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parkinson's disease information exchange cross-posting: -------------------------- from: paula_w posted 03-14-2002 08:05 AM -------------------------- I just visited the PAN site again -- there is a lot to visit there - the new site is excellent. And I want to applaud the efforts to coordinate the forum, UDALL dinner, and FOX testimony - now a person can get their money's worth in airfare and learn much more about the process. http://parkinsonsaction.org/newsite/Events/Forum.htm ... paula edited to add now that meds have kicked in and brain is functioning - what a chance to show numbers in DC! -------------------------- from: lavenderlou posted 03-15-2002 06:53 PM -------------------------- Hey PAN? The cure is here ladies and gentlemen! Why don't we all support The cedar sinai study? You don't need our money? The cure does! So why don't you all work for free? Give all your money to the homeless, and be a real supporter ...after you are paid, the cure is next important? The best things in life, you can't buy.. So why raise millions, swankyy parties are BS,been to one too many of them.. Mother Teresa of Calcutta, worked because she repected people, at a very old age, she brought the homeless inside and cared for them, gave them clean clothes and let them die respectfully!! You dress up and talk tough, I would rather see a sermon than hear one anyday!! Ask yourselves this, if you made not a dime, but gave all the money directly to curing PD, etc...would you still have the will to work? why don't y'all volunteer? with true sincerity, love lavenderlou Success covers a multitude of blunders. -- George Bernard Shaw love Tena -------------------------- from: TerryBowers posted 03-16-2002 01:11 AM -------------------------- Boy Howdy - Ya'll caught me peepin'! I thought I was gonna come back to the forum - and lo and behold I have to read the following.... what a load of bull! I challenge this Lou lady to lead the way in her suggestion of service in poverty. Please PLEASE PUHLEEZE donate your computer and internet access to someone who will do some GOOD WITH IT! Delete my account, ban me, lock out my isp number.... make it impossible for me to come back here... sheesh! -------------------------- from: janet313313 posted 03-16-2002 03:36 AM -------------------------- i am of two or maybe more minds on this. i'm not crazy about swanky parties either. i'm not crazy about any public display or acknowledgement of beneficence. "hey look at me didn't i do good?" someone once said when giving charity do it anonymously so that the left hand does not know what the right hand is doing; his admonition is the source of the phrase. if it is true giving, it is done anonymously. giving to get is not giving. i know that pan has done incredible work for our cause with a will that the established pd orgs have not shown, driven by one of us = joan samuelson. she has been responsible for pulling us all into a unity not seen before at the grass roots level, and imho the udall bill would not have passed congress or been funded at all without her sense of urgency and her commitment inspiring others. i'm not keen on the idea of anyone "making money off my disease", but i am not sure how or where to draw the line here on my concept. my gp makes a living "off me" so does my neuro so does my pharmacist so does the occupational therapist consultant so does the paid staff at any pd org so does the author of any book about pd we fight for visibility the best way to achive that is through unity pulling each other up is the only way janet ps i give my life to service to pd "in poverty". i work for any aspect of the pd cause that i can, and i am limited to a disability pension of 645.00 cdn per month, and i am happy to be able to do it. -------------------------- janet paterson: an akinetic rigid subtype, albeit perky, parky pd: 55/41/37 cd: 55/44/43 tel: 613 256 8340 email: [log in to unmask] smail: 375 Country Street, Almonte, Ontario, Canada, K0A 1A0 a new voice: http://www.geocities.com/janet313/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn