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Your experience is very educasional for many. Thanks for sharing. Emily ----- Original Message ----- From: "Deborah Setzer" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, March 26, 2002 9:23 AM Subject: Re: Milwaukee MDSs: my experiences > Katie, > > You have been through so much. My heart goes out to you and your > perseverance. You story shows how we need to educate ourselves as much as > possible so that our doctors make the fewest mistakes with us being the > victims. > > You are not alone in hoping it will all go away. After I was dx w/PD+ in > Sept. 2000, I found "the best" MSA doctor in the country. I made phone > calls, got an appointment, raised funds for the airline trip and hotel room > and went hoping for a miracle. What I received was a 45 minute interview > with a resident then 5 minutes with the doctor after waiting 1.5 hours for > my case to be reviewed. > > When the doctor came into the room, he asked me to walk, poked me a few > times, pushed and pulled on me to see if I would lose my balance and > "corrected" comments made by the resident. Then he calmly sat down, took my > hands and said,"I have some good news and some bad news. You do not have > MSA nor do you have PD. But you do have deeply rooted psychological > problems and you need to immediately go off all of your medication and see a > psychiatrist." With this, he picked up my file and left the room while > murmuring that I need not ever return. > > I thought about what he said and crazy defiantly was better than MSA or PD > so I did as he said. I went to a psychiatrist and went off my meds. Within > 6 weeks my symptoms were horrible. By 3 months, I had to have a sitter with > me 24 hours a day because I could not even move my head without assistance. > I called my neuro in Houston and the one in my home town. They put me back > on Sinemet and scolded me saying that I bought myself a good professor who > told me what I wanted to hear. They also said it was my denial that > contributed to this outcome and that I needed to learn to live with PD... > not give in to it but to learn to live with it. > > Anyway, if a doctor tells you something that doesn't seem quite right seek > another one or ask those on the list what they think. Too many of us have > had experiences like Katie. > > Deborah aka Tenacity Wins > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn