Hello Murray Charters, and PIEN'ers...
Within the Parkinsonian community , many of us believe
that there are vitally important reasons for people like us to be
concerned about Janet
Reno's well-being, beyond caring for her as an individual.. Her potential
functioning
during her run for governor of Florida , no matter what is done,
remains a central issue, and needs the fullest discussion possible.
Are we getting a complete picture of how she is managing the huge
demands upon her?
Sometimes reporters leave certain critical information unprinted for
good reasons.
A patient's right to privacy must be honored. But Janet's personal
safety, and
the effect that her PD might have on the public's safety, is an
unresolved issue.
She is in year 7 or so of PD. Yet I have to ask, how well will she be in
year 8,9, or 10?
Thankfully, the PD has been slowly appearing in her, but what if the pace
of it worsens?
It would be helpful for our community to know how much Mirapex and how
much
Sinemet, and which kinds (regular? CR? generic? strength) of Sinemet Dr.
Koller prescribes for
her. All of us can benefit from our collective comments on her response
to medications , and
that includes what her dose schedule is each day. It would be helpful to
know if
she follows a Parkinsonian's recommended diet. I also wonder if, among
her
schedulers, someone understands the diet-medication-protein-on/off cycles
which
many of us go through, in our daily lives.
When I am stressed , more PD-related symptoms become visible. At
the same time, being in year 17 of PD, the disease affects me noticeably
anyway. Precision timing and dosage of my medications are part of my
well-being
I feel that we are fortunate that a Parkinsonian is a candidate,
but I also feel that more communication about both
Janet's bilateral (or is it unilateral ?) tremors, and her recent
fainting, is
essential. Perhaps she could benefit from an increase in Sinemet,
to control tremors. And I wonder if a reduction in MIrapex
might prevent low blood pressure, if she experiences
that when she has fainted in public.
No matter what one's political leanings, as
a Parkinsonian, I care about her. I do wish her very well, and hope that
Dr. Koller
will be able to adjust her medications , or at least,
help her to plan a schedule that is less stressful.
Ivan Suzman
Portland , Maine
52 (current age)/39 (age at diagnosis)/36 age
when visible symptoms first appeared
On Mon, 18 Feb 2002 13:05:06 -0800 Murray Charters
<[log in to unmask]> writes:
> Reno's doctor says Parkinson's should not affect run for office
> By Nancy McVicar
> Health Writer
> Posted September 4 2001, 5:49 PM EDT
>
> The doctor who has been treating former Attorney General
> Janet Reno for Parkinson’s disease for the past year says
> there is no medical reason she should not run for governor.
>
> “We had a very long and frank discussion about it, and she
> wanted to know all the potentialities,” said Dr. William Koller,
> professor of neurology at University of Miami School
> of Medicine and director of the Movement Disorders Center
> at UM/National Parkinson Foundation. Reno gave him
> permission to speak about her condition.
>
> Koller said Reno’s disease has progressed slowly since her
> diagnosis seven years ago. She requires only low doses of
> two drugs, Sinemet and Mirapex, to control her symptoms,
> he said.
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