enhancing the potential side effects of levodopa. I
would
> agree with the warning put out by its maker, Glaxo Wellcome, in the
Physician
> Desk Reference that ělimited clinical data suggest a higher incidence of
> adverse events in patients receiving concurrent administration of
buproprion
> and levodopa. Administration of Wellbutrin SR tablets to patients
receiving
> levodopa concurrently should be undertaken with caution, using small doses
> and gradual dose increases.î I would also point out that Zyban, marketed
as
> an aid to help stop smoking, is the same thing as Wellbutrin. It is just
> another name for buproprion.
>
> To repeat, if the patient is also being given levodopa, Wellbutrin "may
> enhance the effect of levodopa a little but it has an even greater chance
of
> enhancing the potential side effects of levodopa."
>
> ed g
>
> ----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 18:49:57 -0700
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
Juanita,
Are you sure on the interval on the boosters? I think tetanus is every ten
years and thepneumonia is suppose to be 5years. Might want to double check
but that is what the VA hospitals reccommend. Rob
----- Original Message -----
From: "Juanita Hibbert" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 2:00 PM
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
> Emily our Dr suggested a booster for pnuemonia shot about every 10yrs.
> Said they sure won't hurt anyone, better safe than sorry.
> Hugs Juanita CG for George 75/71/64
>
> ----------------------------------------------------------------------
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Date: Sat, 19 Jan 2002 20:27:12 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Essential tremors or PD?
In-Reply-To: Florence Frankel <[log in to unmask]>'s message of Sun, 20 Jan
2002 01:53:42 +0200
Content-Type: Text/Plain; Charset=US-ASCII
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MIME-Version: 1.0 (WebTV)
As far as his tremors George is doing pretty well. He is getting
steadily weaker.
However we can not blame all his maladies on PD. He has peripheral
nueropathy, diabetes, macular occlusion
has lost the vision in one eye and is gradually losing it in the other.
We however are more fortunate than many.
He has lost little of his mental acquity
and is still not in a wheelchair. He is still able to take care of his
personal needs
and most of all still has a marvelous attitude most of the time. So most
of the time we count our blessings.
Hugs Juanita CG for George 75/71/64
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Date: Sat, 19 Jan 2002 20:47:19 -0800
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Juanita Hibbert <[log in to unmask]>
Subject: Re: News & Views From The Overnight Newswire - Jan 18th, 2002
In-Reply-To: Schaaf Angus / Meadow Creek Ranch <[log in to unmask]>'s message of
Sat, 19 Jan 2002 18:49:57 -0700
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Yeh Rob I will check again on the booster.
Thanks for the NUDGE inte right direction.
Hugs Juanita
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Date: Sun, 20 Jan 2002 07:03:05 +0200
Reply-To: Parkinson's Information Exchange Network
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From: Florence Frankel <[log in to unmask]>
Subject: Re: Essential tremors or PD?
MIME-version: 1.0
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Juanita, you hit the nail on the head as I went through the same thing of
being diagnosed having Essential Tremors, which probably was PD in the first
place. I had the Movement disorder of not having balance and no stability to
the point I couldn't walk or stand as I would have tremors, so when I went
to the doctor out here in Israel, he gave me Sinemet (trial and error)
medication not knowing if it would work or not.
So like you said, after 7 days I started to feel much better from
carbidopa/levadopa which is a combination ingredient of Sinemet. Of course I
am not 100% , but enough to get by. You are the smart one for not taking
George's other Neurologists word.
Keep in touch as I would like to know how George will get along on Sinemet.
I started taking Sinemet on
Nov. 23, 2001 until this very day and thank God I am doing OK.
Florence Frankel
[log in to unmask]
----- Original Message -----
From: "Juanita Hibbert" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 12:23 AM
Subject: Essential tremors or PD?
> Shirley, I'm no Dr. That said I will now
> voice my opinions. First my PWP was
> told iniatially essential tremors. I dissagreed for several reasons. So
> to appease me, mostly to prove me wrong the nuero put George on
> carbidopa/levadopa 25/100 1 tab 4 times a day. Nuero stated if it helps
> it's parkinsons if it doesn't help it is not PD.
> Within 7 days Georges tremors showed
> great improvement. However your 3 times a day may need to be tweaked up
> a bit.
> Just food for thought from our experience.
> Hugs Juanita CG for George 75/71/64
> PS That nuero is no longer Georges
> nuero.
>
> ----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 00:50:51 EST
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From: Rayilyn Brown <[log in to unmask]>
Subject: Re: Tremors
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Shirley, Sinemet never helped my tremors and made my dystsonia worse. I
guess some people are helped, but from what I"ve heard from anecdotal
accounts, they seem to be difficult to eliminate and DBS isn't always
successful. PD drugs didn't work for me. 60/66, [log in to unmask]
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Date: Sat, 19 Jan 2002 17:56:41 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Re: Dawn's Relief
Comments: cc: [log in to unmask]
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Content-Transfer-Encoding: quoted-printable
Clay --=20
"In PD, hallucinations are almost always visual in nature and are =
usually due to the effects of dopaminergic antiparkinson medications. =
Often they occur in low light situations, and when the individual is =
going from one state of consciousness to another, such as waking from =
sleep. Someone might "see" a relative in the bedroom upon awakening, =
but then realize the person is not really present."
This is quoted directly from the National Parkinson Foundation, Inc. =
booklet called Parkinson's Disease: Medications.
Carole Menser
-----Original Message-----
From: Clay Felts <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Saturday, January 19, 2002 5:54 AM
Subject: Dawn's Relief
=20
=20
This is a result of being sleepless in "Parkieland". I am one of =
those who is up and down all night. Does anyone have suggestions for =
sleeping longer hours.? I have worked with my doctor adjusting =
medications without finding an answer, yet. The problem is that no =
matter what I do or take, I wake up in 3 to 4 hours and can not get back =
to sleep. Any suggestions for 8 hours of sleep?
I am struck by how often in the night that I am reminded of people =
who have died that were close to me even though I don't believe in such =
a thing. I remember as a child seeing monsters in my room. I would =
hide under the covers and soon fall asleep, all warm and relaxed. As an =
adult, I no longer see monsters. I will get a flashing glimpse of =
something, or feel a presence. This only happens as I am waking up.
=85Clay=20
=20
=20
=20
=20
=20
=20
=20
Dawn=92s Relief=20
I stare at the emptiness but I=92m not bold.=20
My room in the wee hours is lonely and cold.=20
In shadows that harbor my ghosts of the night=20
Are places where spirits oft-linger from sight.=20
My mind plays its tricks so I talk to the dead=20
And often I struggle controlling my head.=20
The hours move so slowly, I pray for the sun.=20
But god just ignores =91cause his will will be done=20
When young I saw monsters while snuggled and safe.=20
At dawn in the chill now they dance without grace.=20
I am scared that the call for my death maybe now.=20
I refuse to acknowledge a beckon to bow.=20
As night turns to dawn sleep returns as a friend.=20
I dream of lost ladies, which saves me again.=20
And, the warmth of the sun fills my room with such cheer.=20
=91Tis a wonderful life and I=92m glad I=92m still here.=20
Clay Felts=20
January 2002=20
=20
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 01:12:28 -0600
Reply-To: Jorge Romero MD <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jorge Romero MD <[log in to unmask]>
Organization: Charcot's Tooth
Subject: Re: non pd strange mail
Comments: To: "Carole K. Menser" <[log in to unmask]>
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
I too received a message from Kay Missiter with an attachment.
The attachment contains a virus, according to McAfee antivirus scanning
software which scanned the message and the attachment.
This should just reinforce the notions that have been repeated over and over
again in this forum:
1) DO NOT OPEN MESSAGES WITH ATTACHMENTS, particularly from someone you
don't know. As far as I know the Parkinsn list does not pass on
attachments. Even if the message SEEMS to come from the Parkinsn list,
careful investigation will show that it does not - it uses the names of the
threads to mislead.
2) The Kay Misiter address is probably valid - just that the virus adds an
underline character "_" before the name to mislead. This is a pattern that
several viruses with trojans follow. I did write to her removing the
character, and the message went through OK, but I have not received any
response.
3) Obtain virus protection for your computer.
Jorge Romero, MD
----- Original Message -----
From: "Carole K. Menser" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Saturday, January 19, 2002 11:38 AM
Subject: Re: non pd strange mail
> We had the same experience as this.
>
> Carole
>
> -----Original Message-----
> From: vmehra <[log in to unmask]>
> To: [log in to unmask] <[log in to unmask]>
> Date: Saturday, January 19, 2002 9:33 AM
> Subject: Re: non pd strange mail
>
>
> >I have received one message from Kay Misiter which I could not open. It
> >would freeze my system and so I had to delete it. I thot I would go to
the
> >main message site online and read it later but I didnt find it there so I
> >forgot about it. Who is Kay Misiter?
> >
> >Take care
> >Lavanya
> >
> >
> >-----Original Message-----
> >From: sylvia <[log in to unmask]>
> >To: [log in to unmask] <[log in to unmask]>
> >Date: 19 January 2002 22:57
> >Subject: non pd strange mail
> >
> >
> >Has anyone received messages off line, but referencing on line
> >messages,from a Kay Misiter, [log in to unmask] I've had 2 now.
> >First with an attachment [which I did not open]; today with nothing in
> >it. The address appears to be invalid. My AV didn't pick anything up,
> >but I'm curious.
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 02:28:15 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: [log in to unmask]
Subject: Re: NEWS: Geron patent for use of embryonic germ cells in drug
screening
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Linda,
Geron did NOT end its licensing agreement with the University of
Wisconsin. Geron and WARF, with the UW, settled their differences and
entered into a NEW licensing agreement. My understanding, and hazy memory,
is that Geron gets control of three stem cell lines; that Geron gets
exclusive rights to use the stem cells lines for research and development for
the regeneration of stem cells (hESor hESC) in three areas (neural,
diabetic, and heart cells) and nonexclusive rights in three other areas (one
of which is hepatic); and that public institutions are exempted from the
application of the agreement and are allowed to do research and development
in all areas despite the rights given to Geron under the agreement.
This announcement, in regard to Geron and John Hopkins, has to do with
the use of human embryonic germ cells (hEG) for drug screening and/or
development. The first patent Geron received in this area was in 2000 and
this is the third patent Geron has for germ cells (in contrast to the many
patents Geron has for stem cell development). The researcher at John Hopkins
has isolated the hEG cells, and this patent apparently has to do with the
multiplication of these cells for use in drug development. Geron has
primarily focused on research at the UW with the regeneration of the hES
cells; this is what has been in the news and which has been the subject of
federal funding, etc. This new patent, which involves the isolation and
subsequent use of hEG cells is very new to me. I remember seeing a clip on
germ cell therapy in relation to possible (ground-breaking) treatment of
multiple sclerosis on a recent Jerry Lewis telethon, but I had no idea this
was being done by Geron and that this work could apply to PD.
I find this very interesting--and very hopeful. I have no idea what
the hEG cells are or what this article actually means in terms of the use of
these hEG cells, but it may be another bite at the apple. We have the
possiblity of developments in the use of these hEG cells as well as the more
well-known hES cells. Amazing how rapidly this entire area is developing
and how much money Geron is poring into the development of uses--and a
potential cure/s for PD and other diseases--of the stem cells and these new
germ cells. Katie
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 00:31:20 -0800
Reply-To: Paul Taylor <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Paul Taylor <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="Windows-1252"
Content-Transfer-Encoding: 7bit
Sure sounds like a virus to me. Don't open any attachments without first
checking with the sender; they may not even know their computer has sent it
out. When in doubt, delete first and ask questions later. And if your
computer runs something when you simply view the message, that's a sure sign
something's hinky.
Here's a link to McAfee's description of a similar-sounding virus I've been
receiving a lot recently:
http://vil.mcafee.com/dispVirus.asp?virus_k=99199&
I'm only guessing at the actual virus you're all getting, but the McAfee
site (and others such as www.Norton.com) lists some of the most active
suspects and tells you how to identify them by what files they've left on
your computer. It also tells you how to manually disinfect your machines.
These virus writers are like the morons who drive around smashing mailboxes
with baseball bats, only less athletic. So keep your antivirus programs up
to date. And hey... let's be careful out there.
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 05:21:37 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nancy <[log in to unmask]>
Subject: Re: weight loss
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
hi. I am in my early 40's. I have poor motility/delayed gastric emptying
in my stomach and intestines, therefore I get impacted extremely easily.
I am on a low fiber pureed diet, very small meals throughout the day and
early evening with the ever famous ensure with calcium. I try to keep
weight on. my nurse writes down everything I eat and when. I wish I
could eat regular or even pureed veggies daily. I tried it in the past,
but ended up in the hospital ER. I have atypical PD 'leaning towards
MSA'.
Here are only 2 examples of why a person looses weight. There are all
sorts of reasons so call the neuro or gastro. I have had a endoscopy,
cat scans, colonscopy, xrays, darn near everything.
Ask his neuro. and gastro about this please. I wouldn't want someone to
be classified as alzheimers or as having dementia solely on age and/or
having a neuro illness. Accepting illness is one thing, however, it
could be something that can be modified. Maybe it is dementia or
alzheimzers, don't know. Maybe it hurts when he eats? Maybe he is very
sad or depressed? Maybe he gets fatigued chewing? Is his food pureed?
does he drink Ensure? eat lots small meals or 3 larger ones ?
nancy
Schaaf Angus / Meadow Creek Ranch wrote:
>
> I dont think Parkinsons is normally associated with weight loss. My Mom has
> poor appetite and eats poorly . finally we figured out she was succumbing
> slowly to Alzheimers and had pretty much lost her sense of taste so nothing
> much tasted good for her so why eat. Since we have gone to high protein
> meals and stimulating through out the meal with constant questions about how
> she like this or that and did she remember to try her salad and on and on,
> she is improving. The questions dont bother her because she doesnt remember
> them as you go through the meal and low and behold we are getting meals into
> her quicker than ever and with the better nutrition whether she can taste it
> or not she is doing better. Not a lot but she is better.
> This may be similar to what is going on with your husband , a loss of taste
> sensation and hence no interest in eating. Rob
> ----- Original Message -----
> From: "NITA ANDRES" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Tuesday, January 01, 2002 8:17 PM
> Subject: weight loss
>
> > My husband has lost about 40 lbs in a year to a year and half. Is this
> unusual PWPs? I have read all the books ( that I know about ) and found no
> reference. I cannot get enough calories into him and he does eat well. We
> have been to a nutritionist to no avail.
> > He has no tremor at all. I have seen PWPs on TV ( M. ALi _ and he does not
> appear to be skinny. Any help out there?
> >
> > Nita Andres CG David 83
> >
> > ----------------------------------------------------------------------
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> mailto:[log in to unmask]
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>
> ----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 06:06:23 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nancy <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Olga,
see my reply on the caregivers list. sorry i saw it there and didn't
think u posted it here also.
nancy m.
Olga Rónaky wrote:
>
> Hi, Friends
>
> I strongly need your help, ASAP. I felt myselllf terrible ( dizziness, numb
> in my head, mainly aat the back and lower part of my head and in my lips,
> nose, paarallel with a strong feeeling of being "pressurized") many times,
> but I did not know what it was. A week ago I got a blood pressure measuring
> tool (?) aand every day I controlled my BP. Today evening (now it is 23:00
> aat night) I felt again very awful, and my BP was extremly low 95/61, then
> 92/42, and 89/37 and 84/36 in 10 minutes intervals. I am as white as the
> snow outside. Usually I d have a "normal" or a bit low BP, but not like
> this.
> As it is late night in Hungary now and I am not well and eeeven aa sstrong
> coffee couldn't help.plesae would anybody tell me what is it and what to do?
> I did no tkae the evening meds, I was afraid,
> I am on PK-Merz 2-1-1(amantadine1t00 mg/tabs), Rivotril 1-1-2, Mirapex 1-1-2
> 0,25 mg and Anafranil (instead of Zoloft) 1/diem , and Concor 5 (I have
> arrythmia) 1/ddiem and Ditropan 3xx1-these are the most important drugs.
>
> Thanks
>
> Olga
> PWP 49/47/40 and CG for my own
> Hungary
> [log in to unmask]
>
> ----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 08:21:47 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: nancy <[log in to unmask]>
Subject: Re: Re weight loss/candy
MIME-Version: 1.0
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
Thanks nita u made me smile.
Nutrition is not easy and definitely needs professionals to devise a
plan.
I eat a weekly Linders white chocolate candy bar. Pudding made with
ensure was made once and I stated please don't eat the pudding. I was in
my recliner and hear rummaging in the frig., took a breath and stated
'ensure pudding' hoping he could hear me. I got a thanks and something
else was chosen.
I can't have high fiber foods like nuts, veggies or fruits - low
motility digestive problems. I am experimenting this week with apricot
nectar juice. It was on the list, so I hope it works. I drink about
64-80 ounces of gatorade daily, 2-3 ensures with calcium, hot water 2-3
mugs, carnation instant breakfast with hot water, so fluids aren't an
issue. I drink throughout the day.
Don't know about the calories of the bar nor do I care. HOWEVER, I know
the important of nutrition and keep a balance with vanilla yogurt,
ensure with the calcium, and baby foods, creme soups, chicken broth ,
hormel liverwurst. fats are hard to digest and make me very fatigued, so
we balance it out with rehab/excercise and walk. I love my walks.
3 cans of ensure a day and hoping that will help many things.
I stay away from caffeine. I don't need it.
As for the teeth brushing, I use a electric tooth brush and keep my
fingers away from the on and off button that is on the handle. Also, use
mouthwash.
I have atypical Parkinson's and P.O.T.S. with lean towards MSA.
nancy m.
NITA ANDRES wrote:
>
> This is not very scientific, but it is working. Big Snickers at 500 calories a pop. He brushes his teeth well, always has. So far he has gained 10 lbs. It is almost funny after having seen a nutritionist to wind up with Snickers. Which I should have thought of in the first place.
>
> Nita, cg David 83
>
> ----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 07:22:37 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Linda J Herman <[log in to unmask]>
Subject: Re: NEWS: Geron patent for use of embryonic germ cells in drug
screening
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
Thanks Katie for clearing up information on Geron. You're correct about
their new licensing agreement with WARF. Here's some more info from their
web site - also explains difference between human embryonic stem cells
(hES) and germ cells (hEG)
SEE:
www.geron.com
Linda
-------------------------------------------------------------------------
-------
"GERON CORPORATION AND WISCONSIN ALUMNI RESEARCH FOUNDATION RESOLVE
LAWSUIT AND SIGN NEW LICENSE AGREEMENT
MENLO PARK — January 9, 2002 — Geron Corporation (Nasdaq: GERN) and the
Wisconsin Alumni Research Foundation (“WARF”) announced today that they
have resolved a federal lawsuit and have entered into a new license for
the commercialization of human embryonic stem cell (“hESC”) technology.
The new agreement supersedes the earlier license, and resolves all issues
related to the lawsuit filed by WARF against Geron in August, 2001.
In the new license, Geron holds exclusive rights to develop therapeutic
and diagnostic products from hESC-derived neural, cardiomyocyte and
pancreatic islet cells. Geron also has non-exclusive rights to develop
therapeutic and diagnostic products from hESC-derived hematopoietic,
chondrocyte, and osteoblast cells. The agreement also grants Geron
non-exclusive rights to develop research products in the following cell
types: hepatocytes, neural cells, hematopoietic cells, osteoblasts,
pancreatic islets and myocytes.
Geron and WARF have further agreed to grant research rights to existing
hESC patents and patent filings to academic and governmental researchers
without royalties or fees. WiCell Research Institute, a WARF subsidiary,
will distribute the cell lines. Third party for-profit companies may form
collaborations with Geron or obtain licenses to Geron’s intellectual
property on market terms.
“When the disagreement between us arose, both Geron and WARF said we
expected to resolve our differences and we have done so. In this new
license, Geron has the rights we need to pursue our product development
strategies, which are therapies for neurological disorders, heart disease
and diabetes – these are large markets and our top priorities,” said
Thomas B. Okarma, Ph.D., M.D., Geron’s president and chief executive
officer. “We also plan to develop therapeutic and diagnostic products
based upon other cell types for applications in arthritis, osteoporosis
and transfusion medicine, as well as research products for use in drug
discovery and development. We anticipate collaborating with other
companies to ensure that this technology is developed as broadly as
possible. WARF looks forward to a renewed partnership with Geron,” said
Carl Gulbrandsen, managing director of WARF. “We are pleased that we are
able to dismiss the lawsuit and resolve our differences on an amicable
basis. WARF has always believed that Geron has unique technology that
holds promise in bringing effective hES cell therapies to patients in
need. The new agreement will allow Geron to succeed in its development
program and also enable a large number of scientists in academia and
other companies to invest in the field. Wide public access to Wisconsin’s
stem cell lines has always been critically important to WARF and the new
agreement assures that such access will continue.”
The Wisconsin Alumni Research Foundation (“WARF”) is an independent,
non-profit foundation chartered to support research at the UW-Madison and
the designated technology transfer organization for the university. WARF
holds the patents on Professor James Thomson’s discovery that human
embryonic stem cells can be isolated and grown in culture. Additional
information about WARF is available at http://www.warf.ws.
Geron is a biopharmaceutical company focused on developing and
commercializing therapeutic and diagnostic products for applications in
oncology and regenerative medicine, and research tools for drug
discovery. Geron’s product development programs are based upon three
patented core technologies: telomerase, human embryonic stem cells and
nuclear transfer. Additional information about Geron Corporation can be
obtained at http://www.geron.com.
###
GERON ANNOUNCES GRANT OF U.S. PATENT No. 6,331,406 FOR HUMAN EMBRYONIC
GERM CELLS
MENLO PARK, CA — December 19, 2001 — Geron Corporation (Nasdaq: GERN)
announced today that the U.S. Patent Office has issued U.S. Patent No.
6,331,406, with claims directed to the use of human embryonic germ cells
in drug screening assays. The patent is licensed exclusively to Geron
from Johns Hopkins University.
Geron is the exclusive licensee of the work of Dr. John Gearhart at Johns
Hopkins that led to the successful isolation of human embryonic germ
(hEG) cells. Like human embryonic stem (hES) cells, hEG cells are
pluripotent, meaning that they are capable of developing into all cell
types in the human body. The hEG cells are now being developed at Johns
Hopkins with Geron funding for a variety of therapeutic and research
applications.
“This is the third U.S. patent to issue out of Dr. Gearhart’s work on the
hEG cells,” noted David J. Earp, J.D., Ph.D., Geron’s vice president of
intellectual property. “The two prior patents cover the hEG cells
themselves and methods of propagating them. The patent issued today is
specifically directed to use of the hEG cells for drug screening. Our
current portfolio of pluripotent stem cell intellectual property includes
more than 50 patent applications pending around the world covering many
aspects of cell growth, scale-up and differentiation into various
clinically relevant cell types.”
The research that Geron is currently funding in Dr. Gearhart’s laboratory
is focused on transplanting functional cells derived from the hEG cells
into animal models of disease in order to restore tissue function.
Several disease conditions may be amenable to treatment with cells that
are manufactured from hES or hEG cells, including Parkinson’s disease,
diabetes, spinal cord injuries, liver disease and heart disease. Geron’s
Regenerative Medicine business unit is developing such cell-based
therapies for these and other chronic diseases.
Geron’s R & D Technologies business unit is focused on producing human
cells for large scale screening of drug candidates for drug discovery as
well as toxicity and metabolism analyses. Cells such as hepatocytes,
cardiomyocytes and neural cells that Geron would manufacture from hES or
hEG cells could be produced in large, uniform lot sizes for use by
pharmaceutical companies across the entire drug discovery and development
process."
-----------------------------------------------------
"Human Embryonic Stem Cells: Source for Replacement Tissues
Stem cells generally are self–renewing primitive cells that can develop
into functional, differentiated cells. Human embryonic stem cells are
unique because they are pluripotent: that is, they can develop into all
cells and tissues in the body. There are two types of human embryonic
stem cells, also called hESCs: human embryonic stem (hES) cells, which
were derived by our collaborators from donated in vitro fertilized
blastocysts or very early-stage embryos; and human embryonic germ (hEG)
cells, which were derived from donated fetal material. Both hES and hEG
cells are capable of developing into all three cellular layers, including
the gut epithelium (endoderm); cartilage, bone, and smooth and striated
muscle (mesoderm); and neural epithelium, embryonic ganglia and
stratified squamous epithelium (ectoderm).
