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To Charlotte and Deborah, Needless to say, you have both written excellent letters. It certainly doesn't take much to realize they have come from deep within not just your hearts but from your souls as well. It is these letters and many like them from time to time that come to represent all of us-even those of us under the PD umbrella who are claimed by no one and who belong nowhere. I feel the depth of your anguish. I feel the intensity of your pleas. I feel your cries for hope. I feel your tears as you search for a better tomorrow. I am aware of all you feel because, joined by millions of others, I feel that way, too. Then I begin to wonder if, perhaps, I am becoming cynical when it comes to THE CURE. It is like the rainbow I can see but cannot touch. It is an illusive firefly. It is a Mexican jumping bean. It is just out of reach. Be aware that I may appear facetious, and forgive me if I play devil's advocate, but I can only hope someone will read these wonderful, explicit letters besides those who are already suffering and their caregivers It's like the homeless on the streets. Very few want to face the problem. Then add that while science has progressed to 2002 and beyond, I'm afraid the only progress the majority of our leaders have made is, "How much was/is your contribution?" along with the potential for "Medieval" practices should A REAL CURE be attempted in our own country! Talk about confusion, frustration, isolation and fear! Why we're being hit with a different media hype of a different decibel every day. We are being bombarded until one day we'll ask ourselves, "What exactly is THE CURE?" "What is it supposed to do?" Did you ever think about all of the organizations that were initially developed to fight the PD dragon? Except for MJF who is a newcomer, look at what's become of the rest of these many organizations. Regardless of their intent, they have become money pits! If the intent and purpose of their aim was/is A CURE, why haven't these individuals/organizations swallowed their pride for the sake of health, THE CURE and sheer time and combined? Think of the weight they could toss around! Think of the potential for the pot of gold at the end of the rainbow I mentioned. Think of the fact that under combined efforts maybe someone will care about and concentrate on QUALITY OF LIFE which seems to fade into the reality fog while one after another our conditions worsen or we are finally put to rest. No, my friends, the cure is not dependent on the NIH. Without it there is heavy private money. THE CURE is dependent on the demise of the Brownbach bill, and the opening of stilted minds. Let us face the reality that this need for a cure has become a power struggle for THE CURE. It has become an economical and political plum. Our futures depend upon the winner! In thought and mind; in caring and friendship, E of the headdress ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn