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Olga Thank you for your suggestions I will most certainly look into them. The kind of questions I would like answers to from experienced PWPs On Medication and Diet: I Take Sinemet (25/100) & Pergolide (1mg) 5 times a day( Every 3 hours). Plus 1 Amitryptyline 10 mg at bed time. ! Tamazipam 10mg )middle of the night. Plus I take vitamines C,E,A,Ginko,Magnesium,Co-Q10,etc I am not very rigid or disciplined on the timings of the tablets or my diet. I suffer from 2 or 3 off periods. I run my own businesses which is sometimes stressful and I spend quite a lot of time at my computers at home and at work. Apart from on-off periods and good and bad days, I suffer from lack of sleep which result in sleep attacks during my work ( sometimes in the middle of a conversation with staff for 2 or 3 seconds and I wake up startled!) otherwise my PD is not particularly visible - only I know I am not feeling right. So how do I improve my symptoms? - How do experienced PWP's manage their symptoms better? Has anyone found a way to eliminate the variable and unpredictable on-off periods and have mostly on periods? Has anyone found a way to eliminate the good days and bad days that I suffer and learned to manage their PD to have mostly good days? Could it be that those PWPs who have slow developing PD and do not seem to be affected very much by it are people who have through practice, habit, disciplines, etc learned to really manage their PD well and the rest of us are unaware that there is a way of balancing the variables. What are these variables? 1. Diet and timing of meals. 2. Timing of medication : 3. Dosage 4. Exercise - Quantity and quality and timing 5. Activity and Non Activity 6. Rest and sleep 7. Stress - frequency, intensity, etc 8. Mental stimulation activity 9. Emotional stimulation 10 Companionship, Friendships, familiess 11. Entertainment, laughter 12. Weather , season 13. Having a pet! 14. Being alone and quiet , meditation 15. Holidays and Week ends are usually good days ( there is a clue to good practice - how can we make every day seem like a summers day in Whistler with family and friends?) 15. etc etc I bet we all have views and opinions on how to manage our lives but some of us could be making better choices and thus managing PD symptoms better. I am not very disciplined in eating the right food at the right time, I get engrossed in what ever I am doing and forget to eat or drink or else I eat a high protean lunch which sometimes causes me to have an off afternoon - but why not always, and so on. Am I typical of most people, will a more planned and disciplined approach to life make a big difference? This is a complex subject. I thought of keeping a diary to make sense of good and bad days and on-off periods but there are so many factors and so many of them are subjective that it is hard to formulate a method of recording which could help make practical sense. Has anyone got a diary recording framework or system which they have found to be useful in eliciting the best practice rules that suit themselves. I am pretty sure the answer is yes. Am I making any sense ? I hope this gives you some idea of what I am thinking - I will try and follow up your suggestions over the next few days - time permitting! Shekhar ( Manchester UK 53/50/49) ----- Original Message ----- From: Olga Rónaky Sent: 22 February 2002 17:59 To: [log in to unmask] Subject: Re: Janet Reno's health issues need discussion Shekhar - I do have some kind of lists from different Lists, but only two of them are systematized till now. And surely, there are best practice guides not only by more expereinced PWPs but also by experts. I suggest you to join the Ask the Dietitian, the Ask the Doctor, and at last but not at least, look up the archives of the PIEN. By the way, Kathrynne Holden MS, MR (author of the super-book Eat well, stay well and The Dietitian who answers your questions) is a member of this list - so you can write her directly on this list, if you want to. Dr. Abe Libermann (Ask the Doctor) usually answers your question in a day... So does Kathrynne, too! BTW, I would like doing/participating in such research. And, of course, I send you some of my "collections" if you give me the information in what special items are you interested in. My best wishes Olga PWP 49/47/40 and CG for my own Hungary [log in to unmask] **May peace of heart fill all your days, may serenity grace your soul.** You wrote: SNIPPED I am for ever struggling with diet and the effects of eating protein at the wrong time. Medication dosage and timing is another issue which is mysterious and unpredictable. Are there any best practice guides or rules of thumb which might help relatively inexperienced PWP's like me to learn from other peoples experiences and mistakes. Has anyone on this list compiled a list of best practices which we could share. Is there anyone on this list who is interested in doing such research or has done it? Just think how valuable properly compiled anecdotal/ experiential best practice could be to fellow PWP's. I for one would be interested. I am 53 diagnosed 4 years ago. Shekhar ( Manchester UK) ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsnGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn