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Ivan, This is just an idea. Can you ask for some volunteer services over and above 63.5 hours that government is paying for. The volunteers are sometimes available through church or community services. I hope somebody will be able to help you out. It is difficult to understand the cut backs. Take care. Emily ----- Original Message ----- From: "Ivan M Suzman" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, June 21, 2002 12:20 PM Subject: Cutback to be reversed by Sen. Snowe? > 9 Range Street > Portland, Me 04103 > June 21, 2002 > > Dear Senator Snowe, > > I have just become the victim of a 28-hour > per week cut in personal care attendant > (PCA) long-term home care services. > I am now allowed a maximum of > 63.5 hrs. per week, instead of 91 hrs. per week, > of PCA-provided long-term home care. > > My funding source is a Medicaid Waiver for > the Physically Disabled. Federal funds are part > of the funding for this program. I have been > assisted since 1994. The cut shrinks my > care back o the 1996 level of care. > > I am in a group of 51 disabled adults in Maine > who have all been similarly cut..This lost PCA > care, cut back to my 1995 level of care, > is now my burden.!! > > Am I expected to pay for this care?? > It would cost me , at the current pay > rate of $7.71 per hour, $900.00 per month. > > I don't ever have that kind of money. > > My resources are very limited. I currently receive > US Social Security Disability Insurance at $748.00 > per month. I have $140.00 in the bank, no oil in > my oil tank. > > This cut is therefore unimaginably quick and > deep. I had two days ' notice of the cut. > It came by a certified, return receipt requested > photocopied notice, rubber -stamped ,and sent to > a "Ms. Suzman", from the Maine Commissioner for > Human Services' office in Augusta. > > I appeal for your help from the federal government > to restore the cut Medicaid Waiver Funds by Emergency > legislation. I cannot pay for this much-appreciated > PCA care. The devastating effects of Young Onset > Parkinson's Disease will be much harder for me to > curtail, as I am a 19th-year patient, with a difficult > set of symptoms to manage. > > I want to thank you for your help, and for that of LInda > Lyon here in your main office in Portland. I hope you can act quickly > to repair the damage that this huge cut will cause. > > Sincerely yours, > > Ivan Suzman > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn