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Becky I get everyone's posts in my email except my own. I haven't bothered checking it out. I am sure there is a reason like some box not checked off. Original Message ----- From: "REBECCA DILLAHUNTY" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, April 26, 2002 4:19 AM Subject: Re: Snap, Crackle, Pop and Itch > Somehow I get the messages from Bonnie Clay Riley but no one else from the list.Any solutions for this??? I am subcribed as Rebecca Dillahunty. > Thank you ,Becky > > ----- Original Message ----- > From: Bonnie Clay Riley > Sent: Thursday, April 25, 2002 4:47 PM > To: [log in to unmask] > Subject: Re: Snap, Crackle, Pop and Itch > > Deb, reality sucks. I have no words that could possibility express my hope > for you. I have this ancient Irish prayer written down. This is for you. > > Deep peace of the running wave to you > Deep peace of the flowing air to you > Deep peace of the quiet earth to you > Deep peace, deep peace > > Bonnie > > ----- Original Message ----- > From: "Deborah Setzer" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, April 25, 2002 1:01 PM > Subject: Snap, Crackle, Pop and Itch > > > > Hi, > > > > I just got back from the doctor's office. I was told that my rash is > > because of my PD+ (MSA), specifically that my immune system is not > > functioning correctly. I was advised not to even go in our hot tub (which > I > > just got back into working order day before yesterday) or even a swimming > > pool because I am likely to have a reaction to the chemicals in it. > > > > He also told me that my snap, crackle and popping is probably due to > > osteoporosis but again, because of the other problems that I have, he did > > not see the use in ordering a bone density test because regardless of the > > results, he cannot put me on the medications available to fight it. He > > reminded me that I am still unable to even take vitamins. > > > > He gently reminded me that the MSA is causing a lot of the different > > major organ systems in my body to not work right. He is a very kind > doctor. > > He always spends a lot of time with me and answers any questions that I > > have. He looked truly sad when he told me that he doesn't have any magic > > answers. He ordered a number of blood tests (He wants to check my liver > > function and current immune state among a list of other things) and > > increased the dosing on 2 of my meds (famotadine & zyrtec) but is being > very > > cautious about adding any additional medications until after the blood > work > > comes back because he is afraid that I might get an even worse reaction. > > > > I talked to him about all of my left over medications and he is part of > an > > organization here in Charlotte that helps those who cannot afford meds. > He > > said if I brought him all of my unused medication the he can promise me > that > > it will get into the hands of someone who needs it legally. Maybe others > of > > you have such organizations in your area both for donating meds and > > receiving them. It's worth a call to your doctors to find out. > > > > I don't know why, by now, I haven't figured out when I go to the doctor > > they are not going to give me some magic pill that will make me well. > > Because of the botched DBS and the resulting infections that I had earlier > > this year, they cannot even give me anything to "make me more > comfortable." > > Taking 1 darvocette for the pain 3 weeks ago necessitated me going back on > > steroids for a week. > > > > I'm glad ya'll are here. I have to admit something to all of you so > that > > I can have the courage to face it myself. I won't be able to have the DBS > > redone for my PD+ (MSA.) I was scheduled for July 10 (penciled in) but > the > > reality is that the MSA is progressing, I'm not getting better. Harder > than > > that to face is that I'm not even over what my body went through from the > > brain infection in January, no bad how much I want to be. Reality is if I > > can't even take a darvocette...I would never live through the general > > anesthesia for the DBS. > > > > Once again, I find myself back to that point of having to accept that > this > > is as good as it is going to get and I'm going to have to deal with it and > > be thankful for what I can do and what I have done. (Denial is so much > more > > fun than reality)! > > > > Deborah > > aka Tenacity > > > > _________________________________________________________________ > > Join the world's largest e-mail service with MSN Hotmail. > > http://www.hotmail.com > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsnGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn