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Hi Roger:

Before I was diagnosed as having Parkinsons Disease, I was diagnosed as
having Essential Tremors
soon after my accident of falling from Osteoporosis. I fractured my right
knee and my left foot from falling, and the first thing the doctor asked me,
Are you worried about having Parkinsons Disease, just like your
brother and I said "yes".  For a couple of years, he did nothing because to
take Proponola would not
be good for me, so in the meantime, I had surgery on my knee and did nothing
for the Essential Tremors.
The symptoms at this time were tremors in both hands and feet. This accident
happened 3 years ago.
In the meantime, I couldn't stand or walk because of losing my balance and
stability, so I left it go
thinking that this has to be,  the way as this is the way I was from the
accident. A year ago, I had moved from America to Israel a year ago, and
this loss of balance and no stability was getting so bad that
I had to seek further help. To make the story short, I went to a Neurologist
and he saw me in such bad
shape that he gave me Sinemet (trial and error). To my surprise, I started
to get better and since
I started to take Sinemet, I feel much better, but not 100%. I responded
almost immediately
and because I responded well with Sinemet, is the reason why I have
ParkinsonsDisease.
Please let me know what you think. My main problem is balance and stability
but is controlled
somewhat.

What medication did they put you on?  I think you must have Essential
Tremors which is different from
Parkinsons Disease. With Essential Tremors they don't lose balance, just
tremors, with Parkinsons
Disease, they have tremors just standing or walking too much.

What do you think of my explanation? Do I make sense?
I would like you to follow up your problem to me, OK?
By the way, I am 78 years old. Get better soon!!!

Florence Frankel
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----- Original Message -----
From: "Roger Seymour" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, January 17, 2002 5:28 AM
Subject: Just curious


> Hi Group.
>
> I'm new to the group, and relatively new to the disease itself.  I started
> to really take notice of the tremors and loss of dexterity in my left hand
> only a year ago.  My diagnosis was confirmed last July.  I'm presently
47...
> they call that "young".
>
> I'm presently doing selegiline, vitamins C and E, in a "hopeful" attempt
to
> slow the disease's progress.
>
> One of my questions relates to this idea of  the progression of the
disease.
> Are there any measurements that can be easily made to gauge progress?  For
> example, I can notice a (negative) change in my ability to drum the
fingers
> of my left hand.  The frequency and magnitude of the shaking in my hand
have
> grown.  I didn't know if such things could be objectively measured to
gauge
> how fast changes are actually occurring.
>
> Or...  maybe it's just a waste of time.
>
> Another thing.  I notice at certain times - when I'm totally (mentally)
> absorbed in some task, when I'm very relaxed or sleeping - I never have
> tremors.  This makes me wonder if there has ever been any experimentation
> with biofeedback techniques as a means to "encourage" mental and/or
physical
> states where the tremors subside.
>
> Best regards
>
> Roger Seymour
>
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