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Two Parkinsons charities causing confusion
Last Updated Fri, 24 May 2002 16:54:45

OTTAWA - The Parkinson Society says it's alarmed by a similar-
sounding charity going door-to-door collecting donations.

Parkinson's Disease is a degenerative illness characterized
by tremors, stiffness, slowness of movement and difficulty
with balance.

The disease affects 100,000 Canadians, including actor
Michael J. Fox. Fox has gone public with his battle against
the disease and has helped raise awareness — and money
— in Canada and the United States.

But now, there are questions about where that money is going.
The Parkinson Society has received hundreds of calls from
confused people who were canvassed by another charity with
a similar sounding name.

"People felt the canvassers were misinformed about
Parkinson's and didn't know what they were talking about,"
says Mary Jardine of the Parkinson Society of Canada.
"Donors who have contributed to our organization began
getting confused."

The other charity is called The Parkinson's Support
and Research Society. Much of the information on its
Web site is copied word for word from an Ottawa
Parkinson Society Web site. The brochure has also
been heavily plagiarized.

According to government documents, the new charity
is run from Bedford, N.S. by David Waldron and his
daughter Kimberley. Like many start-up charities,
it has a contract with a fundraising company, which
organizes door-to-door canvassing. The fundraising
company also takes a cut of whatever is collected.

By doing it this way, smaller charities have an
appearance of running a national program.

The pamphlet produced by the Parkinson's Support
and Research Society gives the impression it has an
Ontario office, but the address is for the fundraising
company.

"We have some concerns because this organization
claims it's primary reason for being is to find a cause
and cure for Parkinson's," says Jardine.

"No one in the Parkinson's research community
is familiar with this organization and we can't get any
answers about what research they are supporting."

Calls to the new charity have not been returned.

Officials at the Parkinson Society say they do not
collect money door-to-door and say they want Canadians
to understand just who they are giving their donations to.

Written by CBC News Online staff

SOURCE: CBC
http://www.cbc.ca/stories/2002/05/24/Consumers/Parkinsons_020524

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