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Hi Deb If this is a test you should have passed by now! I hope with support from others within the PD community the sun will shine on you again and you will have the wind at your back. You have been so generous in sharing what you have been going through and that alone speaks for your spirit. You also have one heck of a husband who appears to try and walk in your moccasins. Good luck. Did you see our photo snaps on Tom's Young Parkinsons site? He has a very generous spirit and has accomplished so much in such a short time. Something like you. Bonnie ----- Original Message ----- From: "Deborah Setzer" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, May 02, 2002 1:26 PM Subject: Any Ideas > Hi Everyone, Maybe someone can help me help the doctors figure this one out. > > I am miserable. I am back in the hospital again with a rash covering my > body head to toe. I burn and itch. My skin is bright red. My fingernails > have almost no color. My muscles hurt and the joints in my body feel like I > have been hit with a baseball bat every time I move anything. > > So far, CAT scan is normal, chest x-ray is normal, white blood cell count > is normal. glucose level is high, iron level low, cholesterol is high. I > have been running a temperature up to 103 degrees though my normal temp is > 97.4 The infectious disease specialist almost went rounds with Robert this > morning when he told Robert that I couldn't have a normal temp of 97.4 and > that he goes by the standard and 101 is low grade no matter what we think my > normal temp is. > > Strep culture came back normal. > > What should we do? We have an internest and infectious disease doc that > has showed up. We have been waiting for 2 days for the dermatologist and > neurologist and rhumatologist to show up. This is the 3ed out break of this > rash since February. We are at a loss to all of this an I am sick of > hurting and itching and being the receipent of any more "I really don't > know's" from the docs. Surely there is something that they can do to > figure this out! Today marks my 4th hospitalization and my 27th day in the > hospital since Dec. 20. Enough is enough. > > Deborah > aka Tenacity > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn