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Hi all,

I haven't been keeping up with the entire discussion, so please forgive
me if I ask questions that have already been discussed.

I'd like to know what the criteria are for DBS surgery generally--
Specifically,  I'd like to know whether a person who does not have
advanced PD or any dyskenisia can be accepted for DBS, or has had DBS at
an earlier stage of PD--
Is there any evidence that it can help a person who is not profoundly
affected, and--
Is the criteria any different among the different areas of stimulation?

I would be grateful for any information you wish to share.

Charlotte Mancuso



On Sun, 3 Mar 2002 09:36:05 -0600 P&B Fahr <[log in to unmask]> writes:
> Rayilyn,
> If you are going to forward the horror stories like Deborah's to
> your friends I would also hope you would forward the stories that
> are not so "sensational" as well.  Any surgical procedure can
> have complications, whether it is having a tooth removed or an
> appendectomy.  DBS normally causes little or no pain.  I find it
> incredible that Deborah would do it all again --- but then she
> was able to witness the benefit first hand and wants to live a
> normal life.
>
> Steve's procedure was merely an few days inconvenience by
> comparison.  Here is a short form of his story.
>
> My brother, Steve, was diagnosed with PD at age 44 (the year
> before our father died from PD complications at age 78.  By age
> 49, Steve could walk only occasionally and crawled on his hands
> and
> knees most of the time before DBS.  Had dyskinetia so severe his
> clothes would slide off his body while "resting" in an
> easy chair.
>
> He had bilateral STN DBS in April of 1998.
>
> Three days after DBS he was walking normally with some
> freezing --- stims not yet turned on.
>
> Two weeks after surgery he was driving trucks and tractors and
> operating farm machinery.
>
> Two months after DBS he was up on the roof helping his son
> install a new window in their home.
>
> Steve was the very first patient to have bilateral STN DBS for PD
> in Chicago at Rush Medical Center.
>
> It will be 4 years next month.  Steve is still on some
> medication.  DBS is NOT a cure but Steve can now lead a normal
> life with a few limitations.  DBS isn't perfect but it beats the
> hell out of long term nursing care when you are 53 years old.
>
> Paul Fahr
>
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