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Every time I get a chance, I try to catch up on posts. I've carried Johanna in my thoughts since I read about her experiences. She has courage above and beyond anything I could ever manage. She has an inner strength that few of us can claim. Talk about standard bearers! Then I came across Maxine's gentle and most sincere comments about how important it is for us to talk about our concerns-get them out. It's how we learn to improve our existences. Whether we agree or disagree, we owe each other the gifts of "listening". and of "answering respectfully". We need to know the pros and cons of any medication, treatment or surgery we contemplate. We need to look after one another! There's nothing about PD, PD+ or about being under the PD umbrella that is pretty-except tiny miracles that happen once in awhile. Two PWP's fall in love. Longlasting friendshis are made. Great redeeming surgeries are performed! We need to see both sides of the shadow that lives within us so we can be somewhat prepared to make sensible decisions about our care-about what we want. We are guinea pigs for cure. Every pill we take is an experiment. Every journey won't be smooth and/or successful. Personally, I would rather know the odds! Discussion is essential! Thinking about Johanna and the need to share our feelings and personal experiences were followed by, I believe Rita, Carole and others who opened their hearts and shared first-hand, heartbreaking memories of final days, nursing home fiascos, personal experiences and death certificates. Nothing is worse than watching a loved one deteriorate and disappear! Jorge covered the manner of d certificates very well. While we know the truth, d certificates are based upon what is seen at the time of death. By my standards PD & its meds lower the immune system over the years until the body can no longer fight the good fight physically or any other way. In the end, true to form, before the music comes the d certificate-one of the last vestiges of the "me"(meaning all of us) I(we) came to be. Then it hit me! Maybe when all is said and done, we're looking for DIGNITY! For our families, at least in death, let there be dignity and the music of rememberance for closure! Respectfully submitted, E of the headdress ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn