Hi, folks, Just asking again if there a is any person from the Tulsa area who is reading this message who could help a Tulsa family with a hospitalized PWP. They have asked me to be the channel to pass to them a phone number of anyone who could help . Ivan Suzman 52/39/35 > > ------------------------------ > > Date: Tue, 16 Apr 2002 00:14:26 -0700 > From: Thomas Hunter <[log in to unmask]> > Subject: NEW > > I suppose that I should introduce myself. I am new to the list. I am > = > just looking to for some personal views about what people are going > = > through and what they think about Parkinsons and related info. I am > a = > young mother of 3 1/2 children. My husband and I recently moved in > with = > my father to help take care of him. He was diagnosed with > Parkinsons. He = > is now diagnosed with "Parkinsons Plus". I am doing the research = > routine but I wanted to get a personal view from people who actually > = > have to first hand opinions and knowledge of Parkinsons and > Parkinsons = > Plus.=20 > Thanks. V > > ------------------------------ > > Date: Tue, 16 Apr 2002 07:49:29 -0700 > From: "M.Schild" <[log in to unmask]> > Subject: Care list > > ESPECIALLY FOR NEW MEMBERS OF THE PIEN LIST, here's information > about CARE ! > > > CARE (Caregivers Are Really Essential) is a sublist of the main PD > list. It > is especially for caregivers (CGs) of Parkinsonians (PWPs). The > need for > such a list was evident from feelings expressed on the PD list that > there > are times when CGs need to be able to "let off steam" in a place > where they > will not upset their PWPs. Some of us have CareGiver support groups, > where > we can safely express feelings, get practical support, and share > experiences but some do not. The CARE list , as a "virtual support > group", > serves this need, but DOES NOT shut off the participation of CGs on > the > main list. > > > CGs who want to join CARE, where there is much less traffic than on > the > main list, may do so as follows: > > > Send in body of post (not on subject line) to: > [log in to unmask] > > > this command: subscribe CARE your full name > > > no signature, please. > > > You will be added to the list, and will receive further > instructions. > > > If you have problems, for CARE ask Camilla Flintermann > <[log in to unmask]> > or Jeff Jones (co-owner) > <[log in to unmask]> > ******************** > > > Camilla Flintermann, former CG for Peter 83/70/55 > Oxford, Ohio > <[log in to unmask]> > > > on the web at > http://www.geocities.com/camillahf/index.html > > "Ask me about the CARE list for Caregivers of > Parkinsonians ! " > And visit the CARE webring at http://www.pdcaregiver.org > > ------------------------------ > > Date: Tue, 16 Apr 2002 08:26:22 +0200 > From: =?iso-8859-2?Q?Olga_R=F3naky?= <[log in to unmask]> > Subject: Re: No enough breath > > Dear JoAnn, Pat, Emily, Debra and everybody who cared me in his/her > thoughts, > > - thanks for your caring words. Hans was so helpful that he > forwarded my > help-message to dr. Abe L. and the doc was so kind to answer my > questions > by return of post. > I've sent both Hans's and dr. Abe's hypothesis to my local doc, > hope she is > taking into account these theories and will discuss with my neuro. > > Though I take all the medicines given me getting some relief still I > cannot > breathe normally, nor am able to speak more than a few words and > only with > great difficulties. > > There was a question - the PARALYSES in my throat - not answered > by > anybody, but my doc was very anxious about it though she had no idea > what > was it and why was it, except if it could be a secondary, new > symptom to my > PD. So, any idea about THIS? > > I am not sure regarding the earlier posts but there is something in > the far > smoggy past, in my mind that some PWPs have a drain or tube in > their > throats. If it is so, why do they have these implants? > > TIA > > Olga > PWP 49/47/40 and CG for my own > Hungary > [log in to unmask] > > **May peace of heart fill all your days, may serenity grace your > soul.** > > ------------------------------ > > Date: Tue, 16 Apr 2002 01:57:03 -0700 > From: Charlotte Mancuso <[log in to unmask]> > Subject: PT. 2 of 2 > > PAN PUBLIC POLICY FORUM MAY 19th -- 21st > > The 8th annual PAN Public Policy Forum is commencing on May 19 and > continuing thru the 21st. On the 22nd Michael J. Fox will be testify > with > Joan Samuelson before the Senate Labor -- Health and Human Services > committee. There is still time to register for the forum, and this > year > generous donations have enabled PAN to offer to defray the costs of > travel and accommodations for those who need some help to get to > Washington. This year's emphasis will be on grassroots advocacy, and > in > addition there will be presentations by leading scientists from the > National Institutes of Health, the National Institute of > Environmental > Health, the Department of Defense, and leading universities > discussing > cutting edge research aimed at finding a cure for Parkinson's. > Having > attended the Forum in 2000, I can tell you that it is an invaluable > experience that will energize and motivate attendees while teaching > them > the skills and knowledge they will need as they make a difference at > home > and "On the Hill" in curing Parkinson's and other neurological > disorders. > Call PAN at 800 -- 850 -- 4726 and inquire about registration and > the PAN > scholarship fund to help make it possible for you to attend this > year's > Forum. > > COMING UP > > In the next few days the PAN California Grassroots Advocacy Network > will > be issuing a bulletin containing several exciting scientific > developments > which promise to impact directly upon the treatment of Parkinson's. > There > has never been more exciting time, both in science and in the area > patient advocacy for Parkinson's. If this email has been forwarded > to > you, and you are interested in becoming a part of this effort, or > you > would simply like to know what is happening on the cutting edges > concerning Parkinson's Disease, please send an mail address to me at > [log in to unmask] and indicate that you like to be included in > our > mailing list. Will be happy to send a blind copy to you, keeping > your > e-mail private as PAN uniforms the public. > > Greg Wasson -- State Coordinator -- PAN California Grassroots > Advocacy > Network > > phone and fax -- 707 -- 795 -- 7017. > > ------------------------------ > > Date: Tue, 16 Apr 2002 04:59:29 -0400 > From: janet paterson <[log in to unmask]> > Subject: JAMA: Parental Depression and Risk of Depression in > Offspring > > hi all > > this definitely applies to me. > i have deduced that my mother suffered from clinical depression (cd) > from 1955 to 1964, when she died of a heart ailment at age 50 > when i was 16. > her cd was unrecognised and untreated; even if she had had > treatment, > i wonder what it would have comprised. > we've come a long way, believe it or not, since 1964. > > janet > > ----------------------------------------------------------------------- > Parental Major Depression and the Risk of Depression > and Other Mental Disorders in Offspring: > A Prospective-Longitudinal Community Study > > Background: This article examines associations between DSM-IV > depressive > disorders, their natural course, other psychopathology, and parental > major > depression in a community sample of adolescents and young adults. > > Methods: Baseline and 4-year follow-up data were used from the > Early > Developmental Stages of Psychopathology Study, a > prospective-longitudinal > community study of adolescents and young adults. > > Results are based on 2427 subjects who completed the follow-up and > for whom > diagnostic information for both parents was available. DSM-IV mental > disorders in respondents were assessed using the Munich-Composite > International Diagnostic Interview. > > Information on depression in parents was collected as family history > information from the respondents and from diagnostic interviews with > parents of the younger cohort. > > Results: Offspring with 1 (odds ratio [OR], 2.7; 95% confidence > interval > [CI], 2.1-3.5) or 2 affected parents (OR, 3.0; 95% CI, 2.2-4.1) had > an > increased risk for depression. > > They also had a higher risk for substance use (1 parent affected: > OR, 1.4; > 95% CI, 1.1-1.7; both parents affected: OR, 1.4; 95% CI, 1.0-1.8) > and > anxiety disorders (1 parent affected: OR, 1.6; 95% CI, 1.3-1.9; both > parents affected: OR, 2.1; 95% CI, 1.6-2.8). > > There were no differences whether mother or father was affected. > Parental > depression was associated with an earlier onset and a more malignant > course > (severity, impairment, recurrence) of depressive disorders in > offspring. > > Conclusions: Major depression in parents increases the overall risk > in > offspring for onset of depressive and other mental disorders and > influences > patterns of the natural course of depression in the early stages of > manifestation. > > > Arch Gen Psychiatry. > 2002;59:365-374 > R Lieb, B Isensee, M Höfler, H Pfister, HU Wittchen > Technical University of Dresden, Dresden Germany. > Max Planck Institute of Psychiatry, 80804 Munich, Germany. > (e-mail:[log in to unmask]). > > 2002 American Medical Association. All rights reserved. > http://archpsyc.ama-assn.org/issues/v59n4/abs/yoa01030.html > > janet paterson: an akinetic rigid subtype, albeit perky, parky > pd: 55/41/37 cd: 55/44/43 tel: 613 256 8340 email: > [log in to unmask] > smail: 375 Country Street, Almonte, Ontario, Canada, K0A 1A0 > a new voice: http://www.geocities.com/janet313/ > > ------------------------------ > > Date: Tue, 16 Apr 2002 02:18:25 -0700 > From: Murray Charters <[log in to unmask]> > Subject: Re: e-mail address > > On 15 Apr 2002, at 16:43, Kaye Trott wrote: > > > Does anyone know Janet Reno's e - mail address and if she has a > webb > > site. > > > > http://renoforflorida.com/ > http://renoforflorida.com/contact.html (email, tel. snail mail, > etc.) > > cheers ... murray > > ------------------------------ > > Date: Tue, 16 Apr 2002 02:30:58 -0700 > From: Murray Charters <[log in to unmask]> > Subject: News/Views From The Newswire Apr. 15th. 2002 > > Good Morning All, > Due to extraordinary circumstances I've been devoting almost > every waking hour to my employer and ignoring the computer... > > So I thought I might pass off these quickie Google Beta NEWS > links.... as.... the overnight "News & Views".... from the on-line > media.... > > Pssst! Same one's as yesterday, but they update themselves! > AND... there's one more... scroll down... > > Parkinson's > http://news.google.com/news?q=parkinson&hl=en&sa=G&scoring=d > > Stem Cells > http://news.google.com/news?hl=en&scoring=d&q=%22stem+cell%22&btnG=Google +Search > > Cloning > http://news.google.com/news?hl=en&scoring=d&q=cloning&btnG=Google+Search > > <NEW> > PhRMA Genomics - A Global Resource > http://genomics.phrma.org/today/ > > Cheers ..... murray > > * * * > > soul.** > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ------------------------------ > > End of PARKINSN Digest - 15 Apr 2002 to 16 Apr 2002 - Special issue > (#2002-188) > ************************************************************************* ****** ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn