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I'm probably jumping the gun here as I just had my DBS (both sides at once) in May and June of this year and have only had one session since trying to get adjusted. I don't see the doctor/adjuster until the middle of July. I haven't noticed any hand improvement (still can't write, cut food, or sew} but am walking without freezing and getting out of chairs w/o a tug. At the visit where they first turned me on they chose not to reduce the drugs so I'm struggling with the jerks which I hate. I decided to gradually reduce my dosage of sinemet and permax but haven't found the magic combination yet. I haven't experimented with turning either generator on and off--in fact I'm not sure when they are on except I can walk better with them on and they told me to leave them on so I assume they are still working. I don't have the instrument which tells you whether you are on or off because I didn't want to spend the $2,000. I have been struggling with this crazy disease since 1977 and have spent a substantial sum of money attempting to control it. DBS was my last hurrah. Good luck to all of you. Joan ----- Original Message ----- From: "RON HEIMBACK" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, June 30, 2002 10:49 PM Subject: Bilateral DBS > My wife had DBS in April and March, 2002. The first operation provided > wonderful relief, however the second did not. We recently tried turning > off her second stimulator with great success. She is able to live a > normal life now. We only turn on the second stimulator when the tremor > in her leg bothers her. This is only turned on for a short time [15 > minutes or so] occasionally as this stimulation disturbs her balance and > ability to walk. Has anyone else had a similar experience? > Ron > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn