OK, Ivan. I'll write amongst your lines. First I went looking for posts I'd written on this subject months and months ago. Unfortunately, I couldn't find anything in the archives(my guess is it's my methodology. In the meantime, I imagine that somewhere out there in the universe, along with all the military-communications garbage are the posts I wanted to use as references! Subject: Re: Fluoride ...viral cause of PD explored a bit Also from coast of maine- Rockport. I was heavily exposed to spray for mosquitoes in 1951-55 in farm town in Illinois. I recently talked to a lady who still lived there and she said the town still sprayed everything. I tried to find out the incidence of PD but had treouble getting local nurologist to talk to me. He thought I was going to sue someone. Jim Sidenote to Jim: > I remember this happening, too! On Mon, 25 February 2002, Ivan M Suzman wrote: > > Jane and Edith and PIEN'ers, > > Hi from the Coast of Maine... I have to tell you that I am blown away! These are the exact topics Mario and I attempted to get info on with the survey. While we travel somewhat different paths in the HOW, we feel that there are precursors some of us, all of us share to bring us to this point in 2002. I can trace mine back to childhoos. They are like benchmarks. > > Did mononucleosis, > or influenza A (flu type A), > after World War I,affect you > or your grandfather, Jane? Edith, I guess > you are a PWP -am I right? Or is it > your husband? Any history of severe childhood > health problems, with "flu bug? You'll forgive me for laughing, Ivan, but you're beginning to sound like me trying to interest everyone in the HOW survey! By the way, have you participated? If, per chance you haven't, it's time. Bring your friends! I'm neither a PDer nor a Parkinsonian. I am UNDER the PD umbrella because, like so many others, my symptoms are somewhat similar but tests, SPECTS, etc., have proved otherwise. I just took another path from yours. You can identify me by the fact that I am unable to take meds successfully. I either have side affects and/or I fall asleep everywhere. While an autopsy is the only way to really test for proof of diagnoses and theories, I have seen the differences and know what is happening topside besides the loss of dcells. Luckily, my neuro team and I get along really well. I didn't always feel I would be this fortunate. I have been asked to donate my brain to Harvard Medical School. Join me. When I tried to offer my brain to UC Davis, they wouldn't accept it. They're hung up on the virus theory. My first neuro, a Dr. Abe type, thought it was ridiculous for them to refuse. However, it makes sense to those of you/us who believe it to be so. Personally, I believe it to be a benchmark, a precursor if you will. As an 18 year old, I worked in a major western hospital. One of my responsibilities was to identify amnesia victims, so I spent a good amount of time on the wards. Eventually, I became extremely ill and ran a temp you wouldn't believe if I told you. This sent me home to recuperate. It took almost a year to get me on my feet. No name was given to this illness. Years and years later when the doctor called to inform me I had the Epstein Barr virus, I told him to look again. His response was that I sit down to think, etc. My no-name was mono! > > I am exploring the idea that PD is > a virally -caused disease. This might > be true for some, or > perhaps many PWP's. Like > Lou Gehrig's disease, or amyelotrophic lateral > sclerosis, or ALS, and probably also like MS , or > multiple sclerosis, PD could be > a slowly developing virally-caused disease > of the central nervous system. Ivan,consider the many roads to PD and its umbrella. If there's more than one path to it, are the stepping stones the same? I don't deny that a virus like Epstein Barr might be a benchmark. The reason for the survey is to compare all the data. What have we had in common through our lives so far? What are the commonalities? We wanted to blast this survey with 1000 participants. That didn't happen. Michigan supports PD financially. They have an epidemiologist on their board. Susan Titus, the director, said they'd be more than interested in our data sheets. In other words, we wanted to have enough of a sample to catch the eye of a scientist who might walk in a direction never before travelled. > > Somehow, the substantia nigra area > would have been invaded by a slowly- > developing virus that eventually takes over, > changing the DNA instructions for brain > chemistry , but gradually. > > This theory would explain why amantadine is Why just Amantadine? What is the result with meds of > effective in PD; despite having been designed similar ingredients? > as an antiviral pill. Curiously, amantadine is Consider your statement: > in common use. and it stops PD symptoms Amantadine stops or reduces > or reduces them in some PWP's. symptoms in SOME. What about the others? > > I am gung-ho for research in virology and I am gung-ho for this family to > immunology to find the cause of PD.... participate in this survey, so we can > any comments or thoughts on my above discover commonalities! > questions, Jane and Edith?? > >Just for the record, Ivan, benchmark your precursors. I'll be interested in what you indicate. E of the headdress > Ivan > 52/39/36 > On Mon, 25 Feb 2002 08:36:00 -0800 edith love <[log in to unmask]> writes: > > I hope that those of you who are concerned about fluoride took the > > HOW > > survey. Fluoride is listed in Section D. > > > > E of the headdress > > > > > > -----Original Message----- > > From: Parkinson's Information Exchange Network > > [mailto:[log in to unmask]]On Behalf Of Jane Ross > > Sent: Sunday, February 24, 2002 9:09 PM > > To: [log in to unmask] > > Subject: Re: Flouride > > > > > > Dee, > > I was a fluoride test child when I was in the first or second grade > > where > > they painted our teeth with fluoride at school. > > Dee, I have heard of being exposed to insecticides or being a welder > > but > > never heard of fluoride as a cause. Just to keep you on your toes, > > my > > father > > was a welder and as a kid I used to play in the shavings, brass > > welding rod > > drippings and pretend the used rods were cigarettes. > > Also we live in an area that has a vector control and for the past > > 36 years > > they have sprayed our house with malathalon (spelling) to kill the > > mosquitoes. > > One more for you, my Grandfather had Parkinson's > > > > jjjane > > > > http://www.geocities.com/janet313/pienet/ross/ > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn