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Dear Deborah, I am 54,been dx from 97 had signs form about 94. I to get through this with the grace of God, and love of a great family. I am now at a place where it is harder to do things, I use to run and do yoga to help keep muscles loose. Now I run some and with the warmer weather coming I will be able to that more, The yoga is out for it hurts my shoulder and my left hip. I did how every give this PD to God so he could use it for the best. I plan to read you story later today you and the rest are in my prayers. Love Janice ----- Original Message ----- From: Deborah Setzer <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, March 17, 2002 10:57 AM Subject: Re: Deep inside Deborah's Brain > Greg, > > The DBS worked! It was wonderful to be able to walk across the room without dragging my left leg behind me. It was so truly amazing, the relief that I found. The pain had gone, I slept at night. I can't wait for my appointment on Thursday with the neurologist, neurosurgeon and radiology for my 10th MRI. They will assess the damage that has been done and we will start plans for a bilateral DBS in a few months, after my immune system returns. > > I found courage through my faith. I believe that my having PD/MSA does not have to have anything to do with me. I believe that God has a purpose for me going through what I have and it is not for me to second guess him. I just have to put one foot in the front of the other and try to get through whatever challenges life might bring day by day. > > As important as that, is the support of my husband and the support that I have received from my online friends and PIEN. We cannot do this alone. I don't know how I would have made it when I have nose dived into depression without the understanding and kind words from other PWP's. > > I had seen so many things that others had done to raise public awareness, writing books, golf tournaments, fund raisers, etc. I felt that I had to do something so the photo site and the newspaper article is my contribution. > > Deborah aka Tenacity Wins > But for the Grace of God, Go I! > > From: Greg Sterling > Reply-To: Parkinson's Information Exchange Network > To: [log in to unmask] > Subject: Re: Deep inside Deborah's Brain > Date: Sun, 17 Mar 2002 13:24:53 -0500 > Deborah, > A truly amazing article and series of photographs. How did you ever summon > the courage to go through all that? I've had PD 14 years, and at 49 yrs. > old I can't see myself ever being able to submit to DBS, although I realize > the possibility is real. I hope you have a healthy, speedy recovery, and a > long full life. > Greg > 49/35/35 > -------Original Message------- > From: Parkinson's Information Exchange Network > Date: Sunday, March 17, 2002 08:07:29 > To: [log in to unmask] > Subject: Deep inside Deborah's Brain > Good Morning Everyone, > Well, Part 1/4 of my story is in today's Charlotte Observer. It was the > Cover story plus one full page in the first section. I hope that this > brings about a lot of public awareness for what it is like and the choices > we have to make because we have PD. > The story is available online but the online version does not have the > photo's, side-bars or additional info that the newspaper has. If you are > interested, it can be found at: > http://www.charlotte.com/mld/observer/news/ > and photo's of the DBS surgery can be found at: > http://community.webshots.com/user/tenacitywins > I would sincerely like to that this list for the support that you have > given me. > Deborah aka TenacityWins > But for the Grace of God, Go I! > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > -------------------------------------------------------------------------- ------ > Chat with friends online, try MSN Messenger: Click Here > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn