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Helen, I stumbled across Mirapex during particpation in a drug study. I took it for 4 yrs before knowing what iw s on.. My progression of decline was maintained very well but then again I seem to have a mildose ( whtaever that means) of "Parkinstein". If you wouldnt mind may i ask what you meant by not handling CR during the day. I am on 1 25/100 CR 3x's/day. i only know how I feel on it and it has been so long sinece i felt "normal" I am not sure what all I should acccept as acceptable. Thanks for any insight. ----- Original Message ----- From: "Helen Coleman" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, March 10, 2002 8:58 PM Subject: Re: FIRST TIME USER > Ron - Thank you so much for your prompt reply to my request. It was most > informative and very much like my experience with medication. I've been > given anything I requested but my miracle drug was Mirapex. I cannot > tolerate CR's in the daytime but take one 25/200 CR when I wake up at night > and it gets me going in the morning and lasts until mid or late morning > during which time I can move mountains. > Does your wife have dyskinesias? How did they evaluate her for the > DBS? > What makes her a prime candidate? Has pain been a problem for her ever? It > was never a factor for me - except for back pain from sitting too much and > from a back problem I've always had. I've found if I get out and keep as > busy as possible, I do much better. Please tell me exactly when her surgery > is as I'll surely be praying for her. Without the prayers of many people I > truly believe this situation would be much worse for me. My doctors have > always told me my attitude has been a major factor in my doing as well as > I've done and I know there is a reason for my illness. I shudder to think if > it had been reversed and I were the caregiver and hubby had PD. > We have been married almost 49 years and I am so grateful for him and his > care of me. His mother died when she had PD from a fall in 1968 before > l-dopa and I only wish we had understood her illness at the time. Her > medication made her think she was crazy. She suffered so much and we > couldn't do anything for her except finally find a good nursing home for her. > No one understood her ailment though and it was an answer to prayer when her > suffering was over. > May I ask you to tell me about her surgery when it is over? I live in > LaJolla but intend to go to Atlanta to see about surgery as we have a home in > the N.E. Georgia mountains and because we have Kaiser, if I chose to have > surgery here it would have to be in L.A. and I don't want to go there. We > have many friends in Atlanta and they all encourage us to go there. We fly > to Atlanta on the 22nd and I have a doctor appt. on the 25th to start the > procedure to find out if a DBS is what I need to do next. > helen > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn