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Shake, Rattle & Roll for Parkinson's Disease ----- There are places I'll remember All my life though some have changed Some forever not for better Some have gone and some remain All these places have their moments With lovers and friends I still can recall Some are dead and some are living In my life I've loved them all But of all these friends and lovers There is no one compares with you And these memories lose their meaning When I think of love as something new Though I know I'll never lose affection For people and things that went before I know I'll often stop and think about them In my life I love you more John Lennon & Paul McCartney ----- I think that this song just about says it all - although I will never forget the friends and experiences that have brought me to this point in my life - it's the bonds that I have forged with my "Parkie" friends that mean the most to me now. I think that is because when I'm surrounded by others who carry on the same battle that I do, I can really relax and know that my situation is far from unique and how good it feels to be one of the family of PWP'S. On Saturday, May 25 and Sunday May 26, we held our first "Shake, Rattle & Roll for Parkinson's Disease". "We" includes my friend and partner in crime, Holly Angus, proprietor Pat Sullivan of "Le Vieux Carre" in downtown Peoria, plus the countless others who helped with their time, treasure and talent to help pull of our most successful PD event. Saturday began with a symposium presented by the on-line support group, PLWP.org. This was our second year presenting this round-table discussion involving Ph.D medical researchers, neurosurgeons, neurologists, and people who live with PD. Named "PATIENTS AS PROVIDERS", this program was held at the University of Illinois College of Medicine in Peoria, Illinois. This year's program included presentations by Dr. Richard Weber, Ph.D (Associate Professor of Immunopharmacology and Microbiology) who spoke on "Parkinson's: The Present and the Future", and Dr. Richard Lister, M.D. (Associate Dean for Strategic Planning and Development) whose speech was entitled "Our Vision: A Center of Excellence". We also heard from Carol Walton, Executive Director of the Parkinson Alliance about how close we are coming to finding better treatments and eventually a way to cure PD. The audience participation in the question and answer/discussion part of the program was wonderful and intelligent questions were asked of all three of our participating doctors: Dr. Rick Weber, Dr. Patrick Tracey (neurosurgeon), and Dr. Jai Kumar (neurologist). All agreed that this excellent program was a success. Then, our group went out to St. Edward School Gym to enjoy a time of camaraderie and friendship as we attended our "Parkie Picnic". We celebrated the upcoming marriage of Tom Kelly and Tami McNamera and the birthdays of Laura Dean (Harley), Ann Campbell (AJ) and Dr. Rick. On Sunday morning, bright and early, we were all downtown Peoria at "Le Vieux Carre", a wonderful, 100 year old building that has been restored by Pat Sullivan to resemble the French Quarter buildings in New Orleans. This lovely building was covered in back and red balloons and set up with a variety of tables: food, registration, welcome, raffle, and prizes, and did I mention food ?? The food was all donated. We were treated to a wonderful and sumptuous spread including some of the best pastries and breads, fresh fruit and pasta. The weather was perfect-breezy and just warm enough and the crowd was wonderful: considerate and happy and truly committed to the cause. We had over 200 walkers and cleared (we hope this is in the ballpark) $15,000. Amidst balloons and jazz music, everyone listened for their number to be called out to win a myriad of prizes ranging from $250 sunglasses donated from Maui Jim (Toad - you're too sexy for words in those shades!!), to an overnight stay at the downtown Holiday Inn City Centre with dinner for 2 at Jim's Downtown Steakhouse, a horse-drawn carriage ride, to books by Michael J. Fox, A.J. Campbell and Carol Hurcon from the PD listserv, and handmade Raggedy Anne & Andy dolls made by PLWP member Jane Ross. It was all over much too soon. My especial thanks go out to Carol Walton of the Parkinson Alliance & the Tuchman Foundation for their kind support and help - always; to Nan Abraham & Brenda Tucker of PLWP, and to all those who made the trip here. Thanks also to my family, friends and sponsors - you made it work!!!! ------------------ "Hang tough ... no way thru it but to do it." Chris-in-the-morning on Northern Exposure Jes aka Joan Blessington Snyder http://www.geocities.com/joanbsnyder/ janet paterson: an akinetic rigid subtype, albeit primarily perky, parky pd: 55/41/37 cd: 55/44/43 tel: 613 256 8340 email: [log in to unmask] smail: 375 Country Street, Almonte, Ontario, Canada, K0A 1A0 a new voice website: http://www.geocities.com/janet313/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn