It's funny how I check my e mail everyday and see how my friends are
doing.... some are chatty, some are to the point, but I guess
my point is it's good to see all
the posts and "hear" all the voices of people who are like me.
I initially said that one of my goals was to get a support group
going.... it's harder than I thought. I put out about 150 flyers and
got zero call backs! This is an example of how the List can energize
you though; my next stop is the local paper and cable station. I
can't believe I'm the only Parkie out here in California!
Several people, when I listed my med list, expressed concern that I
might be overmedicated. I talked to my neurologist and although he
didn't recommend decreasing my Levadopa/Carbidopa load (100/25, 4x
daily,) he is looking at increasing my Requip (currently 1 mg, 3x
daily.) He also started me on 20 mg daily of Celexa (HBr) I don't
know if I should be worried about the Levadopa quantity at this time
(44 years old, 5 years into my dx) but if I miss a dose, whooo!!!
Shaky, feeling "weird," mask, slow movement... so maybe I am at the
dose I need, and I just need to put I with the side effects. The good
news is that I talked with my doc for about 50 minutes, and for the
first time in a long time I felt like he heard me... and
wasn't just telling me that he thought I looked "fine."
Lastly, I can't tell you how important it has been to share my fears
with my wife. For 4 years I shared with her my physical problems, but
I never shared how scared I was. Although the first week was rough,
we now seem closer than ever. We've always worked as a team, but now
we're "Team Parkie."
Scott
