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Sally, I have been on the study medication Sumanirole for about a year now. Aside from a slight bit of manageable edema, the stuff works well. My participation is in an open label study, no placebos. I know what and how much of the stuff I am getting. This medication has been tested on humans for at least a couple of years. The study had been in progress for at least a year before I signed on. Actually, I started a little more than 2 years ago, first in another dopamine agonist study, then proceeded to the current, long term study. Three factors influenced my decision to participate. 1.) somebody's got to do it. 2.) the medicine is free 3.) I can quit any time if I feel I should. I guess Paula said it well. " "Do what feels right for you. If it stresses you, don't do it." I am 65, was diagnosed two years ago, and had been mildly symptomatic for maybe 5 years before that. Some of my symptoms were virtually erased, a few have not progressed at all, and a couple of new ones, nothing major, have shown up during the trial. I guess that is the nature of the beast. It is always changing. Nancy P. >Hi Everybody. >I recently joined the PIENO list (a couple of weeks ago). I'm 53, was just >diagnosed, and have had symptoms for about 3 years. I am taking a big load >of "supplements" at this point, but no "Parkinson's med." >>>>>>>>>>>>>.> >But what about participating in the study??? In some ways I'm concerned >about starting any meds before I really need to. Also, I'm terribly >sensitive to about 1/2 the meds that are out there. And I'd be signing up to >get either something as yet untested on humans, or Requip (what experience >does any of you have?)--or of course a placebo. > >I sure would appreciate the thoughts that any of you might be willing to >share with me. > >Thanks! > >Sally > >Sally Lattuca >Turn of Phrase >carefully crafted communications >When the words sing. . .the ideas dance! > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn