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Sally Lattuca Turn of Phrase carefully crafted communications When the words sing. . .the ideas dance! 734.995.1579 ----- Original Message ----- From: "Turn of Phrase" <[log in to unmask]> To: "Parkinson's Information Exchange Network" <[log in to unmask]> Sent: Sunday, March 10, 2002 9:29 PM Subject: Re: Re: FIRST TIME USER > Linda. > I, too, read your book as my reintroduction to PD (my Mom had it). I felt > you did a great job and I learned so much that I realized I should've known > when Mom had it. When she was diagnosed in 1990, the only book available > wasn't nearly so helpful, and I never looked for others in the 10 years she > had PD. > > The book left me hanging on a couple of things that sounded like they would > be of help if I understood them... > > >>What is the significance of fava beans? I take it they're good for > Parkies, but I would like to know why. > > >>Apple cider vinegar is good for heading off muscle cramps? Do you drink it > or rub it on? If you drink it, does it help to just have some each day > (rather than waiting for that Charlie horse)? How much do you take (use)? > > Thanks for your help! > > Sally > > Sally Lattuca > Turn of Phrase > carefully crafted communications > When the words sing. . .the ideas dance! > 734.995.1579 > > ----- Original Message ----- > From: "Linda J Herman" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, March 10, 2002 7:52 PM > Subject: Re: FIRST TIME USER > > > > Hi Scott, > > Welcome to the list. I hope you will find much information and support > > here. > > > > I am one of the authors of When Parkinson's Strikes Early. I am really > > distressed to read how much it scared you - that was, of course never our > > intent and I'm sorry. Barb and I wanted the book to present an honest > > picture of people's lives with PD. The media has tended to sugar coat > > many of its accounts about PD, and our decision to compile the real-life > > stories of our fellow list members was partly in reaction to that . PD is > > not a benign illness. People need to know that. They need to know how > > important it is that adequate funding and resources are applied towards > > finding the cure as soon as possible. > > > > Being diagnosed, thinking about the future -- it is terrifying. Talking > > about it with your spouse, children, friends is frightening -- and it's > > difficult -- and it forces us to think about and talk about things we'd > > rather not. BUT I hope you also found the message in the book that many > > others have experienced these same emotions, and that they have found the > > strength to face their fears, they have learned to cope, and they have > > been able to get on with their lives. We can help each other do this. > > > > We also tried to convey the importance of taking an active role in your > > treatment, joining with others to fight this disease, getting involved > > in political action and advocacy, fund raising, public awareness - these > > types of positive actions will help you cope. It sounds like you are > > already doing so. It's great that you're starting a support group. > > > > And the most important message we tried to convey is to live with hope. > > The cure is coming. In just the six months since the book was published > > there have been so many advances in the research. You will read about > > more advances everyday on this list. Each of us still needs to do what we > > can to ensure that the most promising research continues unimpeded and > > fully funded. > > > > Another reader wrote to me that the first time she read our book - her > > reaction was similar to yours. But she read it through again, > > highlighting in yellow all the positive and hopeful sections, and by the > > time she was done there were a whole lot of yellow pages. Maybe at some > > point you might read it again too. I hope you will find it in some way to > > be a source of help to you and your family > > Best wishes and good luck with the support group, > > Linda Herman > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn