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Dear Carol,
My name is Paula (from Pennsylvania).  I've been diagnosed with PD since
5/27/92, was suffering from terrible dyskenesias (told friends I needed
velcro for the butt), painful dystonia of the right foot, and profuse
sweating .  I had DBS on 10/30/00 after many years of telling my neurologist
I did not want a pallidotomy.Everything I read about it turned me off to it.
I told him my reasons.  You could only do one side at a time.  It was
irreversible and I wanted no part of it.  But the more I read about DBS and
the worse I felt like this might be my ticket out of hell. It has taken me
more than a year to bounce back, but it is now feeling like I have a new
lease on life.
----- Original Message -----
From: "Carol Gray" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, February 25, 2002 1:03 PM
Subject: DBS


> I too have wondered if I would be a candidate
> for DBS.  I have had PD for 23 years and have
> just about gone through the entire   list  of
> medications.  My quality of life is not what I
> would like it to be.At the present time my
> worsr symptoms are the stiffness and dyskinesias.
> I had a pallidotomy and while the immediate
> effects were good it only lasted 6 months and
> I have had a  steady progression  of my disease
> since that time.  I would be interested in
> hearing fom anyone who has had the surgery!
> carol gray
>
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