...We intend to use hESC technology to identify and assign function to
the genes that control human development; enable the development of
transplantation therapies by providing standard starting material for the
manufacture of cells and tissues; and facilitate pharmaceutical research
and development practices by providing cells for screening, and assigning
function to newly discovered genes. "
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 10:16:32 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Virus advice
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Since I started on Parkinson list I got at one time 7 viruses in my =
Outlook Express.Incoming mail was multiplying the messages received. I =
never experienced anything like that. My server had to delete one BAD =
mail in order for my Outlook Express to work again. They are ways to =
send viruses without attachments being open. My antivirus program =
guaranteed all 7 viruses which I was able to delete. However, without my =
server I still would not be able to use my incoming mail feature.=20
Emily
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Date: Sun, 20 Jan 2002 09:45:43 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: sylvia <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-version: 1.0
Content-type: text/plain; charset=us-ascii
Content-transfer-encoding: 7BIT
Thanks everyone. I ran another scan this am and this found a W32
[log in to unmask] Don't really understand why it didn't pick it up
before - my definitions are up to date. Anyway NAV can't repair the file
so it's gone - soemthing called 'file unknown 000.data m.com'in
win/temp. Hope it's not important. From now on I don't open anything
purporting to come from this list except on PIENO.[thanks Simon :-)]
Take care, Sylvia
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Date: Sun, 20 Jan 2002 08:24:39 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: NEWS: Revive dormant cells in PD?
Comments: To: Phil Tompkins <[log in to unmask]>
In-Reply-To: <3C491946.5236.46CB4D@localhost>
MIME-Version: 1.0
Content-type: text/plain; charset=ISO-8859-1
Content-transfer-encoding: Quoted-printable
On 19 Jan 2002, at 6:59, Phil Tompkins wrote:
> HOUSTON, Jan. 18, 2002 =96 New research from University of Houston
> scientists may lead to techniques for jump-starting the faulty
> "wiring" in damaged nerve cells, and suggests possible avenues for
> treating spinal cord injuries, Parkinson=92s disease and amyotrophic
> lateral sclerosis, or ALS, also known as Lou Gehrig=92s disease.
>
> University of Houston scientists studying how spinal nerve cells in
> chicken embryos develop and function
Thanks Phil, it's good to hear from ya! murray
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In the body of the message put: signoff parkinsn
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Date: Sun, 20 Jan 2002 08:24:37 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Re: THE SECRET LIFE OF THE BRAIN - Tuesday on PBS
Comments: To: Noma DePew <[log in to unmask]>
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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On 19 Jan 2002, at 1:54, Noma DePew wrote:
>
> Thanks very, very much Murray -- as usual you present interesting and
> beneficial information. I did find, actually -- within the Medtronic
> information, some informative material regarding Parkinson's. Also, I
> downloaded the Brain screensaver which I will use occasionally to
> alternate between my many screensavers (I'm addicted!). Bunny
Hey, I'm holdin' out to download a "BrainSaver"...
cheers ....... murray
[log in to unmask]
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Date: Sun, 20 Jan 2002 08:24:48 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Pneumonia Shot? WAS: Re: News & Views ...
Comments: To: Emily and Julian Brinac <[log in to unmask]>
In-Reply-To: <003801c1a100$5ee19ac0$1bf9d1d8@p5f3m3>
MIME-Version: 1.0
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On 19 Jan 2002, at 10:45, Emily and Julian Brinac wrote:
>
> Murray,
> We got a pneumonia shots 4 years ago. Our family doctor said that it is
> once in lifetime shot. I do not know if booster shot would be
> needed.(not, according to our doctor). Since many PD patients are
> afflicted with pneumonia, I wonder would it not such once in life time
> shot prevent all Parkinsonians to be preveneted from pneumonia. Please
> share your thoughts. Emily
>
Hi Emily and Julian,
I'm just a red necked news clippin' mechanic with Parkinson's...
I've had pneumonia, years ago, and I can assure you it's sumpthin'
to avoid.... bu I know nada about pneumonia shots... perhaps your
medical professional or one of several on this list might offer you a
medical opinion...
cheers ........ murray
* * *
[log in to unmask]
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Date: Sun, 20 Jan 2002 08:24:51 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: Welcome back! WAS: Re: News & Views ...
Comments: To: nancy degrazia <[log in to unmask]>
In-Reply-To: <[log in to unmask]>
MIME-Version: 1.0
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On 19 Jan 2002, at 10:12, nancy degrazia wrote:
> Murray - I just rejoined the PIEN after a 15 month absence. I left
> because I was going far from my PC for a month or so, but did not rejoin
> because of my memories of the frequent bickering.
>
> Your "Overnight News and Views" is a wonderful addition. Its a great
> service and makes me very glad to be back. Thank you
>
> Nancy deGrazia 64/58 (people don't seem to sign off this way anymore
> but I am an old fashioned girl.)
Welcome back Nancy! And... thankyou for your kind support...
We need all the sweet-talkin' ol' fashioned girls we can find!
cheers ........ murray
* * *
[log in to unmask]
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Date: Sun, 20 Jan 2002 11:40:38 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Wellbutrin
MIME-Version: 1.0
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In a message dated 1/19/02 10:17:06 PM, [log in to unmask] writes:
<< Link to St. Louis Parkinson Newsletter ? >>
Please try one of these:
Click here: <A
HREF="http://www.geocities.com/parkinson_disease_saint_louis/2001_Newsletter_2
_Page3.html">2001_Newsletter_2_Page3</A>
Or:
http://www.geocities.com/parkinson_disease_saint_louis/2001_Newsletter_2_Page3
.html
ed g
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Date: Sun, 20 Jan 2002 11:49:39 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Ed Grskovich <[log in to unmask]>
Subject: Re: Wellbutrin
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
In a message dated 1/19/02 10:17:06 PM, [log in to unmask] writes:
<< St. L. Newsletter ? >>
Sorry, I forgot to enclose the general link to the Newsletter in my previous
e-mail:
Click here: <A HREF="http://www.geocities.com/parkinson_disease_saint_louis/">
index</A> Or Go To:
http://www.geocities.com/parkinson_disease_saint_louis/
ed g
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 09:14:47 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
That is exactly the same thing that happened here. Norton detected the
Bantrans virus in the attachment and wouldn't let me open the e-mail . . .
so I deleted it all with no ill effects. Don't have a clue who Kay Missiter
is though.
Carole
-----Original Message-----
From: sylvia <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, January 20, 2002 7:46 AM
Subject: Re: non pd strange mail
Thanks everyone. I ran another scan this am and this found a W32
[log in to unmask] Don't really understand why it didn't pick it up
before - my definitions are up to date. Anyway NAV can't repair the file
so it's gone - soemthing called 'file unknown 000.data m.com'in
win/temp. Hope it's not important. From now on I don't open anything
purporting to come from this list except on PIENO.[thanks Simon :-)]
Take care, Sylvia
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 13:30:42 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Fw: Pneumonia Shot? WAS: Re: News & Views ...
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
----- Original Message -----
From: "Emily and Julian Brinac" <[log in to unmask]>
To: "Murray Charters" <[log in to unmask]>
Sent: Sunday, January 20, 2002 1:26 PM
Subject: Re: Pneumonia Shot? WAS: Re: News & Views ...
> Murray,
> Even if you do not know anything about pneumonia life time shot, you
may
> want to get one after talking to your doctor. If it works it may save
> your life.
> Emily
> ----- Original Message -----
> From: "Murray Charters" <[log in to unmask]>
> To: "Emily and Julian Brinac" <[log in to unmask]>
> Cc: "Parkinson's Information Exchange Network"
> <[log in to unmask]>
> Sent: Sunday, January 20, 2002 11:24 AM
> Subject: Pneumonia Shot? WAS: Re: News & Views ...
>
>
> > On 19 Jan 2002, at 10:45, Emily and Julian Brinac wrote:
> > >
> > > Murray,
> > > We got a pneumonia shots 4 years ago. Our family doctor said that
it
> is
> > > once in lifetime shot. I do not know if booster shot would be
> > > needed.(not, according to our doctor). Since many PD patients are
> > > afflicted with pneumonia, I wonder would it not such once in life
> time
> > > shot prevent all Parkinsonians to be preveneted from pneumonia.
> Please
> > > share your thoughts. Emily
> > >
> >
> > Hi Emily and Julian,
> >
> > I'm just a red necked news clippin' mechanic with Parkinson's...
> > I've had pneumonia, years ago, and I can assure you it's sumpthin'
> > to avoid.... bu I know nada about pneumonia shots... perhaps your
> > medical professional or one of several on this list might offer you
a
> > medical opinion...
> >
> > cheers ........ murray
> >
> > * * *
> > [log in to unmask]
>
----------------------------------------------------------------------
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In the body of the message put: signoff parkinsn
=========================================================================
Date: Sun, 20 Jan 2002 23:57:22 +0530
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: vmehra <[log in to unmask]>
Subject: Re: non pd strange mail
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Well my inbox didnt let me open the mail either so no harm done but it would
flash the "illegal operation" sign and shut down the outlook express
completely.
Viruses Viruses even here!
Take care
Lavanya
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 13:40:13 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
TO: ALL
Would any Parkinson affected people have sensation of burning bottom of =
the feet? This sensation coincided with my husband's PD. I did hear =
about it in situations not related to PD. I wander if this has to do =
with damaged nerve endings or is something else... (He is not on any PD =
medication as yet. I am adding this because of possibility of side =
effects from medication. No medication.Period) Would you share your =
opinion, please.
Emily
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 13:43:34 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: OLGA
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Did anyone hear from Olga, perhaps, directly since last nights emergency =
request advice?
Emily
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 10:49:05 -0800
Reply-To: [log in to unmask]
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Joan Hartman <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
Content-Type: text/plain; charset=US-ASCII
Olga...where are you this morning....and more
importantly, HOW ARE YOU....I hope you did get to a doctor/hospital and that you
were treated and are doing better............please write in and let us know how
you are as soon as you read this email...thx...Joan Hartman
--- Joan Hartman
--- [log in to unmask]
--- EarthLink: It's your Internet.
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Date: Sun, 20 Jan 2002 14:12:26 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Donald F. McKinley" <[log in to unmask]>
Subject: Re: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
----- Original Message -----=20
From: "Emily and Julian Brinac" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 10:40 AM
Subject: Burning feet advise
> TO: ALL
>=20
> Would any Parkinson affected people have sensation of burning bottom =
of the feet? This sensation coincided with my husband's PD. I did hear =
about it in situations not related to PD. I wander if this has to do =
with damaged nerve endings or is something else... (He is not on any PD =
medication as yet. I am adding this because of possibility of side =
effects from medication. No medication.Period) Would you share your =
opinion, please.
> Emily
> EMILY U MAY NOT READ MANY OF MY POSTS I SAID MANY TIMES FROM MY TOES =
TO ABOVE MY KNEES THEY FEEL AS THEY ARE A SLEEP FOR YEARS MY NERO SYS =
CAN HAPPEN SO I LIVE WITH IT. AN SO MUCH MORE PAIN THE SAID PD DOES =
NOT CAUSE ANY PAIN WELL SAY WHAT THE WANT I DESGREE WITH THEM AFTER ALL =
WHAT DOOES A 77 OLD GOOD LOOKING GUY WHO HAS PD FOR ALMOST NOW 31 YEARS =
KNOW. I.Y.Q =
----------------------------------------------------------------------
> To sign-off Parkinsn send a message to: =
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>=20
>=20
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Date: Sun, 20 Jan 2002 11:14:08 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Essential tremors or PD?
In-Reply-To: Florence Frankel <[log in to unmask]>'s message of Sun, 20 Jan
2002 07:03:05 +0200
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Florence, George too had balance problems and what I call parkinson's
shuffle. The shuffle was my main criteria
when arguing with the original nuero.
George is now on 2 25/100 senimet
5 times a day. And is doing fairly well
with both balance and tremors. He has been on this dose about 2 yrs.
Good luck. Juanita CG for George 75/71/64
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 13:44:02 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Donald Diswinka <[log in to unmask]>
Subject: Re: NEWS: Revive dormant cells in PD?
In-Reply-To: <3C4A7EC7.166.3F1A9A9@localhost>
Content-Type: text/plain; charset=WINDOWS-1252; format=flowed
Mime-Version: 1.0 (Apple Message framework v480)
Content-Transfer-Encoding: quoted-printable
>> HOUSTON, Jan. 18, 2002 =96 New research from University of Houston
>> scientists may lead to techniques for jump-starting the faulty
>> "wiring" in damaged nerve cells, and suggests possible avenues for
>> treating spinal cord injuries, Parkinson=92s disease
>>
I am sort of Really, Really, confused with the above statement=20
especially for Parkinson's disease.
A similiar statement as above was made in University of Illinois that I=20=
visited for a Parkinsons Seminar last summer that theorized that the=20
cells in the substantia niagra actually only needed rewiring to start=20
working.
I have been told and have read that 50%- 80% of cells in the substantia=20=
niagra were supposed to be dead ( not damaged) before people would show=20=
the symptoms of Parkinson's. Yes, there apparently will be some cells=20=
left in that part of the brain that will be alive and functioning. I was=20=
further advised that when the brain cells in the substantia niagra die=20=
they are disposed of by the body quite naturally. This statement has=20
been made by Nuerologists who have autopsied people who have died=20
from Parkinson's, and from autopsied people who had Parkinsons and had=20=
died prematurely through accidents.
While I can see the purpose rewiring in parts of the body where cells=20=
are damaged only- ie spinal cord injury etc., I am sort of really=20
confused how it is going to help Parkinsons' per ce.
If 50%-80% of cells are dead and gone what are we gonna wire up?
One begins to wonder if Parkinson Disease is just thrown in to get=20
research funding easier and in the total long run what benefit will it=20=
be to Parkinsons' at all? I am not against anyone getting research=20
funding for any disease or disability. I am just really wondering if=20
this specific type research is really going to benefit Parkinsons or=20
has Parkinsons been used to benefit this research, and will it just=20
prevent the limited research funding from being available to be=20
allocated for other types of Parkinsons research? (ie stem cell, or=20
other types of cell replacement, etc.)
Don
PD+ 53/4
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 11:46:47 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Jan. 19th, 2002
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
Content-transfer-encoding: 7BIT
Good Morning All,
Here's the overnight "News & Views".... from the on-line media....
Cloning is comin' out our ears around the globe....
Cheers ..... murray
* * *
UK: Human Cloning - An Explanation
http://www.guardian.co.uk/theissues/article/0,6512,606430,00.html
UK: Judges close cloning loophole
http://www.guardian.co.uk/uk_news/story/0,3604,635983,00.html
NEWS: Ugandan Scientists Can Clone Humans
http://allafrica.com/stories/200201190041.html
NEWS: China's first cloned calf born
http://www1.chinadaily.com.cn/news/cn/2002-01-19/52862.html
PRESS RELEASE: CAMR Statement on Nat'l Academy of Sciences
Human Cloning Report
http://www.usnewswire.com/topnews/temp/0118-122.html
ARTICLE: Science Academy Supports Cloning to Treat Disease
http://dailynews.yahoo.com/h/nyt/20020119/tc/science_academy_supports_cloning_to_treat_disease_1.html
* * *
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 11:49:45 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: "Carole K. Menser" <[log in to unmask]>
Subject: Re: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Emily, Don and all --
We agree. There is pain with PD. PWP here has experienced the
numbness/tingling sensations in arms and feet where they feel like they are
asleep. Numerous strange sensations. Also back pain. And he says the
stiffness is very uncomfortable.
Carole
spouse of PWP Ted (54/46/40)
-----Original Message-----
From: Donald F. McKinley <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Sunday, January 20, 2002 11:06 AM
Subject: Re: Burning feet advise
----- Original Message -----
From: "Emily and Julian Brinac" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 10:40 AM
Subject: Burning feet advise
> TO: ALL
>
> Would any Parkinson affected people have sensation of burning bottom of
the feet? This sensation coincided with my husband's PD. I did hear about it
in situations not related to PD. I wander if this has to do with damaged
nerve endings or is something else... (He is not on any PD medication as
yet. I am adding this because of possibility of side effects from
medication. No medication.Period) Would you share your opinion, please.
> Emily
> EMILY U MAY NOT READ MANY OF MY POSTS I SAID MANY TIMES FROM MY TOES TO
ABOVE MY KNEES THEY FEEL AS THEY ARE A SLEEP FOR YEARS MY NERO SYS CAN
HAPPEN SO I LIVE WITH IT. AN SO MUCH MORE PAIN THE SAID PD DOES NOT
CAUSE ANY PAIN WELL SAY WHAT THE WANT I DESGREE WITH THEM AFTER ALL WHAT
DOOES A 77 OLD GOOD LOOKING GUY WHO HAS PD FOR ALMOST NOW 31 YEARS KNOW.
I.Y.Q ---------------------------------------------------------------------
-
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn
>
>
----------------------------------------------------------------------
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----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 14:59:41 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
Content-Transfer-Encoding: 7bit
Donald,
In my description of the problem is burning feet, as they would be on
fire, rather than numbness as this might be in your situation. Problem
may look similar, but it could be something not related to PD at all.
Thanks for your input.
Emily
----- Original Message -----
From: "Donald F. McKinley" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 5:12 PM
Subject: Re: Burning feet advise
> ----- Original Message -----
> From: "Emily and Julian Brinac" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Sunday, January 20, 2002 10:40 AM
> Subject: Burning feet advise
>
>
> > TO: ALL
> >
> > Would any Parkinson affected people have sensation of burning bottom
of the feet? This sensation coincided with my husband's PD. I did hear
about it in situations not related to PD. I wander if this has to do
with damaged nerve endings or is something else... (He is not on any PD
medication as yet. I am adding this because of possibility of side
effects from medication. No medication.Period) Would you share your
opinion, please.
> > Emily
> > EMILY U MAY NOT READ MANY OF MY POSTS I SAID MANY TIMES FROM MY TOES
TO ABOVE MY KNEES THEY FEEL AS THEY ARE A SLEEP FOR YEARS MY NERO SYS
CAN HAPPEN SO I LIVE WITH IT. AN SO MUCH MORE PAIN THE SAID PD DOES
NOT CAUSE ANY PAIN WELL SAY WHAT THE WANT I DESGREE WITH THEM AFTER ALL
WHAT DOOES A 77 OLD GOOD LOOKING GUY WHO HAS PD FOR ALMOST NOW 31 YEARS
KNOW.
I.Y.Q -----------------------------------------------------------------
-----
> > To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> > In the body of the message put: signoff parkinsn
> >
> >
>
> ----------------------------------------------------------------------
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>
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Date: Sun, 20 Jan 2002 21:24:25 +0100
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: =?iso-8859-1?Q?Olga_R=F3naky?= <[log in to unmask]>
Subject: Re: Please ASAP advice
Comments: To: CARELIST <[log in to unmask]>
Comments: cc: Camilla Flintermann <[log in to unmask]>
MIME-version: 1.0
Content-type: text/plain; charset=iso-8859-1
Content-transfer-encoding: 7BIT
Hi, dear friends
Thanks for EVERYBODY for caring me. Sometimes I am up, sometimes down,
called my doctor, sshe told me she would come to see me on Monday late
afternoon... Till she is coming I do not take Concor 5 (anti-arrytghmic
med), and if I feel worse, call her again - and nothing. That's what it is.
MY BP still varies betweeen the low and the lower - and the lowest. I
cannot make mistake in measuring as this is a digital, atuomatic equipment.
I fall asleep aafter the dizziness etc. about in every two hours so sudfden
, I cannot keep opened my eyes, they are so heavy, and that strong pressure
in the rear of my neck...!
I feel extremly fatigue, too. Sometimes I think I will faint (syncope?),
fortunatley it didn't happen to me till now. I am afraid that my migrain
would come again, I feel so. This migrain is really terrible, once - this
summer - I was blind for my right eye for almost 8 hours during the migrain
attack and only repeated shots helped a little.
It is very curious: I have to go to bed because I feel so fatigue and dizzy
and that I would collapse if not going to bed, but after laying down it
becomes worse. Posture changing modifies my BP a little, but even, when BP
goes near the normal values and I am up and do my work, everything begins
again. It seems that it is not good for me either standing or sssitting or
laying down.
I guess I have to learn to fly...
Tomorrow I write you about my doc's visit.
Thank you, Everybody, again for all your kind words and helpfulness. Your
are a Great Team.
God bless you,
Olga
P.S. I am not alone now because my younger daughter came home just a few
minutes ago to "keep her eyes on Mom" - thanks God!
----------------------------------------------------------------------
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=========================================================================
Date: Sun, 20 Jan 2002 14:47:43 -0600
Reply-To: Jorge Romero MD <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jorge Romero MD <[log in to unmask]>
Organization: Charcot's Tooth
Subject: Re: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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The SYMPTOM of burning feet is most often the result of a peripheral
neuropathy. It is not associated with PD.
Peripheral neuropathy is a disorder of nerves which causes the nerve fibers
to malfunction or degenerate. It usually affects the longer nerves first,
hence the symptoms occur in the feet first.
Peripheral neuropathy can have a number of causes, the most common of which
seem to be diabetes, alcoholism, vitamin deficiencies, immune disorders,
drug side effects, although there are others as well. Some causes are
treatable and others are not. In some cases, treatment of the underlying
disease can improve the symptoms of neuropathy, and sometimes even reverse
the process. Other times, the damage is permanent.
The SYMPTOM itself, the burning feet, often responds partially to drugs like
Neurontin (gabapentin), amitriptyline, carbamazepine, and others. These
drugs do not cure the neuropathy, they merely alleviate the symptom of
burning feet.
Because peripheral neuropathy can be a manifestation of other more
generalized systemic medical diseases, it should be worked up as a separate
problem. Your neurologist should be able to advise you on this, since it is
a very common problem in neurological practice.
Jorge A Romero, MD
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Date: Sun, 20 Jan 2002 15:12:34 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
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Olga - I am not a doctor, but I've experienced the same symptoms on
occasion. My doctor found it to be a displaced cervical vertebrae. You
should go at once to see a doctor. Jo Ann
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 15:02:37 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Wellbutrin/Depression/Claustrophia
MIME-Version: 1.0
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Ed and Emily - I have personal knowledge about Wellbutrin. I've been
taking it for almost a year now. I started on Prozac, but wanted to
commit suicide. Then I went to Zoloft and was so nervous, my hands shook
(I'm not the one with PD)
I tried Selzane and it nauseated me so. Finally I went to Wellbutrin and
it was truly a miracle. Besides, the side effect was wonderful. Best
wishes. Jo Ann
----------------------------------------------------------------------
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Date: Sun, 20 Jan 2002 17:28:02 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Emily and Julian Brinac <[log in to unmask]>
Subject: Re: Wellbutrin/Depression/Claustrophia
MIME-Version: 1.0
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This is a very interesting answer on Wellbutrin. That you are not a PD
patient, your experience with the drug may differ from Parkinson people,
especially, if the drug is taken with Parkinson drugs; or particular
Parkinson drug. I am taking a note of the drugs mentioned through the
list and I am thankful for the discussion. Will certainly bring this up
shortly for a discussion with the family doctor before we are able to
see neurologist.
Emily
----- Original Message -----
From: "Jo Ann Coen" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 20, 2002 4:02 PM
Subject: Re: Wellbutrin/Depression/Claustrophia
> Ed and Emily - I have personal knowledge about Wellbutrin. I've been
> taking it for almost a year now. I started on Prozac, but wanted to
> commit suicide. Then I went to Zoloft and was so nervous, my hands
shook
> (I'm not the one with PD)
> I tried Selzane and it nauseated me so. Finally I went to Wellbutrin
and
> it was truly a miracle. Besides, the side effect was wonderful. Best
> wishes. Jo Ann
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
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Date: Sun, 20 Jan 2002 16:04:45 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Juanita Hibbert <[log in to unmask]>
Subject: Re: Please ASAP advice
In-Reply-To: =?ISO-8859-1?Q?Olga_R=F3naky?= <[log in to unmask]>'s message of
Sun, 20 Jan 2002 21:24:25 +0100
Content-Type: Text/Plain; Charset=US-ASCII
Content-Transfer-Encoding: 7Bit
MIME-Version: 1.0 (WebTV)
Olga I am so relieved that you are now not alone. Do keep us posted. We
are all VERY concerned about you.
Hugs and Prayers Juanita CG for George
75/71/64
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Date: Sun, 20 Jan 2002 21:54:50 -0800
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Murray Charters <[log in to unmask]>
Subject: News & Views From The Overnight Newswire - Jan. 20th, 2002
MIME-Version: 1.0
Content-type: text/plain; charset=US-ASCII
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Good Morning All,
Here's the overnight "News & Views".... from the on-line media....
We just might get a "Fountain of Youth" yet!
For now there's research...
Cheers ..... murray
* * *
CHINA: China's First Cloned Calf Dies Soon After Birth
http://dailynews.yahoo.com/h/nm/20020119/sc/china_cloning_dc_3.html
The National Academies of Science
Scientific and Medical Aspects of Human Cloning
http://www4.nationalacademies.org/pd/cosepup.nsf/web/human_cloning?OpenDocument
United States Should Ban Human Reproductive Cloning
Jan. 18 -- The United States should ban human reproductive
cloning aimed at creating a child, says a new National Academies'
report that considers only the scientific and medical aspects
of this issue, plus ethical issues that pertain to human-subjects
research.
