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Olga, My husband could not breathe and was gasping for air prior to
Parkinson medication. He was having a high level of anxiety. He is not,
however, on any drugs now for anxiety. He is taking only Pergolide
(Permax) and this gasping for air has disappeared for now. Is your
Parkinson medication at the right level? Are you being looked after by
the movement specialist or only by the medical doctor? Your visiting
doctor did not seem to give you a peace of mind. Hope you get a more
information from the specialist as every person with Parkinson has a
different set of circumstances. You are on many other medications over
and above Parkinson, and supplements... All these would have to be
revaluated.Take care. Hope you feel better.
Emily
----- Original Message -----
From: "Olga Rónaky" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, April 14, 2002 4:09 PM
Subject: No enough breath


> Hi List fellows,
>
> I m not doing very well in the past few weeks, my ankle, hands, each
fingers, face , my whole body is still filled with water - and the new,
a stronger diureticum has helped me only for two weeks, and then the
whole thing began again. I also have strong pains in my limbs and in my
back and spinal column, in my fingers and  right shoulder. Maybe  my
arthritis and arthrosis bunrt into flames. Strong and frequent migraine
attacks make my days awful, and a new phenomenon "knocked my door": for
more than a week I have not been able to breath normally, sometimes I
felt I would suffocate in a minute, hardly I could speak at all - words
could not come out from my throat and chest. My voice was (and is)
similar to a man's voice who has a tube and microphone implant in his
throat. I had to stop speaking after every third or fourth word because
there was no more air and power in the chest and lungs. Speaking 4-5
sentences made me totally exhausted and tired, I perspired/sweated so
strongly from trying to press out the breath and words that I got wet
everywhere - my head, neck, whole body. Going to the restroom, having a
shower or  preparing the most simple food for myself or just going to
the kitchen to have a glass of water were also extremly exhausting
challenges. When my doc came to visit me she could hear nothing normal
but heavy gasping in my chest and lungs  and recognized  that the left
side of my throat/laryngeal did not move, seemed to be paralysed.
>  Adding up to my usual drugs ((4 x 100 mg Amantadine, 4 x .125 mg
Mirapex, 4 x 50 mg Verospiron (Spironolactonum -diureticum),2 x 10 mg
Anafranil 10 (clomipramin.hydrochl. - antidepressant), 4 x 0,5 mg
Rivotril (Clonazepamum, 3 x5 mg Ditropan (oxybutynin chloride, against
frequent and sudden urinating), 1 x 5 mg Concor 5 (bisoprololium
fumaricum and also Nitromint pill taking below my tongue when needed
because of my angina pectoris), and vitamins&supplements)) now I take 2
kinds of inhalating aerosol suspension, plus Diaphyllin (aminophylline)
pills, plus a special liquid mixture "composed" by the local
pulmonologist(?) and Pulmex ointment plus infrared lamp  to get some
relief.
>
> It is a real pleasure to me to inform you that I am still alive -
despite of the no-end-of-medicines and lack of breathing.
>
> Do you have any idea, advice, experience? Do you know what is it? My
doc thought that it was a NEW symptom of my PD...
> What to do? I'd like to breathe easily!
>
>  Olga
> PWP 49/47/40 and CG for my own
> Hungary
> [log in to unmask]
>
> **May peace of heart fill all your days, may serenity grace your
soul.**
>
> ----------------------------------------------------------------------
> To sign-off Parkinsn send a message to:
mailto:[log in to unmask]
> In the body of the message put: signoff parkinsn

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