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Sherry - I'm sorry to hear of your experience with Mirapex. My wife is on it and doing fine, thank God. There is no way that you should be on a therapeutically effective dose after taking it for only two weeks. It has to be ramped up VERY slowly. My wife went in 1/16 mg increments, increasing every three days so she didn't reach her precent dosage for 72+ days. Starting Mirapex too quickly is a truly miserable experience, as you discovered. Just out of curiousity, what was your dosing schedule, if you remember. Thanks, Gary > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of Sherry Santamaria > Sent: Friday, June 14, 2002 8:48 AM > To: [log in to unmask] > Subject: To Dee > > > In a message dated 6/12/2002 6:40:07 PM Eastern Daylight > Time, [log in to unmask] writes: > > > > I > > am not sure, at this point, how much of my discomfort is from the > > medication and how much is from PD but I have not reached the point > > that I have decided to discontinue the Requip. The lack of any > > proven, effective treatment, other than the agonists and/or > Sinemet, > > leaves us with little or no choice. I am wondering (after 9 > years with > > PD) how you are managing to function without medication. > > Dear Dee, > I can only speak for myself of course but after 9 years of > NOT taking Parkinsons medication I am doing well. My most > annoying symptoms are the tremor in my right arm and hand and > the most painful symptom is the dystonia in my legs. I do > take Norflex an anticholergenic muscle relaxer for the > dystonia, nothing for the tremor. I recently went to a > movement disorder specialist because after 9 years I thought > they could offer me something better than what I was taking. > To my surprise the doctor told me I was progressing very > slowly and that what I was doing on my own was fine but she > suggested taking Mirapex to alleviate the cramping and to > help the tremor so I tried it. Well, in just two weeks I was > nauseous to the point of being unable to eat, dizzy so I > couldn't drive, arms pinned down to my sides and shuffling > when I walked. My mind was foggy and my husband says I was > getting a masked look on my face. NO THANKS! If that's the > best they've got I don't want it. Now I don't claim to have > a perfect life, like everyone I have good days and bad but I > feel so much better off the meds than on. And since they only > help the symptoms and not the disease itself I feel I can do > pretty well on my own. Currently I am taking vit C 500 mg, > glutathione 250 mg 2x's,an iron supplement (I am anemic) and > bromelain 500 mg daily. With the glutethione I have noticed > increased energy and dexterity and the bromelain helps with > my allergies and cramping. I have found a product called > DopaBean by Solaray it's a pill form of mucuna pruriens says > it has 50 mg of l-dopa. If anyone wants to look into it > there is a website, I'll get it and post it. Well, I have > gone on haven't I? Thanks for the chance to talk, take care. > > Sherry ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn