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Hi Connie

On suggestion is to get your neuroligist to RX speech therapy. Should help
with your quality of voice, It's all in breathing and projecting.

Kaye Trott

----- Original Message -----
From: "Connie De Wolfe" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, June 26, 2002 7:56 PM
Subject: New Member


> Hi,
>
> I'm new to this list. I found out about the list through reading the book
> When Parkinson's Strikes Early. I live in Vancouver, British Columbia,
> Canada. I'm 43, single, and have no kids, no cats, and no dogs. I belong
> the "Book of the Day Club" as I am a voracious reader. I'm also a member
> of Mensa.
>
>  I'm in the middle of diagnosis right now, pending the results of the CT
> scan - but it is almost a given that it is Parkinson's. After the CT scan
> I will be going back to the neurologist, and hopefully begin some sort of
> drug therapy. I definitely have three of the four cardinal signs and
> symptoms: bradykinesia, cogwheel rigidity, and a resting tremor - all
> right sided for now. I also have a number of other secondary stuff
> occurring, like my voice deciding to go hoarse in the middle of a speech
> (which is not "fun" considering that I'm a leader in two different
> Toastmasters clubs). My emotional state is that of being "stunned."
>
> The biggest struggles I'm having these days are with the lack of manual
> dexterity and with stiffness. I struggle daily to count change when going
> through the checkout stand and my longhand writing is becoming miniscule.
> I feel like an old granny trying to get out of my chair at work or getting
> out of bed - stooped over and shuffling along until I get going.
>
> One of my biggest worries is wondering if this will proceed as quickly as
> it did for one of my uncles - he also had Young Onset Parkinson's; his
> tremor was very noticeable by the time he was in his late 40s and he was
> in a nursing home by the time he was in his early 60s. Of course that was
> 20+ years ago, and I'm sure he would have done much better with the type
> of medication and surgical treatment that is now available.
>
> I hope to learn more about coping with this disease, and to give some
> support to others.
>
> Talk to you all later...
>
> Connie
>
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