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I agree, Linda, it has been a very interesting list discussion and very well
handled by all parties, in my humble opinion.  I'm still thinking that
Pharmical/Upjohn/FDA should approve Cabaser for use in PD.  I'm with you,
Kathleen, that it's making me increasingly cranky too.

Have a great day, everyone . . . and hang in there.  As Joan Snyder says,
"the only way through it is to do it!"  For all of us.

Carole Menser, M.A.
PWP Ted (54/46/40)


-----Original Message-----
From: Linda J Herman <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Monday, February 04, 2002 6:35 PM
Subject: Re: Dopamine agonists and sleep attacks : article in JAMA


>Jorge, Murray, Mario and others,
>It seems i didn't express myself too well in my posting this morning. I
>was not defending  the HealthScout web site nor the research itself.  The
>point i was trying to make was actually very similar to Dr. Romero's -
>that research findings are often inaccurately portrayed in the mass media
>and I think, especially on the Web. This is something i have written
>about before. I  also agree the headline used by Health Scout was
>attention getting but also very misleading.  About the only thing I
>disagreed with was the statement that the article was an advertisement.
>In this case it wasn't, but there are numerous other ads and links to
>"sponsored"  sites on portals such as Health Scout.
>
>I wrote:
>"It's getting more and more difficult on the Web to separate the medical
>facts from the media hype and from the advertising. Our best weapon is to
> Know your source."
>
>I  was also in agreement with your statement that we should try to read
>the original research report if posssible -- which I did.
>I noted in my earlier posting:
>"When in doubt - go to the original source -- if you are able to find it
>and it's freely available on the Web.
>In this case the full article is on the JAMA website www.jama.com  (as of
>6 AM today)."
>
> My purely unprofessional opinion is based only on my experience with
>taking ReQuip for about 4 years now. It has helped me to reduce my
>Sinemet dosage and has not caused sleepiness or sleep attacks or
>interfered with my driving.. But we all react differently to PD meds, and
>we can't generalize about it's effects, based on personal experiences.
> I do believe further follow-up studies on  possible harmful side
>efffects of ReQuip and other recently  approved drugs, are needed. This
>survey by the Canadian Movement Disorders Group will add to the knowlege
>base, even if it is not conclusive itself.
>
>At any rate -this is an interesting list discussion.
>
>Linda
>
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