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Good morning, List Family, This is a copy of something I sent the other day. It sort of "tailed" at the bottom of the page in oblivion. I'm sending it again because I need feedback. Good or bad, I can handle it! You all know how deeply I believe in the HOW survey. I'm no scientist. I'm a member of the EVERYMAN CLAN. The only credential I carry, other than my educational credentials, is CARING. However, it is my belief that the paths for PD, PD+ and for those of us under the PD umbrella, though different, begin at birth. I feel there are benchmarks, precursors on each of the paths-either alike or varied-that finally progress to diagnosis. Now the reason I'm saying all this is because I have a dream. Yesterday someone graciously and kindly humbled me by noting, "Edith's survey". I thank that person, but I must clarify. The survey belongs to everyone. It doesn't matter who wrote it. It is an EVERYMAN property, and the reason it wasn't "copywrited" is because we want it to spread. Bless Mario. He asked me what I was looking for in the survey results. My response was and is PRECURSORS! I would like to see the survey in physicians' offices whether or not the surveys ever reach our data sheets. If enough dilligent medical professionals pay attention to and/or compare what their own patients' surveys indicate, who knows what miracles may occur! My neuro team agreed to look at our data sheets. Next month when I have my appointment, I'm taking copies of the survey with me. Should you wish to join me, I'd be willing to send fresh email copies, even use the US Postal Service where necessary as I have been doing. THIS IS A LABOR OF LOVE FOR A CAUSE AND PRAYERFULLY A CURE! Jorge and Bob, you are two medical professionals I respect and admire. I invite you to participate and to comment. Finally, in response to posts about hospital care and activism: It occurs to me that no one knows more about how we should be handled than we do. Since support groups are valued, accepted andrespected, what are the possibilities of support groups making contact with the PR officers of community hosptals to set up one or more "PD, etc., in hospital educational awareness sessions"? Such a meeting could be held where PDers, etc., meet and feel comfortable enough to share. Respectfully submitted, E of the headdress ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn