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[cross-posted from mgh pd forum] hi all on 05-29-2002 10:50 AM paula wrote, in part: >This time it isn’t going to work. For 2 years, >I have relied upon and contributed to this forum, >and believe completely in its potential. As the >orgs and researchers have their problems behind >closed doors (something tells me its not always >peaceful with that many credentials going head to >head -not to mention the DC scene Lord have mercy), >we have publicly chronicled the patient view right >here. >At first I was upset with Greg. I thought -there >are much bigger problems than having a congratulatory >thread ruined. You are deserting. But I have seriously >rethought that, and the reason I changed my mind is >simple – I’m tired. >I’ve been tired since I got back – seriously fatigued. I can’t rebound. The other nite I got an >email from Greg – gracious as always – and he said >– “I’m tired”. I rethought after that and realized >the damage that’s being done over and over here. >I can’t defend it any longer ... >Tena, I leave you to your salad recipes, > Thelma, stop agitating – you tried consistently to >deflate our balloons the entire time we planned our >advocacy trip. These people are ill and you take >advantage. Exactly who’s side are you on? Have fun >with that question. >Back to Tena – how old are you now anyway? How long >till you become a woman? When your little girl grows >up – let me know. Don’t forget to offer everyone >some jello and brush your teeth before you go to >bed. >The people here are so tolerant – takes awhile to >realize you are a sitting duck. Clognition. funny, [not funny haha] isn't it? i was going to respond to this yesterday but i was too tired to do it justice and lo and behold today the PARKINSN listserv received another example [albeit from a whole nother personality and in a whole nother style] of exactly the kind of non-supportive attempt at 'deflation' that paula mentions in her heart-felt and eloquently expresssed frustation and disappointment and anger parkies have been given a truly complex and demanding test theoretically we have a condition categorised as a "movement disorder" but as the medical evidence piles up even higher recently as it has been piling up for years it is more and more clear to me that we have to learn to deal with a "mood/movement" combo plate the early word was that parkies are more 'susceptible' to emotions and to 'tearing up' at the drop of a labile hat that between 40% and 60% of us also have clinical depression has been rarely acknowledged let alone dealt with until recently our brain chemistry is not only dopamine-challenged but per recent news is also probably serotonin-challenged which means that two, not one, of the neurotranmitters normally produced by our own bodies have run amok dopamine is critical for enabling normal movement but it is also 'the feel-good' chemical, and is associated with emotional responses to rewards, risks, addictions ... and serotonin levels are the main determinant for clinical depression's strangle-hold, nay, smothering of our ability to enjoy life and all it offers so being a parky means not only exposing one's physical vulnerabilities to the world [that is, if we are not captive in an isolation made of our own fear and shame) but also learning to acknowledge emotional vulnerabilities in a world that has brainwashed itself into believing that emotions (especially those pesky negative ones) are intolerable signs of weakness and inadmissable evidence of 'mental illness' it's tough admitting to hurt feelings it's even tougher once past that hurdle of acknowledgement to entertain the idea that those same feelings may be 'bogus' in the sense that our cognitive abilities may be impaired due to our bio-neuro-chemical turmoil as a movement disordered human bean i have to deal with changes in my physical symptoms or suffer the consequences i.e. on/off, side-effects, etc as a mood disordered human bean i do believe that the same principle applies we have been given a physical and an emotional challenge pass this one and we get a double-degree from the universal university everyone has to learn this stuff eventually we've just been put into the fast-track oops or maybe the slow-track? stream janet emotions R us ps not to mention that the fifth primary symptom of pd after tremor, slowness of movement, rigidity, and balance problems, is FATIGUE pps the ultimate in emotional maturity and general wisdom has been described as being able to read or hear any idea or thought expressed by another and not be 'made' to feel any emotion 'involuntarily' as a result unless and until we choose to janet paterson: an akinetic rigid subtype, albeit primarily perky, parky pd: 55/41/37 cd: 55/44/43 tel: 613 256 8340 email: [log in to unmask] smail: 375 Country Street, Almonte, Ontario, Canada, K0A 1A0 a new voice website: http://www.geocities.com/janet313/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn