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----- Original Message ----- From: "Carl & June" <[log in to unmask]> To: "Parkinson's Information Exchange Network" <[log in to unmask]> Sent: Monday, March 25, 2002 11:56 AM Subject: Re: Re: pregnancy with PD? LIFE! > Dear Fellow PWP's, I've been quietly sitting at my computer since joining > the PD family here on "listserv", reading and relating with the fears, > frustrations, guilts, and difficulties of coping with LIFE. Yes I know that > it's impossible to forget that with this LIFE we as a family have an added > dimension to cope with called PD. But this morning I'd like to focus not so > much on PD but on LIFE. What is LIFE, but a gift from God? We are aware that > LIFE brings death. We only have to be awake to realize this fact that > everyone has an unknown appointment with death. We don't like to spend our > days being reminded of this fact and I have come to the point where I think > that this is one of the symptoms of PD that is the hardest to medicate or > alleviate. > This morning I arose to several surprises. First was wondering why I > felt symptom free and the other question was why was it still so dark since > I could remember getting up to take my 6:00am meds? I remembered that I had > felt so tired that I had decided to return to bed instead of going to my > study to start my morning exercises. The answer? I had not slept much the > night before and I went to bed before my 10:30pm meds and dropped of to > sleep almost immediately. My wife then came to bed , turned of the lamp and > went to sleep, all before 10:30pm! Next my CADEX meds watch alarm went off > and I got up, stumbled to the kitchen thinking that it was 6:00am, and > without checking the time, took my morning meds, which included Mirapex and > went back to bed. Imagine my surprise, when I finally turned on my bed side > lamp and saw that it was 5:50 am and in spite of having taken Mirapex (a > sleep disrupter med) at 10:30pm, had slept surprisingly well! I still can't > answer why this morning I feel PD symptom free which brings me back the > "thought of the day". THANK GOD FOR LIFE'S BLESSINGS. > We are NOT robots even if we do look and walk like one sometimes in our > "off" times. We can choose to focus on the positive or the negative. True, > we can't ignore the obvious, ignore the ??s about the future, nor always > control depression without another pill, but we can choose to appreciate > today. It's hard to look in the mirror each day and see the proof of our > mortality gazing back at us. A PWP, as well as your children Becky, have the > same promise of LIFE. Each day is a gift from God. Every morning mercies > new.......Fall as fresh as morning dew......Every morning let us > pay......tribute with the early day......for Thy mercies, Lord are > sure;.......Thy compassion doth endure! > To the PD family and Becky in particular, choose LIFE! No one is > promised tomorrow, including your youngest child or a new born baby. Being > PWP makes us unique. You can ALWAYS note that there is a lot of suffering > and misfortune in this old sin cursed world. Be all you can and trust the > rest with God. Examples........39yr old brother in-law died of cancer, > leaving his children fatherless. Without a single doubt Becky, your child > will be more blessed to have a PD mother, than no mother at > all............my friend, who lost both of his legs in a tragic auto > accident as a young father, is now facing death from kidney failure, sugar > diabetes and high blood pressure. FACT....... We don't now the future or > what medical science will discover about PD. They may be close to > discovering a cure and yes it might be something that we can genetically > pass on to our children, but maybe, when it's all said and done, the cause > and cure may be something entirely different. We can't allow all of these > unknowns to rob us of LIFE. We had our three children, and they were all > married, before I was Dx'ed. Would we as a couple have denied ourselves > children if we had known? NOOOOOOO! Are we warning our children to not give > us grandchildren for fear of PD NOOOOOOOOOOO. We choose LIFE! PD takes > enough as it is,but I'm not planning on giving it the opportunity to destroy > my entire family and their futures. > I'm a 48 yr. gringo living in Puerto Rico. I'm being asked by my neuro > to start a support group on our end of the island. As of yet, I'm still > uncertain if I have the time for this. But I would welcome info and advice > on what it was like for some of you to start one. My neuro is offering to > assist me in getting started. His dad is one of his patients. > My sentiments might not be yours, if not please accept my apologies. The > joy of the Lord is my strength! I choose LIFE. > > Carl & June Hartman > P.O. Box 719 > Aņasco, PR 00610 > Ph. & Fax 787-826-0225 > the gringo pastor (does that answer any ??s) > > ----- Original Message ----- > From: "Becky Erickson" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, March 24, 2002 11:58 PM > Subject: Re: pregnancy with PD? > > > > Dear Jen, > > > > I am 39 y/o and have a just turned three year old. I had pd while > pregnant > > and felt the disease accelerated somewhat but pregnancy is only 9 months > and > > can be toughed out. The difficulty is in taking care of an energetic > child > > while dealing with the limitations pd places on me. I am not the mother > I'd > > like to be and yet this our second child adds dimensions to our family not > > there before.in a positive way. I do feel guilty about parenting with pd > > limitations and wonder about what is down the road but with a supportive > > spouse it can be done. In the US it was recommended to me to consult with > > Professor larry golbe 732-235-7729 or [log in to unmask] He is one of the > few > > pregnancy and parkinson specialists around. He is affiliated with Robert > Wood > > Johnson medical school in New Brunswick New Jersey. Also since there is a > > genetic component in my family I worry that I have passed the gene onto > them. > > However I figure that by the time they are old enough to get pd, a cure > will > > have been found. > > > > becky > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn