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Thanks for your encourging words. My wife was also very physically active before and cannot understand why her body is deserting her. I relay your wife's expierence to her. My best to you and your family. I'll keep you posted. -- David > Hi, David -- > > My wife was diagnosed on March 20th of this year, about 14 weeks ago. > She had been feeling out of sorts for about 2 1/2 years and had gone to > many doctors, including several neurologists, all of whom were unable to > tell her what was wrong with her. We finally found an excellent MDS who > diagnosed PD pretty much right away. My wife is 45. We have 3 kids, > ages 16, 14, and 11. > > My wife wasn't sure whether to feel good that they finally found out > what was wrong or terrified because of what lay ahead. So, she felt > both simultaneously. The doctor started her on Mirapex right away > because she was having real difficulty walking and coordinating by then > and also feeling very frustrated. Before we were married, she was an > aerobics instructor and personal trainer and has always focused on > staying fit. So her inability to have the stamina for her customary > vigorous workouts was very disconcerting. > > Anyway, she started on a very low dose, 1/2 of a .125 mg tablet three > times a day. Cutting those teeny little suckers is not easy! Then, she > went up every three days. After about three weeks, she magically > started to feel much better and has been feeling better. About three > weeks, she went for her second appointment, feeling about 85% back to > normal. The doctor decided to increase the dose slowly again. Now, she > goes up every week until she hits 1.5 mg 3x/day. Hopefully, she'll be > back at 100% by then! > > Even now, she can resume her regular pre-PD workout which has given her > a tremendous psychological boost. > > A friend described the disease as descending down a flight of stairs. > You're okay for awhile and then you get worse for awhile and then you're > okay for awhile and so on. How long you stay on the stair and how fast > you descend the stairs is very individual, which is why PD is sometimes > called a "designed disease". > > So far, my wife has steadily improved since diagnosis and I hope it > stays that way. There are lots of excellent books and groups out there. > > Feel free to ask any specific questions her on the list or privately. > > Good luck! > > Gary > > > -----Original Message----- > > From: Parkinson's Information Exchange Network > > [mailto:[log in to unmask]] On Behalf Of David Held > > Sent: Wednesday, May 29, 2002 2:54 PM > > To: [log in to unmask] > > Subject: > > > > > > Hello to all. I am a new member to the list and I'm new > > to the role of Care Giver. My wife, who is 44, was just > > diagnosed with PD. She has just started Mirapex. We have 2 > > small children and my wife is freaking out that she will be > > unable to care for them in a few years. In my readings to > > date, I have not seen any info regarding the rate of the > > disease, how well the symtoms are suppressed via medications. > > > > We meet with the doctor next week to answer questions, > > so I'd like to be as informed going in as I can. I've > > looked at the major PD websites. I have read that > > delaying taking Sinomet as long as possible is a good > > way to go. Any help would be appreciated. > > -- > > David > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn