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You sound you have a very caring doctor. I do not know if you are getting a second opinion. You told us a lot about variety of situations you are in. I do not know if this particular doctor that you just saw is a general practitioner or a movement specialist. Some people I have heard of having MSA are strictly following a diet, very little protein. They say that diet is making them feel a little better. If your immune system gets stronger you might be able to fight infections. It was good to hear from you. Take care. Emily ----- Original Message ----- From: "Deborah Setzer" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, April 25, 2002 4:01 PM Subject: Snap, Crackle, Pop and Itch > Hi, > > I just got back from the doctor's office. I was told that my rash is > because of my PD+ (MSA), specifically that my immune system is not > functioning correctly. I was advised not to even go in our hot tub (which I > just got back into working order day before yesterday) or even a swimming > pool because I am likely to have a reaction to the chemicals in it. > > He also told me that my snap, crackle and popping is probably due to > osteoporosis but again, because of the other problems that I have, he did > not see the use in ordering a bone density test because regardless of the > results, he cannot put me on the medications available to fight it. He > reminded me that I am still unable to even take vitamins. > > He gently reminded me that the MSA is causing a lot of the different > major organ systems in my body to not work right. He is a very kind doctor. > He always spends a lot of time with me and answers any questions that I > have. He looked truly sad when he told me that he doesn't have any magic > answers. He ordered a number of blood tests (He wants to check my liver > function and current immune state among a list of other things) and > increased the dosing on 2 of my meds (famotadine & zyrtec) but is being very > cautious about adding any additional medications until after the blood work > comes back because he is afraid that I might get an even worse reaction. > > I talked to him about all of my left over medications and he is part of an > organization here in Charlotte that helps those who cannot afford meds. He > said if I brought him all of my unused medication the he can promise me that > it will get into the hands of someone who needs it legally. Maybe others of > you have such organizations in your area both for donating meds and > receiving them. It's worth a call to your doctors to find out. > > I don't know why, by now, I haven't figured out when I go to the doctor > they are not going to give me some magic pill that will make me well. > Because of the botched DBS and the resulting infections that I had earlier > this year, they cannot even give me anything to "make me more comfortable." > Taking 1 darvocette for the pain 3 weeks ago necessitated me going back on > steroids for a week. > > I'm glad ya'll are here. I have to admit something to all of you so that > I can have the courage to face it myself. I won't be able to have the DBS > redone for my PD+ (MSA.) I was scheduled for July 10 (penciled in) but the > reality is that the MSA is progressing, I'm not getting better. Harder than > that to face is that I'm not even over what my body went through from the > brain infection in January, no bad how much I want to be. Reality is if I > can't even take a darvocette...I would never live through the general > anesthesia for the DBS. > > Once again, I find myself back to that point of having to accept that this > is as good as it is going to get and I'm going to have to deal with it and > be thankful for what I can do and what I have done. (Denial is so much more > fun than reality)! > > Deborah > aka Tenacity > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn