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In a message dated 6/12/2002 6:40:07 PM Eastern Daylight Time,
[log in to unmask] writes:


> I
> am not sure, at this point, how much of my discomfort is from the medication
> and how much is from PD but I have not reached the point that I have decided
> to discontinue the Requip.  The lack of any proven, effective treatment,
> other than the agonists and/or Sinemet, leaves us with little or no choice.
> I am wondering (after 9 years with PD) how you are managing to function
> without medication.

Dear Dee,
I can only speak for myself of course but after 9 years of  NOT taking
Parkinsons medication I am doing well.  My most annoying symptoms are the
tremor in my right arm and hand and the most painful symptom is the dystonia
in my legs.  I do take Norflex an anticholergenic muscle relaxer for the
dystonia, nothing for the tremor.  I recently went to a movement disorder
specialist because after 9 years I thought they could offer me something
better than what I was taking.  To my surprise the doctor told me I was
progressing very slowly and that what I was doing on my own was fine but she
suggested taking Mirapex to alleviate the cramping and to help the tremor so
I tried it.  Well, in just two weeks I was nauseous to the point of being
unable to eat, dizzy so I couldn't drive, arms pinned down to my sides and
shuffling when I walked.  My mind was foggy and my husband says I was getting
a masked look on  my face.  NO THANKS!  If that's the best they've got I
don't want it.  Now I don't claim to have a perfect life, like everyone I
have good days and bad but I feel so much better off the meds than on. And
since they only help the symptoms and not the disease itself I feel I can do
pretty well on my own.  Currently I am taking vit C 500 mg, glutathione 250
mg 2x's,an iron supplement (I am anemic) and bromelain 500 mg daily.  With
the glutethione I have noticed increased energy and dexterity and the
bromelain helps with my allergies and cramping.  I have found a product
called DopaBean by Solaray it's a pill form of mucuna pruriens says it has 50
mg of l-dopa.  If anyone wants to look into it there is a website, I'll get
it and post it.  Well, I have gone on haven't I?  Thanks for the chance to
talk, take care.

Sherry

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