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Edith, It is a rare and indeed a distinct pleasure to be under your headdress.! SM ----- Original Message ----- From: "edith love" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, February 20, 2002 8:11 PM Subject: Re: [sparkle] RE: The PD Umbrella- From Where I Stand > Dear, dear, Audrey > > When I first signed onto PIEN and SPARKLE, I, like a great percentage of the > membership needed to belong somewhere. I needed to share the me of me that > I had shared with no one for many years. Too many responsibilities. Not > enough time. Not enough trust. > > For the first time in my life I put the me of me in writing. I not only > wrote about myself, I wrote about my illness and what I called the "stages" > of my illness. I wrote what my family didn't know, what my coworkers were > never told those many years we looked after one another. I had learned my > lessons well over the years. Nose to the grindstone. Watch whom you trust! > > Yet I didn't feel that way about SPARKLE and PIEN. I could belong here and > not feel alone in my illness. When I felt a wall of ice before me at PIEN, > I figured I was the new smart-aleck kid on the block who was full of ideas > that might uproot and old oak. SPARKLE accepted me-strangeness and all! As > for PIEN, I could see it would take time. Then when I wrote what became > the cover letter for the HOW DID WE GET HERE ANYWAY SURVEY and there was so > little response, I KNEW it had to be me! Of course it wasn't. It was > somewhat my insecurity, PDers' reluctance and PIEN's period(excuse the play > on words)of PMS! > > Make no mistake. I was ready to run. I had had it! Why, there was enough > in my basket of life to handle without additional headaches! > > It was some very special stranger-cyber-friends who convinced me to stay. > They are the ones, some of whom have lived with those under the PD > umbrella, whose perseverance so strongly contributed to the heart of PIEN. > > Newbies are greeted. Intelligent discussions are held. Tears are shed. > Contributors' points of view are accepted and/or debated. No one appears to > be afraid to ask for advice. There is not only warmth, caring and love on > PIEN, there is a tremendous amount of professionalism as well. > > Soooooooooooooooooooooooooooooooooooo, having said what I've said, I'd like > to dedicate this page to: Audrey, Michel, Jo Ann, Bonnie, Camilla, > Kathrynne, Greg, David, Juanita, the Barbs, Mario, Maryse and everyone who > somewhere along the line gave me kind word and encouragement; to Jorge and > Bob who have so beautifully dedicated their professionalism; to Barbara P. > who trusted me, and to my special angels Hans and John who have kept me out > of more than one scrape. If I contribute anything to PIEN, it is because > of all of you, and I do it with love, friendship and caring. > > Thank you all! > E of the headdress > > > > Dear special Edith, > It is impossible to ignore the aura of goodness that you show whenever you > post. I feel privileged to know you even if this is the only way that we > meet. I am sure that many feel very much the same way as I do too. For all > of those who wait for the cure, or some diagnosis of what they have, people > like you make the waiting so much easier. For those as I am, who have no > direct connection with someone with PD, you give us a way to understand what > it is to be closer to our special far away pwps. Thank you for being the > person that you are my friend. > > Love, > Audrey > > -----Original Message----- > From: edith love [mailto:[log in to unmask]] > Sent: Monday, February 18, 2002 5:48 PM > To: SPARKLE - Smiling PARKies Live Easier - > Subject: [sparkle] The PD Umbrella- From Where I Stand > > > > The paths to PD are many, and if one looks under the PD umbrella one can > find: PD, PD+ and the undiagnosed who have some of, maybe all of, the PD > symptoms but for one medical certainty(if there is such a thing) or another > do not belong on the direct PD path. To make our situations even more > complicated, one can observe that our illnesses are many and varied. When > compared we don't even resemble one another! > > We are sometimes the ones who often feel even more isolated and forgotten > than those outside the umbrella. We feel isolated because we know there > are others like us somewhere, but no data base has been developed to connect > us. Like our PD/PD+ brothers and sisters, we, too, wait for a cure. > However, we know up front "this cure" might not even apply to us. We feel > forgotten because we are the ones who are so often not included in PD > questionnaires and/or surveys and/or reports and studies(that's why we > included everyone in the HOW SURVEY). We don't qualify though we have > much to contribute. Were it not for PIEN'S and SPARKLE's camaraderie we'd > feel more than forgotten. We'd feel lost. We're like the short country > road that's not on the map. Hardly anyone knows we're here! > > E of the headdress > > > > > > > Official site for Sparklelist > http://geocities.com/sparklelist/ > > > > > Official site for Sparklelist > http://geocities.com/sparklelist/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn