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----- Original Message ----- From: "edith love" <[log in to unmask]> To: "PIEN" <[log in to unmask]> Sent: Tuesday, March 05, 2002 8:38 PM Subject: Some Thoughts About Cause of Death and PD-From Where I Stand > Every time I get a chance, I try to catch up on posts. I've carried Johanna > in my thoughts since I read about her experiences. She has courage above > and beyond anything I could ever manage. She has an inner strength that few > of us can claim. Talk about standard bearers! > > Then I came across Maxine's gentle and most sincere comments about how > important it is for us to talk about our concerns-get them out. It's how we > learn to improve our existences. Whether we agree or disagree, we owe each > other the gifts of "listening". and of "answering respectfully". We need to > know the pros and cons of any medication, treatment or surgery we > contemplate. We need to look after one another! > > There's nothing about PD, PD+ or about being under the PD umbrella that is > pretty-except tiny miracles that happen once in awhile. Two PWP's fall in > love. Longlasting > friendshis are made. Great redeeming surgeries are performed! > > We need to see both sides of the shadow that lives within us so we can be > somewhat prepared to make sensible decisions about our care-about what we > want. We are guinea pigs for cure. Every pill we take is an experiment. > Every journey won't be smooth and/or successful. Personally, I would rather > know the odds! Discussion is > essential! > > Thinking about Johanna and the need to share our feelings and personal > experiences were followed > by, I believe Rita, Carole and others who opened their hearts and shared > first-hand, heartbreaking memories of final days, nursing home > fiascos, personal experiences and death > certificates. Nothing is worse than watching a loved one deteriorate and > disappear! > > Jorge covered the matter of d certificates very well. While we know the > truth, d certificates are based upon what is seen at the time of death. By > my standards PD & its meds lower the immune system over the years until the > body can no longer fight the good fight physically or any other way. In the > end, true to form, before the music comes the d certificate-one of the last > vestiges of the "me"(meaning all of us) I(we) came to be. > > Then it hit me! Maybe when all is said and done, we're looking for DIGNITY! > For our families, at least in death, > let there be dignity and the music of rememberance for closure! > > Respectfully submitted, > E of the headdress > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn