 |
 |
----- Original Message ----- From: "David Moreland" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, June 29, 2002 10:55 PM Subject: Re: David Moreland and DBS surgery > At 08:44 PM 6/29/2002 -0400, you wrote: > >Dear David, My experence with DBS-STN was okay. the surgery took > >away my most bothersome symptom, painful dystonia involving the entire > >left side of my body from head to toe. the pallidotomy I > >had in 1998 was far superior in taking away most of my symptoms Each > >persons experience with PD and its medical and surgical treatments is > >different. I'm curious,David, how long have you had PD? when did you > >the pallidotomy? Diane > > > >---------------------------------------------------------------------- > >To sign-off Parkinsn send a message to: mailto:[log in to unmask] > >In the body of the message put: signoff parkinsn > > Diane, I first noticed some of my PD symptoms in 1987 I was diagnosed in > early 1988.the doctor was cor.myrect in his diagnosis but he was > incompetent.I had the pallidotomy in august of 1995. THat was the best > thing that I ever expriemnced. It took me from the hellish dyskinesia i was > experiencing to an almost normal life. I am now taking a ton of PD meds and > little by little they are starting to fail to do the job. > I was 44 when i noticd symtoms and 45 when diagnosed. I am 59 now.. > > > > Yours and His > > David L.Moreland > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn Just thought I would jump in here with my DBS results. I also had a palidotomy--mine was in 1996. At the time I didn't think it had accomplished very much but looking back on it I think it helped more than I realized. Chiefly, it did away with the terrible jerking and it also served as a sort of plateau when I didn't get any new symptoms for a couple of years. That surgery which I had done in Toronto by Dr. Lozano was a piece of cake compared to the DBS which was done at Cleveland Clinic by Dr Razai. I liked both my surgeons and thought both of them were very skilled. It seems to me that the DBS is more taxing on the patient--at least I did not react as well. After the initial surgery I was hospitalized for a week and waited 3 or 4 additional weeks for the implementation of the generators. Last Tuesday we finally got down to the process of getting them set and finding how much improvement had been realized. Next, I will see a Buffalo doctor who will build on these initial settings. I really have just two improvements so far--my freezing when I walk has been eliminated (I don't walk well and I still need my walker but it doesn't take me as long to get somewhere) and can get out of a chair easier. I am looking forward to some hand improvements also. If you have any questions please ask Joan Holliday [log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn