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Well said, Bob. I will always be in the search. [log in to unmask] ----- Original Message ----- From: "Schaaf Angus / Meadow Creek Ranch" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, March 06, 2002 9:58 AM Subject: Re: Annetta Freeman and Alturnatives > Dear List Friends, > > There are a number of PWP's "lurking" out in cyberspace who are getting > relief from alturnative protocalls. Unfortunately, just as with "regular" PD > meds. there is no one protocall that works for all. We have to > individually tailor our meds and out programs to what works for each of us. > So many timesunfortunately, the more vocal members of this list, doctors, > and drug companies governed by the almighty dollar and FDA approval tend to > "Pooh, Pooh" what works for some of the other list members. The cure is not > here yet so new ideas and thoughts should be welcomed. How else do we > learn? > > I find it unfortunate that doctors insist on "canned" routines of > treatment, because PD is not the same for each of us. The insurance > companies, etc. probably will never come around due to the big money which > drives the medical community as a whole. So long as we allow the medical > community to "practice" on us, this will never change. I don't mean to get > off on a tanget on the money deal ........ but the so approved path is not > for everybody. Cheaper can be better! > > My point is that we all can benefit from sharing our knowledge on this > subject and benefit others from our experiences. Only by exposing a reaction > that we may have had to a particular drug, can we help warn others of a > possible problem. Similarly when we find something that helps us, a portion > of that protocall may benefit someone else ......... God forbid, even if it > is not FDA approved. > > From my standpoint, I am not so much worried about the cure for PD as I am > worried about making my quality of life better and allowing me to help and > be less of a burden to those close to me. I doesn't bother me that someone > I don't even know will notice that I am a PWP. It is not necessary for me to > "cover up" all of my symptoms with drugs which cause neurological masking > and may cause other problems in later years. If I get relief from vitamins > and meds or what ever works for me, it should be applauded not ridiculed > for not following the normal protocol like a blind sheep. My pills cost only > $4 a day so the drug companies wont get rich off of me but then again my > quality of life is better now than it was a year and half ago when I was on > sinemet and "the program". I just didnt like the answers or the "help" the > meds were not giving me. The quality of life to me is more important with > PD and if an alturnative treatment is the anwser for me then I am greatful > for the knowledge and the internet exchanges that provide my solution. Rob > ----- Original Message ----- > From: "Arthur Hirsch" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Tuesday, March 05, 2002 9:02 PM > Subject: Re: Annetta Freeman > > > > Ervin, it seems as though the Annetta Freeman story has come up every half > year > > since I've joined the list. You'd do well to look through the archives. > > > > Art > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn