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Dear List Friends, There are a number of PWP's "lurking" out in cyberspace who are getting relief from alturnative protocalls. Unfortunately, just as with "regular" PD meds. there is no one protocall that works for all. We have to individually tailor our meds and out programs to what works for each of us. So many timesunfortunately, the more vocal members of this list, doctors, and drug companies governed by the almighty dollar and FDA approval tend to "Pooh, Pooh" what works for some of the other list members. The cure is not here yet so new ideas and thoughts should be welcomed. How else do we learn? I find it unfortunate that doctors insist on "canned" routines of treatment, because PD is not the same for each of us. The insurance companies, etc. probably will never come around due to the big money which drives the medical community as a whole. So long as we allow the medical community to "practice" on us, this will never change. I don't mean to get off on a tanget on the money deal ........ but the so approved path is not for everybody. Cheaper can be better! My point is that we all can benefit from sharing our knowledge on this subject and benefit others from our experiences. Only by exposing a reaction that we may have had to a particular drug, can we help warn others of a possible problem. Similarly when we find something that helps us, a portion of that protocall may benefit someone else ......... God forbid, even if it is not FDA approved. From my standpoint, I am not so much worried about the cure for PD as I am worried about making my quality of life better and allowing me to help and be less of a burden to those close to me. I doesn't bother me that someone I don't even know will notice that I am a PWP. It is not necessary for me to "cover up" all of my symptoms with drugs which cause neurological masking and may cause other problems in later years. If I get relief from vitamins and meds or what ever works for me, it should be applauded not ridiculed for not following the normal protocol like a blind sheep. My pills cost only $4 a day so the drug companies wont get rich off of me but then again my quality of life is better now than it was a year and half ago when I was on sinemet and "the program". I just didnt like the answers or the "help" the meds were not giving me. The quality of life to me is more important with PD and if an alturnative treatment is the anwser for me then I am greatful for the knowledge and the internet exchanges that provide my solution. Rob ----- Original Message ----- From: "Arthur Hirsch" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, March 05, 2002 9:02 PM Subject: Re: Annetta Freeman > Ervin, it seems as though the Annetta Freeman story has come up every half year > since I've joined the list. You'd do well to look through the archives. > > Art ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn