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Janet --That would be a huge help as I am not at my typing best--and my best
isn't very good
Joan Holliday
.
----- Original Message -----
From: "Janet Paterson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, June 30, 2002 10:17 PM
Subject: Re: DBS surgery / joan holliday


> hi all
>
> On Sun, 30 Jun 2002, Joan Holliday <[log in to unmask]> wrote:
> >Just thought I would jump in here with my DBS results.    I also had a
> >palidotomy--mine was in 1996.  At the time I didn't think it had
> >accomplished very much but looking back on it I think it helped more than
> >I realized.  Chiefly, it did away with the terrible jerking and it also
> >served as a sort of plateau when I didn't get any new symptoms for a
couple
> >of years.  That surgery which I had done in Toronto by Dr. Lozano was a
> >piece of cake compared to the DBS which was done at Cleveland Clinic by
Dr
> >Razai.  I liked both my surgeons and thought both of them were very
skilled.
> >It seems to me that the DBS is more taxing on the patient--at least I did
> >not react as well.  After the initial surgery I was  hospitalized for a
week
> >and waited 3 or 4 additional weeks for the implementation of the
generators.
> >Last Tuesday we finally got down to the process of getting them set and
> >finding how much improvement had been realized.  Next, I will see a
Buffalo
> >doctor who will build on these initial settings.  I really have just two
> >improvements so far--my freezing when I walk has been eliminated (I don't
> >walk well and I still need my walker but it doesn't take me as long to
get
> >somewhere) and  can get out of a chair easier.  I am looking forward to
some
> >hand improvements also. If you  have any questions please ask
> >Joan Holliday [log in to unmask]
>
> hi joan
>
> long time no see!
> and it's interesting to hear your update on your surgeries.
> would you like me to update your hole-in-the-head-gang webpage?
>
> janet
>
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