Links to:
Press Release
Full Report
Glossary of Cloning Terms
Introductory Remarks by Bruce Alberts
Opening Statements
Listen to the News Conference (requires RealPlayer 8 Basic)
http://nationalacademies.org/
Background Studies:
Conceiving a Clone - traces the development of cloning,
looks at cloning techniques, and profiles scientists
who are cloning pioneers. From ThinkQuest.
http://library.thinkquest.org/24355/?tqskip1=1&tqtime=0121
Cloning Humans:
Can It Really Be Done? - Q&A from the BBC, March 2001
http://news.bbc.co.uk/hi/english/sci/tech/newsid_1211000/1211136.stm
Q&A: Human cloning - from the BBC, August 2001
http://news.bbc.co.uk/hi/english/sci/tech/newsid_1480000/1480180.stm
OPINION: WISCONSIN: Bill against stem cell research
jumps ahead of science
http://www.captimes.com/opinion/column/guest/9876.php
VIRGINIA: Center Shifts Stem Cell Approach
http://www.washingtonpost.com/wp-dyn/articles/A231-2002Jan18.html
ARTICLE: UCSF scientists find stem cells that control life span
http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2002/01/18/MN190991.DTL
* * *
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=========================================================================
Date: Mon, 21 Jan 2002 09:18:05 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
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In a message dated 1/21/2002 4:42:47 AM, [log in to unmask] writes:
<< I am not alone now because my younger daughter came home just a few
minutes ago to "keep her eyes on Mom" - thanks God! >>
Olga,
So glad your daughter is there. I hope your doctor will help.
Best wishes,
Kathleen
----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 09:25:49 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: [log in to unmask]
Subject: Re: Burning feet advise
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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Hi -
I've had "burning" feet for the past 5 or 6 years. It is most noticeable at
night when I'm in bed. Sometimes it even wakes me up. The only relief from
it is to arrange the sheet and blanket so the feet are not covered.
The doctors have tried a few medications; to no avail. They aren't sure if
it's neurological or circulatory.
I've learned to put up with it.
Jim
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Date: Mon, 21 Jan 2002 10:23:39 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: plmaddux <[log in to unmask]>
Subject: Re: Dawn's Relief
MIME-Version: 1.0
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Clay.
I may be making a big mistake, but my Pharmacist assures me that if I =
take 1 or 2 mgs of Ativan at AT NIGHT ONLY, then I should not be =
digging myself into a hole. It is an addictive drug. But I habr talked =
to two different Pharmacists and the both told me the same thing, that =
it is when a person starts popping tranquilizers during the daytime for =
any little stressful situation, is when they have a problem.
I am taking Mirapex, only 1.5 mg per day which is considered a =
maintenance dose, but it still causes me insomnia. My MDS has told me =
that Ativan is OK to use on occasion, but I have not talked to him about =
using it every night. As you know Ativan is a powerful muscle relaxant =
and sleeping aid. it is the only thing that makes the painfull dystonia =
in my toes go away.
Lanier Maddux Chattanooga Tn
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Date: Mon, 21 Jan 2002 09:26:59 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: Re: Please ASAP advice
MIME-Version: 1.0
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Olga, Here I am in Houston, Texas and there you are in Hungary, and I
have a worried about you more than you know.
As you know, I'm not the one with PD, but I've accumulated many friends
on this list while trying to learn more to be able to understand my
love's progress. Tell your daughter that I said, "Thank God she's there
for you". Best wishes, Jo Ann.
----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 09:35:40 -0600
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Jo Ann Coen <[log in to unmask]>
Subject: How to subscribe
MIME-Version: 1.0
Content-Type: text/plain
Content-Transfer-Encoding: 7bit
As most of you know, I am now a caregiver working through an agency. One
of the cg's is caring for a PWP, and when I told her about the
educational benefits of the list, she got very excited and asked to be
put on it. She is young and needs to learn. BUT, wouldn't you now it?
I've lost my instructions. So would someone please send her the
instructions? Her e address is: [log in to unmask] Sure
appreciate it. Jo Ann from Houston
----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 22:43:41 +0530
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: vmehra <[log in to unmask]>
Subject: Pain in feet
MIME-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
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I don't know if this will help but my Dad had severe leg ache when he got
his PD and homeopathy cured the pain but couldn't do much else.
Take care
Lavanya
----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 12:46:34 -0500
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: nancymullen <[log in to unmask]>
Subject: Re: Please ASAP advice/olga Postural BP changes
MIME-Version: 1.0
Content-Type: text/plain; charset=iso-8859-1
Content-Transfer-Encoding: 8bit
Hi olga.
I see u may have gone to the NDRF site. many with ur symptoms there.
When ur daughter is therewith u and the doctor. Maybe they could take ur
BP and HR laying, sitting, and standing. Some like the BP upon standing
and some docs like it when u stand for 1, 0r 2 mins.
Ask about a sports drink like gatorade or something similair.
nancy m.
Olga Rónaky wrote:
>
> Hi, dear friends
>
> Thanks for EVERYBODY for caring me. Sometimes I am up, sometimes down,
> called my doctor, sshe told me she would come to see me on Monday late
> afternoon... Till she is coming I do not take Concor 5 (anti-arrytghmic
> med), and if I feel worse, call her again - and nothing. That's what it is.
> MY BP still varies betweeen the low and the lower - and the lowest. I
> cannot make mistake in measuring as this is a digital, atuomatic equipment.
> I fall asleep aafter the dizziness etc. about in every two hours so sudfden
> , I cannot keep opened my eyes, they are so heavy, and that strong pressure
> in the rear of my neck...!
>
> I feel extremly fatigue, too. Sometimes I think I will faint (syncope?),
> fortunatley it didn't happen to me till now. I am afraid that my migrain
> would come again, I feel so. This migrain is really terrible, once - this
> summer - I was blind for my right eye for almost 8 hours during the migrain
> attack and only repeated shots helped a little.
>
> It is very curious: I have to go to bed because I feel so fatigue and dizzy
> and that I would collapse if not going to bed, but after laying down it
> becomes worse. Posture changing modifies my BP a little, but even, when BP
> goes near the normal values and I am up and do my work, everything begins
> again. It seems that it is not good for me either standing or sssitting or
> laying down.
>
> I guess I have to learn to fly...
>
> Tomorrow I write you about my doc's visit.
> Thank you, Everybody, again for all your kind words and helpfulness. Your
> are a Great Team.
>
> God bless you,
>
> Olga
>
> P.S. I am not alone now because my younger daughter came home just a few
> minutes ago to "keep her eyes on Mom" - thanks God!
>
> ----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 13:10:43 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Kathleen Cochran <[log in to unmask]>
Subject: Re: How to subscribe
Comments: To: [log in to unmask]
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 1/21/2002 10:51:07 AM, [log in to unmask] writes:
<< As most of you know, I am now a caregiver working through an agency. One
of the cg's is caring for a PWP, and when I told her about the
educational benefits of the list, she got very excited and asked to be
put on it. She is young and needs to learn. BUT, wouldn't you now it?
I've lost my instructions. So would someone please send her the
instructions? Her e address is: [log in to unmask] Sure
appreciate it. Jo Ann from Houston >>
Here is a URL for the listserv. This page tells you how to subscribe.
http://parkinsn.coles.org.uk/parkinsn.htm
Another page has a good description of the listserv. Here's the URL for that
page:
http://www.fortunecity.com/meltingpot/farley/817/alistsrv.html
Regards,
Kathleen
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Date: Mon, 21 Jan 2002 18:19:22 +0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Shirley Alt <[log in to unmask]>
Subject: Ativan
I have been on ativan for several years 1mg for sleep.
Also been off it several months at a time then back on.
So I feel I have proven it not addictive. I have a
question, I was dx'd with pd after acouple minutes of
the neuro looking at my left hand. Stated I had pd
because my left hand shook. put me on sinemet 25/100
tid & told to come back in 3months. The longer I take
Senemet the more I shake. Anyone else done this? I
would like a second opinion. Thanks everyone
Florence: Thanks for your reply. No I don;t shake at
rest.
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Date: Mon, 21 Jan 2002 20:17:11 +0200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Florence Frankel <[log in to unmask]>
Subject: Re: How to subscribe
MIME-version: 1.0
Content-type: text/plain; charset=Windows-1252
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Jo Ann, I would write to or click on Caregivers are Really Essential (Care);
also Parkinsons Information Exchange Network which will be two Parkinsons
support group, one for the caregiver and the one for the recipients.
Let me know if I gave you the right information.
Florence Frankel
[log in to unmask]
----- Original Message -----
From: "Jo Ann Coen" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, January 21, 2002 5:35 PM
Subject: How to subscribe
> As most of you know, I am now a caregiver working through an agency. One
> of the cg's is caring for a PWP, and when I told her about the
> educational benefits of the list, she got very excited and asked to be
> put on it. She is young and needs to learn. BUT, wouldn't you now it?
> I've lost my instructions. So would someone please send her the
> instructions? Her e address is: [log in to unmask] Sure
> appreciate it. Jo Ann from Houston
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
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Date: Mon, 21 Jan 2002 18:32:15 +0000
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Shirley Alt <[log in to unmask]>
Subject: ativan
I have taken ativan 1mg @ nite for sleep for years &
have had no problems. Wake up refreshed with no drug
effect in a.m. I have been able to be off it for months
at a time & feel no craving. The MD who prescribed it
stated it was not addictive & I feel I have proven that
to be so. The neuro that dianoised pd 3 months ago did
so becaused my left hand shook. Ihad been dx'd in 97
with essential tremors. I was started on sinemet & the
more sinemet I take The more I shake. Anyone have this
problem? I also tried Mirapex which make me so sick and
then compton with sinemet & felt so strange. I was
afraid to drive. This was my first letter but I thought
I lost it when the internet loged me off I explained my
sitution a little more in depth in this letter. Hope I
havn't written to much. Shirley Alt
----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 13:53:12 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: THE SECRET LIFE OF THE BRAIN - Tuesday on PBS
MIME-Version: 1.0
Content-Type: text/plain; charset="US-ASCII"
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In a message dated 1/21/2002 1:29:09 AM Pacific Standard Time,
[log in to unmask] writes:
>
> Hey, I'm holdin' out to download a "BrainSaver"...
>
> cheers ....... murray
> [log in to unmask]
>
>
Indeed! Me too! If you discover a BrainSaver, please let me know, too!
Bunny
Art is long, life short; judgment difficult, opportunity transient."
- Goethe
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Date: Mon, 21 Jan 2002 13:57:18 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Noma DePew <[log in to unmask]>
Subject: Re: Burning feet advise
MIME-Version: 1.0
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In a message dated 1/21/2002 1:33:18 AM Pacific Standard Time,
[log in to unmask] writes:
> SAID PD DOES NOT CAUSE ANY PAIN WELL SAY WHAT THE WANT I DESGREE WITH THEM
> AFTER ALL WHAT DOOES A 77 OLD GOOD LOOKING GUY WHO HAS PD FOR ALMOST NOW 31
> YEARS KNOW. I.Y.Q
> ----------------------------------------------------------------------
Well, Don -- I would say after 31 years that you know more than most of us!!
I agree with anyone who has experienced the pain and numbness (I think it is
called "dystonia" that it is a miserable symptom!
Bunny
"Art is long, life short; judgment difficult, opportunity transient."
- Goethe
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Date: Mon, 21 Jan 2002 21:41:53 +0200
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Florence Frankel <[log in to unmask]>
Subject: Re: ativan
MIME-version: 1.0
Content-type: text/plain; charset=Windows-1252
Content-transfer-encoding: 7BIT
Hi Shirley:
Just want to tell you that when I was diagnosed with Essential Tremors, they
gave me nothing.As I told you at rest I did not tremor which proves that I
do have Essential Tremors. But because I did not have balance or stability,
this when I was given Sinemet by a Neurologist out here in Israel. The fact
that
I am responding to this medication is when I was told I have Parkinson
Disease. Now that I am still
on Sinemet, I am feeling much better, but from what I understand, some
people do well with
Sinemet and others do not do well on Sinemet which is you. Guess I lucked
out with Sinemet.
Keep in touch,
Florence Frankel
[log in to unmask]
----- Original Message -----
From: "Shirley Alt" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, January 21, 2002 8:32 PM
Subject: ativan
> I have taken ativan 1mg @ nite for sleep for years &
> have had no problems. Wake up refreshed with no drug
> effect in a.m. I have been able to be off it for months
> at a time & feel no craving. The MD who prescribed it
> stated it was not addictive & I feel I have proven that
> to be so. The neuro that dianoised pd 3 months ago did
> so becaused my left hand shook. Ihad been dx'd in 97
> with essential tremors. I was started on sinemet & the
> more sinemet I take The more I shake. Anyone have this
> problem? I also tried Mirapex which make me so sick and
> then compton with sinemet & felt so strange. I was
> afraid to drive. This was my first letter but I thought
> I lost it when the internet loged me off I explained my
> sitution a little more in depth in this letter. Hope I
> havn't written to much. Shirley Alt
>
> ----------------------------------------------------------------------
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Date: Mon, 21 Jan 2002 15:14:48 EST
Reply-To: Parkinson's Information Exchange Network
<[log in to unmask]>
Sender: Parkinson's Information Exchange Network
<[log in to unmask]>
From: Dolores Buente <[log in to unmask]>
Subject: Re: Dawn's Relief
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Don't want to sound like I am an expert...I'm not, but, I was wondering if
you might switch from Mirapex to Requip as a help in your sleeping problem.
I'm taking Requip now and it has helped me to sleep better and also feel more
relaxed. I must add though, I also feel a little sleepy (dizzy) through the
day. so far, it is not a problem and I think it might go away after I am
more accustomed to it.
If Requip works like this for you, you may not need to take sedatives.
Dee
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Date: Mon, 21 Jan 2002 15:48:26 -0500
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: MyFirstname Mylastname <[log in to unmask]>
Subject: sign off parkinsn
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sign off parkinsn
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Date: Mon, 21 Jan 2002 14:59:47 -0600
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Jack Savely <[log in to unmask]>
Subject: Re: sign off parkinsn
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Note the MailTo at the bottom of the post......to sign off
At 15:48 01/21/2002 -0500, you wrote:
>sign off parkinsn
>
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Date: Mon, 21 Jan 2002 13:48:34 -0800
Reply-To: "Carole K. Menser" <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: "Carole K. Menser" <[log in to unmask]>
Subject: Tegretol dosage
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Hello all --
If anyone is taking tegretol for seizures, could you please tell us the =
dosage you are taking and side effects, if any, that you experience. =20
Thank you,
Carole
96003
PWP is Ted (54/46/40)
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Date: Mon, 21 Jan 2002 21:53:22 -0600
Reply-To: Jorge Romero MD <[log in to unmask]>
Sender: Parkinson's Information Exchange Network
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From: Jorge Romero MD <[log in to unmask]>
Organization: Charcot's Tooth
Subject: Re: Burning feet advise
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It is important to separate different kinds of pain.
YES, PD does cause painful dystonias.
NO, PD does not usually cause burning feet, which is the subject of this
thread.
Jorge A Romero, MD
----- Original Message -----
From: "Noma DePew" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, January 21, 2002 12:57 PM
Subject: Re: Burning feet advise
> In a message dated 1/21/2002 1:33:18 AM Pacific Standard Time,
> [log in to unmask] writes:
>
>
> > SAID PD DOES NOT CAUSE ANY PAIN WELL SAY WHAT THE WANT I DESGREE WITH
THEM
> > AFTER ALL WHAT DOOES A 77 OLD GOOD LOOKING GUY WHO HAS PD FOR ALMOST NOW
31
> > YEARS KNOW. I.Y.Q
> > ----------------------------------------------------------------------
>
> Well, Don -- I would say after 31 years that you know more than most of
us!!
> I agree with anyone who has experienced the pain and numbness (I think it
is
> called "dystonia" that it is a miserable symptom!
> Bunny
> "Art is long, life short; judgment difficult, opportunity transient."
> - Goethe
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
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Date: Mon, 21 Jan 2002 23:05:44 EST
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Bukola Kolawole <[log in to unmask]>
Subject: Effect of parkinson disease on the individual and family
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Hello,
I am a nursing student at the University of Windsor. I have an assignment in
my Adult Health class about the effect of parkinson on the individual and
their family. I need to get the information from the perspective of the
individual who has parkinson or the perspective of the primary care giver.
All the information you provide will be confidential.
Thank You
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