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Joan, Have you tried the AM radio test that is in the instructions (at least used to be) for the generator to tell if the units are on or off? It is by no means perfect but much better than nothing at all. Paul ----- Original Message ----- From: "Joan Holliday" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, July 01, 2002 7:55 AM Subject: Re: Bilateral DBS I'm probably jumping the gun here as I just had my DBS (both sides at once) in May and June of this year and have only had one session since trying to get adjusted. I don't see the doctor/adjuster until the middle of July. I haven't noticed any hand improvement (still can't write, cut food, or sew} but am walking without freezing and getting out of chairs w/o a tug. At the visit where they first turned me on they chose not to reduce the drugs so I'm struggling with the jerks which I hate. I decided to gradually reduce my dosage of sinemet and permax but haven't found the magic combination yet. I haven't experimented with turning either generator on and off--in fact I'm not sure when they are on except I can walk better with them on and they told me to leave them on so I assume they are still working. I don't have the instrument which tells you whether you are on or off because I didn't want to spend the $2,000. I have been struggling with this crazy disease since 1977 and have spent a substantial sum of money attempting to control it. DBS was my last hurrah. Good luck to all of you. Joan ----- Original Message ----- From: "RON HEIMBACK" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, June 30, 2002 10:49 PM Subject: Bilateral DBS > My wife had DBS in April and March, 2002. The first operation provided > wonderful relief, however the second did not. We recently tried turning > off her second stimulator with great success. She is able to live a > normal life now. We only turn on the second stimulator when the tremor > in her leg bothers her. This is only turned on for a short time [15 > minutes or so] occasionally as this stimulation disturbs her balance and > ability to walk. Has anyone else had a similar experience? > Ron > > --------------------------------------------------------------- ------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ----------------------------------------------------------------- ----- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn