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Hi, Debra,
i was going to write a long detailed letter telling my experiences, and
reactions to meds etc., but Jim Finn and the others have said most of
what i was going to say! Suffice it to say i started getting symptoms
about 29 years ago, was finally diagnosed 19 years ago and have been on
sinemet ever since. I have been on every agonist except tasmar, have
been to good doctors and bad, have taken part in a trial at NIH with
disastrous results, and have finally sort of settled down -as much as is
possible with this horrible disease, with sinemet, eldepry (for the 2nd
time) and amantadine (for the third time). I consider amantadine to be
the miracle drug - it keeps my dyskinesia under control most of the
time. I take my sinemet (Half of a 25/100) every two hours around the
clock, and even though have to wake up to do this during the night, i
sleep much better than if i didn't take it at all. With Mirapex, i had
many daytime sleep attacks, falling asleep at odd times for 10 to 60
secs, totally unaware, and continuing my sentence or action as if i'd
never been interrupted. SCARY!

As the disease has progressed, my activities have been curtailed.  I
still get around on my own, but can't walk as long distances. But i
still make it around the mall with my daughters (age 19 and 16).  I have
reluctantly had to admit to myself that playing the piano is beyond me,
writing by hand is totally impossible- but still keep in touch using
this computer - but, as you say, fatigue is a major problem. And
slowness - everything takes so much longer. and  your description of
your brain's muddled functioning describes me to a T.

so, Debra, rest assured you are not alone. And somehow, like the rest of
us,. you will muddle through., and still enjoy your life, your family
and especially your children - with a little help from your friends,
here on the list.

hilary blue
(53,24,33)

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