Hi Shekhar,
My name is Paula and I am a PWP 48/37/35. I just wanted you to know
that I had DBS on 10/30/00 and, I had several obstacles to overcome, but the
last three weeks I have felt better (Both emotionally and physically) than I
have in 12 years. I'd do it all over again. I tell all my friends WHEN the
cure is definite, I'm having a champagne brunch and you're all invited.
Lots of luck. Ask me anything!
Paula
----- Original Message -----
From: "Chandrashekhar Nagarkar" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, February 03, 2002 1:39 PM
> Dear Jim,
>
> I am a relatively new member of this list and I am not sure of the rules
or etiquette of this club. Your letter inspired me to write to you because I
felt you have experience which I would like to hear about a bit more. I am
53 year old male married. I have a great wife Christine whom I met 5 years
ago just a few months before I was diagnosed almost 4 years ago. We live in
Manchester England. Since being diagnosed I have gone from 3 Sinemet tablets
per day to 5 doses of 25/100 plus 5 doses of Pergolide (1mg each ie 5mg per
day) I am finding this is not enough my on off periods become more frequent
and I feel that already I am beginning to want a 6th dose. Where will this
end?
>
> I am beginning to experience intense anxiety and poor sleep at night due
to the medication. Could we exchange emails privately is that allowed? I am
interested in your DBS experience , does it preclude the stem cell
transplant "cure" I mean does this in any way damage your chance of
benefiting from future developments. What kind of PD were/ are you
suffering? Mine is the rigidity kind Is DBS suitable for this kind of PD?
Following DBS how has it changed your life? I would love to question you in
more detail. If anyone else has any experiences which might be of help
please respond.
>
> I think this list is excellent, it is really nice to hear from fellow
travellers - makes me feel I am not alone. My wife is also beginning to find
the letters of interest.
>
> Shekhar
> ----- Original Message -----
> From: Jim Stinson
> Sent: 03 February 2002 17:49
> To: [log in to unmask]
> Subject:
>
> janice, hello again. sounds like your lifestyle is neat and you sound as
if
> you are handling the problem well.
> i live on the chatttahooche river in salem al. i have water on 3 sides of
me
> and i love it here. i am also 54 yrs old and have a wife who is grreat.
she
> stuck by me through some rough times. the dbs surgery i received
absolutely
> changed my life. i went from taking 1 1/4 sinemet tabletsevery hour to
none.
> at the present i am off of all meds and have been since the "deep brain
> stimulator " surgery.i now go out and ride the waverunners and boats
without
> any problems(a little cold right now).speaking of the weather ,it was
great
> up until last week- 75 and 78 degrees but it dropped to a high of 60 and
> upper 50's a couple of days ago.
> what kind offv vegetables do you grow?
> well, i 'd best go and get ready ---- we're going to my brothers' house
to
> watch the super bowl.
> hope to hear from you soon jim
>
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