I'm forwarding this because many of our newcomers have questions-as they
should. I'm not a newbie, and still my head is loaded with, "I don't
understand!"
You can also have sympathy for me for, as you can see, ATT is at it again!
I think my original messages will be found somewhere in the universe during
the 2020th year!
E of the headdress
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From: "edith love" <[log in to unmask]>
To: "SPARKLE" <[log in to unmask]>, "PIEN"
<[log in to unmask]>
Subject: The PD Umbrella- From Where I Stand
Date: Mon, 18 Feb 2002 17:47:42 -0800
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The paths to PD are many, and if one looks under the PD umbrella one can
find: PD, PD+ and the undiagnosed who have some of, maybe all of, the PD
symptoms but for one medical certainty(if there is such a thing) or another
do not belong on the direct PD path. To make our situations even more
complicated, one can observe that our illnesses are many and varied. When
compared we don't even resemble one another!
We are sometimes the ones who often feel even more isolated and forgotten
than those outside the umbrella. We feel isolated because we know there
are others like us somewhere, but no data base has been developed to connect
us. Like our PD/PD+ brothers and sisters, we, too, wait for a cure.
However, we know up front "this cure" might not even apply to us. We feel
forgotten because we are the ones who are so often not included in PD
questionnaires and/or surveys and/or reports and studies(that's why we
included everyone in the HOW SURVEY). We don't qualify though we have
much to contribute. Were it not for PIEN'S and SPARKLE's camaraderie we'd
feel more than forgotten. We'd feel lost. We're like the short country
road that's not on the map. Hardly anyone knows we're here!
E of the headdress
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