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Joan, Remember this --- it has to be a REALLY CHEAP radio --- the ones that cost $5 or less as Wal-Mart. A good radio will cut out the static. Also --- some settings create more static than others. Some will create a virtual roar on the radio and others may be quite faint. Hold the radio to the wire behind your ear or on top of your head and tune it until you get static. Also move the radio around if you have difficulty until you find where the internal antenna is located. Paul ----- Original Message ----- From: "Joan Holliday" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, July 01, 2002 6:07 PM Subject: Re: Bilateral DBS Yes,, it stiill is in the directions, but when the professional couldn't make the radio work on the right side, I figured there wasn't much hope for me and didn't try it. Joan ----- Original Message ----- From: "P&B Fahr" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, July 01, 2002 2:54 PM Subject: Re: Bilateral DBS > Joan, > > Have you tried the AM radio test that is in the instructions (at > least used to be) for the generator to tell if the units are on > or off? It is by no means perfect but much better than nothing > at all. > > Paul > > ----- Original Message ----- > From: "Joan Holliday" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, July 01, 2002 7:55 AM > Subject: Re: Bilateral DBS > > > I'm probably jumping the gun here as I just had my DBS (both > sides at once) > in May and June of this year and have only had one session since > trying to > get adjusted. I don't see the doctor/adjuster until the middle > of July. I > haven't noticed any hand improvement (still can't write, cut > food, or sew} > but am walking without freezing and getting out of chairs w/o a > tug. At the > visit where they first turned me on they chose not to reduce the > drugs so > I'm struggling with the jerks which I hate. I decided to > gradually reduce > my dosage of sinemet and permax but haven't found the magic > combination yet. > I haven't experimented with turning either generator on and > off--in fact I'm > not sure when they are on except I can walk better with them on > and they > told me to leave them on so I assume they are still working. I > don't have > the instrument which tells you whether you are on or off because > I didn't > want to spend the $2,000. I have been struggling with this crazy > disease > since 1977 and have spent a substantial sum of money attempting > to control > it. DBS was my last hurrah. > > Good luck to all of you. Joan > > > ----- Original Message ----- > From: "RON HEIMBACK" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, June 30, 2002 10:49 PM > Subject: Bilateral DBS > > > > My wife had DBS in April and March, 2002. The first operation > provided > > wonderful relief, however the second did not. We recently > tried turning > > off her second stimulator with great success. She is able to > live a > > normal life now. We only turn on the second stimulator when > the tremor > > in her leg bothers her. This is only turned on for a short > time [15 > > minutes or so] occasionally as this stimulation disturbs her > balance and > > ability to walk. Has anyone else had a similar experience? > > Ron > > > > --------------------------------------------------------------- > ------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > --------------------------------------------------------------- -- > ----- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > --------------------------------------------------------------- ------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ----------------------------------------------------------------- ----- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn