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Raj, I hope this works for you. Please let us know if glutathione will work for you over a period of time. There is no evidence that this supplement would retard PD. There is a safety issue if you take more than maximum. I do not know what would be the side effects. I suggest that you would be under the care of preventive medicine doctor (in private clinics) to monitor the situation. I met a Parkinson patient in the Wellness clinic in Toronto, Ontario. You have one life to live and be careful not to be "sucked in". Also when people are desperate they try anything, and this can lead into a "danger zone". I hope we hear from doctors on this List. Take care. Emily ----- Original Message ----- From: "Brightline" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, June 06, 2002 10:02 PM Subject: Raj/glutathione > Emily: > I am sorry to hear that your friend also did not have a good response > from iv glutahione. And you tell me that oral administration does not > yield good results due to absorption problem. Can one try higher doses if it > is just a problem of absorption? > If you see my response to Ervin, so far (only about 10 days), I am > having relatively satisfactory effect from Glutathione orally taken. I > shall watch myself carefully for another three to four weeks and let you > know. I also do not expect complete cure from glutathione. I am hoping > that with the reduction in the severity of the symptoms (if it persists for > longer duration) , there shall be an added benefit of retardation in the > progression of PD. > Raj > [log in to unmask] > ********** > ----- Original Message ----- > From: "Emily and Julian Brinac" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, June 06, 2002 7:10 PM > Subject: Re: Raj/glutathione > > > > Erwin, > > I also met a person that was taking glutathione intravenously. This did > > not do anything for him either. This person was taking it for 2 years > > without any other Parkinson drugs. He was devastated. I wrote about this > > experience previously. From all the research I have done on the subject, > > if this is taken orally, the impact would be even less as gluthatione > > does not absorb very well orally. Some people may experience placebo > > from different supplements for a while. I do not want to discourage > > anybody from trying. > > Emily > > ----- Original Message ----- > > From: "Ervin McCarthy" <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Thursday, June 06, 2002 7:10 PM > > Subject: Re: Raj/glutathione > > > > > > > Raj: > > > Being you mentioned Dr. Perlmutter, I was a patient of his during the > > winter > > > months that I spent in Florida. He seemed to be very knowledgeable > > Dr. > > > three months ago I started on Glutathione here in Michigan. I took > > the > > > intravenous injections twice a week for six weeks without a positive > > effect. > > > I guess I'm one of the unfortunate ones. > > > It sounds like your taking good care of yourself, by your regimen. > > Keep up > > > the good work. > > > > > > Ervin McCarthy > > > ----- Original Message ----- > > > From: "Brightline" <[log in to unmask]> > > > To: <[log in to unmask]> > > > Sent: Tuesday, June 04, 2002 4:33 PM > > > Subject: Raj/glutathione > > > > > > > > > > Hi! Ervin & Rayilyn: > > > > I have never tried Sinemet, eventhough I have a prescrition for > > it. I > > > > am sure it will be of help, based on the nearly 30 years of > > experience > > > with > > > > levodopa. However, I am still reluctant to try it due to its mile > > long > > > list > > > > of side effects, (however low freqnuency of occurrence they might > > be) and > > > am > > > > keeping it handy as a last resort. I may not be surprised if for > > some > > > > people it does not work. Even in the NPF info it states that L-dopa > > has > > > > been shown to be harmful to dopamine producing cells in vitro and in > > vivio > > > > in animal studies. It states that L-dopa may or may not be > > beneficial! > > > > But, both Dr. AH Rajput and Dr. Jancovics believe, however, it is > > not > > > > harmful to humans. This is supported by the fact that since the > > > > introduction of L-dopa or sinemet, people with PD have been living > > longer. > > > > In the article by Dr. Perlmuter, it says that both dopmine and > > > > glutathione are low in PD patients. For some reason L-dopa > > application > > > has > > > > caught up and the fate of glutatione deficiency has been left > > hanging in > > > the > > > > air. I have been taking glutathione - reduced for the last week or > > so. I > > > > definitely feel some improvement in my condition, good enough to > > postpone > > > > taking sinement. I do not know how to quantitate my results. I am > > not > > > sure > > > > how long this beneficial effect will last. I would like to know > > your > > > > experience with Glutathione. One should not expect miracles, since > > > whatever > > > > is lost is lost for ever. I only hope this will slow down the > > prgression > > > of > > > > PD, as evidencd by decrease in and not total elimnation of the > > symptoms of > > > > PD. > > > > > > > > First thing in the morning I take a cup of greentea with a > > tablespoon > > > of > > > > honey with no milk or sugar. Some times I include about 25-50 mg > > of > > > > caffeine pill along with my tea. > > > > I am taking glutathione along with phosphatydilserine, B6, B12, > > > Folate, > > > > Vitamin E and about 1/3 pill of multivitamain (senior edition with > > less > > > > amount of iron) every day in the morning just before breakfast. > > > > My breakfast consists of bran flakes, about 12 fresh almonds, a > > pinch > > > > of peeled pumpkin seeds (for my prostate problems), and a spoon full > > of > > > > powdered flax seed; this also includes one cup of a fruit juice > > cocktail > > > > (1:1 mix of orange and tomato juices with a small amount of blue > > berry > > > > juice). > > > > (I am a little bit uncertain about the benefit of blue berry or > > bb > > > juice > > > > for PD patients, since aluminum sulfate is used as a fertlizer for > > blue > > > > berry plants. Aluminum has been implicated in PD and in > > Alzheimer's. > > > Does > > > > anybody know the aluminum content of blue berries? So do I with > > regard to > > > > commercial yogurts. In 1960s and 70s, the preservative in > > commercial > > > > yogurt called MSG or monosodium glutamate [also earlier used in > > Chinese > > > > cooking] has been a contentious issue since in animal studies this > > caused > > > > serious nervous system disorders. Some yogurt products still state > > 1-2% > > > MG > > > > on their stickers. I often wonder is MG is the same as MSG!) Sorry > > for > > > > being paranoid. It is better to be careful, than feeling sorry > > later. > > > > > > > > For lunch and supper, I take pretty much anything, except that I > > make > > > > sure to take a good dose of fresh vegetables and fruits. > > > > Of course, I also include at least 20-30 min of exercise every > > > morning. > > > > > > > > There is no guarantee that what might seem to work for me may > > work for > > > > everybody, since as you well know, PD is a personalized disease, > > often > > > with > > > > comomn symptoms that show up at variable rate and similarly, the > > resonse > > > to > > > > any drug is also variable between individals. YOU SHOULD DEFINIELY > > > CONSULT > > > > WITH YOR DOCTOR ON ANYTHING YOU TAKE OR DO FOR YOUR PD. > > > > > > > > QUESTION: > > > > If both dopamine and glutathione are low in PD patients, I would > > ask > > > > myself if it would make sense to take glutathione in addition to > > sinemet. > > > > BUT, I DON'T HAVE THE ANSWER FOR THIS QUESTION. SO PLEASE DO > > NOT TRY. > > > > SOME TIMES, THERE COULD BE UNFORSEEN HARMFUL EFFECTS IF TWO DRUGS > > ARE > > > > COMBINED. > > > > GOOD EXAMPLE: A CLINICAL TRIAL WAS STOPPED HALFWAY IN ENGLAND > > > RECENTLY > > > > SINCE IT INCREASED MORTALITY RATE AMONG THE GROUP OF PD PATIENTS > > THAT WERE > > > > GIVEN L-DOPA (SINEMET?) AND SELGELINE! > > > > > > > > > > > > Raj > > > > [log in to unmask] > > > > ----- Original Message ----- > > > > From: "Ervin McCarthy" <[log in to unmask]> > > > > To: <[log in to unmask]> > > > > Sent: Tuesday, June 04, 2002 9:33 PM > > > > Subject: Re: Raj/glutathione > > > > > > > > > > > > > Rayilyn, I have gotten the same results from Sinemet on three > > occasions. > > > > I > > > > > was curious if anyone else had the same results. Now I know. > > Thank > > > you. > > > > > Ervin McCarthy > > > > > ----- Original Message ----- > > > > > From: "Rayilyn Brown" <[log in to unmask]> > > > > > To: <[log in to unmask]> > > > > > Sent: Monday, June 03, 2002 9:39 PM > > > > > Subject: Re: Raj/glutathione > > > > > > > > > > > > > > > > Raj, Thanks for the info on glutathione...that it is a small > > > molecule. > > > > > I'm > > > > > > going to try the oral glutathione first, before intravenous. > > Sinemet > > > > > never > > > > > > helped me much and after a year made dystonia in my feet > > unbearable. > > > > > I''ve > > > > > > tried it again 3 times with same result. Rayilyn > > > > > > > > > > > > > > ---------------------------------------------------------------------- > > > > > > To sign-off Parkinsn send a message to: > > > > > mailto:[log in to unmask] > > > > > > In the body of the message put: signoff parkinsn > > > > > > > > > > > > ---------------------------------------------------------------------- > > > > > To sign-off Parkinsn send a message to: > > > > mailto:[log in to unmask] > > > > > In the body of the message put: signoff parkinsn > > > > > > > > > > > > > > > ---------------------------------------------------------------------- > > > > To sign-off Parkinsn send a message to: > > > mailto:[log in to unmask] > > > > In the body of the message put: signoff parkinsn > > > > > > ---------------------------------------------------------------------- > > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn