 |
 |
Ron, You're right - prayer IS a big help. Debra ----- Original Message ----- From: "RON HEIMBACK" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, March 10, 2002 10:17 PM Subject: Re: FIRST TIME USER > Hi Helen, > > First let me explain that I am the care giver, my wife is the > Parkie. I am 72 and she is 71. She has had Parkinsons for over 20 > years and until last year we were able to control this nasty disease > with meds. Sinemet, Comtan, and Permax along with much trial and error > with other Parkinson medication. As you know, no two Parkies react the > same so trial and error becomes a way of life. Fortunately we have had > Neuros who allowed and even encouraged us to experiment with different > meds. For the past year the on and offs have become erratic with > longer and longer off time. She has been taking this medication 5 or > more times per day. Her main problems are tremor and freezing when > she is off. Now days, sometimes the medication gives no relief even if > doubled. When she feels cold, I know that she is going into off mode. > We were very fortunate to discover the medical team at St. Johns > Hospital in Oxnard California and she is now scheduled for DBS next > week. We have high hopes for this operation as we have witnessed the > results. She was evaluated as a prime candidate for DBS. > Unfortunately, not all are able to qualify as there are many flavors of > Parkinsons. > I hope that this is useful to you and anyone else reading this > note. I posted to the list so more people can read about our experience > and perhaps gain from it. I offer this only as a statement of our > experience [we have a lot of that] and am not trying to give medical > advice. For the past several years I have surfed the net for any and > all information on Parkinsons and DBS. There is a great deal of > excellent information out there for anyone who is interested. > Prayer is also a big help, so believe it. > > Ron Heimback > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn