Hi! Sherry:
Please check out the Parkinson's Club in Huntington Beech, CA. I
understand that this was started in 2001 by a Parkinson's Patient from the
East. Apparently, they have a very good exercise program that is showing
good recovery even on people who had PD for 15 years and are highly
disabled and immobile. They also have a herbal medicine that helps PD
patients. There was a short program about this institute in the TV
yesterday.
Don't give up. It is very important that you always should have faith
in yourself. I go by the motto which is actualy the title of the book by
Dr. Lieberman of NPF in Florida : "SHAKING UP PARKINSONS. FIGHTING LIKE A
TIGER AND THINKING LIKE A FOX"
Attitude is all that matters. Otherwise life will apear more miserable
than it really is.
Wish you all the best.
Raj
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***********
----- Original Message -----
From: "Sherry Santamaria" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, June 10, 2002 11:12 PM
Subject: New to list
> Hello all,
> I have had PD for 9 years, started when I was 38 (after a bad fall hitting
> the back of my head.) About 5 years ago I developed PD related dystonia
in
> my legs and feet, VERY painful cramping. I have been on several
medications
> the last being Mirapex all of which made me SICK so I don't take them any
> more. I'm saving sinemet for a last resort. I have tried acupuncture
which
> helped the dystonia in the beginning but after a while the needles and
> electric current just irritated my system. I have decided to fight this
> disease in my own way with exercise, nutrition, and alternative therapies.
I
> am investigating the possibilities of glutithione, fava beans, etc. as
future
> options. I did find that kava kava helped the dystonia but it is bad for
> parkys because it blocks the dopamine receptors. If anyone out there has
any
> info on alternative therapies I would love to hear from you.
>
> Thanks and God Bless!
> Sherry ([log in to unmask])
>
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